Wan smɔl tumbu we de insay di ed? Lɛ wi lan bɔt kraniopharyngioma insay simpul wɔd dɛn!

Yu dɔn ɛva yɛri bɔt wan strenj tɔŋ we de gro insay di ed, ɔ fɔ se na di bren, nia wan rili smɔl bɔt rili impɔtant gland – di pituitary gland ? Dɛn kɔl dis kraniopharyngioma. E kin rili rare smɔl, we min se nɔto sik we kin afɛkt ɔlman. Bɔt dis smɔl tumbu kin gɛt dis kayn big impak pan yu vishɔn ɛn yu ɛndokrin sistɛm . So mek wi tok abaut dis fo likl mo ditel tide, okay?

Wetin na kraniofarinjioma?

Fɔ tɔk am simpul wan, kraniopharyngioma na wan tumbu we nɔ kin bɔku, we nɔ kin gɛt kansa (benign). I de divɛlɔp nia yu pituitary gland. Di tumbu de gro sloslo. Bɔt i kin afɛkt yu kraynia nerves , mɔ di nerves we de kɔnɛkt to yu vishɔn. I kin afɛkt yu ɛndokrin sistɛm bak, we de kɔntrol di ɔmon dɛn na yu bɔdi.

Di men tritmɛnt fɔ dis na ɔpreshɔn ɛn redyushɔn tɛrapi . Sɔntɛnde, dɛn kin ivin yuz kemotɛrapi fɔ wan patikyula kayn tumbu, we na di papillary subtype.

Di gud nyus na dat, pas 90% pan di pipul dɛm wae gɛt dis tumbu de liv fayv ia afta dɛn dɔn no se dɛn gɛt dis sik. Bɔt dɛn kin tek dis tumbu as sik we nɔ de mɛn . Bikɔs nɔto ɔltɛm tritmɛnt kin mɛn di ɔda tin dɛn we dis tumbu kin kam wit, ɛn dis kayn tumbu kin kam bak.

Udat kin gɛt kraniopharyngioma?

Ɛvri ia, lɛk tu pipul dɛn pan ɛvri milyɔn kin gɛt wan pan tu kayn kraniopharyngioma: adamantinomatus ɛn papillary . Dɛn kin bɔrku pan tu ej grup dɛm:

• Pikin dɛn we ol bitwin 5 ɛn 14 ia
• Big pipul dɛn we ol bitwin 50 ɛn 74 ia

pan tap we di adamantinomatus tayp kin divεlכp pan pipul dεm we gεt eni ej, di papillary sכbtayp dεn kin si am mכst pan big pipul dεm.

Aw siriɔs dis kraniopharyngioma de?

Infakt, kraniopharyngioma na siriɔs mɛrɛsin sik. I kin nid fɔ gɛt mɛrɛsin fɔ ɔl in layf. Na lɛk af pan di tumbu dɛn we dɛn kin pul ɔltogɛda wit ɔpreshɔn go kam bak afta sɔm tɛm. Sɔm pan di wɛlbɔdi prɔblɛm dɛn we dɛn tumbu ya kin mek kin kɔntinyu ivin afta dɛn dɔn pul di tumbu.

Wetin na di difrɛns bitwin Kraniopharyngioma ɛn Pituitary Adenoma?

Dɛn tu tin ya kin afɛkt di we aw di ɔmon dɛn de wok.Pituitary adenoma na wan kayn tכmכro we de divεlכp na yu pituitary gland. Bɔt kraniopharyngioma kin kam nia di gland. pan ɔl we di tu kayn tכmכro dεm na benign, kraniopharyngioma kin bi mכr agresiv pas pituitary adenoma.

Wetin na di sayn dɛm fɔ Craniopharyngioma?

Di sayn dɛm wae de sho se di kraniopharyngioma gɛt fɔ du wit di tin dɛm wae kin apun wae sɔmtin kin afɛkt yu ɔr yu pikin in pituitary gland, hypothalamus gland, optic nerves , ɛn in bren.

• Fɔ pikin dɛn: Dis kin afɛkt di we aw pikin dɛn de gro ɛn divɛlɔp. Dis kin sho mɔ pan pikin dɛn pas big pipul dɛn we gɛt kraniopharyngioma.
• Fɔ pikin ɛn big pipul dɛn: I kin afɛkt di we aw dɛn de si tin. spεshal wan, di pεrifεral vishכn kin rεdכks.

Bɔt bikɔs dɛn sik ya kin tan lɛk ɔda sik dɛn, i kin at fɔ lɛ dɔktɔ dɛn no kwik kwik wan se na dis tumbu de mek dɛn sik ya.

di kכndishכn dεm we de kכz fכ prεshכn pan di pituitary gland

Yu ɔ yu pikin in pituitary gland de kɔntrol bɔku pan di ɔmon dɛn we de na di bɔdi. we kraniopharyngioma prεs pan dis gland, dεn kכndyushכn dεm ya kin apin:

• Growth Hormone (GH) deficiency: Dis kin mek pikin dɛn nɔ gro fayn. pan big pipul dεm, GH we dεn nכ gεt kin mek dεn wik, dεn kin gεt כ stioporosis ( di bon dεm we de tכn), dεn mכsul dεm kin dכn trεnk, LDL kכlestכl kin bכku, εn at sik.
• Gonadotropin deficiency: Pipul wae gɛt dis sik kin gɛt delay puberty. Uman dɛn kin stɔp fɔ gɛt mɔnt, we na wan sik we dɛn kɔl amenɔria .
• Adrenocorticotropic hormone (ACTH) deficiency: Dis kin mek yu wik ɛn taya. I kin mek bak yu nɔ gɛt bɔku bɔku bɔdi, yu nɔ kin want fɔ it, yu mɔsul dɛn kin wik, yu nɔs ɛn vɔmit, ɛn yu blɔd prɛshɔn smɔl ( hypotension ).
• Thyroid Stimulating Hormone (TSH) deficiency: Pipul wae gɛt low TSH kin gɛt sɔm kayn sik lɛk wae dɛn taya, nɔr kin gɛt prɛgnɛshɔn ɔltɛm, ɛn fɔgɛt.
• Sɛntral Dayabitis Insipidus (CDI): Dis sik kin bi we pɔsin kin tɔsti pasmak ( polydipsia ) ɛn i kin pis bɔku tɛm ( polyuria).) apin. Pipul wae gɛt CDI kin gɛt sɔm kayn tin lɛk wae dɛn nɔr gɛt wata na dɛn bɔdi , dɛn at nɔr kin bit ɔltɛm, dɛn kin gɛt fiva, dɛn skin ɛn dɛn mכkus mɛmbran dray, dɛn kin kɔnfyus, ɛn dɛn kin gɛt sik.

di kכndishכn dεm we de kכz fכ prεshכn pan di haypothalamus

Yu ɔ yu pikin in haypothalamus de kɔntrol di tin dɛn we de apin na di bɔdi lɛk aw i de fil, angri ɛn tɔsti, aw i de slip, ɛn aw i de du mami ɛn dadi biznɛs. we kraniopharyngioma tכmכro prεs pan di haypothalamus, dεn kכndyushכn dεm ya kin apin:

• Hypothalamic obesity: Dis kin min fɔ fat we kin apin pan ɔl we dɛn nɔ gɛt bɛtɛ kalori, ɛksesaiz, ɛn kɔntrol di it.
• Froehlich’s syndrome: Pipul wae gɛt dis sik kin fil angri ilɛksɛf dɛn it bɔku, ɛn dis kin mek dɛn fat. Pikin dɛm wae gɛt Froehlich’s syndrome kin de divɛlɔp sloslo pas ɔda pikin dɛm. Sɔm pikin dɛn kin nɔ si fayn bak ɛn dɛn kin gɛt prɔblɛm wit dɛn maynd.
• Nɔn-24 awa slip-wek syndrome: Dis na wan sik wae de mek pipul dɛn nɔr kin ebul fɔ fala di nɔmal slip schedule. Sɔm pipul dɛn kin gɛt siriɔs prɔblɛm wit slip .

Aw dis tumbu kin afɛkt yu ɔ yu pikin in yay?

Bɔku tɛm, di tכmכro dεm we de na di kraniopharyngioma kin kam nia yu כ yu pikin in optik nεv dεm . we dεn kכmprεs dεn nεv dεm ya, dεn kin mek yu si blכr כ prכblεm wit pεrifεral vishכn.

Wetin kin mek pɔsin gɛt kraniopharyngioma?

Risach pipul dɛn stil nɔ no di rayt tin we kin mek i apin, bɔt dɛn biliv se dɛn tumbu ya kin kɔmɔt frɔm sɛl dɛn we kin ɛp fɔ mek yu ɔ yu pikin in pituitary gland. Fɔ sɔm rizin, dɛn sɛl dɛn ya kin bi abnɔmal, dɛn kin bɔku, ɛn dɛn kin gro.

Aw dɔktɔ dɛn kin no se yu gɛt Craniopharyngioma?

If dɛn de chɛk yu fɔ dis kayn tumbu, yu dɔktɔ kin aks yu bɔt yu mɛdikal istri ɛn aw yu bɔdi de gro. If dɛn de chɛk yu pikin, dɛn kin aks am bɔt aw in bɔdi de gro, aw i de tink, aw i de si, ɛn if i de fil lɛk se i tɔsti ɔ i nid fɔ pis bɔku tɛm.

Us kayn tɛst dɛn kin du?

Dɔktɔ dɛn kin du tɛst dɛn lɛk dɛn wan ya:

• Blɔd tɛst: Dɛn tin ya de mɛzhɔ sɔm ɔmon lɛvɛl dɛn.
• Urinalysis: Dɛn kin chɛk fɔ si if yu gɛt prɔblɛm wit yu kidni.
• CT scan (Computed Tomography - CT scan): dεn de yuz wan siriכs X-ray εn kכmpyuta fכ mek tri-dimenshכnal (3D) imej dεm fכ sכft tisu dεm εn bon dεm.
• MRI Skan (Magnɛtik Rɛsɔnans Imej - MRI):Dis na tɛst we nɔ de mek pɔsin fil pen ɛn we dɛn kin yuz big magnet, redio wev, ɛn kɔmpyuta fɔ mek pikchɔ dɛn we rili klia bɔt di bɔdi in ɔgan dɛn ɛn di tin dɛn we i mek.
• Bayopsi: Dɔktɔ dɛn kin du bayɔpsi (tek wan tisu sɛmpul) ɛn chɛk di sɛl dɛn, wata, tisu, ɔ di tin dɛn we de gro ɔnda maykroskɔp.

Yu tink se dɛn kin trit Kraniopharyngioma?

Dɛn kin trit kraniopharyngioma wit ɔpreshɔn na in bren . dis kin bi bay we yu yuz sכmכl kεmεra (skop) we dεn put tru di nos, כ bay we dεn mek sכm sכm ol na di ed ( craniotomy ). Di gol fɔ di ɔpreshɔn na fɔ pul bɔku pan di tumbu as i pɔsibul ɛn nɔ pwɛl di pituitary gland, haypothalamus, ɔ optik nɛv dɛn. Bɔt sɔm pipul dɛn kin nid fɔ tek ɔmon mɛrɛsin afta dɛn dɔn du dɛn ɔpreshɔn. Apat frɔm dat, dɛn kin se dɛn fɔ yuz redyushɔn tɛrapi afta dɛn dɔn du di ɔpreshɔn if dɛn nɔ ebul fɔ pul di tumbu ɔltogɛda sef wan.

Wetin na di bad tin dɛn we kin apin we pɔsin du ɔpreshɔn?

Di ɔpreshɔn we dɛn kin du fɔ mek pɔsin gɛt krayofarinjioma kin rili tranga . Fɔs, bikɔs dɛn tɔŋ ya kin gro nia di nɛf dɛn we rili dilik ɛn di pituitary gland, dat kin mek dɛn pwɛl dɛn. Sɛkɔn, fɔ pul kraniopharyngioma tan lɛk fɔ pul stika na ɛnvilɔp we nɔ pwɛl di ɛnvilɔp. dis na biכs dεn tכmכro dεm ya de tay tayt wan pan di pituitary gland εn di nεv dεm we de kכnekt to vishכn. Sɔm dɔktɔ dɛn biliv se we pɔsin du ɔpreshɔn fɔ pul dɛn tumbu ya, i kin mek i sɔfa jɔs lɛk di tumbu insɛf. So, i impɔtant fɔ ɔndastand bifo tɛm wetin na di rizin fɔ di ɔpreshɔn ɛn us sayd ɛfɛkt dɛn fɔ ɛkspɛkt.

Yu tink se dɛn kin ebul fɔ protɛkt Kraniopharyngioma?

Bɔt i sɔri fɔ no se dɛn nɔ kin ebul fɔ stɔp dɛn tumbu ya. Dɛn kin fɔm bikɔs ɔf di chenj dɛn we de apin na di sɛl dɛn we kin apin we yu ɔ yu pikin in bɔdi de gro.

Aw lɔŋ yu kin liv wit Kraniopharyngioma?

Bɔku pipul dɛn kin liv fɔ lɔng lɔng tɛm afta dɛn dɔn gɛt tritmɛnt. Bɔt bɔku tɛm, dɛn tumbu ya kin kam bak. כlsay, lεk 17% pan di tכmכro dεm we dεn kin pul kכmplit wan wit כpεrayshכn go kam bak. dis nכmba de inkrεs to 25% to 63% fכ di tכmכro dεm we dεn kכl כnli pat. Mɔs pan di kraniopharyngiomas we kin kam bak go kam bak insay tri ia afta dɛn dɔn du di ɔpreshɔn.

Sɔm dɔktɔ dɛn kin tek kraniopharyngioma as wan sik we nɔ de mɛn we nid fɔ kia fɔ lɔng tɛm ɛn wach am. Bɔku rizin dɛn de fɔ dis:

• Yu ɔ yu pikin kin nid ɔda ɔpreshɔn fɔ pul wan tumbu we kin kam bak.
• If yu ɔ yu pikin in pituitary gland ɔ hypothalamus gɛt tumor ɔ ɔpreshɔn, i kin nid fɔ gɛt ɔmon riplesmɛnt tritmɛnt .
• Bɔrku pikin dɛm wae gɛt hypothalamic obesity wae de kam wit di tumor kin gɛt ɔda kayn wɛl bɔdi prɔblɛm. If yu pikin gɛt hypothalamic obesity, yu go nid sɔpɔt ɛn gayd fɔ ɛp yu pikin fɔ pik gud it ɛn fɔ ɛksesaiz ɔltɛm.

Ustɛm mi/mi pikin fɔ go to dɔktɔ?

Yu ɔ yu pikin go mɔs gɛt fɔ liv wit kraniopharyngioma fɔ bɔku ia. Dɛn tumbu ya kin gro bak, ɛn di tritmɛnt nɔ kin pul ɔl di sik dɛn kɔmɔt kpatakpata. Tink bɔt dɛn tin ya we yu de plan aw fɔ kia fɔ yu/yu pikin:

• Yu fɔ go to yu dɔktɔ ɛvri ia fɔ wach yu ɔ yu pikin in ɔl wɛlbɔdi.
• Yu ɔ yu pikin in dɔktɔ go mɔs ɔda fɔ mek dɛn du skan ɛvri ia, bɔku tɛm na MRI skan , fɔ chɛk fɔ si if di tumbu dɛn de kam bak.
• Yu ɔ yu pikin kin nid ɛp fɔ mɛn di tin dɛn lɛk we i nɔ gɛt ɔmon ɔ we i gɛt prɔblɛm wit di we aw i de si we dɛn nɔ bin kɔrɛkt bay we dɛn du ɔpreshɔn.

Us kwɛstyɔn dɛn a fɔ aks mi/mi pikin in dɔktɔ?

Pan ɔl we kraniopharyngioma na wan tumbu we nɔ kin bɔku ɛn we nɔ kin gɛt kansa, i kin mek pɔsin gɛt bɔku prɔblɛm dɛn we nɔ kin izi fɔ mɛn pipul dɛn we nid fɔ tek kia fɔ lɔng tɛm. If yu ɔ yu pikin gɛt dis tumbu, yu kin wɔri bɔt aw fɔ kɔntrol dis sik we yu go gɛt fɔ yu layf. Na sɔm kwɛstyɔn dɛn we go ɛp yu fɔ tɔk to yu ɔ yu pikin in dɔktɔ:

• A nɔ ɛva yɛri bɔt dis frut. Yu go ebul fɔ ɛksplen wetin i bi?
• dis tumor kin mek mi/mi pikin geht oda siriכs mεdikal prכblεm?
• Wetin mek mi/mi pikin gɛt dis tumbu?
• Us tritmɛnt opshɔn dɛn de?
• Wetin na de chans fɔ mek di tritmɛnt go bifo?
• Di tritmɛnt go mek mi/mi pikin in sik go dɔn?
• Wetin na di shɔt tɛm ɛn lɔng tɛm sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
• Wetin kin apin if di tumbu gro bak?

Ivin if yu du ɔpreshɔn fɔ pul wan kraniopharyngioma, dɛn tumbu ya we nɔ kin bɔku ɛn we nɔ kin gɛt kansa kin afɛkt yu ɔ yu pikin fɔ lɔng tɛm. Apat frɔm dat, yu ɔ yu pikin kin nid fɔ kɔntinyu fɔ kia fɔ di sik dɛn we di tumbu dɔn mek. Na wan we, kraniopharyngioma na wan sik we nɔ de mɛn we yu ɔ yu pikin go gɛt fɔ manej fɔ di res ɔf yu layf. Pan ɔl we dɔktɔ dɛn nɔ kin ebul fɔ mɛn am kpatakpata, dɛn kin du dɛn bɛst fɔ ɛp yu ɛn yu pikin fɔ bia wit di prɔblɛm dɛn we kin apin we dɛn de liv wit dis tumbu we nɔ kin bɔku.

Fɔ dɔn, mɛsej we yu kin kɛr go na os:

Kraniopharyngioma na siriɔs ɛn nɔr kin bɔku, bɔt dɛn kin ebul fɔ mɛn am wit di rayt mɛrɛsin ɛn plan fɔ lɔng tɛm.

• Tek dɔktɔ advays ɔltɛm: I rili impɔtant fɔ de tɔk to yu mɛdikal tim ɛn atɛnd di tɛst ɛn apɔntinmɛnt dɛn we dɛn dɔn sɛtul fɔ du.
• Stay op: Pan ɔl we dis na tranga waka, nɔto yu wangren de. If dɔktɔ dɛn, yu fambul dɛn, ɛn yu padi dɛn go sɔpɔt yu, yu go gɛt di trɛnk fɔ pas dis.
• Fɔ no bɔt dis sik: If yu no gud gud wan bɔt dis sik, di tritmɛnt dɛn we i kin gɛt, ɛn di prɔblɛm dɛn we kin apin to yu, dat go ɛp yu fɔ disayd fɔ du sɔntin we yu no.

Mɛmba se, fɔ no bɔt dis sik kwik kwik wan ɛn fɔ mɛn am fayn fayn wan na di bɛst we fɔ liv fayn fayn wan wit dis sik. If yu ɔ yu pikin gɛt ɛni wan pan dɛn sik ya, nɔ shem fɔ go to dɔktɔ.

` Kraniopharyngioma, bren tכmכro, pituitary gland, כmon, vishכn, pikin hεlth, tכmכro dεm we nכ de kεnsar