Yu pikin de tɔn blu? Na saynotik at sik de? Lɛ wi tɔk bɔt dis!

Yu smɔl pikin in lip, in tɔŋ, ɛn in finga dɛn kin tɔn blu sɔntɛnde? Ɔ yu kin fil lɛk se i nɔ kin izi fɔ dɛn fɔ blo ɔ dɛn nɔ kin no natin kwik kwik wan? Sɔntɛnde, dis kin kam bikɔs ɔf smɔl prɔblɛm wit di at. Tide wi go tɔk bɔt wan at sik we de de we dɛn bɔn am. Dɔktɔ dɛn kɔl dis saynotik kɔnjɛnital at sik (CCHD) . Fɔ tɔk am simpul wan, na at sik we kin mek di bɔdi tɔn blu.

So, wetin na dis saynotik at sik?

Fɔ tɔk am simpul wan, "congenital heart disease" de tɔk bɔt wan ɔ mɔ abnɔmal tin, ɔ difrɛns, na di at we de de we dɛn bɔn am. Tu men kayn dɛn de:

1. Cyanotic Congenital Heart Disease (CCHD): Dis na wan sik we di at nɔ kin ebul fɔ kɛr inof ɔksijɛn go na di ɔda pat na di bɔdi. Sɔntɛnde dɛn kin kɔl dis kayn at sik we pɔsin kin bɔn wit . We dɛn bɔn pikin wit dis sik, dɛn skin kin tan lɛk blu, we na wan sik we dɛn kɔl saynosis . Dis blu kכla de kכz di bכdi nכ de gεt inof כksijεn.

2. Acyanotic Congenital Heart Disease: pan dis kayn hat difεkt, di כksijεn we de rich di rεst pat na di bכdi nכ de afekt bכku bכku wan. Dis min se di pikin nɔ de tɔn blu.

Tide wi de tɔk mɔ bɔt di fɔs kayn, we na saynotik at sik (CCHD).

Aw dis saynotik at sik kin afɛkt di bɔdi?

Yu no, wi bɔdi nid ɔksijɛn fɔ mek i wok fayn. Jɔs lɛk aw motoka nid petrol fɔ mek i ebul fɔ rɔn. Insay saynotik at sik, di bɔdi nɔ kin gɛt di ɔksijɛn we i nid. Dɛn strɔkchɔral abnɔmaliti, ɔr difrɛns, na di at kin mek siriɔs prɔblɛm ɛn sɔm tɛm dɛn kin ivin day.

Tink bɔt am, wi blɔd de kɛr ɔksijɛn go ɔlsay na wi bɔdi. Di at de pɔmp dis blɔd ɔlsay na di bɔdi. Naw, wetin kin apin if blɔd we nɔ gɛt ɔksijɛn kam insay di bɔdi bikɔs ɔf at prɔblɛm? Na dat kin apin insay dis kes.

Aw dis sik kin kɔmɔn?

Insay di wɔl, pan ɛvri 1,000 pikin dɛn we dɛn bɔn layf layf, lɛk 8 ɔ 9 pan dɛn gɛt at sik we dɛn bɔn wit. Fɔ dɛn wan ya , lɛk 25%, ɔ lɛk wan kwata, gɛt dis sik (CCHD) . So, pan ɔl we dis nɔ kin rili kɔmɔn, i impɔtant fɔ mek wi no.

Us mistek kin apin wit `CCHD`?

Saynotik hat sik kin sheb to tri men kayn. Pan ɔl we dɛn wɔd ya na smɔl mɛrɛsin wɔd dɛn, a go ɛksplen dɛn simpul wan.

1. Lεft hat obstrכktiv lεsin dεm (Lεft hat obstrכktiv lεshכn dεm) .

dis difεkt dεm we dεn bכn wit di at de ridyus di bכdi we de fכm frכm di at to di rεst pat na di bכdi (dεn kכl am `sistεmik bכdi fכ fכlכ`). Sɔm ɛgzampul dɛn bɔt dis na:

• Hypoplastic Lɛft At Sindrɔm (HLHS):Dis na we di lɛft say na di at nɔ de divɛlɔp fayn fayn wan. Imajin se di lɛft say na di at, we na di men pat we de pɔmp blɔd to di bɔdi, tu smɔl. Dɔn i nɔ kin ebul fɔ pɔmp inof blɔd to di bɔdi.
• Interrupted Aortic Arch: Dis na we di aorta, we na di men blɔd vesel we de kɛr blɔd frɔm di at to di bɔdi, nɔ kɔmplit. I tan lɛk se wata paip de brok na di midul.

2. Rayt at we de ambɔg di lɛsin dɛn

dis difεkt we dεn bכn wit di at de ridyus di bכdi we de fכm frכm di at to di lכng dεm (dεn kכl am `pulmonary flow`). Blɔd kin go na di lɔng dɛn fɔ pik ɔksijɛn. So, fɔ ridyus am na prɔblɛm. Ɛgzampul dɛn fɔ dis:

• Pulmonary Atresia (PA): Di pulmonary valv we de kɛr blɔd frɔm di rayt say na di at to di lɔng dɛn, tan lɛk domɔt. insay dis kכndishכn, di valv nכ de fכm fayn כ i de blכk.
• Tricuspid Atresia: di tricuspid valv na di valv bitwin di tu chεmba dεm (atrium εn ventricle) na di rayt say na di at. Insay dis kɔndishɔn, di valv nɔ de wok fayn. wan tik flap fכ tisu de blכk di fכ fכm di bכdi frכm di rayt atria to di rayt vεntrikl.
• Tetralogy of Fallot (TOF): Dis na di kayn hat sik we dɛn kin bɔn wit (CCHD). I kin bi se i gɛt 4 at prɔblɛm dɛn.

3. Fɔ miks di lɛsin dɛn

Dis na di tɔd kayn ``(CCHD)``. dis at defεkt de mek di bכdi we de go na di lכng (bכlכd we gεt lכw כksijεn) εn di bכdi we de go na di bכdi (bכd we gεt hכy כksijεn) de miks togeda. Sɔm ɛgzampul dɛn bɔt dis na:

• Transposishכn fכ di Gret Atεri (TGA): insay dis kכndishכn, di tu men bכdi vεsul dεm we de kכmכt na di at (di men pulmonari at εn di aorta) de swich. Dis min se blɔd nɔ de flɔ usay i fɔ flɔ. Dis na di sɛkɔn tin we kin apin afta CCHD.
• Tכtal Anomalous Pulmonary Venous Return (TAPVR): pan pikin we gεt TAPVR, di bכdi we gεt כksijεn frכm di lכng dεm nכ de fכlכ to di lεft say na di at lεk aw i fכ fכlכ. Bifo dat, di blɔd de flɔ na di rayt say na di at.
• Truncus Arteriosus: pan dis kכndyushכn, na wan men blכd vesel nכmכ de insted fכ tu difrεnt bכdi we de kכri bכdi go na di bכdi εn lכng.

Pan ɔl we dɛn tin ya kin tan lɛk se dɛn at fɔ du smɔl, dɔktɔ dɛn kin no ɛn trit dɛn. E fayn fɔ mek yu no se yu kin gɛt dis sik.

Wetin na di tin dɛm wae kin mek pɔrsin gɛt saynotic congenital hat sik?

Sayɛnsman dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt CCHD, bɔt dɛn dɔn tɔk bɔt sɔm kes dɛn we gɛt fɔ du wit:

• di kromozom dεm we nכ nכmal.
• Jɛnɛtiks.
• Sɔm mɛrɛsin dɛn we di mama kin gɛt we i gɛt bɛlɛ: Fɔ ɛgzampul, dayabitis, phenylketonuria (wan blɔd dizayd), yuz drɔgs, ɔ vayral infɛkshɔn.

Wetin na di sayn dɛm fɔ `CCHD`?

Di sayn dɛm fɔ CCHD kin apin insay di fɔs wik dɛm na layf , bɔt i nɔ kin si te i smɔl. Di sayn dɛm na:

• Blu ɔ pepul skin (Cyanosis): mɔ di lip, tɔŋ, ɛn finga dɛn.
• Fɔ blo kwik kwik wan (Tachypnea).
• At bit kwik kwik wan (Tachycardia).
• Ɛdima we de na di pulmonari.
• Wan abnɔmal at sawnd (Hat murmur): Dɛn kin yɛri dis sawnd we dɔktɔ de lisin wit stetɔskɔp.
• Fɔ nɔr kin rɛst ɔltɛm ɔr kin slip pasmak, nɔr kin intres `(Irritability or lethargy)`.
• Di ɔksijɛn lɛvɛl we de na di bɔdi we de go dɔŋ.
• We yu gɛt bɔku bɔku wet kin apin smɔl smɔl.
• We yu de swet ɔ kray we yu de gi pikin in bɛlɛ.
• Pikin dɛn we dɔn big kin gɛt prɔblɛm fɔ blo we dɛn de du ɛksɛsayz.
• Wik puls.

If yu pikin gɛt wan ɔ mɔ pan dɛn sik ya, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm .

Aw dɛn kin no se pɔsin gɛt saynotik at sik?

Sɔntɛnde, dɛn kin no CCHD bifo dɛn bɔn di pikin . If dɛn du skan we dɛn kin du ɔltɛm we uman gɛt bɛlɛ (fetal ultrasound) sho se prɔblɛm de wit di pikin in at, di dɔktɔ kin ɔda fɔ mek dɛn tek di pikin in ɛkokadiogram . dis min fכ pas wan spεshal tin tru di mama in bεlε כ in vagina fכ tek ditayl pikchכ dεm fכ di pikin in at.

afta dεn bכn pikin, di fכs tin we dεn kin du fכ no se i gεt CCHD na fכ du puls oximetry screening . Dis na simpul tɛst we nɔ gɛt pen ɛn we de yuz sɛns fɔ no di ɔksijɛn lɛvɛl na di bɔdi. Dis na wan pan di standad tɛst dɛm we dɛn kin du bifo dɛn pul pikin na os frɔm ɔspitul.

Apat frɔm dat, dɛn kin du mɔ tɛst dɛn:

• di chεst εks-ray: Dis de tek pikchכ dεm insay di chεst fכ chεk fכ di strכkchכral abnכmaliti dεm. Dis kin ɛp fɔ no if di pikin gɛt at prɔblɛm ɔ in lɔng prɔblɛm.
• Hyperoxia test (oxygen challenge): Dis test de ɛp dɔktɔ dɛn fɔ no if pikin gɛt CCHD ɔ i gɛt prɔblɛm wit in lɔng. di pikin in bכdi כksijεn lεvεl dεn de mכsu we dεn de brith nכmal rum εya, εn afta dat bak afta 10 minit 100% כksijεn.
• Ilɛktrokardiogram (EKG ɔ ECG): Dis de mɛzhɔ di ilɛktrik wok we di at de du.
• Echocardiogram (Echo): Dis na tɛst we dɛn kin yuz ɔltra saund tɛknɔlɔji fɔ tek pikchɔ fɔ di at in valv ɛn chɛmba dɛn.

Aw dɛn kin trit CCHD?

Bɔku pikin dɛn we gɛt CCHD nid tritmɛnt fɔ mek dɛn kɔntinyu fɔ liv. Dis inklud:

• Ɔksijɛn tɛrapi: I de gi mɔ ɔksijɛn pas aw i de na di nɔmal rum briz.
• Prostaglandin E1: Dis de mek di smol smol mכsul dεm na di at rilaks εn i de opin di ductus arteriosus (wan spεshal bכdi vεsεl). Dis kin ɛp fɔ mek blɔd flɔ.
• Ɔpreshɔn: Dɛn kin du ɔpreshɔn fɔ mek di at pwɛl ɔ fɔ chenj di we aw blɔd de flɔ.

Dɔktɔ dɛn kin disayd fɔ du dɛn tritmɛnt ya bay aw di pikin de ɛn di kayn we aw di at pwɛl.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt CCHD?

Sayɛnsman dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt saynotik at sik, so no we nɔ de we dɛn dɔn pruv fɔ mek i nɔ gɛt am. Bɔt bɔku tɛm i impɔtant fɔ mek di mama gɛt wɛlbɔdi we i gɛt bɛlɛ, kɔntrol di tin dɛn lɛk dayabitis, ɛn nɔ tek drɔgs.

Wetin na di fiuja fɔ pikin dɛn we gɛt saynotik at sik?

Bebi dɛn we gɛt saynotik at sik nid fɔ gɛt ɔpreshɔn fɔ mek dɛn kɔntinyu fɔ liv. Ivin so, di pipul dɛm we de day kin bɔku smɔl. Na lɛk 75% pan di pikin dɛn we gɛt CCHD kin liv fɔ wan ia, ɛn lɛk 69% kin liv fɔ 18 ia .

Bikɔs di ɔksijɛn lɛvɛl smɔl na di bɔdi ɛn di at we dɛn bɔn wit, pikin dɛn we gɛt CCHD kin gɛt risk fɔ:

• Divɛlɔpmɛnt dilɛys.
• Di at bit we nɔ de bit ɔltɛm (Aritmia).
• At we nɔ de wok fayn.
• Di at kin stɔp wantɛm wantɛm.
• Strok.

Bɔt dɛn kin ebul fɔ sɔlv dɛn prɔblɛm ya mɔ if dɛn gɛt di rayt mɛrɛsin ɛn fala dɛn .

Wetin na de tin wae yu fɔ no wae yu de liv wit saynotik hat sik?

If yu ɔ yu pikin gɛt CCHD, bɔku tɛm yu dɔktɔ go tɛl yu fɔ du dɛn tin ya:

• Gɛt ɔl yu vaysin: Dis kin ɛp fɔ protɛkt yu frɔm ɔda sik dɛn.
• Go fɔ chɛk-ap ɔltɛm ɛn fɔ fala am lɛk aw yu dɔktɔ we de mɛn yu at dɔn tɛl yu.
• Protɛkt yusɛf frɔm infɛkshɔn lɛk Respiratory Syncytial Virus (RSV): Praktis gud hajɛns ɛn nɔ de nia pipul dɛn we sik.
• Tek antibayɔtik fɔ mek yu nɔ gɛt di sik bifo yu du yu tit (dɛn fɔ du dis lɛk aw yu dɔktɔ tɛl yu).

Di tin we impɔtant pas ɔl na fɔ nɔ fred ɔ panik, ɛn fɔ fala di dɔktɔ in instrɔkshɔn dɛn di rayt we. Di mɛrɛsin we dɛn de yuz tide gɛt tritmɛnt dɛn we rili fayn fɔ dɛn kayn sik dɛn ya.

Di tin we impɔtant pas ɔl fɔ mek yu mɛmba (Take-Home Message) .

Cyanotic congenital heart disease (CCHD) na wan kכndyushכn we di pikin in skin de tכn blu biכs fכ wan congenital hat difεkt we de ridyus di כksijεn we de sכkכt כlsay na di bכdi.

• E fayn fɔ no di sik wae de kam kwik kwik wan. If yu pikin tɔn blu, i nɔ izi fɔ blo, ɔ i nɔ de no natin kwik kwik wan, go to dɔktɔ wantɛm wantɛm.
• Tɛst dɛn de we kin no dis sik bifo ɔ jɔs afta dɛn bɔn am .
• Bɔku pikin dɛn we gɛt CCHD nid ɔksijɛn tɛrapi ɛn ɔpreshɔn fɔ mek dɛn kɔntinyu fɔ liv.
• If dɛn gɛt di rayt tritmɛnt ɛn dɛn de kia fɔ dɛn pikin ya fɔ lɔng tɛm, dɛn kin gɛt di chans bak fɔ liv nɔmal layf as dɛn ebul.
• Nɔto yu wan de. As mama ɔ papa, yu kin gɛt prɔblɛm wit yu maynd we yu gɛt prɔblɛm lɛk dis. Aks ɛp frɔm dɔktɔ, famili, ɛn if nid de, advays savis.

A op se dis infɔmeshɔn go ɛp yu. Wi de wish yu pikin fɔ wɛl kwik kwik wan!

` Saynotik hat sik, we dɛn bɔn wit at prɔblɛm, CCHD, bebi bluz, at ɔpreshɔn, ɔksijɛn we nɔ de, pikin dɛn at sik