Sɔm pan wi brɔda ɛn sista dɛn, mɔ di wan dɛn we gɛt sik dɛn lɛk Thalassemia, gɛt fɔ tek blɔd ɔltɛm. Dis na sɔntin we rili impɔtant na dɛn layf. Bɔt we wi kɔntinyu fɔ gɛt blɔd dis kayn we, mɔ ayɛn kin gɛda na wi bɔdi pas aw wi bɔdi nid. Jɔs lɛk wata tank we ful-ɔp wit wata ɛn kɔntinyu fɔ bɔl we wi kɔntinyu fɔ tɔn wata. Dis ayron we pasmak kin pwɛl impɔtant ɔgan dɛn lɛk wi at ɛn liva. So, wan spɛshal mɛrɛsin we dɔktɔ dɛn kin gi fɔ kɔntrol dis aynɔ we pasmak, dɛn kɔl am Deferipron. Tide, lɛ wi tɔk bɔt dis mɛrɛsin.
Fɔ tɔk am simpul wan, wetin na Deferipron?
Deferipron na wan drɔg we de ɛp yu bɔdi fɔ tek di ayron we pasmak ɛn pul am kɔmɔt na di urine. Lɛk ayɛn magnet, dis drɔg de pul di ayɔn patikyula dɛn we yu nɔ want frɔm yu blɔd. Dis kin ɛp fɔ mek di ayɛn lɛvɛl na yu bɔdi insay say we sef. Dɛn kin sɛl dis mɛrɛsin ɔnda di brand nem Fɛriproks. I kin kam as sɔlv we dɛn kin tek bay mɔt.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
I rili impɔtant fɔ mek yu dɔktɔ no gud gud wan bɔt yu wɛlbɔdi biznɛs bifo i gi yu dis mɛrɛsin. So, if yu gɛt ɛni wan pan di kɔndishɔn dɛn we de dɔŋ ya, mek shɔ se yu tɛl dɛn bɔt am.
- Di sik we yu gɛt naw: Tɛl yu dɔktɔ if yu gɛt ɛni sik, lɛk fiva, kɔf, kol, ɔ trot we de at, bikɔs sɔntɛnde dis mɛrɛsin kin mek di wayt blɔd sɛl dɛn we de ɛp di bɔdi in imyun sistɛm nɔ bɔku.
- Liva sik: Dis kin rili impɔtant if yu gɛt liva kɔndishɔn we bin dɔn de bifo.
- Lɔw blɔd sɛl: If dɛn dɔn no se yu gɛt smɔl wayt blɔd sɛl, rɛd blɔd sɛl, ɔ pletlɛt na yu blɔd, duya mek wi no.
- Alɛji: Nɔ fɔgɛt fɔ tɛl wi if yu gɛt ɛni alɛji to Deferipron ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- Bεlε εn bεlε: If yu bεlε, yu de tray fכ bεlε, כ yu de gi pikin bεlε, yu f כ rili tεl yu dכkta. Wi go tɔk mɔ bɔt dis.
Di kɔrɛkt we fɔ yuz di mɛrɛsin
Fɔ mek yu gɛt di bɛst pan di mɛrɛsin, yu nid fɔ yuz am lɛk aw dɛn tɛl yu fɔ yuz am.
1. Tek am di rayt tɛm: Tray fɔ tek yu mɛrɛsin di sem tɛm ɛvride , lɛk aw yu dɔktɔ tɛl yu. Dis go ɛp fɔ mek di mɛrɛsin kɔntinyu fɔ de na yu bɔdi.
2. Kɔrɛkt mɛzhɔmɛnt: Yu go gɛt spɛshal mɛzhɔmɛnt kɔp wit dis mɛrɛsin.Mek shɔ se yu mɛzhɔ di mɛrɛsin wit dat nɔmɔ. Nɔ yuz di ti spɔnj ɔ tebul spɔnj we yu gɛt na os, bikɔs dɛn nɔ de mɛzhɔ di rayt we.
3. Tek di ful doz: Afta yu tek di mɛrɛsin, ad smɔl wata (we na lɛk 10-15 ml) to di mɛzhɔmɛnt kɔp, shek am fayn fayn wan, ɛn drink di wata. Dis go ɛp fɔ sɔlv ɛni mɛrɛsin we lɛf na di kɔp.
4. Bifo ɔ afta yu it: Yu kin tek dis bifo ɔ afta yu it. Bɔt if yu fil se yu bɛlɛ de pwɛl ɔ yu nɔ de fil fayn, i go bɛtɛ fɔ mek yu tek am wit it.
5. We yu de tek wit ɔda mɛrɛsin: If yu de tek antasid (likwid/tablɛt we dɛn kin yuz fɔ gastritis), vaytamɛn dɛn we gɛt ayɛn, zink, ɔ aluminiɔm, nɔ tek dɛn wit dis Deferiprone mɛrɛsin. Yu fɔ tek dɛn kayn tin ya 4 awa bifo ɔ 4 awa afta yu tek Deferipron .
Nɔ stɔp fɔ tek di mɛrɛsin te yu dɔktɔ tɛl yu fɔ tek am. I rili impɔtant fɔ dɔn di tritmɛnt we dɛn dɔn tɛl yu fɔ du, ilɛksɛf yu fil fayn.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
Ɛnibɔdi kin fɔgɛt. If yu mis wan doz, tek am jɔs afta yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek tu dos wan tɛm fɔ ɛni rizin.
Speshal pɔynt dɛn we yu fɔ no we yu de tek dis mɛrɛsin
- Yu fɔ chɛk yu mɛrɛsin ɔltɛm: Afta yu dɔn bigin fɔ tek dis mɛrɛsin, yu dɔktɔ go aks yu fɔ go si am ɔltɛm ɛn du blɔd tɛst. Speshali, i go aks yu fɔ du kɔmplit blɔd kɔnt wan tɛm insay di wik. Dis na bikɔs dis mɛrɛsin nɔ kin rili mek di wayt blɔd sɛl dɛn nɔ bɔku (Agranulocytosis). Dɛn blɔd tɛst ya kin no if yu de pan denja.
- Chenj na yu urine kɔlɔ: I rili nɔmal fɔ mek yu urine tɔn rɛd ɔ brawn we yu de tek dis mɛrɛsin. Dis min se di mɛrɛsin de wok ɛn di ayɛn we pasmak de kɔmɔt na yu bɔdi. No nid fɔ wɔri bɔt dis.
- Wɔnin bɔt bɛlɛ: Dis rili impɔtant. Nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ 6 mɔnt afta yu dɔn stɔp di mɛrɛsin. If yu na man, nɔ fɔ bɔn pikin we yu de tek dis mɛrɛsin ɛn fɔ 3 mɔnt afta yu dɔn stɔp. Dis mɛrɛsin kin ambɔg di pikin we nɔ bɔn yet bad bad wan. Dɔn bak, nɔ gi pikin in bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ 2 wik afta yu dɔn tek di las doz.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Deferipron kin mek sɔm sayd ɛfɛkt. Sɔm pan dɛn tin ya fɔ ripɔt wantɛm wantɛm, ɛn ɔda wan dɛn nɔ kin rili siriɔs.
| Deferipron sayd ɛfɛkt dɛn | |
|---|---|
| Tin dɛn fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji dɛn we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip ɔ tong. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at ɔ we de at. (Dεn tin ya rili impɔtant as dεn kin bi sayn dεm fכ lכw wayt blɔd sɛl) |
| Di sayn dɛm we de sho se di liva dɔn pwɛl | di yay ɔ di skin de yɔlɔ, di urine we de dak yɔlɔ/brawn, pen na di ɔp rayt say na di bɛlɛ, taya pasmak, i nɔ de want fɔ it. |
| Tin dɛm wae nɔr kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ɔda tin dɛn we de apin | Ed pen, nɔs, vɔmit, bɛlɛ pen, jɔyn ɔ bon pen. |
Wetin yu kin du if yu tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek ɔvados, nɔ panik ɛn go wantɛm wantɛm na di ɔspitul Imejɛnsi Dipatmɛnt (ETU) we de nia yu . Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Aw yu kin kip ɛn trowe di mɛrɛsin?
Mɛrɛsin na sɔntin we pɔsin fɔ tek tɛm du.
- Kip am usay pikin dɛn nɔ go ebul fɔ rich: Kip am usay smɔl pikin dɛn ɛn animal dɛn we dɛn kin mɛn na os nɔ go ebul fɔ rich.
- Fɔ kip am: Stɔr am na rum tɛmpracha (bitwin 20-25 digri sɛlshiɔs). I bɛtɛ fɔ kip di mɛrɛsin insay di ɔrijinal bɔtul we i kam insay.
- Di tɛm we i go dɔn: Mɛdisin bɔtulTrowe ɛni mɛrɛsin we lɛf 35 dez afta yu opin am.
- Di we aw fɔ trowe am: Aks yu dɔktɔ bɔt di bɛst we fɔ trowe di mɛrɛsin dɛn we yu nɔ yuz, we dɔn pas. If i fayn fɔ trowe dɛn na dɔti, pul di wata we de na di bɔtul, miks am wit sɔntin lɛk ti lif we dɛn dɔn yuz ɔ kɔfi grɔn, ɛn put am insay plastic bag we dɛn tayt ɛn trowe am.
Mɛsej we dɛn kin kɛr go na os
- Deferipron na mɛrɛsin we dɛn kin gi fɔ pul di aynɔ we pasmak na di bɔdi bikɔs dɛn kin gi blɔd ɔltɛm.
- Yuz di spɛshal mɛzhɔmɛnt kɔp we de kam wit di mɛrɛsin ɔltɛm fɔ mɛzhɔ am.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn, vaytamɛn dɛn, ɛn di sik dɛn we yu de tek.
- Go to dɔktɔ wantɛm wantɛm if yu gɛt sayn dɛn we de sho se yu gɛt di sik, lɛk fiva ɛn trot we de at. Dis kin bi sayn fɔ se di wayt blɔd sɛl dɛn nɔ bɔku.
- Nɔ gɛt bɛlɛ ɔltogɛda we yu de tek dis mɛrɛsin ɛn te di tɛm we dɛn gi yu dɔn.
- Rɛd/brawn urine nɔr kin bi natin fɔ wɔri bɔt, na sayn fɔ sho se di mɛrɛsin de wok.
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