Yu dɔn ɛva fil lɛk se wan pat na yu bɔdi, sɔntɛm yu nɛk, yu an, yu leg, ɔ ivin yu yaylid dɛn de shek shek wantɛm wantɛm, yu de shek shek, ɔ yu de stɔp na wan patikyula pozishɔn? Dis kin bi wan tin wae nɔr kin fayn fɔ yu, ɛn sɔmtɛm kin mek yu fil pen. I nɔmal fɔ mek di mɔsul dɛn muv dis kayn we we dɛn nɔ ebul fɔ kɔntrol am. Tide wi de tɔk bɔt wan nyurolɔjik kɔndishɔn we dɛn kɔl dystonia , we kin mek dɛn gɛt dɛn sik ya bɔt dɛn nɔ kin tɔk bɔt am bɔku bɔku wan na sosayti.
Wetin rili na Dystonia?
Fɔ tɔk am simpul wan, dystonia na wan nyurolɔjik disɔda we kin afɛkt di muvmɛnt. Di we aw wi mɔsul dɛn de kɔntrakt ɛn rilaks, na di sayn dɛn we de kɔmɔt na di bren de kɔntrol am. כltu, insay distonia, prכblεm de wit di kכmyunikeshn bitwin di nεv sεl dεm na di basal ganglia, we na dip pat pan di bren we de kכntro di muvmεnt. Dis kin mek di mɔsul dɛn kin gɛt sayn dɛn we nɔ kɔrɛkt ɛn dɛn kin kɔntrakt we dɛn nɔ ebul fɔ kɔntrol. Dis kin mek sɔm pat dɛn na di bɔdi twist, strɛch, ɛn stɔp na wan pozishɔn.
Dis sik kin afɛkt wan mɔsul, wan grup ɔf mɔsul, ɔr di wan ol bɔdi. Sɔm pipul dɛn kin kɔnfyus di tu kɔndishɔn dɛn we dɛn kɔl dystonia ɛn dyskinesia. Diskinesia, we na wan kayn dystonia bak, na wan grup we de muv we yu nɔ want, we de jɔk we di mɔsul dɛn de kɔntrakt.
Wetin na di sayn dɛm wae de sho se yu gɛt distɔnia?
Di men sayn na we di mɔsul dɛn kin kɔntrakt we pɔsin nɔ ebul fɔ kɔntrol. Dɛn tin ya kin kɔmɔt frɔm we nɔ kin rili at to we kin rili bad. Dɛn sayn ya kin wɔs as tɛm de go.
Na sɔm kɔmɔn sayn dɛm wae yu kin si na di fɔs tɛm:
- Fɔ fil lɛk se wan leg de drɛg we yu de waka.
- Fɔ skrach di fut dɛn we de na di fut ɔltɛm.
- Pul ɔ twis di nɛk to wan say we yu nɔ ebul fɔ kɔntrol.
- Blink we yu nɔ ebul fɔ kɔntrol.
- I nɔ izi fɔ tɔk.
- Afta yu dɔn bigin fɔ rayt, yu an kin rɔtin ɔ yu an kin bigin fɔ at.
- Di pat dɛn na di bɔdi kin shek.
Dɛn sayn ya kin apin ɔr kin wɔs pan tɛm wae pɔrsin strɛs ɔr taya. Dɛn sik pipul ya kin gɛt pen ɛn taya bak bikɔs dɛn mɔsul dɛn kin kɔntrakt ɔltɛm.
di divεlכpmεnt fכ di simptom dεm kin difrεn dipכnt pan di εj we dis kכndyushכn de apin.
- We dɛn smɔl:Bɔrku tɛm, di sayn dɛm kin bigin na yu an ɔr leg, bɔt as tɛm de go, dɛn kin spre to di wan ol bɔdi.
- pan yכŋ pipul dεm: di sayn dεm kin bigin na di כp pat na di bכdi (e.g., nεk, an). Di sayn dɛm kin spre sloslo.
Wetin na de tin wae kin mek pɔrsin gɛt distɔnia?
Bɔrku dystonia nɔr kin gɛt ɛni patikyula kɔz, bɔt dɔktɔ dɛn kin sheb dis sik to tri men kategori.
1. Jɛnɛtik Distonia
Dis kin apin bikɔs di jin dɛn we dɛn mama ɛn papa gɛt nɔ fayn. Dɛn dɔn no bɔku jin dɛm we gɛt fɔ du wit distonia. fכ egzampl, mכtεshכn dεm na di jin dεm lεk DYT1, DYT5, εn DYT6 kin mek dis kכndyushכn. Sɔm pan dɛn kayn tin ya kin bigin we dɛn smɔl ɛn dɛn kin ivin mek pɔsin gɛt siriɔs disabled.
2. Distonia we dɛn dɔn gɛt
Dɛn kin kɔl dis bak sɛkɔndari distonia. I kin kam we wan pat pan di bren we dɛn kɔl di basal ganglia dɔn pwɛl. Dis damej kin kam bikɔs ɔf tin dɛn lɛk:
- Trauma na di Bren
- Strok
- Bren tumor
- Ɔksijɛn nɔ de na di bren we dɛn bɔn am ɔ ɔda tɛm
- Infεkshכn dεm na di bren
- Pɔyzin we pɔsin kin gɛt we i it kabon monoksayd ɔ ebi ebi mɛtal lɛk lid. (If yu tink se yu gɛt ɛni pɔyzin, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm.)
- Riakshɔn to sɔm mɛrɛsin dɛn (Tardive Dystonia). Bɔku tɛm, dɛn tin ya kin apin fɔ shɔt tɛm nɔmɔ.
3. Idiopatik Distonia we pɔsin kin gɛt
Di wɔd idiopathic min "dɛn nɔ go ebul fɔ fɛn ɛni kɔz." Bɔrku pipul dɛm wae gɛt distɔnia kin gɛt dis sik fɔ no rizin.
Wetin na di kayn dystonia?
Distonia kin sheb to difrɛn kayn dɛn dipen pan di pat pan di bɔdi we i de afɛkt. If yu ɔndastand dis klasification, dat go ɛp yu fɔ ɔndastand yu kɔndishɔn fayn fayn wan.
| Distonia Tayp | Tɔk bɔt |
|---|---|
| Distonia we de na di sɛvikal | Dis na di kayn we we pipul dɛn kin gɛt mɔ. Dɛn kin kɔl am bak tɔtikolis, i kin afɛkt di mɔsul dɛn na di nɛk, ɛn dis kin mek dɛn pul di ed na wan say, twist am, ɔ tilt am fɔ go bifo ɔ bak. |
| Blefarospasm we dɛn kɔl blefarospasm | I kin afɛkt di mɔsul dɛn we de rawnd di yay. I kin bigin wit blink we yu nɔ ebul fɔ kɔntrol, ɛn sɔntɛnde di yay kin kɔntinyu fɔ lɔk tayt tayt wan. Pan ɔl we di vishɔn fayn, di yay dɛn kin lɔk, we kin mek i tan lɛk se pɔsin blaynd. |
| Distonia we de na di laryngeal | I kin afɛkt di mɔsul dɛn na di vokal kɔd dɛn na di trot we de ɛp yu fɔ tɔk. Yu vɔys kin wik, i kin ala, ɔ yu kin gɛt sawnd we de mek yu swɛt, ɛn dis kin mek i nɔ izi fɔ ɔda pipul dɛn fɔ ɔndastand. |
| Distonia we de na di ɔromandibular | I kin afɛkt di mɔsul dɛn na di jaw, di lip, ɛn di tɔŋ, ɛn dis kin mek i nɔ izi fɔ tɔk ɛn swɛla. |
| Distonia we gɛt fɔ du wit di wok | Dis kin apin nɔmɔ we dɛn de du sɔm patikyula wok dɛn we dɛn kin ripit. Sɔm ɛgzampul dɛn na di rayta in kramp, we kin apin nɔmɔ we i de rayt, ɔ di wan dɛn we de ple myuzik inschrumɛnt nɔ kin fil fayn. |
Wetin na di tritmɛnt fɔ dystonia?
No mɛrɛsin nɔr de fɔ dystonia yet. Bɔt sɔm tritmɛnt dɛn de we go ɛp fɔ kɔntrol di sik dɛn ɛn mek layf izi. Yu dɔktɔ go disayd di bɛst tritmɛnt fɔ yu.
Di mɛrɛsin dɛn we dɛn kin yuz
difrεn kayn mεdikeshכn dεm de we de εp fכ kכntrכl di mכsul dεm we de kכntrakt bay we dεn de rεdכks di sεnd fכ di kכrekt signal dεm na di bren.
- Drug dεm we de afekt di dopamin sistεm: Drug dεm lεk `Levodopa`.
- Anti-cholinergic drɔgs: Drug dɛn lɛk `Trihexyphenidyl`.
- GABA we de rigul drɔgs: Drug dɛn lɛk `Baclofen`, `Clonazepam`.
- Botulinum Toxin Injεkshכn:Dis na wan pan di tritmɛnt dɛn we dɛn kin yuz fɔ mɛn bɔku pipul dɛn. Dɛn kɔl am `Botox`. Dis min se yu fɔ injɛkt dis mɛrɛsin dairekt insay di mɔsul we di sik afɛkt. Dis kin mek di mɔsul wik fɔ sɔm tɛm ɛn stɔp di kɔntrakshɔn we dɛn nɔ want. Dis injεkshכn na dכkta we kwalifay fכ gi am lεk wan tεm εvri 3 mכnt.
Ɔpreshɔn
Dɛn kin tink bɔt ɔpreshɔn pan siriɔs kes dɛm we dɛn nɔ kin ebul fɔ kɔntrol wit mɛrɛsin.
- Dip Bren Stimulation (DBS): Dis min se yu fɔ put ilɛktrɔd insay di say we di bren afɛkt ɛn kɔnɛkt am to batri ɔnda di skin na di chɛst. di sכft ilektrikal puls dεm we de kכmכt frכm dis εlektrod de kכntro di abnכmal signal dεm na di bren εn ridyus di mכsul dεm we de kכntrikshכn.
Ɔda Tɛrapi dɛn
- Fizik Tɛrapi: I de ɛp fɔ mek di mɔsul dɛn strɔng, du ɛksɛsayz fɔ strɛch, ɛn fɔ mek yu ebul fɔ muv mɔ.
- Occupational Therapy: De ɛp yu fɔ du ɛvride wok lɛk fɔ drɛs ɛn it izi wan.
- Spich Therapy: I de ɛp pipul dɛm wae gɛt prɔblɛm wit dɛn vɔys fɔ tɔk izi wan.
Tin dɛn we yu kin du na os
Apat frɔm di tritmɛnt, sɔm tin dɛn de we yu kin du yusɛf fɔ mek yu nɔ gɛt di sik.
- Put ɔt ɔ kol kɔmprɛs pan di mɔsul dɛn we de at.
- Ridyus strɛs. Tin dɛn lɛk fɔ du dip briz ɛn fɔ tink gud wan kin ɛp.
- Tray wetin dɛn kɔl "sensory tricks." Sɔm pipul dɛn kin stɔp fɔ twitch ɔ twitch fɔ sɔm tɛm bay we dɛn tɔch di twitch mɔsul ɔ eria we de nia de jisnɔ.
- Fɔ tɔk bɔt it, no pruf nɔ de fɔ se ɛni patikyula it kin afɛkt dystonia. Bɔt, kafinɛ na tin we de mek pɔsin fil fayn ɛn i kin mek sɔm pipul dɛn gɛt mɔ sik. So yu kin tink bɔt fɔ stɔp tin dɛn lɛk ti ɛn kɔfi. Bɔt bifo yu chenj ɛni big chenj na yu it, mek shɔ se yu tɔk to yu dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Distonia na nyurolכjik kכndyushכn we di mכsul dεm de kכntrכl we dεn nכ de kכntro bikoz fכ di mכlfunshכn na di bren signal dεm.
- Dis sik kin kam bikɔs ɔf di jɛnɛtiks, di bren we dɔn pwɛl, ɔ ivin fɔ no rizin atɔl.
- Di sayn dɛm lɛk we di nɛk stif, we yu nɔ want fɔ lɔk yu yay, ɛn pen na yu an we yu de rayt na di men sayn dɛm.
- Tritmɛnt lɛk mɛrɛsin, Botox injɛkshɔn, DBS ɔpreshɔn, ɛn fyzikal tritmɛnt kin kɔntrol di sik dɛn fayn fayn wan.
- If yu ɔ pɔsin we yu sabi de gɛt dɛn sik ya, di bɛst tin fɔ du na fɔ go to dɔktɔ we de mɛn yu nyuro fɔ gɛt kɔrɛkt diagnosis ɛn tritmɛnt plan.
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