Sɔntɛnde yu kin fil lɛk se yu yaylid dɛn de drɔp we yu nɔ ebul fɔ kɔntrol, yu wɔd dɛn nɔ de tɔk fayn we yu de tɔk, i nɔ izi fɔ yu fɔ swɛla, ɔ yu an ɛn fut dɛn kin fil lɛk se yu nɔ ebul fɔ du natin ɛn i nɔ kin izi fɔ du ivin di smɔl smɔl wok dɛn? Dɛn tin ya kin bi sayn dɛn fɔ wan sik we dɛn kɔl Myasthenia Gravis . Dis na di kכndyushכn we di mכsul dεm de wik sכmtεm bikoz fכ difεkt na wi bכdi in כwn difεns sistεm. So, wan rili mɔdan, spɛshal tritmɛnt we dɛn kin yuz fɔ trit dis kɔndishɔn na di Efgartigimod Alfa vaysin. Lɛ wi tɔk bɔt dis simpul ɛn klia wan tide.
Us kayn mɛrɛsin na Efgartigimod Alfa?
Fɔ tɔk am simpul wan, dis na mɛrɛsin we de tɔch wan prɔblɛm we de na yu bɔdi in imyun sistɛm ɛn ɛp fɔ kɔrɛkt am.
Tink bɔt antibodies lɛk sojaman dɛn we de protɛkt wi bɔdi. Bɔt insay myasthenia gravis, sɔm pan dɛn antibodi ya kin mistek bigin fɔ atak di kɔmyunikeshɔn link bitwin wi yon nɛv ɛn mɔsul dɛm. I tan lɛk se wi yon sojaman dɛn de atak wi yon kɔntri. Dis na di rizin we mek wi mɔsul dɛn kin wik.
Dis mɛrɛsin we dɛn kɔl Efgartigimod Alfa de wok bay we i de ridyus di lɛvɛl dɛn we dɛn antibodi dɛn de we nɔ de biev fayn na yu blɔd. Dis kin ridyus di damej we di mɔsul dɛn kin gɛt ɛn smɔl smɔl dɛn kin bigin fɔ kam bak to nɔmal.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin tritmɛnt
Bifo yu disayd if dis tritmɛnt fayn fɔ yu, i rili impɔtant fɔ ɛksplen klia wan wetin de dɔŋ ya to yu dɔktɔ.
| Infɔmeshɔn we yu nid fɔ gi | Wetin mek dat impɔtant? |
|---|---|
| If yu gɛt infekshɔn naw (e.g., flu, kol, urinary tract infection) . | Dis mɛrɛsin kin gɛt sɔm ifɛkt pan di imyun sistɛm, we kin mek di infɛkshɔn we dɔn de, wɔs. |
| If yu gɛt sik na yu kidni | di kidni dεm de ple imכtant rol fכ pul di mεdikeshכn dεm na di bכdi. So, di dɔktɔ fɔ no aw di kidni dɛn de wok. |
| If yu gɛt alɛji to ɔda mɛrɛsin ɔ it dɛn | Bikɔs na smɔl chans de fɔ mek yu gɛt alɛji fɔ dis mɛrɛsin, i impɔtant fɔ no bɔt yu alɛji istri. |
| If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ | Nɔr kɔmplit data stil de bɔt aw dis mɛrɛsin sef we yu gɛt bɛlɛ, so mek shɔ se yu tɔk to yu dɔktɔ bɔt dis. |
| If yu na mama we de gi pikin in bɛlɛ | Yu fɔ tɔk to yu dɔktɔ if di mɛrɛsin kin pas to di pikin tru in mama in milk. |
Aw a go gi yu dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os.
- Dis na tritmɛnt we dɛn kin gi tru wan vein, lɛk salin infushɔn (intravenous infusion) .
- Dɛn kin jɔs gi dis tritmɛnt ɔnda dɔktɔ in sɔpɔtishɔn na ɔspitul ɔ klinik .
- Bɔrku tɛm, dɛn kin gi dis tritmɛnt insay saykl ɛvri sɔm wik. Yu dɔktɔ go disayd di rayt schedule bay di sik we yu gɛt.
I rili impɔtant: Nɔ mis di de ɛn tɛm we yu dɔn sɛtul fɔ trit fɔ ɛni rizin. If fɔ sɔm rizin yu nɔ ebul fɔ atɛnd di de we yu dɔn sɛtul, duya kɔl yu mɛdikal tim wantɛm wantɛm ɛn mek dɛn no.
Wetin fɔ du if yu tek di mɛrɛsin pasmak?
Bikɔs dis na mɛrɛsin we dɛn kin gi na ɔspitul, di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se dis dɔn apin, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Tin dɛn we yu fɔ mɛmba we yu de du tritmɛnt
- Protɛkt yusɛf frɔm infɛkshɔn: Dis mɛrɛsin kin afɛkt yu imyun sistɛm, we kin mek yu gɛt infɛkshɔn smɔl. Dat mek,If yu gɛt sɔm sayn dɛn lɛk fiva, kol, kɔf, trot we de at, wund we nɔ de wɛl, pen ɔ bɔn we yu de pis, ɔ we yu nɔ de fil fayn, nɔ fɔ mɛn yusɛf ɛn tɛl yu dɔktɔ wantɛm wantɛm . I fayn bak fɔ de fa frɔm pipul dɛn we sik insay dis tɛm.
- Ɔda mɛrɛsin ɛn vaysin: Tɛl yu dɔktɔ bɔt ɛni ɔda mɛrɛsin (fɔ ɔda kɔndishɔn), vaytamɛn, ɛn ivin ɛbul mɛrɛsin we yu de tek. Na patikyula, dɛn nɔ fɔ gi vaksin dɛn we gɛt layf vayrɔs (e.g. mizɛl, mɔmp, rubɛla - MMR) we dɛn de tek dis tritmɛnt. Aks yu dɔktɔ fɔ advays.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɔl mɛrɛsin, Efgartigimod Alfa kin mek yu gɛt sayd ɛfɛkt, pan ɔl we nɔto ɔlman kin gɛt am.
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ ɔ ETU wantɛm wantɛm | |
|---|---|
| Siriɔs Alɛji Riakshɔn dɛn | Skin rash, i kin it bad bad wan, yu fes, yu lip, yu tɔŋ ɔ yu trot kin swel (dis na siriɔs imejensi bikɔs i kin mek i nɔ izi fɔ blo). |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf ɔltɛm, trot we de at, wund we nɔ de wɛl, infekshɔn na di urinary tract, ɛn malaise. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ed de at | Wan ed we kin at we bɔku pipul dɛn kin at. |
| Mɔsul dɛn kin pen | Fɔ fil lɛk se yu bɔdi de at. |
| Fɔ mek pɔsin nɔ ebul fɔ du natin | Fɔ fil se yu nɔ gɛt bɛtɛ trɛnk ɔ yu de fil pen rawnd yu mɔt, na yu an ɛn fut. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɔk to yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- Efgartigimod Alfa na wan patikyula vaysin we de tɔch di bɔdi in imyun sistɛm ɛn trit myasthenia gravis.
- Dɛn kin gi dis na ɔspitul, tru wan vein. Dɛn nɔ gi am to yu fɔ yuz na os.
- Bifo yu bigin fɔ trit yu, mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn ɔda mɛrɛsin dɛn we yu de tek.
- If sayn dɛm fɔ infekshɔn lɛk fiva ɛn kɔf apia we dɛn de trit am, go to dɔktɔ wantɛm wantɛm.
- Duya tek tɛm mek yu nɔ mis yu tritmɛnt de dɛn. If yu nɔ ebul fɔ atɛnd, duya tɛl wi bifo tɛm.
- If yu gɛt siriɔs alɛji, lɛk fɔ swel na yu fes ɔ yu trot, tek am se na imejensi ɛn go na ɔspitul in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
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