Yu an ɛn fut dɛnsɛf de bɔn ɛn rɛd? Dis kin bi (Erythromelalgia)!

Yu dɔn ɛva si, ɔ ɛkspiriɛns, we yu an ɔ yu leg de bɔn wantɛm wantɛm, we yu nɔ go ebul fɔ bia? Apat frɔm dat, di say kin tɔn rɛd ɛn sɔntɛnde i kin rili pen. Sɔntɛm dis nɔto simpul tin. Tide, wi go tɔk bɔt wan sik we nɔ kin apin so ɔltɛm we kin apin, bɔt bɔku pipul dɛn nɔ no bɔt am.

Wetin na dis (Erythromelalgia)?

Fɔ tɔk am simpul wan, (Erythromelalgia) na wan sik we nɔ kin apin so ɔltɛm. Wetin kin apin pan dis na dat, di blɔd kin go ɔp wantɛm wantɛm to sɔm pat dɛn na wi bɔdi, mɔ di an ɛn fut dɛn. Dis na wae mek de sik wae wi bin dɔn tɔk bɔt kin apin. Dis na krεse sik, wae min se e kin teik yu layf. As tɛm de go, dɛn sayn ya, mɔ di pen we pɔsin kin gɛt we i de bɔn, kin bɔku smɔl smɔl. So, i rili impɔtant fɔ mek wi no bɔt dis.

Usay dis kin afɛkt mɔ?

Bɔrku tɛm, dis sik (Erythromelalgia) kin afɛkt yu leg, mɔr yu fut . Bɔt, nɔto dat nɔmɔ. Ɔda ples dɛn de we i kin gɛt dis sik:

• Yu an dɛn
• Fes
• Palm ɛn sɔl
• Na smɔl tɛm nɔmɔ di yes dɛn kin afɛkt bak.

Difrɛn kayn (Erythromelalgia) de?

Yɛs, bɔku kayn dis de bak. Lɛ wi si wetin dɛn bi.

1. Praymari (Praymari Ɛritromelaljia) .

Dis na wae nɔr ɔda ɔndalayn sik nɔr de, ɛn dis kɔndishɔn (Erythromelalgia) kin apin in wan. Dis gɛt tu pat bak:

• Idiopathic Erythromelalgia: Dis na di kayn we we dɛn kin gɛt mɔ. Dɛn nɔ dɔn fɛn ɛni klia rizin yet.
• Inherited Erythromelalgia: Dis kin kam bikɔs ɔf di chenj dɛn we de apin na wi jin dɛn . Dɛn muteshon ya kin afɛkt di we aw wi pen signal dɛn kin travul. Dis kɔndishɔn kin rɔn bak na famili, we min se i kin pas frɔm wan jɛnɛreshɔn to ɔda jɛnɛreshɔn.

2. Sɛkɔndari (Sɛkɔndari Ɛritromelaljia) .

Dis kayn εrythromelalgia kin kam wit ɔda mεdikal kכndyushכn . Dat min se, e kin apin as sayd ɛfɛkt fɔ ɔda mɛrɛsin we yu dɔn ɔlrɛdi gɛt. Na sɔm ɛgzampul dɛn ya:

• Ɔtoimyun sik dɛm: Ɛgzampul dɛm na lupus ɛn multiple sclerosis.
• Essential thrombocythemia: Dis na wan sik we de mek pɔsin gɛt blɔd. Fɔ tɔk am simpul wan, di bɔdi de mek bɔku bɔku pletlɛt dɛn, we na wan kayn sɛl.
• `(Polycythemia vera)`: Dis na sik bak we di nכmba fכ di rεd bכdi sεl dεm de inkrεs.
• `(Raynaud in fenomen)`: insay dis, di finga dεm εn di fut dεm kin sεnsitiv to kol εn mεntal strεs εn tכn pale כ blu.
• `(Thrombocytopenia)`: dis na we di nכmba fכ di pletlet dεm we de na di bכdi de dכn.
• Nyuropati: Na tin we kin apin we di nerv dɛn dɔn pwɛl.

Wetin na di sayn dɛm fɔ dis? Mek wi no di rayt tin!

Tri men sayn dɛm de fɔ Erythromelalgia. Dɛn na:

1. Di tɛmpracha we de go ɔp na di skin: Di say we di sik afɛkt kin fil wam we yu tɔch am pas ɔda say dɛn.

2. Pen: Dis na di men prɔblɛm fɔ bɔku pipul dɛn. Pan ɔl we sɔm pipul dɛn kin fil lɛk se dɛn de fil smɔl smɔl, ɔda wan dɛn kin fil bad bad wan we dɛn kin gɛt bɔn . Sɔm pipul dɛn kin tɔk bɔt di pen as pɔsin we de bɔn ɔ we pɔsin chuk am.

3. Skin rɛd: Di say we di sik afɛkt kin difrɛn frɔm pink to dak rɛd.

Apat frɔm dɛn men tin ya, yu kin si sɔm ɔda tin dɛn:

• It: Sɔm pipul kin gɛt it wit de bɔn.
• Kol skin we nɔ gɛt ɛni sayn: We di inflamɛns ɛn rɛdnɛs dɔn go, di say we di sik afɛkt kin fil kol pas ɔda say dɛn we yu tɔch am.
• Swet: Di say we di sik afɛkt kin swet pas aw i kin swet.
• Swel: Sɔntɛnde, di say kin swel smɔl.
• Skin sensitivity, spots: Di skin kin fil pen we yu tɔch am, ɛn sɔntɛnde i kin tan lɛk spat.
• Yu nɔ gɛt bɛtɛ trɛnk: Yu an ɛn yu fut dɛn kin fil lɛk se yu nɔ gɛt bɛtɛ trɛnk.

Dɛn sayn ya kin apin na wan say na di bɔdi ɔ na ɔl tu di say dɛm . Dɔn bak, pan ɔl we dɛn nɔ kin at fɔ sɔm pipul dɛn, dɛn nɔ kin ebul fɔ bia fɔ ɔda pipul dɛn. Fɔ sɔm pipul dɛn, dɛn sik ya kin bigin we dɛn smɔl , bɔt fɔ ɔda pipul dɛn, dɛn kin jɔs afɛkt dɛn we dɛn dɔn big .

Wetin mek dɛn sik ya kin bɔku wantɛm wantɛm (flares)?

Pipul wae gɛt Erythromelalgia kin gɛt sɔm kayn tɛm wae dɛn kin gɛt bɔrku sayn dɛm. Wi kin kɔl dɛm ``flares.`` Dɛn kin apin we yu bɔdi tɛmpracha go ɔp wantɛm wantɛm . Tink bɔt dɛn tɛm ya:

• Fɔ drink tin dɛn we gɛt kafinɛ: Fɔ drink tin dɛn lɛk ti ɛn kɔfi.
• Dehydrated: We di bɔdi nɔ gɛt bɛtɛ wata.
• Fɔ drink rɔm: Yu fɔ drink rɔm.
• Fɔ it tin dɛn we gɛt spays: Fɔ it chili, it dɛn we gɛt spays.
• Ɛksesaiz: We yu de du ɛksasaiz we yu de du tranga wan.
• Fɔ fil strɛs: We yu fil se yu de prɛs yu ɔ yu de wɔri.
• Fɔ de na hot ples: na hot rum, ɔ na hot ples na do.

"A mɛmba wan de a bin go pati ɛn it wan spaysi biryani, dɔn a dans wit mi padi dɛm ɛn we a kam bak, mi tu leg dɛn bin fil lɛk se dɛn de bɔn. Dɛn bin rɛd. A bin tink se mi sus dɔn stɔp. Na leta nɔmɔ wan dɔktɔ tɛl mi se dis kin bi (Erythromelalgia)." - Pipul dɛn de we dɔn gɛt di sem kayn ɛkspiriɛns.

Aw dɔktɔ dɛn kin no bɔt dis?

No patikyula tɛst nɔ de fɔ no if pɔsin gɛt ɛrithromelalgia. Yu dɔktɔ go lisin to yu sik dɛn, i go chɛk yu we yu gɛt di sik, ɛn luk fɔ di foto dɛn we yu tek da tɛm de. Sɔmtɛm , dɛn kin nid fɔ du tɛst fɔ no ɔda tin dɛn ɛn fɔ no mɔ bɔt yu sik dɛn. Sɔm pan dɛn tɛst ya na:

• Blɔd tɛst: Chɛk fɔ ɔda sik dɛn we de ɔnda am.
• Jɛnɛtik tɛst: If ɛni dawt de bɔt di kayn jenɛtik, chɛk fɔ si if di muteshon dɛn we gɛt fɔ du wit am.
• Tɛmografi: Dis na tɛst we dɛn kin yuz spɛshal kamɛra fɔ no di chenj we di tɛmpracha de chenj na difrɛn pat dɛn na di skin kɔrɛkt wan.
• X-ray ɔ ɔda imej stɔdi: Dɛn kin du dɛn tin ya bak if nid de.

Yu tink se i fayn fɔ put ays insay wata? Dis na bad tin!

We di inflamɛns kam, yu kin fil lɛk fɔ put di an ɔ leg we gɛt di sik insay wan bol we gɛt ays wata . Pan ɔl we i kin mek pɔsin fil fayn wantɛm wantɛm, dis nɔto fayn tin atɔl . Infakt, if yu yuz ays wata , dat kin rili mek di sayn dɛn we de sho se yu gɛt ɛrythromelalgia wɔs . Nɔto dat nɔmɔ, big risk de fɔ mek di wund dɛn na di skin nɔ wɛl, ɛn sɔntɛnde i kin ivin mek di sɛl dɛn day (nɛkrɔsis) . Dɛn tin ya bak kin rili at fɔ trit. So, ilɛksɛf di inflamɛns de, nɔ yuz ays wata.

So wetin na di tritmɛnt fɔ dis?

De tritmɛnt wae fayn fɔ yu go dipen pan de kɔz fɔ yu erythromelalgia.

• If na sɛkɔndari (sɛkɔndari ɛrithromelalgia) , we min se na ɔda sik de mek yu gɛt am, yu sik kin bɛtɛ bak wans dɛn dɔn trit di sik we de ɔnda yu .
• Insay di kes fɔ praymari ɛrithromelalgia , dɛn kin yuz mɛrɛsin mɔ.

Us kayn mɛrɛsin dɛn kin yuz?

Di mɛrɛsin dɛn we dɛn kin tek bay mɔt na di tritmɛnt we dɛn kin yuz mɔ fɔ (Erythromelalgia). Bɔrku pan dɛn mɛrɛsin ya kin rili yuse fɔ ɔda sik dɛm. Bɔt dɛn kin rili ɛp bak fɔ kɔntrol di sayn dɛm fɔ (Erythromelalgia).

Sɔm ɛgzampul dɛn:

• Antikonvulsant: lɛk gabapentin ɔ carbamazepine.
• Di mɛrɛsin dɛn we de mek pɔsin nɔ fil bad: lɛk amitriptyline ɔ venlafaxine.
• Antihistamin: lɛk sɛtirizin ɔ difenhaydramin.
• Aspirin: Na fɔ big pipul dɛn nɔmɔDɛn gi dis. I nɔ fayn fɔ gi am to smɔl pikin dɛn.
• Blɔd prɛshɔn mɛrɛsin: I kin mek di blɔd flɔ bɔku ɔ i kin mek i nɔ flɔ.
• Di mɛrɛsin dɛn we dɛn kin gi pɔsin fɔ mek i fil pen.

Us ɔda tritmɛnt dɛn dɛn kin du?

Apat frɔm di mɛrɛsin dɛn we dɛn kin tek bay mɔt, ɔda tritmɛnt dɛn de we dɛn kin yuz:

• Lidocaine infusions: Dis na mɛrɛsin we de mek pɔsin fil pen. Dɛn kin injɛkt am na wan vein we de na di an.
• di nyutrishכnal supliment dεm: εgzampl dεm na magnεsiכm εn alfa-lipoik asid.
• Di tritmɛnt dɛm wae fɔ mɛn yu pen: Dis kin inklud tin dɛm lɛk fɔ blok di nerve.
• Di mɛrɛsin dɛn we dɛn kin put pan pɔsin: Krim dɛn we dɛn kin put pan di skin.

Yu tink se we dɛn de fɔ mek yu fil fayn if yu nɔ tek mɛrɛsin?

Yɛs, apat frɔm mɛrɛsin, sɔm tin dɛn de we yu kin du yusɛf fɔ ridyus dis inflamɛns ɛn pen:

• Ɛlevɛt di say we di sik afɛkt: If na di leg, put pilo oba am.
• Rɛst pan say we kol: Fɔ ɛgzampul, ledɔm na say we kol lɛk tayl flo.
• Yuz wan fan.
• Put kol fɔs-ɛd jel pak dɛn we dɛn rap wit tin tawɛl na di skin. (Nɔ put ays dairekt wan!)

Yu tink se dɛn go ebul fɔ mek dis nɔ apin? (Prɛvenshɔn) .

Fɔ tru, nɔto bɔku tin wi kin du fɔ mek wi nɔ gɛt Erythromelalgia. Bɔt if pɔsin na yu famili gɛt dis sik, yu kin du tɛst fɔ no aw i go bi se yu pikin sɛf go gɛt dis sik.

Wetin na di tumara bambay fɔ pɔrsin wae gɛt dis sik? (Prɔgnosis) .

Flare kin afɛkt yu kwaliti fɔ liv . Bɔt, dɛn nɔ kin rili kil pɔsin . Bɔku pipul dɛn de liv nɔmal layf. Dɛn kin wok, travul, ɛn ɛnjɔy tin dɛn we dɛn lɛk fɔ du. Bɔt sɔntɛnde, if di tritmɛnt nɔ wok fayn, i kin tranga fɔ du tin dɛn we dɛn kin du ɛvride.

Aw e de liv ɛvride wit (Erythromelalgia)?

Akɔdin to pipul dɛm wae gɛt dis sik, sɔm kayn filin de wae kin kam wit dɛn kayn sik ya:

• Di skin kin fil tayt: lɛk se di klos we yu wɛr de swɛt yu.
• I tan lɛk se na faya de bɔn, ɔ lɛk se ɔt wata dɔn fɔdɔm pan am: na bɔn we pɔsin nɔ go ebul fɔ bia.
• Lɛk we dɛn kɔt am wit reza bled: na shap pen.
• Lɛk we yu bɔn bad bad wan wit san: Lɛk di pen we yu kin fil we yu skin bɔn bad bad wan.

I nɔ kin izi fɔ liv wit tin dɛn lɛk dis, bɔt we dɛn de fɔ bia wit am.

Wetin yu go du fɔ mek yu nɔ gɛt flawa ɛn fɔ mek yu fil fayn?

Yu kin mek sɔm smɔl chenj dɛn na yu layf fɔ ridyus di frɛkuɛns fɔ dɛn flawa ya ɛn yu kin fil fayn we dɛn kin apin.

• Nɔ it ɛn drink we de mek yu gɛt mɔ sik: Tek tɛm wit wetin yu de it ɛn drink. Nɔ de fa frɔm tin dɛn we de mek yu bɔdi wam, lɛk kafin ɛn it dɛn we gɛt spays.
• Tek tɛm we yu de pik ɛksesaiz: Pik ɛksesaiz dɛn we nɔ de mek yu bɔdi wam pasmak wan tɛm. Fɔ ɛgzampul, tin dɛn lɛk fɔ swim, yoga, ɛn Tai Chi kin fayn.
• Tray fɔ de na say we kol: If yu go na do, go we di ples wam smɔl, lɛk na mɔnin.
• Tek tɛm we yu de was: Tek shawa pas fɔ sok insay tub we gɛt wata. Yuz wata we wam fɔ mek yu nɔ pwɛl yu skin. I ivin bɛtɛ if yu ebul fɔ kip winda opin na di bafa.
• Plan bifo tɛm: Bikɔs di sayn dɛn kin apin na nɛt, schedul fɔ du impɔtant wok dɛn na di de.
• Pripia bifo yu go slip: Kip fan ɔ smɔl AC (pɔtabl ɛya kondishɔn yunit) nia yu bed. Yuz bed sheet we tan lɛk tin as yu ebul, ɔ slip we yu nɔ gɛt blankit pan am.

Yu nid fɔ tink bak bɔt mental wɛlbɔdi?

Yɛs, na tru. Fɔ liv wit wan sik wae nɔr kin bɔrku lɛk dis kin mek sɔm pipul fil lɛk dɛn wan ɛn nɔr kin ebul fɔ du natin . Dɛn kin fil se dɛn fambul, padi dɛn, ɛn ivin dɔktɔ dɛn nɔ ɔndastand di sik. Sɔntɛnde lɛk dɛn tɛm ya, i kin mek pɔsin in at pwɛl .

Bɔt, nɔto yu wan de. Sɔpɔt grup dɛn de na di intanɛt fɔ pipul dɛn we gɛt Erythromelalgia. We yu jɔyn dɛn, yu kin tɔk to ɔda pipul dɛn we de go tru di sem tin dɛn we yu de du ɛn lan frɔm dɛn ɛkspiriɛns. Dat go mek yu gɛt bɔku trɛnk ɛn fridɔm.

So, di las mɛsej we yu go kɛr go na os:

Erythromelalgia na wan sik wae nɔr kin bɔrku bɔt kin kin mek pɔrsin fil bad bad wan wae kin bi wae yu nɔr kin ebul fɔ bia ɛn yu an ɛn fut kin rɛd.

Nɔ wɔri! Bɔku tritmɛnt dɛn de fɔ dis. Pan ɔl we sɔmtɛm i nɔ kin izi fɔ kɔntrol di sik dɛn ɔltogɛda wit tritmɛnt, bɔku pipul dɛn kin liv fayn ɛn gladi layf wit dis sik.

De tin wae impɔtant pas ɔl na fɔ tɔk to dɔktɔ bɔt yu sik, gɛt kɔrɛkt diagnosis, ɛn bigin de tritmɛnt wae fayn fɔ yu. E fayn bak fɔ mek smɔl chenj na yu layf fɔ tray fɔ mek di sik nɔr wɔs. Stay strɔng!

` Erythromelalgia, skin inflameshn, skin rεd, sik dεm we nɔr de dɔn, di sayn dεm we de kam pan yu, pen na di leg, pen na di an