Yu kin fil wan strenj swel, ebi, ɔ tik na yu skin na yu prayvet eria, dat na di say we de rawnd yu jɛnɛral? I kin awkward ɛn shem smɔl fɔ tɔk bɔt sɔntin lɛk dis wit ɛnibɔdi, nɔto so? Bɔt dis kin bi wan impɔtant tin we gɛt fɔ du wit yu wɛlbɔdi biznɛs . So tide wi de tɔk bɔt ‘Genital Lymphedema ’, wan sik we bɔku pipul dɛn nɔ kin want fɔ tɔk bɔt, bɔt i impɔtant fɔ no bɔt. Nɔ wɔri, afta yu dɔn rid dis atikul, yu go ɔndastand dis klia wan.
Fɔ tɔk am simpul wan, wetin na Genital Lymphedema?
di jεnital Limfεdima na di swεl we de kכz we di limf fכluid de bכku na di sכft tisu dεm we de rawnd yu jεnital εria. Fɔ tɔk am simpul wan, na wan kayn wata we de na wi bɔdi kin trɔp na dis eria ɛn swel. Dis nɔto wan tɛm nɔmɔ, bɔt bɔku tɛm na sik we nɔ de mɛn .
Dis kin afɛkt less dan 1% pan ɔl di wan dɛn we gɛt limfedema ɔlsay na di wɔl. Dis min se na wan sik we nɔ kin apin so ɔltɛm . Bɔt, i kin afɛkt ɛnibɔdi, uman ɛn man, ɛn pipul dɛn we ol ɛni ej.
Lɛ wi lan smɔl bɔt wi ‘Lymphatic System’ we gɛt fɔ du wit dis.
Fɔ ɔndastand dis sik fayn fayn wan, lɛ wi fɔs gɛt smɔl aidia bɔt di ‘ lymphatic system ’ na wi bɔdi. Imajin se wi bɔdi na big siti. Insay dis siti, di it ɛn ɔksijɛn de go ɔlsay tru di blɔd vesel dɛn , ɛn wan sistɛm fɔ de fɔ pul dɔti fɔ mek di siti klin. Na so di limfatik sistɛm de.
Dis na impɔtant pat pan wi imyun sistɛm . Di men wok we i de du na fɔ mek di wata balans na di bɔdi , fɔ fɛt infɛkshɔn, ɛn fɔ pul dɔti tin dɛn we de na di tisu dɛn.
Tri men pat dɛn de fɔ dis sistɛm:
- Limf: Dis na wata we klia ɛn we gɛt yɔlɔ smɔl. I de kɛr di imyun sɛl dɛm ( wayt blɔd sɛl dɛm ) go na di blɔd. I de pul di dɔti tin dɛn ɛn baktri dɛn bak na di tisu dɛn ɛn mek dɛn kam bak na di blɔd.
- di limf vεsεl dεm: Dis na di tin dεm we lεk tכb we de kכri limf wata כlsay na di bכdi, jכs lεk wi bכdi vεsεl dεm.
- di limf no dεm : Dis na di ‘filta dεm’. Dɛn smɔl smɔl tin dɛn ya we tan lɛk bin de kip wayt blɔd sɛl dɛn. As limf wata de pas tru dɛn, i de filta di jem ɛn dɔti tin dɛn. dis limf no dεm de insay grup dεm na ples dεm lεk wi armpit, groin, nεk, εn bεlε.
So, insay Jεnital Limfεdima, sכmtin de apin na di limf sistεm we de rawnd di jεnital εria, we de mek di limf fכluid kכlekt na wan ples bikoz fכ sכm blכk כ damej. Jɔs lɛk we wata paip kin lɔk, i kin ful-ɔp wit wata ɛn i kin ful-ɔp.
Tu men kayn Genital Lymphedema de:
Dis kכndyushכn kin sheb to tu men tכp dεm dipכnt pan aw i de apin.
| Kayn | Tɔk bɔt |
|---|---|
| Praymari Jɛnɛral Limfɛdima | dis kin kכz fכ wan dεfεkt we dεn bכn wit na di divεlכpmεnt fכ di limfatik sistεm. Sɔntɛnde, dɛn kin si di sayn dɛn we dɛn bɔn am. Fɔ ɔda pipul dɛn, di sayn dɛn kin apin afta sɔm ia, ɛn sɔntɛnde we dɛn yɔŋ. |
| Sεkɔndari Jεnital Limfεdima | Dis na di kayn we we pipul dɛn kin gɛt mɔ. wetin de apin ya na dat wan hεlty limfatik sistεm de pwεl bay sכm kכz we de na do. |
Wetin na di tin dɛm we kin mek pɔsin gɛt sɛkɔndari jenital lymphedema?
Sɔntɛm bɔku rizin dɛn de fɔ dis.
- Tritmɛnt fɔ kansa: Ɔpreshɔn ɔ redyushɔn tɛrapi na di men tin we kin mek pɔsin gɛt kansa na di say we di uman in bɛlɛ de (fɔ ɛgzampul, prɔstat, blad, tɛstikul, penis, sɛviks, ovaria, vulva, ɔ rɛktum). dis na biכs dεn tritmεnt dεm ya de pwεl כ pul di limf no dεm na di εria (lymphadenectomy). dis de blכk di rod fכ fכ mek di limf fכ fכlכ.
- Infεkshכn: Infεkshכn we kin de fכ lכng tεm na di limf no dεm we sכm baktri, vayrus, fכn כ wom kin kכz. Wan gud ɛgzampul fɔ dis na filariasis, we dɛn kɔl ‘Barawa’ na wi kɔntri.
- Injuri dɛn:Sivɛri aksidɛnt ɔ injuri na di say we di uman in bɛlɛ de.
- Sik dɛm wae kin kam wit mami ɛn dadi biznɛs (STI): Nɔr kin bɔrku, dis sik kin kam bak frɔm sɔm STI dɛm.
- Ɔda mɛrɛsin sik dɛm: Dis kin kam bak wit ɔda mɛrɛsin sik dɛm, lɛk Crohn’s disease (inflammation of the intestines), Sarcoidosis, ɛn Vasculitis (inflammation of the blood vessels), we nɔ kin apin so ɔltɛm.
Wetin na di sayn dɛm fɔ dis sik?
Di sayn dɛm fɔ di jenital lymphedema kin difrɛn smɔl frɔm wan pɔsin to ɔda pɔsin ɛn i kin difrɛn frɔm man ɔ uman. Lɛ wi tek wan luk pan sɔm pan de kɔmɔn sayn dɛm.
| Di simptom dɛm fɔ di Genital Lymphedema | |
|---|---|
| Kɔmɔn sayn dɛm (fɔ uman ɛn man) . | |
| I nɔ kin izi fɔ yu fɔ pis | Driblin na di urine, pen we yu de pis (dysuria). |
| Infekshɔn dɛn we kin kam bɔku tɛm | Baktri infεkshכn dεm na di skin kin apin bכku tεm na di εria we swεla. |
| Di skin we de tik ɔ we at | As tɛm de go, di skin we de na di say we dɔn swel kin tik ɛn fil tayt we yu tɔch am. |
| I nɔ izi fɔ du mami ɛn dadi biznɛs | Pen we yu de du mami ɛn dadi biznɛs (dyspareunia), prɔblɛm wit erection, ɛn di saykolojik distres we kin kam kin mek yu nɔ want fɔ du mami ɛn dadi biznɛs. |
| Di standad fɔ liv we de go dɔŋ | Pen, i nɔ kin izi fɔ pis, ɛn i nɔ kin izi fɔ du tin dɛn we pɔsin kin du ɛvride, dat kin mek i nɔ gɛt bɛtɛ layf. |
| Simptom dεm we spεshal fכ uman dεm | |
| pen εn swεla na di labia (skin fold) na di pεlvik εria εn na di tu say dεm na di vagina opin. Sɔntɛnde, yu fut kin swel bak. | |
| Simptom dɛm we spɛshal fɔ man dɛm | |
| Swel ɛn pen na di penis, di skrotum, ɔ ɔl tu. Sɔntɛnde, yu fut kin swel. | |
Di tin we impɔtant pas ɔl na dat dis nɔto sik we pɔsin kin pas. Genital Lymphedema nɔ kin pas frɔm wan pɔsin to ɔda pɔsin. I nɔto sik bak we pɔsin kin gɛt we i de du mami ɛn dadi biznɛs wit ɔda pɔsin (STI). So nɔ fred am we yu nɔ nid fɔ fred.
Us prɔblɛm dɛn kin apin if dɛn nɔ trit am?
If dɛn nɔ trit dis sik fayn, sɔm prɔblɛm dɛn kin kam as tɛm de go.
- Sεlulayt we de kam bak: Dis na baktri infεkshכn na di tisu dεm we de dכn di skin. I kin mek yu gɛt skata ɛn i kin mek yu skin nɔ ebul fɔ elastik.
- Elephantiasis: Dis na di kayn we we kin rili bad. Di skin kin big pasmak, tik, ɛn at, ɛn i kin tan lɛk ɛlifant in skin. Yu kin si dis kɔndishɔn bak pan siriɔs kes dɛm wae gɛt Barawa sik.
- Erysipelas: Dis na baktriyal skin infεkshכn, we lεk sεlyulayt. I kin skata kwik kwik wan ɛn mek yu gɛt fiva, pen, ɛn mek yu skin nɔ gɛt kɔlɔ (rɛd, pepul, brawn, blak).
- Di tin dɛn we kin apin to pɔsin in maynd: Bikɔs dis na tin we kin apin fɔ lɔng tɛm ɛn i kin afɛkt di we aw in bɔdi de luk, pɔsin kin gɛt tin dɛn lɛk fɔ lɛ i nɔ gɛt bɛtɛ rɛspɛkt fɔ insɛf, fɔ wɔri, fɔ gɛt pwɛl hat, ɛn fɔ strɛs . Dis na nɔmal tin. Nɔ shem fɔ tɔk to yu dɔktɔ bɔt am.
Aw dɔktɔ kin no bɔt dis?
If yu gɛt dɛn sik ya, di fɔs tin we yu fɔ du na fɔ go to dɔktɔ we sabi du di wok. I go aks yu fɔs bɔt yu mɛdikal istri ɛn du yu bɔdi ɛgzam. Dɔn, dɛn kin du sɔm ɔda tɛst fɔ no if dis na Genital Lymphedema.
- Limfosintigrafi: .dis involv fכ injεkt sכm sכm sכm redioaktiv sכbstans (radiotracer) insay di bכdi εn yuz spεshal skan fכ mכnitor in muvmεnt tru di limfatik sistεm. dis kin sho di εria dεm we blכk na di limfatik sistεm.
- MRI (Magnetic Resonance Imaging) skan: dis kin tek ditayla tri-dimenshכnal imej dεm fכ di sכft tisu dεm na di jεnital εria εn gud gud wan fכ egzamin di kכz εn di kכndishכn fכ di swεla.
Wetin na di tritmɛnt dɛm fɔ dis? Yu tink se dɛn go ebul fɔ mɛn am kpatakpata?
Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ di Genital Lymphedema yet . Bɔt nɔ wɔri. Wit di tritmɛnt dɛm wae de naw, yu kin kɔntrol yu sik dɛm, mek yu nɔr gɛt prɔblɛm, ɛn liv nɔrmal layf.
Di men we fɔ trit am na ‘Kɔmpleks Dikɔnjɛstiv Tɛrapi’ (CDT) . Dis na tritmɛnt we gɛt sɔm step dɛn.
1. Klin di skin gud gud wan: I rili impɔtant fɔ mek yu nɔ gɛt di sik. So, yu fɔ kip di say we yu dɔn swel klin ɔltɛm bay we yu de yuz sop dɛn we de fɛt baktri ɛn wam wata.
2. Manual Lymph Drainage: Dis nɔto fɔ masaj ɔltɛm. Na wan spɛshal pɔsin we tren fɔ mɛn limfedema kin du am. na ya, di limf fכluid we trכp na di εria we swel de muv jכnt εn spεshal wan to di εria wit limf vεsεl dεm we de wok fayn fayn wan. I rili impɔtant fɔ lan frɔm pɔsin we tren bifo yu du dis fɔ yusɛf.
3. Spɛshal kɔmpreshɔn klos ɛn pɔmp: We di swɛlin dɔn stɔp, dɛn kin yuz spɛshal kɔmpreshɔn klos ɔ bandej fɔ mek wata nɔ kam bak. Sɔntɛnde, dɛn kin yuz spɛshal pɔmp dɛn bak we kin blo ɛn pul wata as tɛm de go.
4. Fɔ ɛksesaiz fɔ yu bɔdi: I rili impɔtant bak fɔ du spɛshal ɛksɛsayz dɛn we pɔsin we de mɛn yu kin rɛkɔmɛnd we de mek di limf wata muv.
Bɔrku tɛm, dis CDT tritmɛnt kin nid fɔ du ɛvride fɔ sɔm wiks. Afta dat, dɛn go tren yu fɔ du dɛn tin ya yusɛf na os.
Ustɛm i nid fɔ du ɔpreshɔn?
If di sik tu bad fɔ kɔntrol wit dɛn CDT tritmɛnt ya, if infɛkshɔn kin apin bɔku tɛm, if di skin dɔn pwɛl bad bad wan ɛn i kin fil pen, ɛn if i ambɔg di layf ɛvride kpatakpata, di dɔktɔ kin se dɛn fɔ du ɔpreshɔn. Ɔpreshɔn involv fɔ pul di tisu we dɔn pwɛl ɛn kɔba di say wit wɛlbɔdi skin (skin graft).
Aw a go liv fayn wit dis sityueshɔn?
Bikɔs dis na sik we kin de fɔ lɔng tɛm, i rili impɔtant fɔ mek yu chenj smɔl smɔl na yu layf we yu de du tritmɛnt.
- Tek kia ɔf di tin dɛn we yu de it:
- Kɔntrol sɔl: Sɔl de mek di wata we de na di bɔdi kɔntinyu fɔ de. So, ridyus di it dɛn we yu de it we gɛt bɔku sɔl (piklɔ, dray fish, sos, fast fud) as yu ebul. Yuz spays (galik, ɔrigano, dray chili paoda) insted ɔf sɔl fɔ mek yu it flawa.
- Drink bɔku wata: Drink at le 8 glas wata ɛvride. Fɔ drink wata kin ɛp fɔ pul wata we nɔ nid fɔ kɔmɔt na di bɔdi.
- It balans it we gɛt fresh vɛjitebul, frut, slim prɔtin, ɛn ɔl grens.
- Tek spɛshal kia fɔ yu skin:
- Kip yu skin klin ɛn wet ɔltɛm. Dis kin ɛp fɔ mek yu nɔ gɛt di sik.
- If yu notis sayn dɛn we de sho se yu gɛt di sik, lɛk fɔ rɛd, pen, wam, ɔ fiva, tɛl yu dɔktɔ wantɛm wantɛm .
- Tink bɔt klos dɛn:
- Nɔ wɛr ɔndawea ɔ pant we rili tayt. Dɛn tin ya kin mek di blɔd nɔ ebul fɔ waka ɛn mek i nɔ ebul fɔ waka.
- Nɔ de na di sem pozishɔn fɔ tu lɔng. If yu sidɔm, nɔ krɔs yu leg. Chenj di pozishɔn dɛn at le ɛvri 30 minit.
- Nɔ wam pasmak: Nɔ tek tin dɛn lɛk fɔ was we rili wam ɛn fɔ yuz sawna. Ɔt kin mek yu swel mɔ.
- Mek yu gɛt wɛl bɔdi wet: We yu gɛt mɔ wet, yu limfatik sistɛm bak kin fil se yu gɛt mɔ lod. So, fɔ mek yu gɛt wɛlbɔdi wet rili impɔtant.
Ustɛm yu fɔ go to tritmɛnt kwik kwik wan?
If yu gɛt ɛni wan pan dɛn tin ya we de sho se yu gɛt di sik, ivin we dɛn de trit yu, go na di ɔspitul we de nia yu in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm .
- Fiva we pas 38 digri sɛlshiɔs (100.4 Fahrenheit).
- Di pen ɛn wam we de go ɔp na di say we dɔn swel.
- di skin de tכn rεd, pכpul כ brawn, כ rεd strεk dεm we de sho כnda di skin.
Simptom dɛm lɛk dis kin sho se wan infekshɔn kin de skata insay di bɔdi. I rili impɔtant fɔ go to tritmɛnt wantɛm wantɛm.
Mɛsej we dɛn kin kɛr go na os
- di jεnital Limfεdima na di swel we de kכz we di limf fכluid de bכku na di jεnital εria. Na wan sik we kin de fɔ lɔng tɛm.
- Dis nɔto sik we pɔsin kin gɛt ɔ sik we pɔsin kin gɛt we i du mami ɛn dadi biznɛs.
- Pan ɔl we dɛn nɔ kin ebul fɔ mɛn dis sik ɔl, dɛn kin kɔntrol am fayn fayn wan ɛn dɛn kin liv nɔmal layf wit CDT tritmɛnt ɛn chenj dɛn layf.
- If yu notis ɛni ɔda kayn swel, pen, ɔ chenj na yu skin na yu prayvet eria, nɔ shem ɛn go to dɔktɔ wantɛm wantɛm . Di kwik we yu bigin fɔ trit yu, na di mɔ yu go gɛt bɛtɛ tin fɔ du.
- I rili impɔtant fɔ kip di skin klin ɛn wach fɔ sayn dɛn we de sho se yu gɛt di sik.
- Tɔk to yu dɔktɔ ɔr pɔrsin wae de nia yu bɔt de mɛntɛl hεlth prɔblɛm wae kin de kɔz dis sik. Mental wɛlbɔdi impɔtant jɔs lɛk aw bɔdi wɛlbɔdi impɔtant.
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