Yu no bɔt Ɛmofilia B? Mek wi brok am dɔŋ!

Yu dɔn ɛva notis se sɔm pipul dɛn kin kɔntinyu fɔ blɔd ivin we dɛn gɛt smɔl wund? Ɔ yu dɔn notis se fɔ natin, sɔm pat dɛn na yu bɔdi kin tɔn blu ɛn gɛt blɔd strek? Wan rizin fɔ dɛn tin ya kin bi di kɔndishɔn we wi go tɔk bɔt tide we dɛn kɔl Ɛmofilia B. Nɔ wɔri, wi go tɔk bɔt dis na simpul we we yu go ɔndastand.

Wetin na Ɛmofilia B?

Fɔ tɔk am simpul wan, ɛmofilia B na wan sik we pɔsin kin gɛt we i gɛt blɔd. I kin apin we wan chenj de na wan jin we de ɛp wi blɔd fɔ klɔt. Pipul dɛn we gɛt ɛmofilia B gɛt smɔl smɔl tin dɛn we dɛn kɔl factor IX (we dɛn kin kɔl bak factor 9, F9, FIX), we na wan impɔtant prɔtin we de ɛp fɔ mek blɔd klɔt. If dɛn nɔ trit dis sik, i kin mek pɔsin in layf de pan denja. Di gud nyus na dat dɔktɔ dɛn de trit am wit factor 9 riplesmɛnt. Dɛn de fɛn nyu tritmɛnt dɛn bak lɛk jin tɛrapi.

Aw dis sik kin afɛkt yu bɔdi?

Lɛk ɔda kayn ɛmofilia, pipul dɛn we gɛt ɛmofilia B kin blɔd mɔ ɛn fɔ lɔng tɛm pas aw dɛn kin blɔd we dɛn wund, ɔpreshɔn, ɔ pul dɛn tut. Dis sik kin afɛkt man dɛn mɔ, bɔt i kin afɛkt uman dɛn bak.

Dɔktɔ dɛn kin kɔl ɛmofilia we nɔ kin bɔku, we nɔ kin bɔku, ɛn we kin rili bad . Pipul wae gɛt siriɔs ɛmofilia B kin blɔd na dɛn jɔyn. Dis kin mek yu fil pen bad bad wan, ɛn as tɛm de go, i kin mek yu gɛt tin dɛn lɛk at at sik. Sɔm pipul dɛn nid ɔpreshɔn fɔ pul di jɔyn dɛn we dɔn pwɛl ɛn put dɛn bak. Dɛn kin blɔd bak na dɛn bren, ɛn dis kin mek dɛn layf de pan denja.

Aw kɔmɔn tin na ɛmofilia B?

Statistikin na Amɛrika sho se pan ɔl 100,000 man dɛn na lɛk 4 pan dɛn gɛt ɛmofilia B. Uman dɛnsɛf kin gɛt am, bɔt i nɔ kin izi fɔ tɔk ustɛm dɛn kin gɛt am. Bikɔs pan ɔl we dɛn gɛt sayn dɛn lɛk we dɛn kin gɛt ebi ebi prɛgnɛshɔn, bɔku pipul dɛn nɔ kin tink se i gɛt fɔ du wit ɛmofilia.

Yu no wetin difrɛn bitwin ɛmofilia A ɛn B?

Ɛmofilia A ɛn B ɔl tu na di sik dɛn we pɔsin kin gɛt we i gɛt blɔd. Pan ɔl we di sayn dɛn we de sho se di sik kin rili fiba, di chenj dɛn we kin apin na di jɛnɛtiks we kin mek dɛn gɛt dis sik kin difrɛn. Stɔdi dɔn sho se di sayn dɛm fɔ ɛmofilia B kin shɔt smɔl pas di wan dɛm wae gɛt ɛmofilia A. Dis min se ɛmofilia B na siriɔs sik bak, bɔt pipul dɛm wae gɛt am kin gɛt smɔl prɔblɛm wit blɔd pasmak. Na sɔm ɔda tin dɛn we difrɛn:

• Stɔdi dɔn sho se pipul dɛn we gɛt ɛmofilia B nɔ kin gɛt bɛtɛ blɔd na dɛn jɔyn dɛn (ɛmathroses) ɛn dɛn nɔ kin gɛt bɛtɛ jɔyn dɛn we kin pwɛl.
• Blɔd we kin kɔmɔt pan insɛf nɔ kin bɔku pan pipul dɛn we gɛt ɛmofilia B.
• Sɔntɛnde, we dɛn de trit am fɔ ɛmofilia, di bɔdi kin gɛt antibodi dɛn we kin ambɔg di tritmɛnt. Bɔt pipul dɛn we gɛt ɛmofilia B nɔ kin gɛt dɛn prɔblɛm ya.

Wetin mek dɛn bin de kɔl dis fɔs ‘Krismas sik’?

Dis na stori we rili intrestin. Fɔ pas 100 ia, dɔktɔ dɛn bin de tink se na wan kayn ɛmofilia nɔmɔ de. Bɔt insay 1952, wan man we de stɔdi bɔt dis bin yuz sɛvin pipul dɛn we gɛt ɛmofilia (we dɛn kɔl wan pan dɛn ‘Krismas’) fɔ mɛn ɔda pipul dɛn we gɛt ɛmofilia. I sɔprayz fɔ no se di tritmɛnt bin wok! Na da tɛm de di wan dɛn we de stɔdi bɔt dis bin kam fɔ no se Mista Krismas gɛt difrɛn kayn ɛmofilia, dat min se na difrɛn jin we de chenj in jin. So dɛn kɔl dis sɛkɔn kayn ɛmofilia ‘Krismas factor’ ɔ ‘Krismas sik’. Leta dɛn bin kɔl am ɛmofilia B.

Wetin kin mek pɔsin gɛt ɛmofilia B?

As wi bin dɔn tɔk, ɛmofilia B na wan sik we de mek pɔsin blɔd kɔmɔt na in jɛnɛtiks. If yu gɛt ɛmofilia B, i min se yu dɔn gɛt wan abnɔmal jin we de afɛkt di amɔnt fɔ factor 9. Bɔku tɛm, wan jin de we dɛn kɔl F9, we de tɛl yu aw fɔ mek factor 9. Ɛmofilia B kin apin we dis F9 jin de chenj, we de mek wan abnɔmal jin we de ridyus di lɛvɛl fɔ factor 9, ɔ we de pul di factor 9 kpatakpata.Bɔku tɛm, bɔy pikin dɛn gɛt ɛmofilia B if dɛn gɛt mama dεm na dεn kin gεt di sik.

Na dis na aw i kin apin:

• Wi ɔl kin gɛt tu X kromozom frɔm wi mama, wan X kromozom ɛn wan Y kromozom frɔm wi papa.
• If uman gɛt abnɔmal F9 jin na wan pan in X kromozom, i go bi pɔsin we gɛt ɛmofilia B, bɔt i nɔ go sho di sayn dɛn. dis na biכs i gεt nכmal F9 jin na in כda X kromozom.
• dis uman kin pas di X kromozom wit di abnכmal F9 jin to in pikin. Bikɔs na wan X kromozom nɔmɔ bɔy pikin dɛn gɛt, dɛn go gɛt ɛmofilia B.

Sɔntɛnde, wan spontan mutation nɔ kin gɛt frɔm mama to bɔy pikin.Ɛmofilia B kin kam bak bay wan tin we dɛn kɔl invɔlɔshɔn. dis kin apin we eg εn sεl dεm jɔyn fכ mek wan εmbrayo, we de sheb εn bigin fכ mek nyu sεl dεm. Dɛn nyu sɛl dɛn ya kin kɛr kɔpi dɛn fɔ di jin dɛn we bin de insay di fɔs sɛl. So, sɔntɛnde mistek, ɔ muteshon kin apin we dɛn kɔpi dɛn jin ya. If mistek apin we dɛn kɔpi di F9 jin, yu pikin kin gɛt ɛmofilia B ɔ i kin bi pɔsin we gɛt ɛmofilia B. (Di wan dɛn we de stɔdi bɔt istri ɛn di wan dɛn we de stɔdi bɔt mɛrɛsin biliv se dis bin apin to Kwin Viktɔria na Ingland. Pan ɔl we nɔbɔdi nɔ bin gɛt ɛmofilia na in famili, i bin gɛt ɛmofilia. I bin pas di sik to in pikin dɛn. We dɛn pikin dɛn de we mared na di kiŋ famili na Spen ɛn Rɔshia, dɛn pikin dɛnsɛf bin gɛt di sik. Leta dɛn kam fɔ no se na ɛmofilia B.)

Wetin na di sayn dɛm fɔ ɛmofilia B?

Wi dɔn tɔk se dɛn kin kɔl di sik dɛn we de sho se pɔsin gɛt ɛmofilia B we nɔ kin bɔku, we nɔ kin bɔku, ɛn we kin rili bad. Dɔktɔ dɛn kin klas dɛn tin ya bay di lɛvɛl we factor 9 de na di blɔd.

Mild ɛmofilia B

Pipul dεm wae gεt factor 9 lεvεl bitwin 6% εn 49% gεt mild hεmofilia B. Di simptom dεm nכ kin sכmtεm. Sɔntɛnde, dɛn kin no se pipul dɛn we gɛt mild hemophilia B dɔn big, we dɛn de rɛdi fɔ ɔpreshɔn, we dɛn de kam bɔn pikin, afta dɛn dɔn gɛt big injury, ɔ, if na uman dɛn, we dɛn de trit dɛn fɔ ebi ebi blɔd we de kɔmɔt na dɛn mɔnt.

Mɔdaret ɛmofilia B

Pipul dεm wae gεt factor 9 lεvεl bitwin 1% εn 5% gεt mild hεmofilia B. Di simptom dεm dεn tu sכmtεm. Pikin dεm we gεt dis kכndyushכn kin bigin fכ sho di sayn dεm arawnd 18 mכnt.

Dɛn pikin ya kin gɛt sɔm sayn dɛm lɛk:

• Brus: Dɛn kin brus ɛn brus izi wan.
• Blɔd we nɔ kɔmɔn: If dɛn du yu ɔpreshɔn, wund we de blɔd, ɔ pul yu tut, yu kin blɔd mɔ ɛn fɔ lɔng tɛm pas aw i kin blɔd.
• Blɔd we de kɔmɔt insɛf: Na smɔl tɛm nɔmɔ i kin bigin fɔ blɔd fɔ no rizin.

Sivɛri ɛmofilia B

Pipul wae gɛt factor 9 lɛvɛl wae nɔr pas 1% gɛt siriɔs ɛmofilia B. Di sayn dɛm kin rili bad. Sɔm pikin dɛn kin bigin fɔ blɔd we dɛn bɔn dɛn, jɔs afta dɛn bɔn dɛn, ɔ afta dɛn dɔn sakɔmsayz. Ɔda pikin dɛn nɔ kin sho di sik te sɔm mɔnt afta dɛn bɔn dɛn. Di kɔmɔn sayn dɛm na:

• Blɔd: Yɔŋ pikin ɛn smɔl pikin dɛn kin blɔd na dɛn mɔt if smɔl tin lɛk tɔys kam insay dɛn mɔt.
• Lump dεm we swεl na dεn ed: If sכm pikin nak dεn ed sכmsay, dεn kin gεt bכku we lεk gɔs eg.
• Fɔ kray ɔltɛm, nɔ de rɛst, ɔ nɔ gri fɔ kray ɔ waka:Dɛn tin ya kin apin if di pikin gɛt blɔd we de kɔmɔt na in mɔsul ɔ jɔyn insay in bɔdi. Dɛn kin luk blu ɛn swel na sɔm say dɛn. Dɛn kin fil wam we dɛn tɔch dɛn ɛn di pikin kin fil pen.
• Ɛmatoma: Ɛmatoma na blɔd we kin gɛda ɔnda di skin. di pikin kin gεt hεmatoma bak afta dεn injεkt am.
• I nɔ kin izi fɔ blo: Sɔntɛnde, di pikin in tɔŋ kin swel bikɔs i de blɔd ɛn i kin blok di say we i de blo.

Aw dɔktɔ dɛn kin no dis?

Dɔktɔ dɛn kin no if pɔsin gɛt ɛmofilia B bay we dɛn de du ɛgzam pan in bɔdi, luk fɔ sɔm sayn dɛn lɛk we di jɔyn dɛn de brus ɛn swel, ɛn aks if ɛnibɔdi na di famili gɛt ɛmofilia ɔ ɔda sik dɛn na di blɔd.

Apat frɔm dat, dɛn kin du dɛn tɛst ya bak:

• Kɔmplit Blɔd Kɔnt (CBC): Dis de chɛk di kayn sɛl dɛn we de na di blɔd ɛn dɛn nɔmba.
• Prothrombin Time (PT) test: Dis kin tɛst aw yu blɔd kin klot kwik kwik wan.
• Activated Partial Thromboplastin Time test: Dis na test bak we de mכsu aw lכng i tek fכ mek blכd kכlכt fכm.
• Fibrinogen test: Na test we de sho aw wan protin we dɛn kɔl fibrinogen de ɛp fɔ mek di blɔd klɔt.
• Klɔtin faktɔ tɛst: Na dis kin ɛp fɔ no di rayt kayn ɛmofilia ɛn aw di sik bad.

Wetin na di tritmɛnt dɛm fɔ dis?

Bɔku tɛm dɔktɔ dɛn kin trit ɛmofilia B wit faktɔ riplesmɛnt tɛrapi . dis involv fכ injεkt kכnsantreyt fכktכ 9 insay wan vein. dis kכnsantreyt fכktכ 9 de wok fכ riples di fכktכ we nכ de, i de εp fכ mek blכd nכ bכku כ kכntrכl blכd we i apin.

Bɔku tɛm, pipul dɛn we gɛt smɔl to mɔdaret ɛmofilia B kin jɔs nid dis tritmɛnt we dɛn gɛt fɔ du sɔntin lɛk ɔpreshɔn. Bɔt pipul dɛn we gɛt siriɔs ɛmofilia B kin nid fɔ gɛt factor riplesmɛnt tɛrapi ɔltɛm.

Ɛni prɔblɛm de we kin apin we dɛn de trit am?

Sɔm kɔmplikɛshɔn kin kam pan pipul dɛm wae de tek dis tritmɛnt. di men wan dεm na di divεlכpmεnt fכ inhibito dεm εn vayral infεkshכn dεm .

Di tin dɛn we de mek pɔsin nɔ ebul fɔ du sɔntin

di inhibitor dεm de divεlכp we di bכdi stכp fכ aksept di fכktכ riplesmεnt as pat pan in nכmal bכdi. Dɛn inhibito ya de mek di fכktכ riplesmεnt tεrapi nכ de wok fayn fayn wan. Dis kin mek i nɔ izi fɔ stɔp ɔ ridyus di blɔd we de kɔmɔt. Pipul wae gɛt siriɔs blɔd disɔda wae de gɛt ay dos fɔ factor therapy kin gɛt dis kɔmplikeshɔn. Dɔktɔ dɛn kin trit dis bay we dɛn de yuz ɔda tin dɛn we kin mek di blɔd klɔt kɔmplit wan we dɛn nɔ de baypas factor 9.

Vayral infɛkshɔn dɛn

Na smɔl tɛm nɔmɔ, vayral infɛkshɔn lɛk ɛpatitis C kin apin we dɛn yuz factor substitutes, we dɛn mek wit blɔd we dɛn gi. Bɔt wit di we aw dɛn de du di tɛst naw, dis risk kin smɔl pasmak.

Yu tink se dɛn kin ridyus di prɔblɛm we kin mek dis apin?

Bikɔs ɛmofilia B na sik we dɛn kin gɛt frɔm dɛn mama ɛn papa, yu nɔ go ebul fɔ mek i nɔ gɛt am ɔ pas am to yu pikin dɛn. Lɛ wi lan smɔl mɔ bɔt di jɛnɛtik prɔses we dɛn kin gɛt frɔm dɛn mama ɛn papa:

• If yu na uman ɛn yu gɛt di abnɔmal F9 jin na wan pan yu X kromozom (we min se yu na pɔsin we de kɛr am), yu man pikin dɛn gɛt 50% chans fɔ gɛt ɛmofilia B, ɛn yu uman pikin dɛn gɛt 50% chans fɔ gɛt ɛmofilia B.
• Yu gyal pikin dɛm, we gɛt dis jin, kin pas ɛmofilia B to dɛn bɔy pikin dɛm. Dɛn gyal pikin dɛn kin bi pipul dɛn we de kɛr pipul dɛn.
• Yu bɔy pikin dɛn we gɛt ɛmofilia B kin pas dis kromozom to dɛn gyal pikin dɛn.
• If yu na man ɛn yu gɛt ɛmofilia B, yu bɔy pikin dɛn nɔ go gɛt di sik. bכt כl yu gyal pikin dεm go bi kכriכg fכ di kromozom wit di abnכmal F9 jin.

Jɛnɛtik advays rili impɔtant pan dis sityueshɔn. If yu ɔ sɔmbɔdi na yu famili gɛt ɛmofilia, i go fayn fɔ mek yu mit wit pɔsin we de advays yu bɔt yu jɛnɛtiks bifo yu bɔn pikin.

If a gɛt bɛlɛ, a kin no bifo tɛm if mi pikin gɛt dis sik?

Yɛs, yu kin ebul. Dɔktɔ dɛn kin tek blɔd frɔm yu ɔmbilikal kɔd ɛn tɛst am fɔ si if i gɛt tin dɛn we de mek yu bɔdi rɔtin. Da we de, yu ɛn dɛn kin no bifo tɛm wetin fɔ ɛkspɛkt we yu bɔn yu pikin ɛn wetin fɔ du fɔ mek prɔblɛm dɛn nɔ blɔd.

If a gɛt ɛmofilia B, wetin a fɔ ɛkspɛkt?

Ɛmofilia B na wan sik we nɔ de mɛn. Dɔktɔ dɛn nɔ go ebul fɔ mɛn am kpatakpata. Bɔt sɔm tritmɛnt dɛn de we kin mek yu nɔ gɛt siriɔs pen na yu jɔyn ɛn ɔda prɔblɛm dɛn we yu gɛt wit mɛrɛsin. Bɔrku pipul dɛm wae gɛt ɛmofilia B kin gɛt gud wɛl bɔdi wit tritmɛnt.

Pipul wae gɛt siriɔs ɛmofilia B nid fɔ gɛt injɛkshɔn ɔltɛm fɔ riples faktɔ (infushɔn ɔ injɛkshɔn) fɔ trit prɔblɛm wit blɔd. Dɛn kin go to dɔktɔ fɔ tritmɛnt, mek dɛn fambul ɔ pɔsin we de kia fɔ dɛn gi dɛn di injɛkshɔn, ɔ dɛnsɛf kin ebul fɔ gi dɛn di injɛkshɔn. Bɔt pipul dɛn we gɛt siriɔs ɛmofilia B nid tritmɛnt ɔltɛm fɔ mek dɛn nɔ blɔd pasmak.

Dɛn kin gɛt ɔda sik dɛn bak we kin afɛkt dɛn ɔl wɛlbɔdi biznɛs ɛn aw dɛn kin liv dɛn layf. Fɔ ɛgzampul, bɔku pipul dɛn we gɛt ɛmofilia B kin gɛt siriɔs prɔblɛm wit dɛn ni ɔ hip, ɛn dɛn kin nid ɔpreshɔn fɔ pul di jɔyn dɛn we dɔn pwɛl ɛn put nyu wan dɛn insay dɛn. If yu gɛt ɛmofilia B, aks yu dɔktɔ wetin fɔ ɛkspɛkt. Na in na di bɛst pɔsin fɔ gi yu di bɛst infɔmeshɔn bikɔs i no yu sik ɛn yu ɔl wɛl bɔdi.

Wetin a fɔ no if mi pikin gɛt dis sik?

If yu pikin gɛt smɔl ɔ mɔdaret ɛmofilia B, i impɔtant fɔ mek yu dɔktɔ no bɔt di sik so dat dɛn go mek i nɔ blɔd pasmak if dɛn du ɔpreshɔn pan yu pikin ɔ pul in tut. Na sɔm ɔda advays dɛn ya. Yu dɔktɔ kin gɛt ɔda advays dɛn:

• We yu pikin dɛn rili yɔŋ, chɛk fɔ si if dɛn ay chia ɛn motoka sit gɛt di rayt sef bɛlt.
• We dɛn big smɔl ɛn ple wit ɔda pikin dɛn, di wan dɛn we de kia fɔ dɛn ɛn di skul ticha dɛn nid fɔ no wetin fɔ du if di pikin aksidɛntli wund ɛn bigin fɔ blɔd.
• Yu pikin go nid fɔ de fa frɔm sɔm tin dɛn lɛk fɔ ple gem dɛn we gɛt fɔ du wit ɔda pipul dɛn tranga wan ɔ we i go ebul fɔ fɔdɔm.

Wetin fɔ du if mi pikin gɛt siriɔs ɛmofilia B?

Pikin dɛm we gɛt siriɔs ɛmofilia B go nid mɛrɛsin fɔ di res ɔf dɛn layf – fɔ mek dɛn nɔ gɛt ɔ ridyus blɔd, ɔ fɔ manej di sayn dɛm. Na sɔm pan di prɔblɛm dɛn we yu go gɛt, ɛn sɔm advays dɛn we go ɛp yu:

• Bebi dɛn we gɛt ɛmofilia B, we dɛn de lan fɔ waka, kin bigin fɔ blɔd if dɛn bɔmp ɔ fɔdɔm. I nɔ pɔsibul fɔ mek ɔlman nɔ fɔdɔm, bɔt i fayn fɔ put kɔva fɔ protɛkt yusɛf pan shap kɔna dɛn na di fɔnicha na di os.
• As yu pikin de ol ɛn bigin fɔ rɔn ɛn jomp, tɔk to yu dɔktɔ bɔt sef tin dɛn lɛk ɛlmɛt ɛn ni pad. Infakt, ɔl pikin dɛn fɔ wɛr ɛlmɛt we dɛn de rayd baysikul. Yu pikin kin nid ɛkstra protɛkshɔn fɔ mek i nɔ go rɔsh we go mek i blɔd.
• Yu pikin go nid fɔ gɛt dɔktɔ ɔltɛm fɔ mek i stɔp fɔ blɔd. I kin vɛks ɛn fil bad we i nɔ ebul fɔ spɛn tɛm wit in padi dɛn ɛn i kin mis skul wok we i gɛt fɔ go fɔ tritmɛnt.
• Pikin we gɛt ɛmofilia no se in ticha dɛn ɛn ɔda pipul dɛn no bɔt in sik. I nɔ kin fil fayn we ticha dɛn ɛn ɔda pipul dɛn na skul de tray fɔ ɛp am bɔt dɛn de trit am difrɛn we.
• Pikin ɛn yɔŋ pipul dɛn we dɔn ol kin nid ɛp fɔ dil wit aw dɛn de fil ɛn fɔ bia wit di we aw ɔda pipul dɛn de biev. If yu pikin de na di sem kayn tin, tɔk to yu dɔktɔ bɔt program ɔ sɔpɔt grup fɔ yɔŋ pipul dɛn.

A gɛt ɛmofilia B. Aw a kin tek kia ɔf misɛf?

Fɔ liv wit ɛmofilia B min fɔ tek ɛkstra step fɔ protɛkt yu ɔl wɛl bɔdi, pan ɔl we yu de tek kia ɔf yu tritmɛnt. Na sɔm advays dɛn ya:

• Protɛkt yusɛf frɔm infɛkshɔn: Aks yu dɔktɔ bɔt us vaysin dɛn we fayn fɔ yu.
• Mek yu gɛt wɛl bɔdi wet: If yu gɛt prɔblɛm fɔ muv rawnd bikɔs yu de blɔd insay yu bɔdi ɛn yu jɔyn dɛn dɔn pwɛl, fɔ kɔntrol yu wet kin ɛp.
• Gɛt ɛksɛsayz: Yu kin fred fɔ wund we yu de ɛksesaiz. Tɔk to yu dɔktɔ bɔt aw fɔ ridyus yu risk fɔ blɔd we yu de aktif.
• Manej yu strɛs: Ɛmofilia B na wan sik we yu go gɛt fɔ yu layf. I kin tek mɔ tray fɔ balans am wit yu famili ɛn di wok we yu fɔ du.
• Nɔ tek sɔm mɛrɛsin dɛn we de mek yu fil pen: If yu gɛt ɛmofilia B, yu nɔ fɔ tek aspirin ɔ ibuprofen. Dɛn mɛrɛsin ya we de mek pɔsin fil pen kin mek di blɔd nɔ klin.

Yu fɔ go to yu dɔktɔ fɔ di tritmɛnt we yu dɔn sɛtul ɛn ɛni tɛm we yu gɛt ɛni ɔda sayn, lɛk fɔ blɔd we nɔ kɔmɔn ɔ fɔ gɛt siriɔs pen na yu jɔyn.

Ustɛm yu nid fɔ go fɔ tritmɛnt kwik kwik wan?

If yu gɛt injury na yu ed , yu fɔ go to dɔktɔ wantɛm wantɛm. Dɛn sayn ya kin sho se yu gɛt blɔd we de kɔmɔt na yu bren (intracranial hemorrhage):

• Ed de at.
• Wik.
• Nɔs ɛn vɔmit.
• Yu nɔ gɛt swɛla ɔ yu paralayz.

If yu nɔ ebul fɔ stɔp fɔ blɔd frɔm ɛni kayn wund, ɔ if yu bigin fɔ blɔd fɔ natin, go to yu dɔktɔ ɔ go na imejensi rum wantɛm wantɛm.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Ɛmofilia B na ɔda kayn sik we nɔ kin apin so ɔltɛm. Lɛk ɛmofilia A, ɛmofilia B na wan sik we pɔsin kin gɛt we i gɛt blɔd. Pan ɔl we stɔdi dɔn sho se pipul dɛn we gɛt ɛmofilia B nɔ kin gɛt bɛtɛ sik dɛn lɛk di wan dɛn we gɛt ɛmofilia A, ɛmofilia B stil na wan sik we kin mek dɛn gɛt bɔku prɔblɛm dɛn we dɛn kin gɛt pan mɛrɛsin, layf, ɛn dɛn maynd.

Uman dɛm wae gɛt dis sik kin wɔri se dɛn pikin dɛm go gɛt am. Mama ɛn papa dɛn we gɛt pikin we gɛt ɛmofilia B kin wɔri fɔ protɛkt dɛn pikin frɔm aksidɛntal injuri. Leta, dɛn kin gɛt fɔ ɛp dɛn pikin we de gro fɔ lan fɔ liv wit ɛmofilia B. Pipul dɛn we gɛt siriɔs ɛmofilia B kin nid tritmɛnt fɔ ɔl dɛn layf fɔ mek dɛn nɔ blɔd pasmak.

Bɔt op de! Risach pipul dɛn de fɛn nyu tritmɛnt dɛn lɛk fɔ chenj di jin ɛn fɔ tek di jin. Dɛn tin ya kin mek big difrɛns pan di we aw dɛn kin trit siriɔs ɛmofilia B. If yu ɔ yu pikin gɛt dis sik, aks yu dɔktɔ bɔt klinik trial dɛm we go fayn fɔ yu. Mɛmba se if yu gi yu di rayt advays ɛn tritmɛnt, yu go ebul fɔ liv fayn ɛn gɛt wɛlbɔdi wit ɛmofilia B.

` Ɛmofilia B, blɔd, jɛnɛtik sik, blɔd we de klɔt, Factor IX, sik dɛn we pɔsin kin gɛt frɔm in mama ɛn papa, Krismas sik