Lɛ wi lan bɔt di Idursulfase vaysin we dɛn kin gi to di wan dɛn we gɛt Hunter Syndrome.

Yu ɔ pɔrsin wae yu sabi gɛt wan sik wae nɔr kin bɔrku wae dɛn kɔl Hunter Syndrome? If na so, yu go dɔn yɛri bɔt di vaysin we dɛn kɔl Idursulfase. Na smɔl kɔmplikɛt nem, bɔt tide wi go tɔk bɔt dis drɔg insay wan rili simpul we, insay wan we we yu go ɔndastand. Bikɔs i rili impɔtant fɔ no gud gud wan bɔt tin dɛn lɛk dis.

Wetin na dis mɛrɛsin we dɛn kɔl Idursulfase?

Fɔ tɔk am simpul wan, Hunter Syndrome na wan sik we spɛshal ``ɛnzaym``, we na protin we de ɛp wit kemikal prɔses dɛn na wi bɔdi, nɔ de ɔ i nɔ de wok fayn. dis ``εnzym`` de εp fכ brok dכn sכm kכmpleks mכlikul dεm na wi bכdi εn fכ mek dεn simpul, we min se dεn kin kכl dεm na di bכdi we dεn du dεn wok. so we dis ``εnzym`` nכ de, dεn kכmpleks mכlikul dεm de kכmכt na difrεn pat dεm na di bכdi, we de mek difrεn prכblεm εn simptom dεm.

Idursulfase na wan mɛrɛsin we dɛn kin mek na di lɛbɔraytri fɔ tek di ples fɔ da ɛnzaym we nɔ de, ɛn i kin wok. Dat min se i de tek ples fɔ da ɛnzaym we nɔ de, ɔ fɔ se, na tritmɛnt fɔ tek di ɛnzaym. Bɔt wan tin we yu fɔ mɛmba gud gud wan na dat dis nɔto kɔmplit mɛrɛsin . Bɔt e kin ɛp fɔ kɔntrol de sik, kɔntrol aw de sik de wɔs, ɛn mek layf izi smɔl.

Sɔntɛnde yu kin yuz dis mɛrɛsin fɔ ɔda tin, so if yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ ɔ fama.

Wan kɔmɔn brand nem fɔ dis mɛrɛsin na `(Elaprase)`.

Wetin yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin?

Naw, bifo yu bigin fɔ tek dis mɛrɛsin, sɔm tin dɛn de we yu fɔ tɛl yu dɔktɔ ɔ di tim we de kia fɔ yu. Dis na fɔ mek dɛn go gi yu di rayt tritmɛnt sef wan. Tink bɔt am lɛk fɔ no bifo tɛm us tin dɛn we go ambɔg yu na rod.

Na di tin dɛn we wi fɔ no bɔt:

• Naw yu gɛt infekshɔn ɛn fiva?
• Yu gɛt at sik? Dat min se sɔm kayn at prɔblɛm.
• Yu gɛt ɛni sik na yu lɔng? Lɛk prɔblɛm dɛn we pɔsin kin gɛt we i de blo.
• Yu dɔn ɛva gɛt alɛji fɔ Idursulfase, we na ɔda mɛrɛsin, it, it day, ɔ tin dɛn we de mek yu nɔ pwɛl? Dis kin inklud ayv, it, ɔr i nɔ kin izi fɔ blo.
• Yu dɔn ɛva gɛt swel na yu tɔŋ, yu fes, ɔ yu lip, i nɔ izi fɔ blo, i nɔ izi fɔ swɛla, i de ala, ɔ yu trot tayt?Yu tink se dat dɔn ɛva apin? Dis na impɔtant tin, bikɔs tin lɛk dat kin apin ivin we yu tek dis mɛrɛsin.
• Yu gɛt bɛlɛ ɔ yu op fɔ gɛt bɛlɛ?
• Yu de gi pikin in mama in bɛlɛ?

I rili impɔtant fɔ yu yon sef fɔ tɔk bɔt dɛn tin ya ɛn nɔ ayd am.

Aw yu kin yuz dis mɛrɛsin?

Dɛn kin gi dis mɛrɛsin as injɛkshɔn insay wan vein . mכr prεsis, na ``infushכn`` fכ salin, we dεn de gi insay di bכdi fכ sεvεra awa. Dis nɔto sɔntin we yu go ebul fɔ du na os . Na pɔsin we tren fɔ kia fɔ wɛlbɔdi biznɛs, lɛk dɔktɔ ɔ nɔs, na ɔspitul ɔ klinik fɔ gi yu.

If yu gi pikin dɛn dis mɛrɛsin:

Sɔntɛnde dɛn kin gi dis mɛrɛsin to pikin dɛn we ol 16 mɔnt, ɛn pikin dɛn we ol 1 ia ɛn 4 mɔnt, fɔ sɔm kɔndishɔn dɛn we dɛn dɔn pik. Bɔt, spɛshal tin dɛn de we wi fɔ tek tɛm wit. So, if yu de gi dis to yu pikin, i impɔtant fɔ tek tɛm tɔk to yu dɔktɔ we de mɛn pikin dɛn ɛn no di ditel dɛn.

Ɔvados: .

If yu tink se yu dɔn tek dis mɛrɛsin tumɔs, ɔ if yu tink se yu dɔn tek am, yu fɔ kɔl pɔyzin kɔntrol sɛnta ɔ di ɔspitul imejensi rum we de nia yu wantɛm wantɛm. I rili impɔtant fɔ du sɔntin kwik kwik wan.

Impɔtant notis: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ gi dis mɛrɛsin to ɔda pɔsin fɔ ɛni rizin , ilɛksɛf dɛn gɛt di sem sayn dɛn we yu gɛt.

Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?

I nɔ fayn fɔ skip wan doz fɔ dis mɛrɛsin. Dis na mɛrɛsin we dɛn nid fɔ tek ɔltɛm ɛn ɔltɛm. If yu mis am, di rizulyt fɔ di tritmɛnt kin ridyus. If yu nɔ ebul fɔ kam tek di mɛrɛsin di de we dɛn dɔn plan, mek shɔ se yu tɔk to yu dɔktɔ ɔ pɔsin we sabi bɔt wɛlbɔdi biznɛs . Dɛn go tɛl yu wetin fɔ du nɛks.

Ɔda tin dɛn kin ebul fɔ miks wit dis mɛrɛsin?

Dis mεrεsin nכ kin jεnarali fכnshכn fכ mek big prכblεm wit כda mεdikeshכn dεm (dεn nכ de εkspεkt intarakshכn). Dat min se, i nɔ kin rili riak wit ɔda mɛrɛsin dɛn.

Bɔt i go fayn fɔ mek yu tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek , lɛk di mɛrɛsin dɛn we yu de tek, di mɛrɛsin dɛn we yu nɔ gi yu, ɔyl dɛn, ɛn di tin dɛn we yu de yuz fɔ it. Dɔn bak, tɛl yu dɔktɔ if yu de smok, drink rɔm, ɔ yuz ɔda drɔgs we nɔ rayt.If yu du dat, tɛl dɛm bɔt am bak, bikɔs sɔm tin kin intarakt wit yu mɛrɛsin sɔm kayn we ɔr kin mek yu gɛt mɔ sayd ɛfɛkt.

Wetin a fɔ tek tɛm we a de yuz dis mɛrɛsin?

We yu de tek dis mɛrɛsin, i rili impɔtant fɔ go to yu dɔktɔ fɔ mek dɛn chɛk yu ɔltɛm . If yu sik nɔr de bɛtɛ ɔr i tan lɛk se yu de wɔs, tɛl yu dɔktɔ. Nɔ ignore ɛnitin.

Wan rɛjista de bak fɔ di wan dɛn we gɛt Hunter Syndrome. Dis kin mek dɛn ebul fɔ gɛda infɔmeshɔn frɔm yu fɔ lɔng tɛm, we min se dɛn kin stɔdi di sik mɔ. Yu kin aks yu wɛl bɔdi biznɛs pɔrsin fɔ no mɔr bɔt dis. Yu kin jɔyn bak if yu want fɔ no mɔ.

Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?

Lɛk ɛni mɛrɛsin, di Idursulfase vaysin kin mek sɔm sayd ɛfɛkt. Sɔm pan dɛn kin siriɔs ɛn yu fɔ tɛl yu dɔktɔ wantɛm wantɛm. Sɔm pan dɛn na nɔmal tin ɛn dɛn go go insay sɔm dez.

Di sayd ɛfɛkt dɛm we yu fɔ tɛl yu dɔktɔ wantɛm wantɛm:

If yu gɛt ɛni wan pan dɛn sik ya , yu fɔ tɛl yu dɔktɔ ɔ pɔsin we de kia fɔ yu wɛlbɔdi biznɛs kwik kwik wan. Dɛn tin ya kin bi sayn fɔ se yu gɛt siriɔs sik.

• Alɛji, we na fɔ mek yu skin rɔsh, yu de it ɔ yu gɛt ayv, yu fes, yu lip, ɔ yu tɔng de swel. Dɛn tin ya kin apin di tɛm we dɛn gi di vaysin ɔ jɔs afta dɛn gi am.
• Prɔblɛm fɔ blo. Fɔ fil lɛk se yu de swɛla, fɔ gɛt fɔ blo kwik kwik wan.
• Chɛst de pen ɔ tayt.
• Diziz we pɔsin kin gɛt; fɔ fil lɛk se yu nɔ gɛt bɛtɛ trɛnk ɔ yu ed nɔ gɛt bɛtɛ trɛnk; fɔdɔm bikɔs yu nɔ gɛt bɛtɛ balans; fɔ fil wik ɔ taya we nɔ kɔmɔn.
• Fast, irɛgyula at bit.
• Fiva ɔ kol kol. Dɛn tin ya kin bi sayn fɔ se yu gɛt infekshɔn.

Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt yu fɔ ripɔt to yu dɔktɔ if dɛn kɔntinyu fɔ de:

Bɔku tɛm, dɛn tin ya kin stɔp insay sɔm dez. Bɔt if dɛn kɔntinyu fɔ du dat, ɔ if dɛn de mɔna yu, tɛl yu dɔktɔ.

• Kɔf.
• Rɔnbɛlɛ.
• Fes we de flash. Dis min se di fes kin rɛd ɛn fil wam.
• Ed de at.
• Mɔsul ɔ jɔyn pen.
• Nɔs, fɔ vɔmit.
• We pɔsin taya.

Dis list nɔ kin gɛt ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu notis ɛnitin we nɔ kɔmɔn, kɔl yu dɔktɔ fɔ mek i gi yu advays. Yu kin ripɔt dɛn sayd ɛfɛkt ya to di FDA (Food and Drug Administration) na Amɛrika na 1-800-FDA-1088. Insay Sri Lanka, yu kin ripɔt dɛn to di wɛlbɔdi ɔtoriti dɛn we gɛt fɔ du wit am tru yu dɔktɔ.

Usay yu kin kip dis mɛrɛsin?

Dis na kwɛstyɔn bak we bɔku pipul dɛn kin aks. Yu nɔ alaw fɔ kip dis Idursulfase mɛrɛsin na os. Na ɔspitul ɔ klinik nɔmɔ dɛn kin yuz ɛn kip am. Di rizin fɔ dis na di we aw dɛn gi am ɛn di spɛshal tɛmpracha kɔndishɔn dɛn we dɛn fɔ kip am.

Fɔ dɔn, wan impɔtant not

Dis na jɔs sɔm pan di tin dɛn we wi dɔn tɔk bɔt? I nɔ de kɔba ɔl di ditel dɛn. Di tin we de apin to ɔlman difrɛn. So, if yu gɛt ɛni kwɛstyɔn ɔ wɔri bɔt dis mɛrɛsin, mek shɔ se yu aks yu dɔktɔ, fama, ɔ ɔda pɔsin we de kia fɔ yu wɛlbɔdi biznɛs. Dɛn kin gi yu di kɔrɛkt infɔmeshɔn fɔ yu sityueshɔn.

Tin dɛn we yu nid fɔ mɛmba (Take-Home Message) .

Okay, so na sɔm tin dɛn we yu nid fɔ mɛmba frɔm wetin wi dɔn tɔk bɔt:

• Idursulfase na wan mɛrɛsin wae de sev layf wae de tek ples fɔ wan ɛnzaym wae nɔr de pan pipul dɛm wae gɛt Hunter Syndrome.
• Dis nɔto kɔmplit mɛrɛsin , bɔt i kin ɛp fɔ kɔntrol di sik dɛn ɛn mek yu layf bɛtɛ.
• Bifo yu bigin fɔ tek di mɛrɛsin , i impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl yu wɛlbɔdi prɔblɛm, alɛji, ɛn ɔda mɛrɛsin dɛn we yu de tek.
• Dis na pɔsin we tren kin gi am as infushɔn insay wan vein na ɔspitul.
• Nɔ skip wan doz fɔ mɛrɛsin. If yu nɔ ebul, tɛl yu dɔktɔ wantɛm wantɛm.
• Siriɔs sayd ɛfɛkt kin de ɛn bak kɔmɔn sayd ɛfɛkt. Tɛl yu dɔktɔ bɔt ɛnitin we nɔ kɔmɔn, ilɛksɛf i smɔl.
• Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ gi am to ɛni ɔda pɔsin.
• Nɔ fred fɔ aks yu dɔktɔ ɛni kwɛstyɔn ɔ tin we de mɔna yu. Yu gɛt ɔl di rayt fɔ no bɔt yu wɛlbɔdi biznɛs.

` Idursulfase, Hunter Syndrome, Enzyme riplesmɛnt tɛrapi, Elaprase, Sayd ifɛkt, Mɛrɛsin, Sik dɛm we nɔ kin bɔku