Yu nid bak fɔ go na tɔylɛt bɔku tɛm insay di de? Yu kin pis smɔl nɔmɔ? Yu jɔs gɛt wan strenj ebi ɔ pen na yu bɛlɛ we de dɔŋ? Sɔntɛm yu tink se dis na urinary tract infection (UTI), bɔt ivin fɔ tek mɛrɛsin nɔ go ɛp? Dɔn dis sik wae wi de tɔk bɔt tide, Interstitial Cystitis, kin afɛkt yu bak. Dis na tin we kɔmplikt smɔl, ɛn na tɔpik we bɔku pipul dɛn nɔ rili no bɔt. So lɛ wi tɔk bɔt am simpul wan, di we we yu go ɔndastand.
Wetin na di ɛksaktɔli Intastitial Sistayt (IC/BPS)?
Fɔ tɔk am simpul wan, dis na pen ɔr nɔr kin fil fayn na yu blad . Naw, dɔktɔ dɛn kin kɔl dis Bladder Pain Syndrome (BPS). Lɛ wi brok dɔŋ di minin fɔ dis nem smɔl.
- intastitial min "insay di spεs bitwin di tisu dεm."
- Sistayt min "inflammation of the bladder," we min se na wan sik we de mek yu swel.
dat min se na inflamεshכn εn pen we kin de fכ lכng tεm we de apin bitwin di tisu dεm na di blad. Pɔsin wae gɛt dis sik nid fɔ pis pas aw i kin pis. Ɛn we dɛn fil se dɛn nid fɔ pis, i kin rili at fɔ ol am, ɛn dɛn nid fɔ go tɔylɛt kwik kwik wan. Wi kin kɔl dis frɛkuɛns (fɔ pis bɔku tɛm) ɛn urgency (urgent need) .
Di impɔtant tin na dat, dis nɔto wan tipik urinary tract infection (UTI). Wan urinary tract infection na jem dɛm lɛk baktri dɛm kin kam wit am. Bɔt nɔto jem de mek IC/BPS. So, if yu tek antibayɔtik, dat nɔ go mɛn am.
Tu men kayn dis sik de.
Yɛs, i nɔ de afɛkt ɔlman di sem we. Wi kin sheb am to tu men kayn. Dɛn kin no dɛn tu kayn ya tru wan tɛst (Cystoscopy) usay dɔktɔ kin put kamɛra insay yu blad fɔ luk am.
| IC/BPS tayp | Fɔ tɔk am simpul wan... |
|---|---|
| Ulsɛrativ IC/BPS | dis kin mek di blad wכl we de mek yu fil pen (ulsa) de fכm. Dɛn kɔl dɛn ɔlsa ya Hunner . Dis kayn tin nɔ kin apin sote, i kin afɛkt bitwin 5% ɛn 10% pan pipul dɛm wae gɛt IC/BPS. |
| Nɔn-ulsɛrativ IC/BPS | Dis na di kayn we we pipul dɛn kin gɛt mɔ. Na lɛk 90% pan di pipul dɛm wae gɛt IC/BPS gɛt dis kayn. pan dis kayn we, yu kin si sכm sכm bכdi de bכn (εmoraji) na di blad wכl. Dɛn kin kɔl dis tin we dɛn kɔl glomerulations . |
Wetin na Stej 4 IC/BPS?
Yu go dɔn yɛri bɔt di stej dɛm we di sik kin gɛt. Stej 4 na di stej we kin tranga pas ɔl, usay di sayn dɛm dɔn de fɔ pas tu ia. na dis tεm ya, di blad tisu dεn dכn rili tik εn rigid. Dis kin mek di blad nɔ ebul fɔ ol bɔku urine lɛk aw i bin de ol. Dis kכndyushכn kin bכku pan pipul dεm wae gεt Hunner in כlsa.
Wetin na di sayn dɛm fɔ IC/BPS?
De sik kin difrɛn frɔm pɔrsin to ɔda pɔrsin. Fɔ sɔm, dɛn nɔ kin fil bad, bɔt fɔ ɔda wan dɛn, dɛn kin fil pen bad bad wan. Fɔ sɔm, di sayn dɛn kin de ɔltɛm, bɔt fɔ ɔda pipul dɛn, dɛn kin kam ɛn go.
Di men tin dɛn we dɛn kin du na dɛn tin ya:
- Pen, prɛshɔn, ɔ diskɔmfɔt na di bɛlɛ we de dɔŋ (we di blad de). Dis pen kin go ɔp as di blad de ful-ɔp.
- Di nid fɔ pis bɔku tɛm. I kin bi 15, 20, ɔ ivin 40-50 tɛm insay di de.
- We yu fil se yu nid fɔ pis, yu kin fil se yu nɔ go ebul fɔ kip am kwik kwik wan.
- wan rili smɔl urine de kɔmɔt wan tɛm.
- Fɔ uman dɛn, di sik kin wɔs we dɛn de gɛt mɔnt.
Sɔm pipul dɛn kin tɔk se dis pen na jɔs we pɔsin de bɔn ɔ chuk pɔsin na in bɛlɛ we de dɔŋ. I kɔmɔn bak fɔ mek di pen stɔp fɔ sɔm tɛm afta yu dɔn pis, dɔn i go bɔku as di blad bigin fɔ ful-ɔp bak.
Wetin mek sɔntin lɛk dis kin apin?
Dis na prɔblɛm we bɔku pipul dɛn gɛt. Fɔ tɔk tru, ivin dɔktɔ dɛn stil nɔ ebul fɔ tɔk wit 100% shɔ wetin kin mek pɔsin gɛt IC/BPS. Bɔt sɔm tin dɛn de we dɛn kin tink se kin mek i apin:
- Wiknɛs na di blad layn: Wi blad gɛt layt we de protɛkt insay. dis na wetin de protεkt di blad wכl frכm bad bad tin dεm na di urine. We dis layt dɔn pwɛl, dɛn bad bad tin dɛn de kin lik insay di blad wɔl ɛn mek pɔsin fil pen ɛn inflamɛns.
- Prɔblɛm dɛn we de na di imyun sistɛm (Autoimmune diseases):di difεns sistεm na di bכdi kin mistek atak in yon blad sεl dεm.
- Alɛji: Dɛn kin sɔprayz bak se di wok we sɔm sɛl dɛn (mast sɛl dɛn) de du na di bɔdi we de mek pɔsin gɛt alɛji gɛt fɔ du wit dis.
- Infεkshכn dεm we dεn nכ no: sכmtεm, wan infεkshכn we bin de bifo we dεn nכ bin trit fayn kin pwεl di nεv dεm na di blad, we kin mek yu fil pen fכ lכng tεm.
- abnכmal tin dεm na di urine: fכ egzampl, di protin we de kכntinyu fכ hכy na di urine (proteinuria).
Udat de pan big risk fɔ gɛt dis?
- Uman dɛn de pan big risk pas man dɛn.
- I kin mɔs bi pan pipul dɛm wae dɔn pas 30 ia .
- Pipul wae gɛt ɔda kayn pen wae nɔr de dɔn, lɛk fibromyalgia ɛn irritable bowel syndrome (IBS), kin gɛt IC/BPS bak.
Dɔktɔ, aw yu kin no dis?
No wan tɛst nɔ de we go ebul fɔ kɔnfɔm IC/BPS. Yu dɔktɔ go pul ɔda tin dɛn we kin mek yu gɛt di sik. Dis kin nid fɔ du bɔku tɛst dɛn. Nɔ wɔri, lɛ wi si wetin dɛn bi.
| Tɛst | Wetin yu de du wit dis? |
|---|---|
| Mɛdikal istri ɛn di simptom dayari | Di dɔktɔ go aks yu bɔt yu sik dɛn. I go aks yu bak fɔ rayt tin dɛn lɛk wetin yu de drink, ɔmɔs yu de drink, ɛn aw ɔltɛm ɛn ɔmɔs yu de pis fɔ sɔm dez. Dis go ɛp yu fɔ ɔndastand di we aw yu de du tin. |
| Urinalysis we dɛn kin du | Dɛn kin tek urine sɛmpul ɛn chɛk fɔ si if baktri, pus, ɛn blɔd (hematuria). If baktri infεkshכn de, dεn kin trit am. If di simptom dɛn kɔntinyu afta tritmɛnt, dɛn kin sɔprayz se IC/BPS. |
| Sistoskɔpi we dɛn kin du | dis involv fכ put wan tin we lεk tכb (wit kεmεra) tru di urethra fכ egzamin insay di blad. Dis kin ɛp fɔ pul ɔda siriɔs sik dɛn lɛk kansa. |
| Sistoskopi wit Haydrodistɛnshɔn | Dɛn kin du dis ɔnda anestezi. as wi bin dכn tכk, we yu de luk insay di blad, di blad de fulכp wit wata lεk wata εn i de strεch sכmtεm. dis kin mek yu si klia wan tin dεm lεk Hunner in כlsa כ sכm sכm krak krak dεm na di blad wכl. Sɔm pipul dɛn kin gɛt sɔm kayn sik fɔ sɔm tɛm afta dɛn dɔn du dis. |
| Bayopsi we dɛn kin du | we dεn de du sistoskopi, dεn de tek wan rili sכm tisu frכm di blad wכl εn sεn am na labכtכri fכ tεst. Dis kin ɛp bak fɔ pul ɔda tin dɛn lɛk kansa. |
Wetin na di tritmɛnt dɛm fɔ dis?
Dis na di pat we impɔtant pas ɔl. Fɔs, no mɛrɛsin nɔ de fɔ IC/BPS yet. Bɔt nɔ wɔri. Bɔrku tritmɛnt de wae kin ɛp yu fɔ kɔntrol yu sik ɛn liv nɔrmal layf.
Yu dɔktɔ go bigin wit wan tritmɛnt, si if i go wok fɔ yu, dɔn i go disayd if dɛn nid fɔ chenj to ɔda tritmɛnt ɔ jɔyn bɔku tritmɛnt dɛn. Dis na smɔl tin we dɛn kin du fɔ tray ɛn mek mistek. I kin tek sɔm tɛm fɔ fɛn di rayt tritmɛnt fɔ yu.
1. Di chenj dɛn we de apin na di it we dɛn de it
Bɔku pipul dɛn kin si se sɔm tin dɛn we dɛn kin it ɛn drink kin mek dɛn sik wɔs. Wi kin kɔl dɛn tin ya ‘trig’. Yu kin kip yu dayari ɛn no wetin yu de it ɛn drink ɛn we yu sik dɛn kin wɔs. As tɛm de go, yu go no us it dɛn de mek yu gɛt di sik.
Fɔd wae kin mek bɔrku pipul dɛn sik bad bad wan:
- Rum
- Kafin (ti, kɔfi, chɔklɛt) .
- Drink dɛn we gɛt kabon
- Tamatis
- Sitrus frut dɛn (ɔrɛnj, lɛmon) .
- Fɔd dɛn we dɛn dɔn prosɛs
- Fɔd we gɛt spays
2. Fizik Ɛksesaiz ɛn Fizik Tɛrapi
- Ɛksesaiz: Ɛksesaiz saful saful lɛk fɔ waka ɛn baysikul kin ɛp fɔ mek yu nɔ fil pen.
- Pɛlvik Flɔ Fizik Tɛrapi: Dis rili impɔtant. di mכsul dεm na di lכw bכdi (pεlvik fכl mכsul dεm) na dεn de ol כgan dεm lεk di blad na in ples. If dɛn mɔsul ya tayt, dat kin mek bak di pen bɔku. Wan spɛshal dɔktɔ we de mɛn yu bɔdi kin tich yu di rayt ɛgzampul dɛn fɔ rilaks ɛn mek dɛn mɔsul ya strɔng (Kegel ɛgzampul dɛn).
3. Fɔ Ridyus Stress
Stret na wan big tin wae de mek di simptom dɛm fɔ IC/BPS bɔku. If yu lan aw fɔ kɔntrol yu strɛs, dat kin mek yu fil fri bad bad wan. Tin dɛn lɛk fɔ du ɛksasaiz fɔ blo dip, fɔ tink gud wan, ɛn fɔ du yoga kin ɛp. Yu kin aks fɔ ɛp bak frɔm pɔsin we de advays yu bɔt mental wɛlbɔdi biznɛs if nid de.
4. Fɔ Trenin di Blad bak
Bikɔs ɔf di pen, yu kin yus fɔ go tɔylɛt we yu blad ful-ɔp smɔl. Dis kin mek yu blad de yus fɔ ol smɔl smɔl urine smɔl smɔl. Fɔ tren yu blad bak, na fɔ mek yu tink se yu go spɛn bɔku tɛm bitwin yu go na tɔylɛt. Yu kin stat wit 5-10 minit ɛn smɔl smɔl yu kin inkrisayz di tɛm to 2-3 awa.
5. Mɛdikeshɔn dɛn we dɛn kin yuz fɔ it
- Antidipreshɔn: Sɔm mɛrɛsin wae de mek yu nɔr gɛt pwɛl hat, lɛk amitriptyline, wae dɛn gi yu pasmak, kin ɛp fɔ ridyus blad pen ɛn nɔr nid fɔ pis ɔltɛm.
- Antihistamines: Mɛrɛsin lɛk Hydroxyzine kin kɔntrol alɛji ɛn ridyus pen.
- Pentosan Polysulfate Sodium (Elmiron®): Dis na di wan ol mɛrɛsin we dɛn kin yuz fɔ it we dɛn dɔn gri fɔ spɛshal fɔ IC/BPS. Dɛn biliv se i de ɛp fɔ bil bak di layn we dɔn pwɛl na di blad.
6. Blad Instileshɔn dɛn
Insay dis, di dɔktɔ kin put wan tiub we rili tan (kateta) insay yu urethra ɛn injekt wan miks mɛrɛsin insay yu blad. Di mɛrɛsin we dɛn kin yuz mɔ na dimɛtil sɔlfɔksayd (DMSO). Dɛn kin lɛf dis mɛrɛsin na yu blad fɔ sɔm tɛm ɛn afta dat dɛn kin pul am tru we yu de pis.
7. Ɔda tritmɛnt dɛn
If di tritmɛnt dɛn we wi dɔn tɔk bɔt nɔ wok, yu dɔktɔ kin tink bɔt dɛn tin ya:
- Nεv Stimulεshכn (Neuromodulation): Na we fכ kכntrכl di blad pen εn di urgency bay we dεn de sεnd sכm sכm ilektrikal signal to sכm nεv dεm na di bכdi.
- Botox® Injεkshכn: Dεn injεkt bכtoks insay di blad mכsul dεm, we de ridyus dεn aktiviti εn kכntrכl di pen.
- Ɔpreshɔn: Dɛn kin du dis as las tin, na fɔ pipul dɛn nɔmɔ we gɛt siriɔs sik dɛn we nɔ bin dɔn du ɔda tritmɛnt. dis involv fכ pul pat כ כl di blad (cystectomy).
Aw fɔ liv wit IC/BPS?
Bikɔs dis na sik wae kin teik lɔng tɛm, e fayn fɔ lan fɔ liv wit am. Dɛn advays ya go ɛp yu fɔ bia wit di flare-up.
- Drink bɔku wata: We dɛn dɔn dil yu urine, di blad nɔ kin fil fayn.
- Ɔt ɔ kol kɔmprɛs: If yu put ɔt wata bɔtul ɔ ays pak na yu bɛlɛ we de dɔŋ, dat kin ɛp fɔ mek yu nɔ fil pen.
- Wear fayn klos: Nɔ wɛr tayt pant ɛn ɔndawea we go mek yu bɛlɛ kɔnstrikt.
- Rilaks Tεknik dεm: Yoga poz dεm lεk di ‘happy baby’ poz kin εp fכ rilaks di mכsul dεm na di bכdi.
- If mami ɛn dadi biznɛs de mek yu fil pen: Tɔk to yu dɔktɔ bɔt tin dɛn lɛk fɔ tek mɛrɛsin fɔ mɛn pen bifo tɛm ɛn fɔ yuz lɔbrik.
Ustɛm a fɔ go to dɔktɔ?
If yu gɛt ɛni wan pan di sayn dɛn we wi dɔn tɔk bɔt na dis atikul, yu fɔ rili go to dɔktɔ. Yu nid fɔ no fɔ tru if na urinary tract infection, IC/BPS, ɔ ɔda tin. Bak,
If yu nɔ ebul fɔ bia wit yu pen ɛn nɔr de fil fayn pan ɔl we yu de trit yu, go na di ɔspitul we de nia yu in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
Dis nɔto natin fɔ shem. E kin gɛt big impak pan yu kwaliti fɔ liv, so i impɔtant fɔ gɛt di rayt tritmɛnt.
Mɛsej we dɛn kin kɛr go na os
- Interstitial Cystitis (IC/BPS) na wan sik we nɔ de mɛn, we de mek yu fil pen na di blad, nɔto kɔmɔn urinary tract infection (UTI).
- Di men sayn dɛm na we yu de pis ɔltɛm, yu bɛlɛ de fil pen, ɛn yu nid fɔ pis wantɛm wantɛm.
- Pan ɔl we dɛn nɔ dɔn fɛn di rayt tin we kin mek dis sik apin, bɔku fayn tritmɛnt dɛn de we kin kɔntrol di sik dɛn.
- Fɔ chenj di it we yu de it, fɔ trit yu bɔdi, ɛn fɔ kɔntrol yu strɛs na impɔtant tin dɛn fɔ trit yu.
- Dis sik nɔ go mek yu layf shɔt, ɛn i nɔ go tɔn to kansa.
- Nɔto yu wan de. Dɔktɔ ɛn tritmɛnt dɛn de we go ɛp yu. So nɔ shem ɔ fred fɔ go to dɔktɔ.
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