Yu pikin gɛt lip we skata? Mek wi tok abaut cleft lip!

Yu go dɔn si ɔ yɛri bɔt pikin dɛn we dɛn kin bɔn wit smɔl smɔl say na dɛn ɔp lip. Na nɔmal tin fɔ mek mama ɛn papa dɛn fil bad, fil bad, ɛn fred we dɛn si dis. "Wetin apin to mi pikin?" "Dɛn nɔ go ebul fɔ fiks dis?" Bɔku kwɛstyɔn dɛn kin kam na mi maynd. Bɔt nɔ wɔri, i fayn? dis kכndyushכn we dεn kכl cleft lip, dεn kכl am mεdikal wan as `(Cleft Lip)`. Tide, wi go tɔk bɔt dis ditayli, rili simpul wan. Insay wan we we yu go ɔndastand, i tan lɛk se yu de tɔk to yu padi.

Wetin rili na lip we skata?

Fɔ tɔk am simpul wan, lip we skata na gap ɔ split na di ɔp lip we kin apin we di pikin in fes de divɛlɔp na di bɛlɛ. Tink bɔt am lɛk smɔl gap na klos if tu row stich dɛn nɔ layn fayn . di pikin in fes kin fכm insay di fכs wik dεm we i bεlε. insay dis tεm, di lip dεm εn di כp palata na di mכt de kam togeda frכm di tu say dεm εn kam togeda na di midul. Sɔmtɛm dis fushɔn nɔ kin apin kɔmplit wan. Na da tɛm de lip we skata kin apin.

dis cleft kin de na wan say nכmכ (dat na, na di rayt כ lεft say na di lip). Ɔ i kin de na ɔl tu di say dɛn. pan tap we insay sכm bebi dεm dis nכ kin notis lεk sכm sכm krak krak na di lip, insay כda pikin dεm dis cleft kin go כl di we te to di nos. כlso, sכmtεm s כmtεm sכmtεm sכmtεm na di כp palata na di mכt kin apin bak wit di lip we kכl . Dɛn kɔl dis kleft palata. Dɛn tu tin ya kin apin togɛda ɔ dɛn kin apin wan bay wan.

Wetin mek dis kin apin to smɔl pikin dɛn? Wetin na di rizin dɛn?

Bɔku mama ɛn papa dɛn kin tink se, "Wi nɔ no if wi du sɔntin we nɔ rayt." Nɔ fil bad bɔt am. Bɔku tɛm, i nɔ kin izi fɔ fɛn klia, wan rizin. Bɔt dɔktɔ dɛn biliv se ɔda tin dɛn kin kam wit dis sik.

Di Tin dɛn we De Insay di Jɛnɛtiks

Sɔntɛnde, dis kin bi frɔm in mama ɛn papa. Dat min se if sɔmbɔdi na di famili (mama, papa, brɔda ɛn sista) gɛt lip we skata, di ɔda pikin kin gɛt dis sik smɔl. Sɔm patikyula jin dɛn de we kin afɛkt am. Bɔt dis nɔ kɔmɔn fɔ ɔlman.

Di tin dɛn we kin apin na di envayrɔmɛnt we uman gɛt bɛlɛ

sכm tin dεm we kin apin we uman bεlε kin afekt di pikin in divεlכpmεnt.

• Sɔm mɛrɛsin dɛn: Sɔm mɛrɛsin dɛn we dɛn kin tek we uman gɛt bɛlɛ (fɔ ɛgzampul, sɔm mɛrɛsin fɔ ɛpilepshi) kin afɛkt dis. So, nɔ tek ɛni mɛrɛsin we yu gɛt bɛlɛ if yu nɔ gɛt dɔktɔ advays.
• Smok ɛn drink rɔm: If di mama smok ɔ drink rɔm we i gɛt bɛlɛ, i kin afɛkt di pikin.
• di tin dεm we dεn nכ de gi fכ it: spεshal fכlik asidWan rizin we kin mek yu gɛt dis vaytamɛn ali we yu gɛt bɛlɛ. Dis na di rizin we mek bɔku dɔktɔ dɛn kin tɛl mama dɛn we gɛt bɛlɛ fɔ gi fɔlik asid pils.
• Sɔm infεkshכn dεm: Sכm vayral infεkshכn dεm we di mama kin gεt we i bεlε kin afekt di pikin bak.
• Dayabitis: Dayabitis we dɛn nɔ kin kɔntrol na di mama we i gɛt bɛlɛ na in bak kin mek i gɛt dis sik.

Di impɔtant tin na dat, bɔku tɛm, dis nɔto ɛnibɔdi in fɔlt. So nɔ blem yusɛf.

Wetin na di men kayn lip dɛn we klif?

As wi bin dɔn tɔk bɔt smɔl, dɛn lip krak krak ya kin kam insay wan we ɔ ɔda we.

• Yunilateral Kleft Lip: Dis na we di cleft de apin na wan say nɔmɔ na di ɔpa lip, ilɛksɛf na di rayt ɔ di lɛft say.
• Baylateral Cleft Lip: Na ya, cleft de na di tu say dεm na di כp lip. Wan smɔl pat we de na di midul kin tan lɛk se dɛn dɔn sheb am.
• Inkɔmplit Klɛft Lip: Smɔl krak ɔ kɔt de na di lip. Di cleft nɔ de go ɔlsay te to di nos.
• Komplit Klεft Lip: Insay dis kes, di cleft de kכmכt frכm di lip to di nos.
• Kleft Lip wit Kleft Palate: wan signifyant nכmba fכ pikin dεm we gεt cleft lip dεn tu gεt cleft palata. Dis kin bi wan say, tu say, kɔmplit, ɔ nɔ kɔmplit.

Aw dɔktɔ dɛn kin no bɔt dis sik?

כl di tεm dεm, dεn kin כnli no se lip sכmtεm afta dεn bכn di pikin, biכs i so klia. Bɔt sɔntɛnde, dɛn kin no am ivin bifo dat.

Yu kin no we yu gɛt bɛlɛ?

Yɛs, insay sɔm kes dɛn, i pɔsibul. di tεm we dεn de du rutin skan (`(Ultrasound Scan)`) we uman bεlε, spεshal wan we dεn de du di `(Anomaly Scan)`, di dכkta kin si dis kayn cleft na di pikin in fes. We di mama ɛn papa no dis bifo tɛm, dat kin gi dɛn tɛm fɔ du mɔ risach bɔt dis ɛn rɛdi dɛnsɛf na dɛn maynd. I kin ɛp dɛn bak fɔ pik di rayt ɔspitul ɛn spɛshal tim fɔ di pikin we dɛn bɔn.

Fɔ no pɔsin we dɛn bɔn am

As di pikin bɔn so, di dɔktɔ dɛn kin tek tɛm chɛk di pikin. If lip de skata, yu go si am klia wan. Di dɔktɔ ɔ nɔs go ɛksplen dis to yu wantɛm wantɛm. Dɛn go chɛk di mɔt bak fɔ si if di palata skata.

Us prɔblɛm dɛn pikin we in lip skata kin gɛt?

di pikin dεm we dεn bכn wit sכp lip kin gεt bכku chalenj dεm we dεn bigin, bכt if dεn mεnεj dεm fayn fayn wan εn trit dεm, dεn kin win כl dεn tin ya.

• Di prɔblɛm dɛn we kin apin we pɔsin de drink milk:Dis na big prɔblɛm. εspεshali if di palata kכl, i kin at fכ di pikin fכ mek di bכdi fכ mek di mכt fכ di rayt vaykum εn sכk di milk. Dis kin mek di milk kɔmɔt na di nos ɛn go dɔŋ di trot we yu de drink. Dis nid fɔ yuz spɛshal milk bɔtul dɛn ɛn put am fayn fayn wan. Di nɔs staf ɛn di laktashɔn kɔnsult dɛn na di ɔspitul go tich yu dis fayn fayn wan.
• Infɛkshɔn na wi yes ɛn prɔblɛm wit wi yɛri: Wan smɔl tiub de we de kɔnɛkt wi yes to wi trot, we dɛn kɔl di Yustachian Tiub . pan pikin dεm we di palata kכl, dis tכb nכ de wok fayn, we kin mek wata kכlכp na di midul yes εn mek dεn infεkshכn na di yes bכku tεm, we kin mek dεn nכ de yεri sכmtεm as tεm de go. So, dɔktɔ dɛn kin se dɛn fɔ ɛgzam in yes ɔltɛm ɛn if nid de, dɛn fɔ put smɔl tiub (grommets) insay di yes.
• I nɔ izi fɔ tɔk: If di palata skata, nɔto jɔs na di lip, i kin afɛkt di pikin in ebul fɔ tɔk bak. Nasal tɔk kin apin we yu de kɔl wɔd dɛn. Spich therapy na impɔtant tin fɔ dis.
• Dɛn tit prɔblɛm dɛn: If di lip ɛn di palata brok, dat kin afɛkt bak di we aw di tit dɛn kin kam insay.Sɔm tit dɛn kin nɔ de, dɛn kin ful-ɔp, dɛn kin krɔs, ɔ dɛn kin ivin nɔ de. So, i impɔtant fɔ mek dɛn chɛk yu tit frɔm we yu yɔŋ ɛn if nid de, yu fɔ gɛt ɔtdɔnt tritmɛnt .
• Sɔshial ɛn saykilɔjik ifɛkt dɛm: As di pikin de ol, i kin fil smɔl bɔt insɛf bɔt aw i luk ɛn di we aw i de tɔk. Bɔt afta dɛn dɔn du di ɔpreshɔn, bɔku pan di we aw i de luk go kam bak lɛk aw i bin de. Di lɔv we mama ɛn papa dɛn gɛt, ɛnkɔrej dɛn, ɛn if nid de, fɔ advays dɛn bɔt saykayatrik kin ɛp bak dis tɛm.

Wetin na di tritmɛnt dɛm fɔ dis? Yu tink se dɛn kin mɛn am?

Yɛs, fɔ tru! Klɛft lip na wan sik we dɛn kin trit fayn fayn wan ɛn mɛn am. Dɛn kin trit am mɔ wit ɔpreshɔn. Dɔn bak, i nɔto sɔntin we na wan dɔktɔ nɔmɔ de du. I tek wan tim we gɛt difrɛn spɛshal pipul dɛn fɔ plan di bɛst tritmɛnt fɔ di pikin.

Ɔpreshɔn

• Lip ripa ɔpreshɔn (Lip ripa ɔpreshɔn / Cheiloplasty):

Dis na di fɔs ɔpreshɔn we dɛn du. Dɛn kin du dis ɔpreshɔn we di pikin ol bitwin 3 ɛn 6 mɔnt . Dɔktɔ dɛn kin chɛk if di pikin de gɛt mɔ wet ɛn i gɛt gud blɔd kɔnt. Dɛn kin du dis ɔpreshɔn fɔ kɔnɛkt di lip we skata fayn fayn wan ɛn fɔ mek di lip tan lɛk ɛn wok fayn fayn wan. Imajin, wan dɔktɔ we sabi du ɔpreshɔn kin jɔyn di tu lip dɛn togɛda fayn fayn wan, jɔs lɛk aw i de drɔ pikchɔ.

• Ɔpreshɔn fɔ mek di palata ripɛnt (Palatoplasty): .

If pikin gɛt cleft palata, dɛn kin du ɔpreshɔn fɔ mek i fayn bitwin 9 ɛn 18 mɔnt. Dis ɔpreshɔn rili impɔtant fɔ ɔl tu di mama in bɛlɛ ɛn fɔ tɔk fayn.

• Ɔda ɔpreshɔn dɛn we dɛn kin du:

As sɔm pikin dɛn de gro, dɛn kin nid fɔ du wan ɔ mɔ ɔda ɔpreshɔn. Fɔ ɛgzampul, fɔ kɔrɛkt di shep we di nos gɛt, fɔ kɔrɛkt di say we di tit dɛn de, ɔ fɔ mek yu ebul fɔ tɔk fayn.

Sɔpɔt frɔm wan tim we gɛt bɔku difrɛn difrɛn tin dɛn (Multidisciplinary Team Approach) .

Dis na lɛk kriket tim. Ɔlman nid sɔpɔt. Dis tim kin gɛt spɛshal pipul dɛn lɛk:

• Pikin dɛn: I de tek kia ɔf di pikin in ɔl wɛlbɔdi.
• Plastik ɛn Rikɔnstrɔktiv Sɔjɔn: Dɛn kin du mɔ ɔpreshɔn pan lip ɛn palata.
• Ɔral ɛn Maksilofashial Sɔjɔn: I kin bi fɔ ɔpreshɔn we gɛt fɔ du wit di tit ɛn di jaw.
• Ɔtodɔntist: I de trit di tit ɛn jaw prɔblɛm dɛn.
• Speech therapist: I de ɛp fɔ pul di prɔblɛm dɛn we i gɛt fɔ tɔk.
• Iya, Nos ɛn Trot Spɛshal (ENT Spɛshal): I de trit yu yes infɛkshɔn ɛn prɔblɛm wit yu yɛri.
• Ɔdiɔlɔjis: I de tɛst di pikin in yɛri.
• Sɔntɛm na pɔsin we de stɔdi bɔt pɔsin in maynd ɔ pɔsin we de gi advays: I de gi di pikin ɛn in mama ɛn papa fɔ sɔpɔt in maynd.

Ɔl dɛn pipul ya kin wok togɛda fɔ plan di bɛst tritmɛnt fɔ yu pikin. So yu jɔs gɛt fɔ abop pan dɛn ɛn fala dɛn instrɔkshɔn dɛn gud gud wan.

Wetin wi go du as mama ɛn papa?

Yu kɔntribyushɔn bak rili impɔtant na dis joyn.

• Peshɛnt ɛn lɔv na di men tin. Dis kin tek sɔm tɛm, bɔt di lɔv ɛn peshɛnt we yu gɛt na big trɛnk fɔ yu pikin.
• Fɔ fala di dɔktɔ in instrɔkshɔn dɛn di rayt we. Du ɔl wetin di dɔktɔ tɛl yu, lɛk fɔ tek yu mɛrɛsin di rayt tɛm, fɔ kia fɔ yu wund afta dɛn dɔn du yu ɔpreshɔn, ɛn fɔ gi yu mama in bɛlɛ. Go na ɛvri klinik di rayt tɛm.
• I impɔtant fɔ bigin tritmɛnt kwik kwik wan. Di rizulyt kin bɛtɛ pasmak we dɛn bigin di tritmɛnt we dɛn nid ɛn nɔ de te.
• Ɛp yu pikin. Yu ɛp rili valyu to yu pikin, mɔ we yu de gi in mama in bɛlɛ ɛn lan fɔ tɔk.
• Lan bɔt dis. Di mɔ yu no bɔt dis sik, na di mɔ yu go ebul fɔ ɛp yu pikin.
• Tɔk to ɔda mama ɛn papa dɛn. We yu tɔk to ɔda mama ɛn papa dɛn we dɔn gɛt dis kayn tin, dat kin ɛp yu fɔ fil lɛk se nɔto yu wangren de. Yu kin lan bɔku tin bak frɔm dɛn.

Fɔ dɔn, mɛmba dis (Take-Home Message) .

Okay, so lɛ wi mɛmba yu bɔt sɔm impɔtant tin dɛn frɔm wetin wi dɔn tɔk bɔt.

• Klɛft lip na wan sik we kin apin to bebi dɛn, bɔt if dɔktɔ dɛn we sabi du di wok ɛp am, dɛn kin trit am fayn ɛn i kin lɛf smɔl fɔ lɛ i wɛl.
• If yu no dis sik kwik kwik wan ɛn gi yu di rayt mɛrɛsin (espɛshali ɔpreshɔn) di rayt tɛm, i go ebul fɔ liv wɛl, aktif, ɛn gladi layf lɛk ɔl ɔda pikin dɛn.
• Nɔto yu wan de pan dis waka. Bɔku dɔktɔ ɛn wɛlbɔdi wokman dɛn de we sabi du dɛn wok, we gɛt sɔri-at fɔ ɛp ɛn gayd yu ɛn yu pikin.
• So nɔ fred, tek kɔrej (strɔng trɛnk) ɛn de positif. Yu lɔv ɛn dedikeshɔn na di pikin in big trɛnk.

If yu want fɔ no mɔ bɔt dis ɔ yu gɛt ɛni kwɛstyɔn, nɔ fred fɔ aks yu dɔktɔ we de mɛn pikin ɔ plastic sajin. Dɛn go ɛp yu.

` Klɛft Lip, Mɔltidisiplinari Mɛdikal Tim, Ɔpreshɔn, Brestfeding, Spich Therapy, Parenting Advays