Yu smɔl pikin gɛt dɛn prɔblɛm dɛn ya? Lɛ wi tɔk bɔt Sɛribra Palsi

Sɔntɛnde, i nɔ kin izi fɔ wi smɔl pikin dɛn fɔ waka, tɔk, ɔ ivin it fayn, nɔto so? Sɔntɛm yu dɔn si dɛn kayn pikin dɛn de. Wan rizin fɔ dis sik na Sɛribra Palsi , we wi kin kɔl CP fɔ shɔt tɛm. Nɔ fred we yu yɛri dis, wi go tɔk bɔt dis simpul wan, insay wan we we yu go ɔndastand.

Wetin na Sɛribra Palsi? Lɛ wi ɔndastand am simpul wan.

Fɔ tɔk am simpul wan, sɛribra palsi na wan sik we wi bren nɔ kin ebul fɔ tɔk to wi mɔsul dɛn. Tink bɔt wi bren as di "kɔntrol sɛnta" na wi bɔdi. If ɛnitin ambɔg di we aw dis kɔntrol sɛnta de sɛn mɛsej to wi mɔsul dɛn, ɔ if ɛni pat na di bren pwɛl, di mɔsul dɛn nɔ go wok fayn. Pikin dɛn we gɛt dis sik kin gɛt prɔblɛm fɔ kɔntrol dɛn mɔsul dɛn . Dis min se i nɔ kin izi fɔ dɛn fɔ muv dɛn an ɛn fut, fɔ waka, fɔ rɔn, ɔ fɔ jomp lɛk aw dɛn go want. Sɔm pikin dɛn kin nid fɔ yuz wilchia ɔ stik fɔ go waka. Bɔt dis kin difrɛn frɔm wan pikin to ɔda pikin. Sɔm kin gɛt smɔl impak, ɛn ɔda wan dɛn kin gɛt mɔ bad impak.

Di impɔtant tin na dat, sɛribra palsi nɔto sik we de wɔs ɛvride. Di damej we de na di bren nɔ de wɔs. Bɔt wi nid fɔ ɛp di pikin fɔ liv wit di prɔblɛm dɛn we kin kam bikɔs ɔf da damej de.

Wetin mek di sik we dɛn kɔl sɛribra palsi kin apin? Wetin na di tin dɛn we kin mek i apin?

Bɔku tɛm, di pikin in bren kin pwɛl we i de gro . dis kin apin tri men we dεm: 1. We di pikin de na di bεlε (Prenatal):

• sכm infεkshכn dεm we di mama kin gεt we i bεlε - fכ egzampl, Rubella , Cytomegalovirus (CMV).
• di pikin de afekt bay mama we gεt inkכmpatibl bכdi tכp (Rh incompatibility).
• Sɔm pan di mama in sik dɛn we nɔ de mɛn , dɛn nɔ de kɔntrol dɛn fayn fayn wan.
• di jεnεtik fכktכ dεm כ di kromozom abnכmaliti dεm we de afekt di bren divεlכpmεnt we uman bεlε.
• di כ ksijεn we di pikin de gi di pikin dεn dכn dכn.

2. Na di tεm we dεn bכn am (Perinatal): .

• Fɔ bɔn am rili yɔŋ (premature birth). di pikin dεm we dεn bכn bifo 32 wiks kin de pan denja mכtalman.
• Bebi dεm we dεn bכn wet rili lכw.
• di כksijεn we nכ de na di bren we dεn de bכn (birth asphyxia).
• Bɔku bɔn pikin dɛn - lɛk twins.

3. Insay di fכs fכ ia afta dεn bכn am (Postnatal):

• Infεkshכn dεm we de afekt di pikin in bren - fכ egzampl, mεningaytis כ εnεfalaytis.
• Ɛd injuri - lɛk we pɔsin fɔdɔm ɔ aksidɛnt.
• Nɔ kɔntrol di we aw pɔsin kin sik .
• Sɔntɛnde, blɔd kin kɔmɔt na di bren.

Bɔt sɔm tɛm dɛn de we dɛn nɔ kin ebul fɔ fɛn wan patikyula kɔz fɔ mek sɔm pikin dɛn gɛt sɛribra palsi. Wi fɔ mɛmba dat bak.

Sɔm kayn sɛribra palsi de?

Yɛs, dɛn kin sheb di sɛribra palsi to sɔm men kayn dɛn. Dɛn klas ya de bay usay di damej de apin to di bren ɛn aw i de afɛkt di mɔsul dɛm.

• Spastic Cerebral Palsy: Dis na di kayn we we dɛn kin gɛt mɔ. Dɛn pikin ya gɛt mɔsul dɛn we stif ɛn we nɔ de chenj. I tan lɛk se na rɔba band de ol dɛn. Dis kin mek i nɔ izi fɔ muv ɛn dɛn kin taya kwik kwik wan.
• Sɔntɛnde na ɔl tu di leg dɛn nɔmɔ kin afɛkt (Spastic Diplegia).
• Sɔntɛnde wan say na di bɔdi (an ɔ leg) kin afɛkt (Spastic Hemiplegia).
• Sɔntɛnde i kin afɛkt ɔl tu di an dɛn, ɔl tu di leg dɛn, ɛn ivin di fes (Spastic Quadriplegia). Dis na di kes we kin rili bad.

• Dyskinetic Cerebral Palsy: Dɛn pikin ya kin gɛt prɔblɛm fɔ kɔntrol dɛn muvmɛnt. Dɛn an ɛn fut, dɛn fes, ɛn dɛn trɔnk de muv we dɛn nɔ want ɛn dɛn nɔ de kɔntrol dɛn. dis muvmεnt dεm kin bi fכ twitch sloslo (athetoid), jεk kwik kwik wan (choreoathetoid), כ dεn kin bi fכ wan kכnstant, rigid mכsul tכn we de chenj wantεm wantεm (dystonic).

• Ataxic Cerebral Palsy: Dis kayn we kin mɔs afɛkt di balans ɛn kɔdineshɔn. I nɔ kin izi fɔ dɛn pikin ya fɔ waka, fɔ stɔp, ɛn shek. Dɛn kin si di target we dɛn de tray fɔ pik smɔl tin, bɔt i nɔ kin izi fɔ dɛn fɔ ol am kɔrɛkt wan.

• Mixed Cerebral Palsy: Sɔm pikin dɛn kin gɛt di sik dɛn we pas wan pan dɛn kayn tin ya we wi dɔn tɔk bɔt di sem tɛm. Fɔ ɛgzampul, dɛn kin sho ɔl tu di spastik ɛn diskinɛtik simptom dɛm.

Fɔ no dis klasification impɔtant fɔ no us tritmɛnt ɛn trenin di pikin nid.

Wetin na di kɔmɔn sayn dɛm fɔ pikin we gɛt Sɛribra Palsi ?

I impɔtant fɔ mɛmba se dɛn sik ya kin difrɛn frɔm wan pikin to ɔda wan. Dɔn bak, jɔs fɔ gɛt wan ɔ tu pan dɛn sik ya nɔ min se pikin gɛt CP. Bɔt, i impɔtant fɔ no bɔt dɛn tin ya.

• Prɔblɛm dɛn we gɛt fɔ du wit di mɔsul dɛn:
• Mɔsul dɛn we tu stif ɔ we tu lɔs ɛn we flop .
• I nɔ kin izi fɔ kɔntrol di an ɛn fut, di we aw pɔsin kin tinap we nɔ fayn.
• Trem ɔ muvmɛnt we yu nɔ want.
• I nɔ kin izi fɔ waka: Sɔm pipul dɛn kin waka wit dɛn fut finga (toe walking), dɛn kin gɛt siza fɔ waka, ɔ dɛn kin lɔs dɛn balans we dɛn de waka.
• I nɔ izi fɔ du fayn fayn motoka skil dɛn lɛk fɔ ol smɔl tin dɛn, fɔ bɔtin bɔtin dɛn, ɛn fɔ rayt.

• Divɛlɔpmɛnt Dilɛys:
• Delay fɔ tɔn di nɛk, rɔl oba, sidɔm, kray, tinap, ɛn waka, as i fit fɔ di ej.
• Delay fɔ bigin tɔk, ɔ fɔ tɔk smɔl smɔl.

• Ɔda prɔblɛm dɛn we kin apin:
• I nɔ kin izi fɔ swɛla ɛn sok it (i nɔ kin izi fɔ it).
• Drooling we yu de drɔl.
• Epileptic seizures we pɔsin kin gɛt.
• I nɔ ebul fɔ si ɔ yɛri fayn.
• Intɛlektual disabiliti - Dis nɔ de afɛkt ɔl pikin dɛn we gɛt CP. Sɔm pikin dɛn kin gɛt nɔmal ɔ ivin ay sɛns.
• Voys de chenj.
• Disabiliti fɔ lan.
• Prɔblɛm dɛn we de na di skel lɛk skɔliosis.
• Kɔnstipɛshɔn ɔltɛm.
• Pen - mɔ bikɔs di mɔsul dɛn tayt.

If yu gɛt ɛnitin fɔ wɔri bɔt aw yu pikin de gro, ɔ if i tan lɛk se dɛn nɔ de du tin dɛn we fit in ej, i go fayn fɔ mek yu go to dɔktɔ we de mɛn pikin dɛn wantɛm wantɛm fɔ advays.

Aw dɛn kin no dis sik? (Diagnosis) .

Nɔr blɔd tɛst nɔr de fɔ wan tɛm fɔ no if yu gɛt sɛribra palsi. Dɔktɔ dɛn kin no dis sik bay we dɛn de wach aw pikin de gro, aw i de biev, ɛn aw i de si am as tɛm de go. Dɛn kin du dɛn tin ya mɔ: 1. Divɛlɔpmɛnt Monitoring: Dɛn kin luk di pikin in divɛlɔpmɛnt maylston dɛm. Fɔ ɛgzampul, di ej we di pikin bigin fɔ sidɔm, smayl, ɛn kray. 2. Divεlכpmεnt Skrin: dεn kin du sכt tεst fכ si if di pikin gεt di skil dεm we fit in ej. 3. Mɛdikal ɛn Divɛlɔpmɛnt Ɛvalueshɔn: Dis na di ɛgzamin we dip pas ɔl.

• Dɛn kin tek tɛm luk di pikin in mɔsul dɛn, di we aw i de tink, aw i de tinap, ɛn aw i de muv .
• Dɛn kin aks bɔt di mama in bɛlɛ, di pikin we i bɔn, ɛn di pikin in wɛlbɔdi kwik kwik wan.
• Sɔntɛnde, dɛn kin ɔda fɔ mek dɛn du MRI (Magnetic Resonance Imaging) skan ɔ CT (Computed Tomography) skan fɔ chɛk if ɛni bren dɔn pwɛl. MRI kin si klia wan di fayn fayn tin dɛn we de na di bren.
• If dɛn tink se yu gɛt ɛpilepsi, dɛn kin du EEG (Electroencephalogram) tɛst. Dis de mekɔp di ilɛktrik wok we di bren de du.
• If dɛn tink se ɔda jenɛtik kɔndishɔn ɔ mɛtabolik dizayd, dɛn kin du tɛst bak fɔ dɛn wan ya.

Dis diagnosis kin bi insay di fɔs ɔ tu ia na di pikin in layf. pan sɔm pikin dɛm wae gɛt dis sik, dɛn kin delay fɔ no di sik te dɛn ol 4-5 ia.

Tritmɛnt de fɔ dis sik? Aw wi go ɛp di pikin?

Sɛribra palsi nɔto sik we pɔsin kin mɛn ɔltogɛda. Na bikɔs di damej we di bren dɔn pwɛl nɔ go ebul fɔ chenj. Bɔt, nɔ wɔri! Di tritmɛnt ɛn difrɛn tritmɛnt dɛn kin rili ɛp di pikin in kwaliti fɔ liv, mek i izi fɔ du ɛvride, ɛn ɛp am fɔ liv ful layf . No wan tritmɛnt nɔr de fɔ dis. Bikɔs di tin dɛn we ɛni pikin nid difrɛn, dɔktɔ dɛn ɛn di wan dɛn we de mɛn pipul dɛn kin wok togɛda fɔ mek wan tritmɛnt plan we go spɛshal fɔ di pikin . Di plan kin gɛt dɛn tin ya:

• Fizik Tɛrapi (PT): Dis rili impɔtant. Dɛn kin du ɛksɛsayz ɛn trenin fɔ mek di mɔsul dɛn strɔng, fɔ mek i ebul fɔ waka fayn, fɔ mek i balans mɔ, ɛn fɔ mek i ebul fɔ muv mɔ.
• Occupational Therapy (OT): I de ɛp di pikin fɔ du di wok dɛn we i de du ɛvride fɔ insɛf. Fɔ ɛgzampul, fɔ drɛs, it, fɔ ple, ɛn fɔ rayt. Dɔn bak, i kin tich di pikin fɔ yuz di tin dɛn we i kin yuz fɔ adap if nid de.
• Tɔk ɛn Langwej Tɛrapi: I de ɛp pikin dɛn we gɛt prɔblɛm wit tɔk fɔ tɔk klia wan ɛn fɔ tɔk wetin dɛn tink. Dɛn kin trit di prɔblɛm dɛn we kin apin we pɔsin de swɛla bak. Dɛn kin tich sɔm pikin dɛn bak fɔ yuz ɔda we dɛn fɔ tɔk to dɛnsɛf (kɔmyunikeshɔn ɛd).
• Di mɛrɛsin dɛn we dɛn kin yuz:
• Ridyus di mכsul dεm we de stiff (mכsul dεm we de rilaks).
• Kɔntrol di muvmɛnt dɛn we nɔ nid fɔ de.
• Kɔntrol di stet dɛn we pɔsin kin gɛt we i gɛt ɛpilepshɔn.
• Ridyus di pen we yu de fil.
• Ɔpreshɔn: Sɔntɛnde, dɛn kin nid ɔpreshɔn fɔ kɔrɛkt di jɔyn dɛn we nɔ fayn bikɔs di mɔsul dɛn stif ɔ fɔ mek i ebul fɔ muv fayn fayn wan. Bɔt nɔto ɔlman nid ɔpreshɔn.
• Divays dɛn we De Ɛp:
• Walkers ɛn kruk fɔ ɛp fɔ waka.
• Speshal shuz (orthotics), bres.
• Wilchia dɛn.
• Ikwipmɛnt fɔ tɔk to pipul dɛn.

Fɔ ɛp pikin kwik kwik wan na di bɛst tin we yu kin du fɔ pikin we gɛt sɛribra palsi. If yu no di sik kwik kwik wan ɛn bigin di tritmɛnt savis dɛn we nid fɔ de, dat kin ɛp di pikin in divɛlɔpmɛnt bad bad wan.

Lɛ wi tɔk bɔt aw fɔ liv wit Sɛribra Palsi.

Sεribra Palsi nכ de afekt di pikin nכmכ, bכt di כl famili. Bɔt if dɛn gɛt di rayt sɔpɔt, no, ɛn lɔv , dɛn pikin ya kin liv gladi, sakrifays, ɛn prawd layf jɔs lɛk ɔlman.

• Si di pikin in abiliti dɛm: Insted fɔ pe atɛnshɔn pan di "tin dɛm wae at" fɔ pikin wae gɛt CP, luk fɔ di "tin dɛm wae pɔsibul" fɔ dɛm. Ɛnkɔrej dɛn tin dɛn de.
• Peshɛnt ɛn ɔndastand: Dɛn pikin ya kin tek lɔng tɛm fɔ lan ɛn du sɔm tin dɛn. Ɛp dɛn wit peshɛnt ɛn lɔv.
• Ɛnkɔrej yu pikin fɔ du tin fɔ insɛf: Ɛnkɔrej yu pikin fɔ du tin fɔ insɛf as i ebul. Dis go mek dɛn gɛt mɔ rɛspɛkt fɔ dɛnsɛf.
• Edukeshɔn: Pikin dɛn we gɛt CP gɛt rayt bak fɔ lan buk. Pikin dɛn de we kin go skul ɔltɛm, ɛn pikin dɛn de we gɛt spɛshal edyukeshɔn nid. Ɛp yu pikin fɔ pik di rayt we fɔ lan buk.
• Sɔshial intarakshɔn: Ɛnkɔrej yu pikin fɔ ple wit ɔda pikin dɛn ɛn fɔ de wit ɔda pipul dɛn. Dis go mek dɛn sabi fɔ liv wit ɔda pipul dɛn.
• As mama ɔ papa, tek kia ɔf yusɛf: Fɔ kia fɔ pikin we gɛt CP kin tranga. Tink bɔt yu yon maynd ɛn bɔdi wɛlbɔdi. Go to advays if nid de. Fɔ tɔk to ɔda mama ɛn papa dɛn we gɛt pikin dɛn we gɛt CP kin bi bak big tin fɔ mek yu gɛt trɛnk.

Fɔ dɔn, sɔm tin dɛn fɔ mɛmba (Take-Home Message) .

• Sεribra palsi na wik we di mכsul dεm de kכntrכl we de kכz fכ damej pan di bren we i de divεlכp.
• Dis tin we de apin nɔ de wɔs de go de go bifo.
• Di sayn dɛm kin difrɛn frɔm wan pikin to ɔda pikin. Sɔm kin gɛt smɔl ifɛkt, ɛn ɔda wan dɛn kin gɛt mɔ bad bad tin.
• If yu notis se yu pikin de delay fɔ gro ɔ yu gɛt prɔblɛm we gɛt fɔ du wit in mɔsul dɛn, go to dɔktɔ wantɛm wantɛm.
• Fɔ no am kwik kwik wan ɛn fɔ trit am (i fɔ ɛp am kwik kwik wan) rili impɔtant.
• Tin dεm lεk fyzikal tεrapi, okyupashכnal tεrapi, εn spεch tεrapi kin bכku bכku wan bכku bכku wan bכku pikin in kwaliti fכ liv.
• Pikin dɛm we gɛt CP kin liv saksesful, gladi layf jɔs lɛk ɔlman if dɛn gɛt lɔv, sɔpɔt, ɛn di rayt chans.

Nɔ fɔgɛt, nɔto yu wangren de. Dɔktɔ, tritmɛnt pipul dɛn, ɛn bɔku ɔda pipul dɛn de we go ɛp yu fɔ du dis waka. Di tin we impɔtant pas ɔl na fɔ wok tranga wan fɔ yu pikin ɛn nɔ lɛf fɔ gɛt op.

Sεribra palsi, CP, sik dεm we pikin kin gεt, bren dizayd, mכsul dεm we wik, divεlכpmεnt delay