Yu dɔn gɛt blɔd klot wantɛm wantɛm, ɔ yu gɛt sɔm prɔblɛm dɛn we yu gɛt bɛlɛ ɛn di dɔktɔ du blɔd tɛst? Yu bin de wɔri we di ripɔt se ‘Lupus Anticoagulant positive’? yu geht frayd we yu si di wohd 'lupus' en tink se dis na lupus? Dis nem rili kɔnfyus smɔl. Na dat mek bɔku pipul dɛn nɔ ɔndastand am. Lɛ wi klia ɔl di prɔblɛm dɛn bɔt dis tide.
Wetin rili na Lupus Anticoagulant?
Fɔ tɔk am simpul wan, dis na wan kayn antibodi we kin de na wi blɔd.
Tink bɔt wi bɔdi in imyun sistɛm lɛk ami we de protɛkt wan kɔntri. We wan jem ɔ sɔntin we de ambɔg di bɔdi kɔmɔt na do, dis ami kin no da ɛnimi de ɛn mek wan grup we gɛt spɛshal sojaman dɛn, we dɛn kɔl antibodi, fɔ pwɛl am. Dis na wetin kin apin ɔltɛm.
Bɔt, sɔmtɛm wi imyun sistɛm kin go fayn. Bifo i atak fɔrina dɛn we de kam fɔ atak wi, i kin bigin fɔ atak wi yon sɛl dɛn we gɛt wɛlbɔdi . Na so lupus anticoagulant (LA) na antibodi we de mek bay mistek ɛn we de pwɛl wi yon bɔdi.
dis LA antibodi, wit tu כda antibodi dεm, kin mek wan kכndyushכn we dεn kכl Antiphospholipid Syndrome (APS) . Dis na sik we pɔsin kin gɛt we i de fɛt insɛf. Di men tin we de sho dis na dat di risk fɔ mek blɔd klɔt na di blɔd vesel dɛn na di bɔdi pas di avɛrej pɔsin.
So wetin mek dɛn kɔl dis ‘lupus’? Dis na di sem sik we dɛn kɔl lupus?
Dis na di say we bɔku pipul dɛn kin kɔnfyus ɛn fred. Ivin if ‘lupus’ pat de na di nem, lupus na rili tu difrɛn tin: Lupus Anti-Coagulant (LA) ɛn Lupus Disease. Na wan rili intrestin stori aw dis nem kam.
Dɛn bin fɔs fɛn dis antibodi bɔku bɔku ia bifo we di wan dɛn we de stɔdi bɔt dis bin tɛst blɔd sɛmpul dɛn frɔm pipul dɛn we gɛt lupus. So dɛn bin tink se na sɔntin we spɛshal fɔ di wan dɛn we gɛt lupus.
Dɛn notis bak se blɔd sɛmpul dɛn we gɛt dis antibodi tek lɔng pas aw i kin tek fɔ mek i klot insay vitro. ‘Anticoagulant’ min ‘de mek blɔd nɔ klot.’ So, dɛn gi am di nem ‘lupus anticoagulant’, we min ‘sɔntin na di bɔdi fɔ di wan dɛn we gɛt lupus we de mek blɔd nɔ klot.’
Bɔt leta dɛn kam fɔ no se dɛn tu tin dɛn de we dɛn bin de tink bɔt nɔ rayt. Infakt, di kɔmɔn tin na tru. Wetin dis antibodi de du insay di bɔdi na fɔ mek di blɔd klɔt mɔ, nɔto fɔ mek i nɔ kam!
Fɔ mek dis kɔnfyushɔn klia, luk di tebul we de dɔŋ ya.
| Trut | Lupus antikɔagulɛnt (LA) . | Lupus sik (SLE) . |
|---|---|---|
| Nechɔ | Wan patikyula bad bad antibodi we de na di blɔd. | Wan kɔmpleks ɔtoimyun sik we de afɛkt difrɛn ɔgan dɛn na di bɔdi. |
| Men ifɛkt | I de mek di risk fɔ mek blɔd klɔt bɔku. | Bɔrku sistɛm kin afɛkt, lɛk di skin, di jɔyn dɛm, di kidni dɛm, di at, ɛn di bren. |
| Padi biznɛs | We yu gɛt LA nɔ min se yu gɛt lupus, bɔt sɔm pipul dɛn we gɛt lupus kin gɛt LA. | LA na jɔs wan tin we dɛn dɔn fɛn we kin gɛt fɔ du wit lupus. |
Wetin mek sɔntin lɛk dis kin apin to wi bɔdi?
Dis na bikɔs wi imyun sistɛm de mek mistek. dis LA antibodi dεm de atak protin dεm we de atak wan kayn fεt sכbstans we dεn kכ l fכsfolipid dεm na di כta sεf fכ wi sεl dεm. Dis atak kin pwɛl di sɛl dɛn, ɛn dis kin mek dɛn stik togɛda ɛn mek di blɔd klɔt mɔ ɛn mɔ.
di masta sabi pipul dεm stil nכ rili sכht wetin mek di imyun sistεm de stat fכ mek dεn fכlt antibodi dεm ya fכs. Dɛn biliv se i kin bi bikɔs ɔf di jɛnɛtiks, di tin dɛn we de apin na di envayrɔmɛnt, ɔ ɔda tin dɛn we kin mek pɔsin gɛt sik.
Wetin LA positive min? Aw i go afɛkt mi?
If yu gɛt LA na yu blɔd, dat min se yu de pan denja fɔ gɛt wan sik we dɛn kɔl antiphospholipid syndrome (APS). Na ya, ‘at risk’.Di wɔd "will" rili impɔtant. I nɔ min se i go mɔs apin.
pan ɔl we di LA antibodi de insay di blɔd, bɔku pipul dɛn de we de kɔntinyu fɔ gɛt wɛlbɔdi ɔlsay na dɛn layf we nɔ de divɛlɔp ɛni blɔd klɔt ɔ kɔmplikeshɔn.
So nɔ fred we yu si dis na yu ripɔt. Bɔt i impɔtant fɔ mek yu dɔktɔ no bɔt dis ɛn fɔ wach yu. Bikɔs yu go gɛt blɔd klɔt pas ɔda pipul dɛn, i go fayn fɔ mek yu no bɔt dat.
Wetin na di tritmɛnt dɛm fɔ dis?
nכ tritmεnt nכ de yet we de pul dis LA antibodi kכmplit wan kכmכt na di bכdi. Bɔt rili gud tritmɛnt dɛn de fɔ kɔntrol di damej we i kin mek, dat na fɔ mek blɔd klɔt.
If yu nɔ gɛt ɛni sayn, we min se yu nɔ bin dɔn gɛt blɔd bifo, yu dɔktɔ kin disayd fɔ jɔs wach yu we i nɔ gi yu ɛni mɛrɛsin.
Bɔt if yu bin dɔn gɛt blɔd klot bifo ɔ dɛn dɔn no se yu gɛt APS, di men tritmɛnt na antikɔagulant ɔ blɔd tin fɔ mek yu blɔd tan . Dɛn kin gi drɔgs lɛk warfarin ɛn heparin fɔ ridyus di risk fɔ mek blɔd klɔt. Sɔntɛnde, dɛn kin gi drɔgs lɛk kɔtikosterɔyd bak fɔ ridyus di ɔva aktiviti fɔ di imyun sistɛm.
Na yu dɔktɔ kin disayd ɔl dɛn tritmɛnt ya, ɛn i kin tink bɔt bɔku tin dɛn lɛk aw yu sik, yu ej, ɛn ɔda sik dɛn.
Ustɛm a fɔ go to di dɔktɔ? Wetin na imejensi?
We yu de liv wit dis kayn tin, i rili impɔtant fɔ no di difrɛns bitwin nɔmal tin ɛn imejensi.
| Chans | Wetin fɔ du |
|---|---|
| Jɛnɛral ɔbshɔbishɔn | Go na di klinik di tɛm we dɛn dɔn sɛtul fɔ chɛk-ap lɛk aw di dɔktɔ se. Dɛn go du blɔd tɛst fɔ si if di mɛrɛsin kɔrɛkt ɛn if ɛni ɔda chenj de. |
| Imejɛnsi (go na di ETU wantɛm wantɛm) |
|
Sayn dɛn we de sho se blɔd dɔn klot
- Leg (Deep Vein Thrombosis - DVT): Wan leg kin swel, rεd, wam, εn pen na wan leg.
- Pulmonary Embolism: I kin shɔt fɔ blo wantɛm wantɛm, i kin gɛt shap pen na yu chɛst (espɛshali we yu de blo), yu kin kɔf blɔd.
- Strɔk: wan say na di fes kin drɔp, wan an kin lɔs, i nɔ kin izi fɔ tɔk.
If ɛni wan pan dɛn sayn ya apin, go na ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) ɛn nɔ de te .
Mɛsej we dɛn kin kɛr go na os
- Lupus antikoagulant (LA) nɔto lupus insɛf. Na jɔs wan kayn antibodi we de na di blɔd.
- If yu gɛt LA na yu blɔd, dat min se yu de pan ay risk fɔ gɛt blɔd klɔt. I nɔ min se i go mɔs apin.
- Nɔ panik afta yu si di ripɔt. Bɔt fɔ tru, tɔk to yu dɔktɔ bɔt dis ɛn fala in advays.
- Di men gol fɔ tritmɛnt na fɔ mek blɔd nɔ klɔt. Yu dɔktɔ go disayd di bɛst tritmɛnt fɔ yu.
- Ɔltɛm yu fɔ no di sayn dɛm we de wɔn yu fɔ mek yu blɔd klɔt (we yu de swel na yu leg, yu chɛst de pen, yu nɔ go ebul fɔ blo). If dis kayn sayn de sho, go na di ETU wantɛm wantɛm.
- Na nɔmal tin fɔ mek yu fred ɛn wɔri we yu tink se sɔntin we yu nɔ go si insay yu bɔdi kin ambɔg yu. Insted fo liv wit frayd, liv wit awareness en mindfulness. Yu dɔktɔ kin ɛp yu fɔ du da waka de.
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