Sɔntɛnde, yu kin fil se yu taya bad bad wan? Na di sem tɛm, yu dɔn gɛt sɔm strenj tin dɛn lɛk we yu jɔyn dɛn kin pen, yu finga dɛn kin swel, ɛn sɔntɛnde yu finga dɛn kin tɔn blu ɛn blu we yu de na kol? Yu kin wɔri bak wit di sayn dɛm fɔ dɛn sik ya we kin apin wan tɛm? Dɔn dis kin bi wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Mixed Connective Tissue Disease, ɔ MCTD as wi kin kɔl am fɔ shɔt tɛm. Nɔ wɔri, lɛ wi tɔk bɔt dis simpul wan.
Wetin na MCTD rili?
Fɔ tɔk am simpul wan, MCTD na wan sik we de mek pɔsin nɔ ebul fɔ fɛt insɛf. Tink bɔt dis we: di difɛns sistɛm na wi bɔdi, di imyun sistɛm, de fɔ protɛkt wi frɔm jem dɛn we de mek wi gɛt sik. Bɔt pan dis kayn sik, wi yon difɛns sistɛm kin mistek tink se wi yon wɛlbɔdi tisu dɛn na ɛnimi ɛn bigin fɔ atak dɛn.
Di spɛshal tin we MCTD gɛt na dat i nɔto wan sik, bɔt na wan kɔmbaynshɔn pan di simptom dɛm fɔ tri ɔda big big kɔnɛktiv tisu sik dɛm. Na dat mek dɛn kɔl am "Mixed". Dɛn kin kɔl am bak "ɔvlap sindrom". Di tri sik dɛm na:
- Sistεmik lupus εrythematosus (SLE): wi kin kכl dis ‘lupus’.
- Sklerodama: Dis kin mek di skin tik ɛn at.
- Polymyositis: Dis kin mek di mɔsul dɛn wik ɛn swel.
Sɔm pipul dɛn kin sho bak sɔm kayn sik lɛk dɛmatomyositis, rεumatoid arthritis, ɔr Sjögren’s syndrome apat frɔm dɛn sik ya.
Wetin na di sayn dɛm fɔ MCTD?
Bɔrku tɛm, dɛn sayn ya nɔr kin apin wan tɛm. Dɛn kin apia wan afta di ɔda wan as tɛm de go. So, i kin tranga fɔ no fɔs se yu gɛt MCTD.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Fɔ fil taya ɛn nɔ gɛt layf | Ɔltɛm a kin fil taya pasmak fɔ natin. Fɔ fil lɛk se yu bɔdi nɔ gɛt layf. |
| Di bɔdi wam (fiva) . | Na nɔto ay fiva, na jɔs smɔl bɔdi wam we de kɔntinyu. |
| Mɔsul ɛn jɔyn pen | di mכsul dεm de at εn wik, εn di jכint dεm we swel, stif wit pen. |
| Di tin we Raynaud bin du | Dis na kɔmɔn sayn fɔ bɔrku pipul dɛm. We pɔsin kol ɔ we i strɛs, di blɔd we de flɔ na in an, fut, nos, ɛn yes kin go dɔŋ, ɛn dis kin mek dɛn tɔn blu wantɛm wantɛm, dɔn dɛn kin tɔn blu. Dɔn dɛn kin tɔn rɛd bak ɛn kam bak to nɔmal. Yu kin fil lɛk yu nɔr de fil fayn ɔ yu kin fil pen insay dis tɛm. |
| Di finga dɛn we de swel | Di finga dɛn kin fil se dɛn dɔn swel ɛn dɛn kin gɛt skel. Sɔmtɛm dis kin go afta sɔm dez, bɔt as tɛm de go, sɔm pipul dɛn kin gɛt wan kayn we we de mek dɛn skin at we kin mek i nɔ izi fɔ bɛn dɛn finga dɛn (sclerodactyly). |
| Spɔt dɛn na di skin | Rɛd ɔ rɛd-brawn spat ɔ lɛsin dɛn na di nɛk. |
Aw MCTD kin fil we i de flay?
Sɔmtɛm pipul dɛm wae gɛt dis sik kin gɛt bɔrku siriɔs sayn dɛm. Wi de kol dis wan ‘flare-up’. Insay dis tɛm, di pen we di jɔyn dɛn kin pen ɛn di mɔsul dɛn kin at kin mek pɔsin nɔ ebul fɔ bia. Jɔs lɛk pɔsin we gɛt `Rheumatoid arthritis`, di jɔyn dɛn kin swel, stif, ɛn pen. `Raynaud in fεnomen` kin apin bak mכr fכs εn mכr siriכs.
Wetin kin mek pɔsin gɛt MCTD?
Dɛn nɔ dɔn fɛn di rayt tin we kin mek pɔsin gɛt dis sik yet. Nɔto sik we pɔsin kin gɛt frɔm in mama ɛn papa. Bɔt risach dɔn sho se if pɔsin na di famili gɛt kɔnektiv tisu sik, ɔda pipul dɛn kin gɛt dis sik. pan tap dat, dεn sכspεkt se sכm vayrus dεm, we dεn de εkspos kεmikכl dεm lεk `polyvinyl chloride` εn `silica` kin mek dis bak.
Udat de pan denja fɔ gɛt dis sik?
MCTD kin mɔs pan uman dɛn we ol bitwin 20-40 ia.Insay bitwin dɛn. Bɔt dat nɔ min se man ɔ pipul dɛn we gɛt ɔda ej nɔ go ebul fɔ gɛt am. Ɛnibɔdi, pan ɛni ej, kin gɛt dis sik.
Wetin na di prɔblɛm dɛn we kin kam wit MCTD?
MCTD na sik wae kin kam wit siriɔs kɔmplikeshɔn sɔmtɛm, so i rili impɔtant fɔ kɔntrol di sik.
Mɛmba se nɔto ɔlman go gɛt ɔl dɛn prɔblɛm ya. Bɔku pan dɛn tin ya kin apin if dɛn trit dɛn fayn.
Na sɔm pan di men prɔblɛm dɛn we kin apin:
- Pulmonary hypertension: Dis na di men tin we kin mek pipul dɛn we gɛt MCTD day. I kin apin we di prɛshɔn we de na di blɔd vesel dɛn we de kɛr blɔd go na di lɔng dɛn go ɔp.
- Intastitial lכng sik: Inflamεshכn εn skata na di tisu dεm na di lכng.
- At sik
- Kidni dɛn we dɔn pwɛl
- Di dijestiv trakt we dɔn pwɛl
- Anemia we nɔ gɛt bɛtɛ blɔd
- Tisu day (nɛkrɔsis) .
- I nɔ de yɛri fayn igen
Aw dɔktɔ kin no se i gɛt MCTD?
As wi bin dɔn tɔk, i kin at fɔ no di sayn dɛm fɔ dis sik bikɔs i kin apia smɔl smɔl as tɛm de go. I kin tek sɔm ia fɔ no if na MCTD. If yu gɛt dɛn sik ya, dɛn go mɔs sɛn yu to dɔktɔ we spɛshal pan jɔyn ɛn ɔtoimyun sik dɛn, we dɛn kɔl rεumatɔlɔjis .
Dɔktɔ kin luk fɔ 4 men tin dɛn fɔ sɔprayz se i gɛt MCTD:
1. di hכy lεvεl dεm fכ anti-U1-RNP antibodi dεm na di bכdi: Dis na di men tεst fכ no MCTD.
2. Nɔ gɛt siriɔs kidni ɔ sɛntral nɛvɔ sistɛm prɔblɛm: Dɛn prɔblɛm ya kin rili bad pan pipul dɛn we gɛt lupus (SLE).
3. Prεsεns fכ siriכs at εn pulmonari haypatεnshכn: dεn nכ kin si dεn wan ya wan pan lupus כ sklerכdama.
4. Raynaud in fεnomen εn di finga dεm we de swεla: dεn simptom ya kin apin pan כnli 25% pan di lupus pasεnshכn dεm.
Wetin na di tritmɛnt dɛm fɔ MCTD?
No mɛrɛsin nɔ de fɔ MCTD yet. Bɔt bɔku fayn tritmɛnt dɛn de we go ɛp yu fɔ kɔntrol yu sik dɛn, fɔ mek yu nɔ gɛt prɔblɛm dɛn, ɛn liv nɔmal layf. Di tritmɛnt kin dipen pan tin dɛm lɛk aw yu de fil bad ɛn us ɔgan dɛm de afɛkt.
| Di kayn drɔg we dɛn kin yuz | Di rizin we mek dɛn yuz am |
|---|---|
| Kɔtikosterɔyd dɛn | Eks: Prɛdnisɔn. Ridyus inflameshn na di bכdi εn sכpres di aktiviti fכ di imyun sistεm. |
| Di mɛrɛsin dɛn we dɛn kin yuz fɔ fɛt malaria | E.g. Haydroksiklɔrokin we dɛn kɔl. Fɔ mek yu nɔ gɛt flawa ɛn kɔntrol di smɔl smɔl sik dɛn. |
| Di wan dɛn we de blok di chanɛl dɛn we gɛt kalsiɔm | Kontrol di fenomen we Raynaud de du. Dɛn tin ya kin mek di mɔsul dɛn we de na di blɔd vesel dɛn wɔl rilaks. |
| Ɔda tin dɛn we de mek pɔsin nɔ ebul fɔ fɛt di sik | If di men ɔgan dɛn (lɛk di lɔng, at) afɛkt, kɔntrol di imyun sistɛm tayt tayt wan. |
| Di mɛrɛsin dɛn we de mek pɔsin nɔ gɛt ay blɔd | Kɔntrol pulmonari haypatɛyshɔn. |
Us tin dɛn yu go du fɔ kia fɔ yusɛf?
Apat frɔm we yu de tek mɛrɛsin, if yu chenj smɔl smɔl na yu layf, dat kin ɛp yu fɔ kɔntrol dɛn sik ya.
- Yuz mɛrɛsin fɔ mek yu fil pen: Fɔ mek yu gɛt smɔl pen ɛn swɛlin, yu kin tek mɛrɛsin dɛn we nɔ gɛt stɛroyd anti-inflammatory drugs (NSAID) lɛk Ibuprofen, afta yu dɔn go to yu dɔktɔ .
- Fɔ protɛkt yusɛf frɔm di kol: Dis impɔtant fɔ mek yu nɔ gɛt dis tin we Raynaud gɛt. Wear glɔv ɛn iaflap we yu de go na do we di ples kol. Minimiz kɔntakt wit kol wata ɛn fɔ put frij pasmak.
- Fɔ avɔyd fɔ smok:Smok kin mek di blɔd vesel dɛn nɔ bɔku. Dis kin mek Raynaud in at wɔs. So if yu de smok, i rili impɔtant fɔ lɛ yu lɛf fɔ smok.
- Ridyus strɛs: Strɛs kin mek bak di tin we de apin to Raynaud. So tray fɔ mek yu maynd kol tru tin dɛn lɛk fɔ du ɛksɛsayz fɔ blo ɛn fɔ tink gud wan. Go to ɛp frɔm pɔsin we de advays yu bɔt mental wɛlbɔdi biznɛs if nid de.
Ustɛm yu nid fɔ go to dɔktɔ?
If yu gɛt ɛni wan pan di sayn dɛm we wi bin dɔn tɔk bɔt, mɔ if dɛn de ambɔg yu ɛvride, i go fayn fɔ go to dɔktɔ. If yu gɛt nyu mɔsul ɔ jɔyn pen, yu finga dɛn de swel, ɔ yu gɛt sayn dɛn fɔ Raynaud, i go fayn fɔ go to dɔktɔ fɔ mek dɛn chɛk dɛn.
Sɔm kwɛstyɔn dɛn we yu kin aks di dɔktɔ:
* Wetin na di kɔz fɔ mi sik?
* A gɛt pas wan sik we de mek a gɛt kɔnektiv tisu?
* Us tɛst dɛn a nid fɔ du?
* Wetin na di tritmɛnt fɔ dis sik?
* Wetin a go du fɔ mek a nɔ gɛt flawa?
Fɔ liv wit dis sik kin tranga sɔm tɛm. Bɔt if yu trit yu fayn ɛn yu de liv yu layf di rayt we, yu go ebul fɔ liv fayn layf. Stay in kɔntakt wit yu dɔktɔ ɛn tɔk opin wan bɔt di tin dɛn we de mɔna yu.
Mɛsej we dɛn kin kɛr go na os
- MCTD na wan kɔmpleks sik we nɔ kin bɔku ɛn we kin mek di sayn dɛm fɔ sɔm sik dɛn kam togɛda.
- Bikɔs di sayn dɛn kin apin wan afta di ɔda, i kin tek sɔm tɛm fɔ no di sik kɔrɛkt wan.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis sik ɔltogɛda, i pɔsibul fɔ kɔntrol di sayn dɛm, fɔ mek i nɔ gɛt prɔblɛm, ɛn liv nɔmal layf.
- Fɔ protɛkt yusɛf frɔm di kol, fɔ avɔyd fɔ smok, ɛn fɔ kɔntrol strɛs kin ɛp fɔ ridyus di sayn dɛm.
- Ɔltɛm tɔk to yu dɔktɔ bɔt yu sik ɛn kɔntinyu fɔ du di rayt tɛst ɛn tritmɛnt dɛn. Nɔto yu wan de!
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt