Yu dɔn ɛva si wan fayn bebi we luk difrɛn smɔl, ɛn ɔltɛm i kin smayl na in fes? Sɔntɛm yu go dɔn de wɔnda, ‘Wetin mek dis pikin difrɛn frɔm di ɔda wan dɛn?’ Daun Sindrom na wan sik wae kin afɛkt bɔrku pan dɛn pikin ya. Di fɔs tin fɔ ɔndastand na dat dis nɔto sik. Na wan sik we pɔsin kin gɛt frɔm in jɛnɛtiks. So, lɛ wi pul di mistek we pipul dɛn kin tink bɔt dis ɛn lan mɔ bɔt dɛn fayn fayn bebi ya ɛn dɛn wɔl.
Fɔ tɔk am simpul wan, wetin na Down Syndrome?
Fɔ ɔndastand dis, wi nid fɔ tɔk fɔs bɔt di smɔl pat na wi bɔdi. Wi bɔdi gɛt bɔku bɔku sɛl dɛn. insay εvri wan pan dεn sεl dεm ya, wan sεt fכ "instrכkshכn" dεm de we de kכntro כltin na wi bכdi, we de sho εvri kכntribyushכn fכ wi bכdi, lεk wi ayt, yay kכla, εn ia kכla. Wi kin kɔl dɛn sɛt ya instrɔkshɔn ya kromozom .
Nɔmal wan, pɔsin we gɛt wɛlbɔdi kin gɛt 23 pe pan dɛn kromozom ya na ɛni sɛl, fɔ mek i gɛt 46 kromozom. Bɔt pikin we gɛt Daun sindrom gɛt ɛkstra kɔpi fɔ di kromozom 21 insted ɔf tu, bɔt tri. dis εkstra kromozom de mek sכm difrεns dεm na di fכshal εn maynd divεlכpmεnt fכ dεn pikin ya.
Di impɔtant tin na dat, dis nɔto di mama ɔ papa in fɔlt. Dis na wan chenj we kin apin na di jɛnɛtiks we nɔ kin apin ɔltɛm. So no rizin nɔ de fɔ blem ɛnibɔdi ɔ fil bad fɔ dis.
Pan ɔl we risach dɔn sho se pikin dɛn we mama dɛn we dɔn pas 35 ia bɔn kin gɛt dis sik, mama we ol ɛni ej kin gɛt pikin we gɛt Daun sindrom.
Wetin na di kɔmɔn kwaliti dɛn we dɛn pikin ya gɛt?
Nɔto ɔl pikin dɛn we gɛt Daun sindrom na di sem. Bɔt sɔm kɔmɔn kwaliti dɛn de we wi kin si pan dɛn. Natin nɔ de fɔ fred we yu si dɛn wan ya, dis na pat pan dɛn aydentiti.
| Tayp we gɛt kwaliti dɛn | Tɔk bɔt |
|---|---|
| Di we aw yu fes de luk | Yu kin si fes we flat smɔl, yay dɛn we tan lɛk amɔnd we slan ɔp, smɔl nos, ɛn smɔl yes. Sɔntɛnde, di tɔŋ kin kɔmɔt smɔl na di mɔt. |
| Di kwaliti dɛn we pɔsin gɛt na in bɔdi | Bɔku tɛm, dɛn kin gɛt shɔt bɔdi ɛn shɔt nɛk. Bɔku pipul dɛn gɛt wan layn we dip (Simian Crease) we de rɔn akɔdin to di an. di bכdi kin tan lεk fכ flab sכmtεm bikoz di mכsul dεm tכn lכw. |
| Grɔw ɛn divɛlɔpmɛnt | Dɛn kin tek smɔl tɛm fɔ rich di impɔtant tin dɛn we dɛn kin du na dɛn bɔdi ɛn maynd pas ɔda pikin dɛn. Fɔ ɛgzampul, dɛn kin let smɔl fɔ sidɔm, waka, ɛn bigin fɔ tɔk. |
| Karakta | Dis na di tin we spɛshal pas ɔl. Bɔku pikin dɛn we gɛt Daun sindrom kin rili lɛk dɛnsɛf, dɛn kin lɛk fɔ spɛn tɛm wit ɔda pipul dɛn, ɛn dɛn kin gladi. Dɛn laf kin rili pas. |
Lɛ wi no bak bɔt de wɛl bɔdi prɔblɛm wae kin kam wit Daun sindrom.
Dɛn pikin ya kin gɛt sɔm kayn wɛlbɔdi prɔblɛm smɔl pas ɔda wan dɛn. Bɔt nɔto ɔlman go gɛt ɔl dɛn sik ya. Di tin we impɔtant pas ɔl na fɔ no bɔt dis, kɔntinyu fɔ tɔk to yu pikin in dɔktɔ ɔltɛm, ɛn gɛt di mɛrɛsin tɛst ɛn tritmɛnt dɛn we yu nid di rayt tɛm.
- Dɛn at pwɛl we dɛn bɔn wit: Klose to af pan ɔl di pikin dɛn we gɛt Daun sindrom kin gɛt sɔm kayn at prɔblɛm we dɛn bɔn wit. Naw dɛn kin ebul fɔ trit bɔku pan dɛn tin ya fayn fayn wan wit ɔpreshɔn.
- Prɔblɛm fɔ digest: Sɔm pikin dɛn kin gɛt sɔm prɔblɛm wit dɛn dijestiv sistɛm.
- Prɔblɛm fɔ yɛri ɛn si: I pɔsibul fɔ mek yu nɔ ebul fɔ si ɛn yɛri fayn. So, i impɔtant fɔ mek dɛn chɛk yu ɔltɛm.
- Tayrɔyd prɔblɛm: Risk de fɔ mek yu gɛt haypo tayroyd, we na wan sik we di bɔdi in mɛtabolism nɔ de wok fayn.
- Slip Apnea: Na sik wae de kam wae yu de blo stɔp fɔ shɔt tɛm we yu de slip.
- Infekshɔn ɔltɛm: Bikɔs ɔf sɔm wikɛd tin dɛm na di imyun sistɛm, tin dɛm lɛk kol ɛn yes infɛkshɔn kin apin bɔku tɛm.
Nɔ panik we yu si dɛn tin ya. Rili gud tritmɛnt dɛn de fɔ ɔl dɛn tin ya na di advans mɛdikal sayɛns tide. Ɔl wetin dɛn nid na fɔ pe atɛnshɔn to di mama ɛn papa ɛn di wan dɛn we de kia fɔ dɛn pikin dɛn ɛn fɔ gɛt di rayt we fɔ gayd dɛn wit dɔktɔ.
Aw wi go sɔpɔt dɛn pikin ya?
Dis na di pat we impɔtant pas ɔl. Bɔku tin dɛn de we wi kin du fɔ ɛp pikin we gɛt Daun sindrom fɔ liv fayn ɛn gladi at.
1. Fɔ Intavyu kwik kwik wan
Dis min se fɔ ɛp di pikin fɔ divɛlɔp we i smɔl. Dipen pan wetin di pikin nid, .
- Fizik Tɛrapi: I de mek yu mɔsul dɛn strɔng ɛn ɛp yu fɔ waka, rɔn, ɛn jomp.
- Spich Therapy: I de ɛp yu fɔ tɔk klia wan ɛn fɔ tɔk bɔt aw yu de tink.
- Occupational Therapy: De tich yu aw fɔ du ɛvride wok lɛk fɔ it ɛn drɛs yusɛf.
Tru dɛn tin ya, yu kin mek yu pikin ebul fɔ du mɔ. Aks yu dɔktɔ bɔt fɔ aks fɔ ɛp frɔm kwalifay tritmɛnt fɔ dis.
2. Edukeshon ɛn ikwal chans
Na lay lay tɔk tru se pikin dɛn we gɛt Daun sindrom nɔ kin ebul fɔ lan. Dɛn kin lan bay wetin dɛn want. Inkluziv edukeshɔn, we de mek dɛn ebul fɔ lan na rɛgyula skul wit ɔda pikin dɛn, de ɛp dɛn fɔ divɛlɔp dɛn soshal skil dɛn. Bɔku pan dɛn kin ebul fɔ rid, rayt, ɛn ivin du wok we dɛn kin du ɔltɛm.
3. Lɔv, akseptɛns ɛn ɛnkɔrejmɛnt
Dɛn pikin ya nɔ nid wi sɔri-at. Dɛn nid fɔ lɛk dɛn, fɔ peshɛnt, fɔ gri wit dɛn, ɛn fɔ ɛnkɔrej dɛn. Sɛlibret ivin di smɔl smɔl win dɛn we dɛn win. If i tek dɛn sɔm tɛm fɔ du sɔntin, peshɛnt ɛn alaw dɛn fɔ du am. Wi as sosayti nid fɔ lan fɔ lɛk dɛn wit dɛn difrɛns, nɔto fɔ laf dɛn.
Imajin se pikin de we gɛt Daun sindrom na yu neba. Nɔ isolate am, jɔyn am fɔ ple wit yu pikin. Bi pɔsin we de gi da pikin de in mama ɛn papa in maynd. Di smɔl chenj we wi de chenj kin rili ɛp da famili de.
Tide, bikɔs ɔf bɛtɛ mɛdikal kia ɛn soshal sɔpɔt, di avɛrej layf ɛkspɛkt fɔ pipul dɛm wae gɛt Daun sindrom dɔn go ɔp to 55-60 ia. Bɔku pan dɛn de liv fɔ dɛnsɛf.
Mɛsej we dɛn kin kɛr go na os
- Daun Sindrom nɔto sik. Na wan jenɛtik kɔndishɔn we kin apin randomly ɛn nɔto ɛnibɔdi in fɔlt kin mek i apin.
- Pan ɔl we dɛn pikin ya kin slo smɔl, dɛn kin ebul fɔ lan, divɛlɔp dɛn talɛnt, ɛn liv gladi at.
- Dɛn nɔ want fɔ gɛt sɔri-at, bɔt dɛn want fɔ lɛk dɛn, fɔ gri wit dɛn, fɔ lɛ dɛn nɔ gri wit dɛn, ɛn fɔ gɛt ikwal chans lɛk ɔlman na di sosayti.
- If yu pikin gɛt Daun sindrom, nɔ ɛva fil se na in wangren de. Tɔk to yu dɔktɔ ɔltɛm ɛn gɛt di mɛrɛsin sɔpɔt ɛn gayd we yu nid.
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