Sɔntɛnde, sɔm pan di sik dɛn we wi pikin dɛn kin gɛt kin rili kɔmpleks. Ɛn di mɛrɛsin dɛn we dɛn kin gi fɔ dɛn bak spɛshal. Tide wi go tɔk bɔt wan pan dɛn kayn spɛshal mɛrɛsin dɛn de. Dɛn kɔl dis mɛrɛsin Odevixibat, we dɛn kin gi sɔm pikin dɛn fɔ mɛn di it we dɛn kin it we dɛn nɔ kin ebul fɔ bia wit dɛn skin we kin kam bikɔs ɔf wan sik we nɔ kin apin na di liva. If di dɔktɔ dɔn gi yu pikin dis mɛrɛsin, dat min se dis atikul go rili impɔtant fɔ yu.
Us kayn mɛrɛsin na Odevixibat?
Fɔ tɔk am simpul wan, Odevixibat na mɛrɛsin we dɛn kin gi fɔ kɔntrol di it we yu pikin gɛt pasmak we yu gɛt prɔblɛm wit yu pikin in liva. Dɛn kin kɔl am di makit nem Bylway.
We wi de tɔk bɔt mɛrɛsin, dis de pan wan klas ɔf drɔgs we dɛn kɔl ileal bile acid transporter (IBAT) inhibitors . dis min se dis mεdisin de kכntro di riabsכpshכn fכ di bayl asid dεm na wi intestines insay di bכdi.
Dɛn kin yuz dis mɛrɛsin mɔ fɔ kɔntrol di it we di wan dɛn we gɛt wan sik we dɛn kɔl Progressive Familial Intrahepatic Cholestasis (PFIC) . PFIC na wan jεnεtik kכndishכn we nכ kin apin we de intafεr di fכ fכlכ di bayl frכm di liva sεl dεm. Dis kin mek di bayl de bɔku na di bɔdi, ɛn dis kin mek i it we pɔsin nɔ go ebul fɔ bia. Odevixibat de wok bay we i de kɔntrol di ɔndalayn kɔz fɔ di it.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu yuz dis mɛrɛsin, i impɔtant fɔ gi yu dɔktɔ kɔmplit diskripshɔn bɔt yu ɔ yu pikin in wɛlbɔdi. Mek shɔ se yu tɔk mɔ bɔt dɛn tin ya:
- Vitamin we nɔ de: If dɔktɔ dɔn tɛl yu se yu nɔ gɛt bɛtɛ vaytamɛn A, D, E, ɔ K na yu blɔd, tɛl dɛn.
- Bɛlɛ: If yu gɛt bɛlɛ, ɔ yu de plan fɔ bɔn pikin insay di nɛks tɛm, yu fɔ tɛl yu dɔktɔ.
- If yu na mama we de gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ, mek shɔ se yu tɛl di nɔs.
Fɔ tɔk to di dɔktɔ we yu nɔ ayd dis kayn infɔmeshɔn rili impɔtant fɔ yu ɛn yu pikin in sef.
Di kɔrɛkt we fɔ yuz di mɛrɛsin
Fɔ mek yu gɛt di bɛst pan dis mɛrɛsin, i rili impɔtant fɔ yuz am kɔrɛkt wan. Tek di kɔrɛkt doz, di kɔrɛkt tɛm, lɛk aw yu dɔktɔ tɛl yu.
| Advays | Aw fɔ du am |
|---|---|
| Fɔ tek mɛrɛsin | Tek di sem tɛm ɛvride, wit gud glas wata. I bɛtɛ fɔ tek am wit it. |
| Fɔ swɛla di kapsul | Swɛla di kapsul ɔl . Nɔ brok am, krɔs am, ɔ chew am fɔ ɛni rizin. |
| If i at fɔ swɛla | If i nɔ izi fɔ yu fɔ swɛla di kapsul, tek tɛm opin am, miks di paoda insay wit tu tebul spɔnj tik it lɛk yogɔt ɔ apul sos, ɛn swɛla kwik kwik wan we yu nɔ it. Nɔ ɛva miks dis mɛrɛsin wit wata (wata, milk, jus). |
| Wit ɔda mɛrɛsin dɛn | If yu de tek mɛrɛsin dɛn we de mek yu nɔ gɛt bɔku kɔlɔstrel (bile acid binding resins) lɛk Cholestyramine, Colesevelam, ɔ Colestipol, tek dɛn 4 awa bifo ɔ 4 awa afta yu tek Odevixibat. |
Ustɛm fɔ gi pikin dɛn dis mɛrɛsin?
Dɔktɔ dɛn kin se dis mɛrɛsin fɔ pikin dɛn we ol 3 mɔnt pan sɔm spɛshal kes dɛm. Bɔt, sɔm tin dɛn de we wi fɔ tek tɛm wit. So, we yu de gi yu pikin dis mɛrɛsin, du wetin di dɔktɔ tɛl yu fɔ du.
Wetin fɔ du if yu tek bɔku mɛrɛsin?
If yu tink se yu ɔ yu pikin dɔn tek dis mɛrɛsin tumɔs, nɔ delay.
Wantɛm wantɛm kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek di nɛks doz, skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu dɔn sɛtul.Nɔ ɛva tek dɛbul doz fɔ mek di doz we yu dɔn fɔgɛt.
Ɔda tin dɛm wae kin miks wit dis mɛrɛsin
Sɔm mɛrɛsin dɛn kin intarakt wit Odevixibat, mɔ, lɛk aw wi bin dɔn tɔk, wit mɛrɛsin dɛn we de na di bayl asid binding rɛsin klas.
- Kɔlestayramin we dɛn kɔl
- Kolsevelam we de na di wɔl
- Kɔlestipɔl
Dis list nɔ kɔmplit. So, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud di mɛrɛsin dɛn fɔ ɔda sik dɛn, vaytamɛn dɛn, ɛn tradishɔnal ɔyl dɛn).
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
- Chek-ap ɔltɛm: Mek shɔ se yu go na di say we yu dɔktɔ dɔn sɛtul fɔ chɛk yu ɔ yu pikin. Tɔk to yu dɔktɔ bɔt if yu sik dɛn de bɛtɛ ɔr de wɔs.
- Vitamin: I impɔtant fɔ mek shɔ se yu de gɛt di vaytamɛn dɛn we yu nid (especially di fat-soluble vitamin A, D, E, ɛn K) we yu de tek dis mɛrɛsin. Tɔk to yu dɔktɔ bɔt di it dɛn we yu de it ɛn ɛni sɔpɔtmɛnt we yu de tek.
- Blɔd tɛst: We yu de du tritmɛnt, yu dɔktɔ kin ɔda sɔm blɔd wok fɔ chɛk tin dɛn lɛk aw yu liva de wok. Nɔ skip dɛn.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Odevixibat kin mek sɔm sayd ɛfɛkt dɛn. Sɔm pan dɛn tin ya kin siriɔs, so i impɔtant fɔ no bɔt dɛn.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Sayd ɛfɛkt dɛn we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, i de it bad bad wan, yu fes, yu lip ɔ yu tɔng de swel. |
| Di sayn dɛn we de sho se pɔsin in liva wund | Dak yɔlɔ ɔ brawn urine, fil lɛk se yu nɔ gɛt bɛtɛ trɛnk, yu gɛt fiva, yu nɔ de want fɔ it, yu de fil pen na di ɔp rayt say na yu bɛlɛ, ɛn yu yay ɔ yu skin de yɔlɔ (jaundice). |
| Rɔnbɛlɛ | Dayarɛa we de kɔntinyu fɔ de. |
| Tin dɛm fɔ tɛl yu dɔktɔ if dɛn kɔntinyu ɔr de mɔna yu | |
| Bɛlɛ de at | Jɛnɛral bɛlɛ pen. |
| Fɔ vɔmit | Fɔ vɔmit. |
Aw yu fɔ kip yu mɛrɛsin?
- Kip am usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich .
- Stɔr am na rum tɛmpracha (bitwin 20 ɛn 25 digri sɛlshiɔs) , na ples we dray.
- Nɔ yuz mɛrɛsin dɛn we dɔn pas. Trowe dɛn go.
Aw yu kin pul di mɛrɛsin we yu nɔ yuz?
I nɔ fayn fɔ trowe mɛrɛsin we dɔn pas ɔ we yu nɔ want na dɔti ɔ dɔŋ di tɔylɛt. Aks yu dɔktɔ fɔ advays. If dɛn se i nɔ bad fɔ trowe di mɛrɛsin na di dɔti, pul di mɛrɛsin kɔmɔt na di bɔtul, miks am wit sɔntin lɛk ti lif we dɛn dɔn yuz, kɔfi grɔn, ɔ dɔti, ɛn put am na bag we dɛn tay tayt.
Mɛsej we dɛn kin kɛr go na os
- Odevixibat na mɛrɛsin we dɛn kin gi fɔ it we wan patikyula liva kɔndishɔn we dɛn kɔl PFIC kin mek ɛn dɛn fɔ yuz am nɔmɔ if dɔktɔ tɛl yu.
- Swɛla di kapsul ɔl. Nɔ krɔs am ɔ chew am. Na miks am wit sɔlid it nɔmɔ if i nɔ izi fɔ yu fɔ swɛla.
- Tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek ɛn di tin dɛn we yu de du.
- If yu notis ɛni siriɔs sayd ɛfɛkt, lɛk alɛji ɔ sayn fɔ se yu liva dɔn pwɛl (yu yay de yɔlɔ, yu urine dak), tɛl yu dɔktɔ wantɛm wantɛm.
- If yu ɔvados, go na di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta ɔ ETU wantɛm wantɛm.
- If yu gɛt ɛni kwɛstyɔn bɔt dis mɛrɛsin, mek shɔ se yu tɔk to yu dɔktɔ.
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