If yu smɔl pikin gɛt wan sik we dɛn kɔl PFIC (Progressive Familial Intrahepatic Cholestasis), yu go dɔn notis se i de skrach in bɔdi ɔltɛm. Sɔntɛnde, i nɔ kin ivin ebul fɔ slip, ɛn i kin skrach in bɔdi te in skin kin kɔmɔt. Dis na tin we kin rili mek di pikin fil pen ɛn i kin mek yu at pwɛl ɛn bak fɔ yu as mama ɔ papa. So, wan spɛshal mɛrɛsin we dɔktɔ dɛn kin se fɔ kɔntrol dis it we pɔsin nɔ ebul fɔ bia wit na di skin na Odevixibat (brand nem Bylway). Tide, wi go tɔk bɔt dis mɛrɛsin, aw fɔ gi am to yu pikin, ɛn us tin dɛn fɔ tek tɛm wit.
Us kayn mɛrɛsin na Odevixibat?
Fɔ tɔk am simpul wan, Odevixibat na wan drɔg we de insay wan klas ɔf drɔgs we dɛn kɔl Ileal Bile Acid Transporter (IBAT) Inhibitors . Tink bɔt dis we: di bayl asid, we na wan wata we wi liva de mek we de ɛp fɔ digest it, kin go bak insay wi intestinal. insay kכndishכn lεk PFIC, dis bayl de bכku na di bכdi, we de mek i it we yu nכ de bia.
So wetin dis Odevixibat mεdisin de du na fכ stכp di bayl fכ riabsכp insay di bכdi frכm di intestines. Dɔn di ɛkstra bayl we de na di bɔdi de kɔmɔt wit di stɔl. fכ dis prכsεs, di skin it (pruritus) we nכ de bia we de kam wit PFIC sik de ridyus bכku, we de gi di pikin bכku rilif.
De tin wae impɔtant pas ɔl fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu gi yu pikin Odevixibat, i impɔtant fɔ tɛl yu dɔktɔ dis infɔmeshɔn. Dis rili impɔtant fɔ mek yu pikin sef.
| Infɔmeshɔn we yu nid fɔ gi | Wetin mek i impɔtant? |
|---|---|
| If dɛn dɔn ripɔt se di vaytamɛn A, D, E, ɔ K nɔ bɔku. | Dis mɛrɛsin kin ridyus di absɔpshɔn fɔ di vaytamɛn dɛn we kin sɔlv di fat te to sɔm mak. So, if yu dɔn ɔlrɛdi gɛt vaytamɛn, yu dɔktɔ fɔ no bɔt dis. |
| If yu gɛt alɛji to Odevixibat ɔ ɛni ɔda mɛrɛsin ɔ it. | Dis impɔtant fɔ no if pɔsin gɛt alɛji fɔ di mɛrɛsin ɛn fɔ trit am fayn fayn wan. |
| If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ. | Insay dɛn kayn tin ya, i impɔtant fɔ mek yu tɔk to di dɔktɔ bɔt aw di mɛrɛsin sef ɛn disayd fɔ du sɔntin bay di advays we i gi yu. |
Aw yu kin gi pikin dis mɛrɛsin?
Dis na pat we rili impɔtant. Ɔndastand gud gud wan aw fɔ gi di mɛrɛsin.
- Dis mɛrɛsin kin kam lɛk kapsul, bɔt dɛn nɔ min fɔ swɛla am ɔl .
- Mɛmba fɔ tek yu mɛrɛsin di sem tɛm ɛvride , lɛk aw yu dɔktɔ tɛl yu. Bɔku tɛm, i kin fayn fɔ tek am na mɔnin wit it.
- Step 1: Tek tɛm opin di kapsul. Put di pellets insay insay wan ɔ tu tebul spɔnj we gɛt sɔft it. Fɔ ɛgzampul, yu kin yuz yogɔt, mash banana, ɔ apul sos.
- Step 2: We di mɛrɛsin ɛn it dɔn miks, lɛ di pikin swɛla am. Nɔ ɛva mek di pikin it di tablɛt ɔ di it we dɛn miks wit.
- Step 3: Nɔ miks dis mɛrɛsin wit wata, lɛk wata, milk, ɔ drink fɔ ɛni rizin.
- Impɔtant: If yu pikin de tek ɔda mɛrɛsin (bile acid binding resins) lɛk Cholestyramine ɔ Colesevelam, yu fɔ gi Odevixibat 4 awa bifo ɔ 4 awa afta dɛn. Aks yu dɔktɔ fɔ patikyula instrɔkshɔn dɛn.
- Nɔ stɔp fɔ tek di mɛrɛsin te yu dɔktɔ tɛl yu fɔ tek am. Dis mɛrɛsin na fɔ yu nɔmɔ, nɔ sheb am wit ɔda pipul dɛn.
If yu mis wan doz, nɔ wɔri. Tek di doz we yu mis as yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek di nɛks doz, skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz.
Tin dɛn we yu fɔ tek tɛm wit we yu de tek mɛrɛsin
- Si di dɔktɔ ɔltɛm: Yu fɔ go to dɔktɔ di de dɛn we dɛn dɔn sɛtul fɔ chɛk aw yu pikin de du ɛn if di mɛrɛsin de wok.
- Blɔd Tɛst: We yu pikin de tek dis mɛrɛsin, i go nid fɔ du blɔd tɛst fɔ chɛk aw in liva de wok ɛn di vaytamɛn lɛvɛl.
- Vitamin ɛn it: I impɔtant fɔ mek shɔ se yu pikin de gɛt di vaytamɛn dɛn we i nid (espɛshali A, D, E, ɛn K). Tɔk to yu pikin in dɔktɔ bɔt aw yu pikin de it ɛn ɛni ɔda vaytamɛn.
Wetin fɔ du if yu tek bɔku mɛrɛsin? (Ovados) .
If yu gɛt smɔl saspek se dɛn dɔn gi yu pikin mɔ mɛrɛsin pas aw yu tink, nɔ west tɛm ɛn kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital. Ɔda we de fɔ kɛr yu pikin go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɔl di mɛrɛsin dɛn, dis wan kin gɛt sayd ɛfɛkt. Nɔto ɔlman kin gɛt dɛn, bɔt i impɔtant fɔ no bɔt dɛn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Skin rash, it, swel na di lip, fes ɔ tong, i nɔ izi fɔ blo. |
| Simptom dɛm fɔ Liva Injury | di yay ɔ di skin de yɔlɔ, di urine we de dak yɔlɔ/brawn, pen na di ɔp rayt pat na di bɛlɛ, i nɔ de want fɔ it, i de taya pasmak. |
| Sivɛri dayarɛa (Dayrɛa) . | Stul dɛn we kin lɔs bɔku tɛm. |
| If i kɔntinyu ɔ i de mɔna yu, tɛl yu dɔktɔ. | |
| Bɛlɛ de pen | Wan nɔmal bɛlɛ we de at. |
| Fɔ vɔmit | Fɔ vɔmit. |
Mɛsej we dɛn kin kɛr go na os
- Odevixibat na spɛshal mɛrɛsin we dɛn kin yuz fɔ kɔntrol di bad bad it we di skin kin it we PFIC sik kin mek.
- Nɔ swɛla, chew, ɔ krɔs dis mɛrɛsin. Opin di kapsul, miks di tablɛt dɛn insay wit sɔft it, ɛn swɛla we yu nɔ it.
- Mek shɔ se yu tɛl di dɔktɔ if yu pikin gɛt ɛni ɔda sik, alɛji, ɔ i de tek ɛni ɔda mɛrɛsin.
- If yu si sayn dɛm fɔ se yu liva dɔn pwɛl (yu yay/skin de yɔlɔ, yu urine dak), yu gɛt siriɔs dayarɛa, ɔ yu gɛt alɛji, go to yu dɔktɔ wantɛm wantɛm.
- If yu gɛt ɛni kwɛstyɔn bɔt di mɛrɛsin, nɔ fred fɔ tɔk to yu dɔktɔ. Nɔ trit bay we yu gɛs.
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