Bɔku tɛm yu smɔl pikin kin sik wit kol , flu, ɔ in yes ? Sɔntɛnde yu kin fil lɛk se yu pikin sik pas ɔda pikin dɛn? Sɔntɛnde, ivin kɔmɔn kol kin tɔn to sɔntin we siriɔs lɛk nyumonia , ɛn i kin nid fɔ tek mɛrɛsin fɔ sɔm dez? Yu go mɔs de wɔri bad bad wan bɔt tin dɛn lɛk dis. Infakt, sɔntɛnde dis kin bi bikɔs di pikin in imyun sistɛm wik. Wi de tɔk bɔt dis kayn tin tide.
Wetin na Praymari Imyunodefisiɛns Sindrom (PIDD)?
Fɔ tɔk am simpul wan, pikin we gɛt Praymari Immunodeficiency Disease (PIDD) gɛt in imyun sistɛm we nɔ de wok fayn . Tink bɔt wi imyun sistɛm as ami we de protɛkt wi kɔntri. I de protɛkt wi bɔdi frɔm di jem dɛn we de kɔmɔt na do. So we dis “ami” wik, i izi fɔ mek smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl smɔl .
We yu yɛri dis, yu go fred se, “O, mi pikin go gɛt ɔl dɛn sik ya?” Bɔt di bɛst tin na dat, naw, rili gud tritmɛnt dɛn de fɔ kɔntrol dɛn sik ya. Wit dεn tritmεnt dεm, di pikin kin liv hεlth, aktif, εn nכmal layf lεk כda pikin dεm. Dis na jεnεtik, we min se na kכndyushכn we de de we dεn bכn am, nכto sik we kin pas frכm wan pכsin to כda pכsin.
Wetin na di men kayn dis sik?
I pas 550 kayn sik ya we de mek pɔsin nɔ ebul fɔ fɛt di bɔdi. Sɔm kin rili kɔmɔn, sɔm kin rili rare. Bɔrku pan dɛm kin gɛt dis sik wae dɛn smɔl, bɔt sɔmtɛm dɛn kin sho se dɛn gɛt dis sik leta. Lɛ wi luk sɔm pan di men kayn dɛn.
| Di Nem fɔ di Sik | Fɔ tɔk am simpul wan, na dis kin apin. |
|---|---|
| Sεlektiv Immunoglobulin A (IgA) dεfisiεns | IgA na wan antibodi we de fɛt di jεm dεm na wi saliva, kray wata, εn mכkus mεmbran. Dɛn pipul ya gɛt smɔl smɔl IgA na dɛn bɔdi. Dis kin mek yu gɛt mɔ asma ɛn alɛji. Sɔm pipul dɛn nɔ kin gɛt ɛni sayn atɔl. |
| Kɔmɔn Vɛriɔbul Imyunodefisiɛns (CVID) . | Dɛn imyun sistɛm nɔ de wok fayn fɔ fɛt di jem dɛm. Dɔn bak, sɔm pan di antibodi dɛm we dɛn kin mek kin atak dɛn yon sɛl dɛm. Bɔku tɛm, dɛn kin gɛt infɛkshɔn na dɛn yes, sayn, ɛn lɔng. |
| Agammaglobulinemia we gɛt fɔ du wit X (XLA) . | fכ bכn am witout B sεl dεm, we de mek antibodi dεm. Dis kin lɛf big gap na di imyun sistɛm. Infεkshכn kin apin bכku tεm na say dεm we gεt mכkus mεmbran (yεs, lכng, bεlε). |
| Sivεr Kכmbayn Imyun Dεfisiεns (SCID) . | Dis na wan pan di kayn we dɛn we kin rili bad. nכto כnli B sεl dεm nכ de, bכt nכ T sεl dεm de we de atak jεm dεm dεn wan dεm. Dis kin mek di imyun sistɛm rili wik. Dis kin mek pɔsin in layf de pan denja, so i impɔtant fɔ no di sik kwik kwik wan ɛn fɔ trit am. |
| DiJɔj Sindrɔm (DGS) . | dis pikin dεm gεt bכt 90% sכm T sεl dεm pas nכmal pikin. Sɔm kayn sik lɛk fɔ gɛt infekshɔn ɔltɛm ɛn at sik kin apin. |
| Di sik we dɛn kɔl Kronik Granulomatous Disease (CGD) . | Dɛn pipul ya nɔ gɛt sɛl (phagocytes) we de mek spɛshal kemikal dɛn we de pwɛl di jem dɛn. dis kin mek di jεm dεm kכlכm tכgeda εn fכm lכmp (granulomas). |
Us sayn dɛn yu fɔ wach fɔ?
If yu tink se yu pikin gɛt dis sik, kip yu yay fɔ dɛn sayn ya. If wan ɔ mɔ pan dɛn sayn ya nɔ de igen, mek shɔ se yu go to dɔktɔ.
- Di pikin in growth de delay ɔ i nɔ de gɛt wet.
- Infekshɔn dɛn we kin kam bɔku tɛm . Fɔ ɛgzampul, yu yes infɛkshɔn, sayn infɛkshɔn, ɔ nyumonia tu ɔ tri tɛm insay di mɔnt .
- Antibayɔtik dɛn we kɔmɔnDi infekshɔn kin so bad dat i nid fɔ put antibayɔtik insay di bɛlɛ (IV) , pas fɔ yuz pils .
- Dayarɛa we nɔ de dɔn ɔ ɔda prɔblɛm dɛn we de apin na di dijestiv sistɛm.
- Di limf no dɛm we dɔn swel.
- Spleen we dɔn big.
- Wan siriɔs riakshɔn to layf vaysin.
Aw fɔ no dis sik kɔrɛkt wan?
If yu gɛt ɛni dawt, di fɔs tin we yu fɔ du na fɔ go to yu famili dɔktɔ. I go chɛk yu pikin ɛn aks yu kwɛstyɔn dɛn lɛk:
“Bɔku tɛm di pikin kin gɛt siriɔs infɛkshɔn? Aw lɔng dɛn kin las? Di sik nɔ kin bɛtɛ ivin if dɛn yuz antibayɔtik? Ɛni ɔda pɔsin na di famili kin gɛt sik dɛn lɛk dis bɔku tɛm?”
Dɔn, yu kin luk fɔ dɛn tɛst ya fɔ no mɔ:
- Blɔd tɛst: Dɛn kin tek di pikin in blɔd ɛn chɛk di lɛvɛl we di imyun sistɛm sɛl ɛn antibodi dɛn de.
- jεnεtik tεst dεm: Dis kin no dεn wan dεm if εni difεkt de na di jin dεm we de afekt di imyun sistεm.
- Flow Cytometry test: Dis na wan mכdan tεknכlכji we de yuz lεzεr bim fכ stכdi di imyun sεl dεm dip wan.
Fɔ mek yu ebul fɔ kɔntrol wan sik lɛk dis, i rili impɔtant fɔ go to klinik imyunɔlɔjis .
Wetin na di tritmɛnt dɛn?
Di gud nyus na dat naw, tritmɛnt dɛn de we rili fayn fɔ dɛn sik ya. Tritmɛnt gɛt tu men gol: fɔ mek di infɛkshɔn nɔ kam ɛn fɔ manej am fayn if i apin.
1. Tritmɛnt fɔ infɛkshɔn: If yu pikin gɛt infekshɔn, i kin nid fɔ tek antibayɔtiks insay ay dos ɛn fɔ lɔng tɛm pas aw i fɔ tek. We dɛn gɛt siriɔs infɛkshɔn, dɛn kin nid fɔ go na ɔspitul ɛn gi dɛn IV (intravenous) mɛrɛsin.
2. Tritmεnt dεm we de εnhans di imyuniti:
- Immunoglobulin (Ig) riplesmɛnt tɛrapi: Fɔ tɔk am simpul wan, dis involv fɔ gi di pikin antibodi dɛm we de fɛt di sik frɔm pɔsin we gɛt wɛlbɔdi tru wan IV. I tan lek se yu gi dem "soldiers" from outsaid. Dɛn kin du dis ɛvri wik ɔ ɛvri mɔnt.
- Stem sel transplant: Dis na tritmɛnt fɔ pikin dɛn we gɛt di sik we rili bad. di stεm sεl dεm we dεn tek frכm hεlth pכsin (bכku tεm na di famili mεmba) dεn kin transplant insay di pikin. Dɛn sɛl ya kin mek wɛlbɔdi imyun sɛl dɛn.Dis na tritmɛnt we kin mɛn sɔm kayn PIDD kpatakpata.
- Jin Tɛrapi: Dis na wan tritmɛnt we rili tide. dεn tek di pikin in כwn stεm sεl dεm, dεn de "εdit" di jin we nכ de wok fayn na di labכtכri, εn dεn de put di sεl dεm bak insay di pikin in bכdi.
Sɔm advays fɔ yu we de kia fɔ yu pikin
We yu de liv wit dis sik, yu kin ɛp yu pikin fɔ de gladi ɛn du tin lɛk ɔda pikin dɛn.
- Tɔk fɔ yu pikin: If yu pikin de na skul, tɔk to di ticha dɛn ɛn ɛksplen wetin de apin to yu pikin. Tɛl dɛn se sɔntɛm dɛn nɔ go ebul fɔ go skul fɔ sɔm tɛm.
- Tek kia fɔ klin: Was yu an ɔltɛm, mɔ bifo yu it ɛn afta yu dɔn yuz tɔylɛt. I rili impɔtant fɔ protɛkt yusɛf frɔm jem.
- Gi yu pikin gud it: If yu it frut, vɛjitebul, ɛn ɔl di tin dɛn we yu kin it, dat go mek yu pikin gɛt trɛnk.
- Gɛt inof slip: Fɔ slip fayn rili impɔtant fɔ di imyun sistɛm.
- Ridyus strɛs: Alaw yu pikin fɔ ple, du tin dɛn we i lɛk, ɛn mek ples fɔ gladi.
Sɔntɛnde, i nɔ kin izi fɔ yu fɔ bia wit dis sik. Bɔt nɔto yu wangren de. Tɔk to yu dɔktɔ, yu fambul, ɛn padi dɛn bɔt dis. I kin bi bak big trɛnk fɔ yu fɔ tɔk to ɔda mama ɛn papa dɛn we gɛt pikin dɛn lɛk dis.
Mɛsej we dɛn kin kɛr go na os
- Praymari imyunodefisiɛns sindrom (PIDD) na wan jenɛtik kɔndishɔn we de we dɛn bɔn am, nɔto sik we kin pas frɔm pɔsin to ɔda pɔsin.
- If yu pikin de gɛt bɔku bɔku, siriɔs infɛkshɔn we nɔ de wɛl kwik wit tritmɛnt, na wɔnin sayn. Fɔ tru, go to dɔktɔ fɔ advays yu.
- Difrɛn kayn dis sik de, frɔm wae nɔr kin pasmak to wae kin rili bad.
- If dɛn no di sik kɔrɛkt wan ɛn di mɔdan tritmɛnt dɛn lɛk Immunoglobulin (Ig) tɛrapi ɛn bon mɛrɔ transplant, bɔku pikin dɛn kin liv ful, aktif layf.
- Gud klin, it, ɛn ples we gɛt lɔv ɛn sɔpɔt, rili impɔtant fɔ mek di pikin gɛt wɛlbɔdi.
Praymari Imyunodefisiɛns, PIDD, imyun sistɛm, infɛkshɔn we kin kam bɔku tɛm, jɛnɛtik dizayd, SCID, CVID, imyunoglobulin tɛrapi
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt