Yu dɔn ɛva yɛri bɔt wan strenj sik we kin afɛkt wan say nɔmɔ na di bren ɛn i kin wɔs as tɛm de go? Sɔntɛm yu smɔl pikin kin gɛt fit bɔku tɛm, i kin wik na wan say na in bɔdi, ɛn i nɔ kin izi fɔ tɔk? I ɔndastand se yu de fred we yu yɛri bɔt sɔntin lɛk dat. Tide wi go tok boht wan rare bot impotant kondishon. Dɛn kɔl am Rasmussen in Ɛnsɛfalaytis.
Wetin na Rasmussen in Ɛnsɛfalaytis?
Fɔ tɔk am simpul wan, Rasmussen’s Encephalitis na wan pan di tu ɛmisfya dɛn na wi bren, dat na wan say na di bren we kin inflamɛns fɔ lɔng tɛm . Fɔ tɔk di kɔrɛkt tin, di bren sɛl dɛn kin swel ɛn rɛd. Dɛn kin kɔl dis bak Rasmussen syndrome.
We wan say na di bren inflam dis we, i kin bigin fɔ mek pɔsin fit bɔku tɛm. We wi de tɔk bɔt mɛrɛsin, wi kin kɔl dis bak epilepsy. Dis nɔto jɔs fit, i kin bigin fɔ pwɛl di bren smɔl smɔl, ɛn i nɔ kin izi fɔ mek i pwɛl da damej de. As tεm de go, di wok we wan say na di bכdi de du de dכn we i kam pan di sayd we di bren we dεn dכn pwεl. Imajin, dis dɔn afɛkt di rayt say na di bren, dɔn di lɛft say na di bɔdi kin lɔs in trɛnk, i nɔ kin izi fɔ tɔk, ɛn i nɔ kin mɛmba tin igen.
Na wan dɔktɔ we nem Tiodɔ Rasmusɛn bin kam fɔ no bɔt dis sik fɔ di fɔstɛm insay 1958. So, dɛn gi am di nem Rasmusɛn ɛnsɛfalaytis fɔ ɔnɔ am.
Aw dis kin apin so ɔltɛm?
Dis na rili sik we nɔ kin apin so ɔltɛm . Di wan dɛn we de stɔdi bɔt dis tɔk se na tu pan ɛvri tɛn ɔndrɛd tawzin pipul dɛn nɔmɔ go gɛt dis sik. Dat min se i nɔ kin apin so ɔltɛm.
Dis sik kin mɔs afɛkt yɔŋ pikin dɛm wae ol bitwin 2 ɛn 10. Bɔt sɔmtɛm, yɔŋ pipul dɛm ɛn big pipul dɛm kin gɛt dis sik bak.
Wetin na di sayn dɛm fɔ Rasmussen’s Encephalitis?
Bɔrku tɛm, de fɔs sayn fɔ dis sik na fɔ fit. Dis fit kin kam insay bɔku difrɛn we dɛn.
Di sayn dɛm we kin kam fɔs
- Wan siriɔs, jenɛral tonik-klɔnik sik: Insay dis, di mɔsul dɛn na di tu say dɛn na di bɔdi kin kɔntrakt bad bad wan, ɛn i kin mek pɔsin nɔ no natin.
- Focal aware seizure: Insay dis kayn tin, yu no wetin de apin. Yu kin fil lɛk yu an ɔ yu fut de swɛt, ɔ yu kin fil swɛt na wan say.
- Focal impaired awareness seizure: Dis na seizure wae kin stat na wan say na di bren, wae kin mek yu nɔr no natin smɔl, ɔr ivin nɔr no natin.
Di impɔtant tin na dat, if yu ɔ yu pikin gɛt fit lɛk dis, .Yu nid fɔ go to dɔktɔ kwik kwik wan. Dat na sɔntin we yu rili gɛt fɔ du.
Wan ɔda tin na dat, if pikin in an ɔ in fut wik smɔl, i kin bi sayn bak fɔ dis sik kwik kwik wan.
Simptom dɛm wae kin apun as tɛm de go
Di fɔs sik dɛn we kin mek pɔsin sik kin bɔku smɔl smɔl. Na lɛk af pan pipul dɛm wae gɛt Rasmussen ɛnsefalaytis kin gɛt wan sik wae dɛn kɔl `(Epilepsia Partialis Continua - EPC)`. Dis min se de sik kin kɔntinyu fɔ sɔm sɛkɔn ɔr sɔm minit. Dɛn sik ya kin rili at fɔ kɔntrol wit ɔdinari mɛrɛsin (intractable).
Dɛn sayn ya kin bigin fɔ sho insay sɔm mɔnt, ɔr ivin wan ɔ tu ia, frɔm di fɔs fit:
- Smɔl smɔl in maynd kin go dɔŋ : Dis min se tin lɛk fɔ tink, fɔ ɔndastand, ɛn fɔ mɛmba kin go dɔŋ.
- I nɔ de muv smɔl smɔl na wan say na di bɔdi (hɛmiparesis): Fɔ ɛgzampul, di rayt an ɛn di rayt leg kin swɛt. As tɛm de go, dis kin go bifo to kɔmplit paralayz (hemiplegia).
- Aphasia : Dis kin apin we di sik de afɛkt di sayd na di bren we de rispansabl fɔ tɔk (bɔku tɛm na di lɛft say).
- Yu nɔ de si fayn fayn wan na wan say (hemianopsia): I tan lɛk se yu nɔ de si fayn na wan say nɔmɔ na yu yay.
Fɔ bɔku pipul dɛn, di fɔs 8 to 12 mɔnt afta dɛn dɔn bigin fɔ gɛt Rasmussen ɛnsɛfalaytis na dɛn kin wɔs pas ɔl . Afta dat, i kin tan lɛk se di sik de slo ɔ ivin stɔp. Bɔt di damej we de na di bren kin de sote go ɛn dɛn nɔ kin ebul fɔ chenj am.
Wetin na di rizin fɔ dis?
Fɔ tɔk tru, sayɛnsman dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt Rasmussen encephalitis . Bɔt dɛn gɛt tu men tiori dɛn:
1. Awtoimyun sik : Dis na we wi imyun sistεm, di sistεm we de protεkt wi frכm sik, de mistek atak wi כwn gud sεl dεm. So, dɛn tink se Rasmussen ɛnsɛfalaytis na di sem kayn ɔtoimyun sik we de atak wan say nɔmɔ na di bren.
2. Infεkshכn : I posibul fכ wan vayrus we dεn nכ no go insay di bren εn mek dis kכndyushכn. Bɔt sɔm pipul dɛn we de stɔdi bɔt dis dɔn chɛk di bren fɔ pipul dɛn we dɔn gɛt dis sik, bɔt dɛn nɔ no yet wan patikyula vayrɔs.
Aw dɛn kin no dis sik? (Diagnosis) .
Dɔktɔ dɛn kin no if yu pikin gɛt Rasmussen ɛnsɛfalaytis bay di sayn dɛm we yu pikin gɛt ɛn di rizɔlt dɛm fɔ sɔm spɛshal tɛst dɛm.
- MRI skan (Magnetic Resonance Imaging - MRI): Dis kin sho if di bren tisu na wan say na di pikin in bren dɔn atrofi ɔ shrunk. If wan say na di bren de atrofi smɔl smɔl fɔ sɔm mɔnt ɔ ia, dat na big sayn fɔ di sik.
- EEG tɛstElectroencephalography (EEG): Dis kin ɛp bak fɔ no di sik. wan EEG tεst de rεkכd di ilektrikal aktiviti na di bren. Dis kin ɛp fɔ no aw di sik de apin ɛn if di bren nɔ de wok fayn.
So, dɔktɔ dɛn kin kɔnfirm Rasmussen encephalitis bay we dɛn kin jɔyn di sayn dɛm ɛn di tin dɛm we dɛn kin fɛn we dɛn skan, lɛk atrophy na wan say na di bren .
Wetin na di tritmɛnt fɔ Rasmussen’s Encephalitis?
I sɔri fɔ no se, dɛn stil nɔ gɛt ɛni mɛrɛsin fɔ Rasmussen ɛnsɛfalaytis, so di men gol fɔ tritmɛnt na fɔ kɔntrol di sik dɛn ɛn ridyus di inflamɛns na di bren.
Dɛn kin du dɛn tin ya as tritmɛnt:
Mɛrɛsin dɛn we de mek pɔsin nɔ gɛt sik
Dɛn mɛrɛsin ya nɔ kin stɔp di sik dɛn we Rasmussen ɛnsɛfalaytis kin kam wit kpatakpata. Bɔt dɛn kin ɛp fɔ ridyus di frɛkuɛns ɛn di kayn we aw pɔsin kin sik .
Imyunotɛrapi
Immunotherapy, we na fɔ gi mɛrɛsin we de chenj di wok we di imyun sistɛm de du, kin ɛp fɔ kɔntrol di atak dɛm ɛn ridyus di damej to di bren frɔm di imyun sistɛm we di sik bigin.
Dɛn kin du ɔpreshɔn pan di bren
di mכst ifektiv we fכ kכntrכl fit insay Rasmussen εnεfalaytis na כpεrayshכn na di bren . Dɛn kɔl dis, ɛmisfɛrektomi. Dis ɔpreshɔn kin min fɔ separet di ɛmisfya we dɔn afɛkt di pikin in bren, dat na fɔ separet da say de na di bren frɔm di ɔda say, ɔ pul am kɔmɔt kpatakpata.
Bɔku tɛm, pikin dɛn we dɛn kin du dis ɔpreshɔn kin dɔn ɔlrɛdi lɔs di wok we di say we di bren dɔn afɛkt. So, di risk fɔ mek i nɔ ebul fɔ du mɔ wok afta dɛn dɔn du di ɔpreshɔn nɔ bɔku. Dɔktɔ dɛn kin jɔs tink bɔt ɔpreshɔn if di bɛnifit dɛn pas di prɔblɛm dɛn fa fawe .
Wetin na di fiuja fɔ dis sik? (Prɔgnosis) .
Di prɔgnosis fɔ Rasmussen ɛnsɛfalaytis kin difrɛn frɔm wan pɔsin to ɔda pɔsin . Fɔ sɔm pipul dɛm, di sik kin stɔp fɔ prɛd afta dɛn dɔn du ɔpreshɔn ɛn di frɛkuɛns we dɛn kin gɛt di sik kin stebul.
Bɔt bɔku pipul dɛn kin lɛf sɔm kayn we fɔ paralayz, dɛn nɔ kin gɛt sɛns ɛn mɛmba, ɛn i nɔ kin izi fɔ tɔk. Na smɔl tɛm nɔmɔ, dis sik kin pas to ɔda pat dɛn na di bren.
Yu tink se dɛn kin ebul fɔ protɛkt di sik we dɛn kɔl Rasmussen’s Encephalitis?
Bikɔs Rasmussen encephalitis na sik we nɔ kin bɔku ɛn dɛn nɔ no di rayt tin we kin mek i sik, natin nɔ de we wi go du fɔ mek i nɔ apin .
Bikɔs na sik we nɔ kin apin so ɔltɛm, i nɔ kin izi fɔ sayɛnsman dɛn fɔ stɔdi am. Bɔt di gud nyus na dat, tritmɛnt dɛn de we go ɛp fɔ kɔntrol di sik ɛn ɔda sayn dɛm. I kin ivin gɛt klinik trial dɛn we yu pikin kin tek pat pan.I nɔmal fɔ fil se yu gɛt bɔku prɔblɛm we yu gɛt diagnosis lɛk dis. Bɔt mɛmba se yu pikin in mɛdikal tim de ya fɔ ɛp yu ɛn yu pikin pan ɔltin we dɛn ebul .
Mek wi mɛmba (Take-Home Message) .
Rasmussen’s Encephalitis na wan sik wae nɔr kin bɔrku, bɔt kin gɛt siriɔs bren sik.
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* If na so i bi, inflamɛns kin apin na wan say na di bren, we kin mek i fit bɔku tɛm, i kin paralayz na wan say na di bɔdi, ɛn i nɔ kin izi fɔ tɔk.
* Na yɔŋ pikin dɛn kin afɛkt mɔ.
* If yu notis sɔm sayn dɛn, go to dɔktɔ wantɛm wantɛm.
* Di tritmɛnt kin kɔntrol di sayn dɛm.
* Nɔto yu wan de pan tɛm lɛk dis, go to dɔktɔ ɛn di wan dɛn we de nia yu fɔ ɛp yu.
A op se dis infɔmeshɔn go ɛp yu. If yu gɛt ɛni kwɛstyɔn, nɔ shem fɔ tɔk to dɔktɔ.
` Rasmussen εnεfalaytis, bren sik, epilepsy, fit, pikin dεm, bren inflameshn, nyurolכjik sik dεm
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