Yu at mɔsul dɛn stif? Lɛ wi tɔk bɔt restrictive cardiomyopathy.

Yu dɔn ɛva tink bɔt wetin go apin if di smɔl smɔl rum dɛn we de insay yu at stɔp fɔ wok fayn? Sɔntɛnde, wi at mɔsul dɛn kin stif ɛn nɔ kin ebul fɔ ful-ɔp wit blɔd fayn fayn wan. Na da tɛm de wi kin divɛlɔp wetin wi go tɔk bɔt: restrictive cardiomyopathy. Nɔ wɔri, lɛ wi kip am simpul.

Wetin na Restrictive Cardiomyopathy?

Fɔ tɔk am simpul wan, dis na sik we gɛt fɔ du wit di at mɔsul. Di mɔsul dɛn we de na di tu chɛmba dɛn we de dɔŋ wi at, we dɛn kɔl di ventricles , kin stif. I nɔ tan lɛk rɔba band we de snap bak na in ples we yu strɛch am, bɔt di mɔsul dɛn nɔ de fleks fayn. Dis min se dɛn chɛmba ya nɔ gɛt inof rum fɔ ful-ɔp wit blɔd fayn fayn wan. We dis kin apin, di blɔd nɔ kin ebul fɔ flɔ na di at.

Ɔda nem dɛn de fɔ dis, ɛn sɔntɛnde dɔktɔ dɛn kin yuz dɛn nem ya:

• `Idiopatik restrictiv kadiomyopati`
• Infiltrative cardiomyopathy (at mɔsul sik we kin kam bikɔs ɔda tin dɛn kin kam insay di mɔsul) .

Udat kin gɛt dis sik pas ɔlman? Aw i kɔmɔn?

Pan ɔl we ɛnibɔdi kin gɛt dis sik, `(Restrictive Cardiomyopathy)`, i kin bɔku pan sɔm pipul dɛn bikɔs ɔf sɔm ɔndalayn kɔndishɔn dɛn. fכ egzampl, `(Sarcoidosis)` (we kin mek bak `(Restrictive Cardiomyopathy)`) kin kכmכn mכr pan uman dεm we kכmכt frכm sכm etnik grup dεm.

Cardiomyopathy na wan sik wae kin pasmak. I kin afɛkt lɛk 1 pan ɛvri 500 pipul dɛn. Bɔt dis kayn sik we dɛn kɔl kadiomayopathy na di wan we nɔ kin bɔku . I de mek lɛk 5% pan ɔl di kes dɛm we gɛt kardiomyopathy. So, dis na sɔntin we dɛn nɔ kin yɛri bɔt bɔku tɛm, bɔt i fayn fɔ no.

Aw restrictive cardiomyopathy kin afɛkt di at?

Wi at na wan wɔndaful ɔgan. I gɛt 4 chɛmba dɛn, we dɛn mek mɔ wit mɔsul. Dɛn chɛmba dɛn ya de pɔmp blɔd bay we dɛn de kɔntrakt. di tu כp chεmba dεm dεn kכl dεm `Atria` , εn di tu כp chεmba dεm dεn kכl dεm `Ventricles` .

wetin de apin insay dis `(Restrictive Cardiomyopathy)` kכndishכn na di mכsul dεm na di lכw chεmba dεm (`Ventricles`) de stiff εn lכs dεn elasticity. Dɔn dɛn chɛmba dɛn de nɔ go ebul fɔ ful-ɔp wit blɔd ɔltogɛda. Tink bɔt am lɛk se yu de blo balyɔn, if dɛn nɔ blo di balyɔn fayn, i go jɔs ol smɔl briz. Na dat de apin na ya bak. Dis kin mek wan tin we de ambɔg di wan ol we aw blɔd de pas na di at.

Wetin na di sayn dɛm we de sho se yu gɛt dis sik? Yu tink se dɛn kin no dɛn kwik kwik wan?

Sɔmtɛm , nɔr kin gɛt ɛni sayn , mɔr lɛk di fɔs tɛm. Bɔt as di sik de go bifo, at kin pwɛl.Di sayn dɛm we fiba di wan dɛm fɔ di flu kin bigin fɔ sho. Na sɔm pan dɛn sayn dɛn de:

• Bɛlɛ ful-ɔp ɔ nɔs.
• Chɛst pen (we kin apin we yu rɛst ɔ we yu de du ɛksɛsayz).
• Diziz ɔ fɔdɔm.
• Swel na di leg ɛn fut (`Edema`).
• Fɔ fil taya ɔltɛm (`Fatigue`).
• Fכ fil wan abnכmal at rεt (`Hat palpitεshכn`).
• I nɔ kin izi fɔ yu fɔ blo (Dyspnea), sɔm tɛm dɛn kin ivin we yu de tray tranga wan.
• We yu de gɛt bɔku bɔku wet wantɛm wantɛm.

Impɔtant: If yu gɛt wan ɔ mɔ pan dɛn sik ya, nɔ tink se na `Restrictive Cardiomyopathy`. Bɔt i go fayn fɔ mek yu go to dɔktɔ fɔ advays yu.

Wetin mek dis tin kin apin? Wetin na di rizin dɛn?

Bɔku men tin dɛn de we kin mek pɔsin gɛt restrictive cardiomyopathy. Dat min se, i kin kam bikɔs ɔf ɔda sik dɛn we pɔsin kin gɛt.

• `Amyloidosis` : Dis na we wan protin de dכn na di at mכsul.
• Kכnektiv tisu sik dεm : Sik dεm we de afekt difrεn tisu dεm na di bכdi.
• Ɛmokromatosis (ayɔn ɔvalod) : Ayɔn we de gɛda pasmak na di bɔdi.
• Sarkoidosis : na di fכmeshכn fכ sכm sכm sכm sεl dεm we dεn kכl granulomas insay difrεn כgan dεm na di bכdi.

Apat frɔm dat, i pɔsibul fɔ mek dis sik apin afta sɔm tritmɛnt fɔ kansa:

• Kimotɛrapi
• Redyushɔn tɛrapi

Aw dɔktɔ dɛn kin no dis sik kɔrɛkt wan? (Diagnosis) .

We yu go to dɔktɔ, i go aks yu fɔs bɔt di sik dɛn we yu gɛt, du ɛgzam fɔ yu bɔdi, lisin to aw yu at de bit, ɛn chɛk yu blɔd prɛshɔn.

afta dat, fכ kכnfכm di diagnosis εn fכ si if di at chεmba dεm (vεntrikl dεm) de wok fayn, dεn kin du εkokadyכgram (at skan). Dis kin chɛk tin dɛm lɛk aw di at de wok ɛn aw di mɔsul dɛn tik.

Yu dɔktɔ kin tɛl yu bak fɔ du sɔm ɔda tɛst fɔ chɛk fɔ ɔda ɔndalayn kɔndishɔn dɛn we kin mek yu gɛt Restrictive Cardiomyopathy. Dɛn tin ya na:

• Blɔd ɛn urine tɛst.
• X-ray na di chɛst.
• Wan `CT` skan fɔ di at (`Cardiac CT scan`).
• Ɛksesaiz strɛs tɛst.
• MRI fɔ di at.
• At PET skan.
• Rayt at kateshɔn.
• Myocardial biopsy - dis involv fכ tek sכm sכm sכmכl sεmpl fכ di at mכsul εn tεst am.
• Test fɔ di jenɛtiks.

Yu tink se tritmɛnt de? Aw dɛn de manej am?

כnכfכs, dis kכndyushכn we dεn kכl `Restrictive Cardiomyopathy', na spεshal fכ dis kכndyushכn.No mɛrɛsin nɔ de yet fɔ mɛn am. Bɔt dɔktɔ dɛn kin trit di rizin we mek i gɛt dis sik ɛn kɔntrol di sayn dɛn.

If yu gɛt sɔm sayn dɛn we gɛt fɔ du wit at prɔblɛm, yu dɔktɔ kin tɛl yu fɔ du dɛn tritmɛnt ya:

• Kɔtikosterɔyd (stɛroyd-tayp mɛrɛsin) if yu gɛt sarkoidosis.
• Diuretics (mεdisin dεm we de mek yu de pis bכku) fכ ridyus di wata we pasmak na di bכdi.
• Mεdikeshכn dεm fכ trit di at ritm irεgulεriti (e.g. `Antiarrhythmics`, `Beta-blockers` כ `Calcium channel blockers`).
• Tεrapi flebotomy na tritmεnt fכ pipul dεm we gεt hεmokromatosis (iron overload).
• Spɛsifi k mɛrɛsin fɔ sɔm kayn `(Amyloidosis)`.

Sɔm pipul dɛn kin nid fɔ gɛt ɔpreshɔn fɔ transplant dɛn at we di sik bigin fɔ kam tranga. Dɛn kin rifer dɛn bak fɔ palliativ kia fɔ kɔntrol di sik dɛn ɛn fɔ mek dɛn gɛt gud kwaliti layf.

Wetin na de prɔblɛm wae kin kam wit dis sik?

sεvεra כda komplikashכn dεm kin apin bikoz fכ `Restrictive Cardiomyopathy`. Dɛn tin ya na:

• At aritmia : Na at bit we nɔ de bit ɔltɛm.
• At nɔ de wok fayn : Di at nɔ kin ebul fɔ pɔmp inof blɔd to di bɔdi.
• Blɔd we de klɔt ɛn strok (`Thromboembolism` ɔ `Stroke`) : Blɔd we de klɔt kin mek pɔsin gɛt strok.

Wetin wi go du fɔ ridyus di prɔblɛm?

Dis kכndyushכn, ``Restrictive Cardiomyopathy,'' min se yu hat fכ wok tranga wan fכ pכmp bכdi. So, e fayn fɔ tɔk to yu dɔktɔ bɔt wetin yu kin du fɔ ridyus di wok we de na yu at.

Pan ɔl we i nɔ kin izi fɔ mek yu nɔ gɛt di ɔndalayn mɛdikal kɔndishɔn dɛn we kin mek yu gɛt Restrictive Cardiomyopathy, yu kin du dɛn tin ya fɔ mek yu at gɛt wɛlbɔdi:

• Kɔntrol yu blɔd prɛshɔn .
• Mek yu gɛt wɛlbɔdi wet .
• Ridyus strɛs .

Wetin yu fɔ ɛkspɛkt we yu de liv wit dis sik?

Restrictive Cardiomyopathy na wan kɔmpleks sik, so i impɔtant fɔ tɔk to yu dɔktɔ ɔltɛm bɔt di tin dɛm wae yu kin du fɔ mek yu at gɛt wɛl bɔdi.

Aw lɔng yu kin liv wit dis sik kin difrɛn frɔm pɔrsin to ɔda pɔrsin. Yu dɔktɔ go ɛksplen to yu ɛn yu famili aw di sik go go bifo ɛn wetin fɔ ɛkspɛkt.

Aw a fɔ kia fɔ misɛf? (Fɔ kia fɔ yusɛf) .

Di tin we impɔtant pas ɔl na fɔ fala yu dɔktɔ in instrɔkshɔn dɛn gud gud wan ɛn tek ɔl di mɛrɛsin dɛn we dɛn gi yu di rayt tɛm. Apat frɔm dat, yu dɔktɔ kin tɛl yu bak fɔ chenj yu layf lɛk:

• Wan wɛlbɔdi it we nɔ gɛt bɔku sɔl (we dɛn kin kɔntrol sɔdiɔm) .Fɔ tek.
• Fɔ du ɛksɛsayz (na yu dɔktɔ advays yu nɔmɔ).

Ustɛm yu fɔ go to dɔktɔ wantɛm wantɛm?

If yu fil lɛk se yu at pwɛl de wɔs, ɔ if yu gɛt nyu sik, kɔl yu dɔktɔ wantɛm wantɛm .

Dɔn bak, if ɛnitin apin lɛk dis, go na ɔspitul wantɛm wantɛm (if yu de na Sri Lanka, kɔl imejensi nɔmba lɛk 1990):

• If yu gɛt siriɔs pen na yu chɛst .
• If yu faint .
• If yu gɛt siriɔs prɔblɛm fɔ blo wantɛm wantɛm .

Mɛmba se: Di at na wan ɔgan we rili impɔtant na wi layf, so i rili impɔtant fɔ kia fɔ am.

Mɛsej we dɛn kin kɛr go na os

Okay, so na sɔm simpul tin fɔ mɛmba bɔt di `(Restrictive Cardiomyopathy)` we wi bin tɔk bɔt:

• wetin kin apin pan dis na dat di mכsul dεm na di lכw chεmba dεm (vεntrikul dεm) na di at kin stif εn dεn kin lכs dεn fleksibiliti .
• So, dɛn sɛl dɛn de nɔ kin ebul fɔ ful-ɔp wit blɔd fayn fayn wan .
• afta dat di at gεt fכ wok tranga wan fכ pכmp bכdi to di bכdi, we kin mek ``Hat fεil``.
• Pan ɔl we no patikyula mɛrɛsin nɔ de fɔ dis, dɛn kin mɛn am bay we dɛn de trit di rizin we mek i gɛt dis sik ɛn kɔntrol di sayn dɛn .
• If yu gɛt ɛni kwɛstyɔn ɔ dawt bɔt dis, nɔ fred fɔ tɔk to yu dɔktɔ .

Wi de wish yu gud wɛlbɔdi!

` Restrictive Cardiomyopathy, hat sik, hat mכsul sik, shɔt brith, chεst pen, at atak, mεdikal tritmεnt