Yu bɔdi kin fil se yu nɔ gɛt wata na yu bɔdi? I kin bi wan sik we dɛn kɔl Sjögren’s Syndrome!

Sɔntɛnde yu kin fil lɛk se yu yay dɔn dray ɛn yu mɔt dɔn dray? Sɔntɛm na jɔs dat if yu jɔs taya ɛn gɛt dɛn tin ya ɔltɛm, i nɔ nɔmal. Tide wi go tɔk bɔt wan sik we dɛn kɔl ‘Sjögren’s Syndrome’, we gɛt wan strenj nem, bɔt i kin afɛkt sɔm pipul dɛn. Sɔntɛm yu nɔr sabi dis nem, bɔt yu kin no bɔt di sayn dɛm wae de sho am.

Wetin na ‘Sjögren’s Syndrome’?

Fɔ tɔk am simpul wan, ‘Sjogren’s Syndrome’ na ɔtoimyun sik we de afɛkt di gland dɛm we de mek mɔstɔ na wi bɔdi. Naw yu kin de wɔnda wetin dis ‘ɔtoimyun’ min. Imajin, wi bɔdi gɛt wan sistɛm we de protɛkt wi frɔm sik, dɛn kɔl am di imyun sistɛm. I tan lɛk ami we de protɛkt wi kɔntri. bכt insay dis ‘autoimmune’ sik, wetin de apin na we wi כwn difεnda dεm, dat na di imyun sistεm, de mistek atak wi כwn gud sεl dεm, insay dis kes di gland dεm we de mek mכsichכ. Dis na lɛk di sikyɔriti gad na wi os we de tink se wi na tifman ɛn atak wi.

Dis kin mek di gland dɛn we de mek yu bɔdi wet, kin stɔp fɔ wok fayn. Dis kin afɛkt mɔ:

• Tear system: Dis kin mek yu yay dray.
• Saliva gland dεm na di mכt: Dis kin mek di mכt dray.
• Nos: Di nos kin dray.
• Trot: Di trot kin dray ɛn mek yu kɔf.
• di dijestiv sistεm kin afekt bak to sכm mak.
• Fɔ uman dɛn vagina: Di vagina kin dray.

Dɛn kin kɔl dis nem "Shaw-Granz syndrome." If yu gɛt nyu sayn dɛm fɔ dray yay ɔ yu mɔt, mɔ if dɛn gɛt ɔda sayn dɛm (lɛk pen), i rili impɔtant fɔ go to dɔktɔ.

Sɔm kayn sik de we dɛn kɔl Sjögren’s Syndrome?

Yɛs, dɔktɔ dɛn kin sheb dis to tu men kayn:

1. Praymari Sjögren’s syndrome: Dis nɔr kin kam wit ɛni ɔda mɛrɛsin. Dat min se, i kin apin fɔ insɛf.

2. Sεkɔndari Sjögren’s syndrome: Dis kin kam wit ɔda sik ɔr prɔblɛm. Dat min se, ɔda sik na di ɔndalayn kɔz.

Aw dis sik kin kɔmɔn?

Dɛn ripɔt se bɔku pipul dɛn ɔlsay na di wɔl gɛt dis sik we dɛn kɔl ‘Sjögren’s Syndrome’. Dɛn se na lɛk 2 milyɔn pipul dɛn na kɔntri lɛk Amɛrika de sɔfa wit dis sik. Pipul kin de wae gɛt dis sik na wi kɔntri bak.

Wetin na di sayn dɛm fɔ Sjögren’s Syndrome?

Di men ɛn kɔmɔn sayn fɔ dis na we di pat dɛn na di bɔdi nɔ kin dray.

• Yay dray ɔ it: I kin fil lɛk se san de na yu yay. Sɔntɛnde, yu yay dɛn kin rɛd bak.
• Dray mɔt (xerostomia): Di mɔt kin dray so dat i kin at fɔ tɔk ɔ swɛla it. Ɔlsa na yu mɔt kin kam. Saliva kin tik bak.
• di vagina dray na uman: Dis kin mek yu fil pen we yu de du mami ɛn dadi biznɛs.
• Dray skin: Di skin kin dray ɛn it.
• Dray nos ɛn blɔd we de kɔmɔt na yu nos ɔltɛm.
• Dray trot: Yu kin gɛt dray kɔf ɔltɛm.

Apat frɔm dis dray we, di sik we dɛn kɔl Sjögren’s syndrome kin mek ɔda sayn dɛn:

• Jɔyn pen: I tan lɛk at at sik.
• Mɔsul dɛn kin pen ɔ wikɛd.
• Di limf no dɛm we dɔn swel.
• Taya: Na filin fɔ taya ɔltɛm we nɔ de go ilɛksɛf yu slip bɔku.
• I nɔ kin izi fɔ swɛla (dysphagia) ɔ i nɔ kin izi fɔ tɔk.
• Bren fɔg: I nɔ kin izi fɔ tink klia wan ɛn fil lɛk se yu nɔ ebul fɔ pe atɛnshɔn.
• Lɔs fɔ teist.
• Tut we de rɔtin ɔ we di tut de lɔs: As di saliva we de kɔmɔt na di mɔt de go dɔŋ, di tin we de protɛkt di tit de go dɔŋ.
• Skin rash dɛn we de kɔmɔt.
• Nyuropati: Tin dɛm lɛk fɔ swɛ ɛn tingling na di limb dɛm.
• Bɛlɛ inflamɛns ɔ ɔda prɔblɛm dɛn we gɛt fɔ du wit di dijestiv.
• Layt sɛnsitiviti: I tan lɛk se yu yay de tɔn blu we yu go na do.

Wetin na de tin wae kin mek pɔrsin gɛt Sjögren’s Syndrome?

Wi dɔn tɔk se dis na ‘ɔtoimmune’ sik . Dat min se wi yon imyun sistɛm de atak wi yon gland dɛn. Bɔt, dɔktɔ dɛn stil nɔ dɔn no di rayt tin we mek dis kin apin.

• Dɛn nɔr no di rayt kɔz fɔ di praymari Sjögren’s syndrome .
• Sεkɔndari Sjögren in sεndrכm kin kam wit ɔda hεlth kכndyushכn dεm, spεshal wan כda כtoimyun sik dεm εn sכm vayral infεkshכn dεm.

Bɔku vayral infɛkshɔn dɛm wae kin mek yu gɛt sɛkɔndari Sjögren’s syndrome na:

• Epataytis C we dɛn kɔl C
• `Saytomegalovayrɔs (CMV)`
• Epstein-Barr vayrɔs we dɛn kɔl Epstein-Barr
• `Human T-limfotropik vayrɔs 1 (HTLV)`
• `KƆVID-19`

Sɔm ɔtoimyun sik dɛm wae gɛt fɔ du wit Sjögren’s syndrome na:

• Rimatɔyd at at sik
• Psoriatic arthritis we pɔsin kin gɛt
• `Lupus`

Impɔtant:Nɔto ɔlman wae gɛt dɛn kayn sik ya go gɛt dis sik wae dɛn kɔl Sjögren’s syndrome. Ɛn no garanti nɔr de fɔ se pɔrsin wae gɛt Sjögren’s syndrome go gɛt dɛn ɔda sik ya bak. Bɔt, risach dɔn sho se sɔntin de we gɛt fɔ du wit sɔntin.

Udat dɛn kin gɛt di sik we dɛn kɔl Sjögren’s Syndrome?

Pan ɔl we ɛnibɔdi kin gɛt dis sik, sɔm grup dɛn kin gɛt mɔ risk:

• Uman dɛm: Mɔr pas 90% pan di pipul dɛm wae gɛt Sjögren’s syndrome na uman dɛm. Man dɛnsɛf kin gɛt am, bɔt i nɔ kin apin so ɔltɛm.
• Pipul wae gɛt ɔda sik wae de mek pɔrsin nɔr de fil fayn: Na lɛk af pan pipul dɛm wae gɛt dis sik wae de kam wit Sjögren’s syndrome gɛt at le wan ɔda ɔtoimyun sik.
• Pipul dεm wae ol bitwin 45 εn 55 ia: Pan ɔl wae i kin kam pan pikin, yɔŋ pipul, ɛn pipul dɛm wae dɔn pas 55 ia, na dis ej grup kin gɛt mɔr.
• Pipul wae gɛt famili histri bɔt Sjögren’s syndrome: Na lɛk 10% pan pipul dɛm wae gɛt Sjögren’s syndrome gɛt dɛn fambul (mama ɔ papa ɔr brɔda ɛn sista) wit dis sik.

Aw fɔ no fɔ tru if yu gɛt Sjögren’s Syndrome? (Diagnosis) .

Dɔktɔ go du yu bɔdi ɛgzam ɛn du sɔm tɛst fɔ no if yu gɛt Sjögren’s syndrome. Di dɔktɔ go chɛk yu ɛn aks yu bɔt di sayn dɛm we yu gɛt. Tɛl di dɔktɔ we yu fɔs notis dɛn chenj ya, ɛn if yu sik kin wɔs pan sɔm tɛm dɛn na di de ɔ we yu de du sɔm tin dɛn.

Fɔ no di sik we dɛn kɔl Sjögren’s syndrome kin bi pat pan wan tin we dɛn kɔl difrɛns diagnosis . Dis min se bifo yu dɔktɔ kɔnfirm se yu gɛt Sjögren’s syndrome, dɛn go du sɔm tɛst fɔ no ɔda tin dɛn we kin mek yu gɛt di sik. Sɔm pan di tɛst dɛn we yu kin gɛt na:

• Blɔd tɛst: Spɛshal wan, fɔ chɛk fɔ sɔm kayn antibodi dɛn.
• Ay ɛgzam: Spɛshal tɛst dɛn de fɔ chɛk di mɔstɔ lɛvɛl na di yay.
• Dɛn kin chɛk di tit: Yu kin si di wok we di saliva gland dɛn na di mɔt de du.
• Urinalysis we dɛn kin du.
• Bayopsi: Sɔntɛnde dɛn kin tek smɔl pat pan di tisu, lɛk frɔm insay di lip, ɛn chɛk am fɔ si if di saliva gland dɛn chenj.
• X-ray: Dɛn kin aks yu fɔ tek ɛkstrem na yu chɛst fɔ si if ɛnitin de ambɔg yu lɔng.

Yu kin nid bak fɔ go to sɔm spɛshal pipul dɛn:

• Riumatɔlɔjis: Na dɔktɔ we spɛshal pan jɔyn sik ɛn ɔtoimyun sik dɛn.
• Spɛshal pipul dɛn we de kia fɔ di yay.
• Tit dɔktɔ.
• Otolaryngologist (ENT spɛshal) na dɔktɔ we spɛshal pan di yes, nos, ɛn trot.

Wetin na de prɔblɛm wae kin kam wit Sjögren’s Syndrome?

Sjögren’s syndrome kin mek sɔm prɔblɛm dɛn. Bɔt nɔr wɔri , bɔrku pipul nɔr kin gɛt siriɔs prɔblɛm.

• Di risk fɔ gɛt mɔt ɛn yay infɛkshɔn kin bɔku: Bikɔs di humidity nɔ bɔku, di jem kin izi fɔ mek pɔsin gɛt infɛkshɔn.
• Abnɔmal tin dɛn we de apin na di liva ɔ di kidni we de wok.
• Limfoma: Na wan kayn kansa we de kam na di limf no dɛm. Di risk fɔ mek dis apin rili smɔl, bɔt nɔto sɔntin fɔ ignore.
• Lɔng prɔblɛm: Sɔntɛnde, dɛn kin mistek kɔl am nyumonia.
• Nyurolɔjik prɔblɛm: Tin dɛm lɛk wikɛd, swɛt.

Bɔrku pipul dɛm wae gɛt Sjögren’s syndrome de liv wae nɔr gɛt siriɔs prɔblɛm. If yu gɛt sɛkɔndari Sjögren’s syndrome, de ɔndalayn kɔndishɔn kin mek yu gɛt mɔr prɔblɛm. Tɔk to yu dɔktɔ bɔt dis.

Aw dɛn kin trit di sik we dɛn kɔl Sjögren’s Syndrome?

Yu dɔktɔ go tɛl yu bɔt aw fɔ mɛn yu fɔ ɛp fɔ kɔntrol yu sik dɛn. Naw, no mɛrɛsin nɔ de fɔ di sik we dɛn kɔl Sjögren’s syndrome. Bɔt yu dɔktɔ kin ɛp yu fɔ fɛn tritmɛnt plan we go mek yu nɔ gɛt bɛtɛ impak pan yu ɛvride layf ɛn kwaliti layf.

Di tritmɛnt we yu nid go dipen pan us pat na yu bɔdi we di sik we dɛn kɔl Sjögren’s syndrome dɔn afɛkt.

Sɔm tritmɛnt dɛn we dɛn kin yuz fɔ dray yay, mɔt, ɔ vagina na:

• Atikul kray wata: Yu ay spɛshal dɔktɔ kin tɛl yu fɔ yuz yu yay drɔp we yu kin bay na kɔt (OTC), drɔp dɛn we yu kin gi yu, ɔ tin dɛn we yu kin yuz fɔ mek yu yay gɛt lɔbrik.
• Ɔpreshɔn fɔ dray yay (punctal plugs): Wan ay ɔpreshɔn dɔktɔ (ɔftalmɔlɔjis) kin plɔg sɔm ɔ ɔl yu kray wata dakt dɛn. Dis kin ɛp fɔ kip yu natura l kray wata na yu yay fɔ lɔng tɛm.
• Di wan dɛn we de mek saliva: Yu dɛntist kin tɛl yu fɔ tek mɛrɛsin ɔ mɛrɛsin dɛn we yu kin bay we yu nɔ de bay na kɔt we go ɛp yu bɔdi fɔ mek mɔ saliva. Chewing gam, drink wata, ɛn sok ays kiub ɔl di de kin ɛp fɔ mek yu mɔt wet.
• Spɛshal tin fɔ was yu mɔt ɔ fɔ kia fɔ yu tit: Pipul dɛn we gɛt di sik we dɛn kɔl Sjögren’s syndrome kin gɛt mɔ prɔblɛm wit dɛn tit. So, i kin nid fɔ klin yu tit ɔltɛm, spɛshal tritmɛnt wit fluoride, ɔ fɔ was yu tut paste ɛn fɔ was yu mɔt ɔltɛm.
• Di tin dɛn we dɛn kin yuz fɔ mek di vagina ɔ lɔbrik:Di dɔktɔ kin tɛl yu fɔ yuz ɔva-di-kɔnta ɔ prɛskrishɔn lɔbrik we yu kin yuz ɛvride ɔ we yu de du mami ɛn dadi biznɛs.
• Ɔmon tɛrapi: Sɔm pipul dɛn kin nid ɔmon tɛrapi lɛk ɛstrojen fɔ trit di vagina dray we di ɔmon nɔ balans.

Tritmɛnt fɔ pen ɛn ɔda sayn dɛm:

• Di tin dɛn we dɛn kin bay we dɛn kin bay pen: Dɛn kin yuz mɛrɛsin lɛk `NSAID (nɔ-stɛroyd anti-inflammatory drugs)` (e.g. ibuprofen) ɔ `acetaminophen` (e.g. Panadol) kin ɛp fɔ ridyus di pen ɛn swɛlin. Nɔ tek dɛn mɛrɛsin ya fɔ pas 10 dez wan tɛm if yu nɔ gɛt dɔktɔ advays.
• Kɔtikosterɔyd: Dɛn mɛrɛsin ya we de ridyus di inflamɛns ɛn dɛn kin gi am as pils ɔ injɛkshɔn we dɔktɔ gi.
• Immunosuppressants: Dɛn mɛrɛsin ya kin mek yu imyun sistɛm kol ɛn ridyus di wok we i de du. Yu dɔktɔ kin tɛl yu fɔ tek mɛrɛsin lɛk DMARD (disease-modifying antirheumatic drugs).

Us kayn ɛkspiriɛns pɔrsin wae gɛt Sjögren’s Syndrome kin ɛkspɛkt?

Yu go gɛt fɔ kɔntrol yu sik dɛn fɔ lɔng tɛm, sɔntɛm fɔ di res ɔf yu layf. Bɔt, we yu dɔn fɛn di rayt tritmɛnt fɔ yu, di kayn we aw yu de fil fɔ stɔp. Pipul wae gɛt Sjögren’s syndrome kin lan fɔ kɔntrol dɛn sik wae de kam, so de kayn sik wae dɛn kin gɛt go dɔŋ as tɛm de go.

Yu tink se dɛn kin ebul fɔ avɔyd di sik we dɛn kɔl Sjögren’s Syndrome?

Bikɔs wi nɔ no di rayt tin we kin mek i gɛt dis sik, no we nɔ de fɔ mek dɛn nɔ gɛt di sik we dɛn kɔl Sjögren’s syndrome. I nɔ pɔsibul bak fɔ no udat go gɛt am ɔ ustɛm.

Ustɛm yu fɔ go to dɔktɔ?

Si dɔktɔ if yu gɛt nyu sik, ɔr if yu sik de wɔs. Kip trak fɔ yu sayn dɛm ɛn notis ɛni chenj.

Yu dɔktɔ go tɛl yu aw ɔltɛm yu nid fɔ kam insay fɔ fala-ap apɔntinmɛnt, tɛst, ɔ ɔda chɛk-ap. If yu fil se wan tritmɛnt nɔr de woke ɔr nɔr de woke fayn lɛk aw i bin de woke, nɔr delay fɔ go to yu dɔktɔ. Sɔntɛnde, de sayn dɛm fɔ Sjögren’s syndrome kin bi sɔmtɛm. Na yu nɔmɔ no we sɔntin nɔ rayt.

Imejɛnsi: If yu fil se yu gɛt prɔblɛm fɔ blo ɔ fɔ swɛla, go na ɔspitul wantɛm wantɛm ɔ kɔl 1990 (imejɛnsi ambulans savis).

Us kwɛstyɔn dɛn yu fɔ aks yu dɔktɔ?

Nɔ fɔgɛt fɔ aks dɛn kwɛstyɔn ya we yu go si di dɔktɔ:

• Us kayn sik we dɛn kɔl Sjögren’s syndrome a gɛt? (Praymari ɔ sɛkɔndari?)
• Us tɛst dɛn a nid fɔ du?
• A go nid fɔ go to ɔda spɛshal pipul dɛn?
• Us tritmɛnt a nid?
• Us chenj ɔ sayn dɛn we a fɔ luk fɔ?

Fɔ kɔntrol di sik we dɛn kɔl Sjögren’s syndrome kin mek yu at pwɛl sɔm tɛm. I kin mek yu at pwɛl we yu yay dray, yu mɔt dray, ɔ ivin yu vagina dray we kin mek yu fil pen fɔ du mami ɛn dadi biznɛs. Bɔt di gud nyus na dat, bɔrku pipul dɛm wae gɛt Sjögren’s syndrome kin ebul fɔ kɔntrol dɛn sik fayn fayn wan wans dɛn dɔn fɛn kɔmbayn tritmɛnt wae de woke fɔ dɛm.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Sjögren’s syndrome na wan sik wae kin mek yu nɔr fil fayn smɔl, bɔt yu kin kɔntrol am if yu de mɛn am fayn fayn wan .

• Nɔr to yu wan: ɔda pipul dɛn de wae de liv wit dɛn kayn sik ya.
• Di rayt tritmɛnt impɔtant: Tɔk to yu dɔktɔ fɔ fɛn di rayt tritmɛnt plan fɔ yu. Yu go nid fɔ tray difrɛn tritmɛnt dɛn.
• Tɛl yu dɔktɔ if yu sik chenj: If yu sik chenj, i de wɔs, ɔ i tan lɛk se i de afɛkt di tin dɛn we yu de du ɛvride tumɔs, tɛl yu dɔktɔ.
• Chek-ap ɔltɛm: Aks yu dɔktɔ aw ɔltɛm yu fɔ du yu yay ɛgzam ɛn yu tit ɛgzam. Fɔ chɛk-ap ɔltɛm lɛk dis kin ɛp fɔ mek yu nɔ gɛt prɔblɛm dɛn.

A op se dis infɔmeshɔn go ɛp yu. If yu gɛt ɛni kwɛstyɔn, nɔ shek fɔ aks dɔktɔ.

` Sjögren’s Syndrome, dray yay, dray mכt, כtoimyun, imyun sistεm, joyn pen