Yu dɔn ɛva notis se yu pikin in bɔdi stif smɔl, ɔ in an ɛn fut dɛn kin fil stif we strenj? Yu dɔn ɛva notis se we i bigin fɔ waka, in leg dɛn kin bɛn insay ɛn i kin waka lɛk siza? Ɔ i tan lɛk se i de biɛn ɔda pikin dɛn smɔl we i de gro? Dɛn tin ya kin bi sayn fɔ wan sik we dɛn kɔl Spastic Cerebral Palsy. Nɔ wɔri, wi go tɔk bɔt dis ditayli.
Wetin na Spastik Sɛribra Palsi?
Fɔ tɔk am simpul wan, Sɛribra Palsi na wan grup we gɛt nyurolɔjik kɔndishɔn we de afɛkt di bren ɛn di nervɔs sistɛm. Dis kin mek i nɔ izi fɔ kɔntrol di we aw di bɔdi de muv ɛn aw i de tinap. Spastik Sεribra Palsi na di kayn sεribra palsi we kכmכn pas כl . insay dis kכndishכn, di pikin in mכsul dεm de stif (dis na wetin wi kכl ``Spasticity'') εn i de lכs fכ fleksibiliti. Sɔntɛnde, if dis stiffness tranga, e kin mek yu fil pen. Dɔn bak, di pikin kin gɛt in mɔsul dɛn we kin shek shek wantɛm wantɛm, we i nɔ kin ebul fɔ kɔntrol, ɔ in mɔsul dɛn kin swɛt.
Imajin se we yu pikin es in an fɔ ol tɔys, in an kin shek shek ɛn i nɔ kin ebul fɔ ol am fayn. Ɔ we i de waka, i kin tray fɔ waka wit in fut finga dɛn instead fɔ mek in fut dɛn flat na grɔn. Sɔntɛnde, we i es in an wantɛm wantɛm fɔ ol sɔntin lɛk bɔl, i kin fil pen. Tin dɛm lɛk dis kin si pan dis kɔndishɔn.
Wetin na di men kayn Spastic Cerebral Palsy?
Tri men kayn Spastic Cerebral Palsy de. Lɛ wi si wetin dɛn bi.
Spastik diplejia/diparesis we pɔsin kin gɛt
Dis kin afɛkt di pikin in leg mɔ . Di mɔsul dɛn na di hip ɛn di leg dɛn kin tayt, ɛn dis kin mek i nɔ izi fɔ waka. Yu go dɔn si sɔm pikin dɛn de waka wit dɛn leg dɛn we dɛn pul insay ɛn dɛn ni dɛn de tɔch (lɛk siza). Na dat kin apin na dis sityueshɔn. Wi kin kɔl dis bak ‘scissoring gait’ .
Spastik hεmiplejia/hεmiparesis
If na so i bi, di sayn dɛm kin jɔs afɛkt wan say na di pikin in bɔdi . Dat min se, ilɛksɛf na di rayt ɔ di lɛft say. Di an, di leg, ɔ di tu an ɛn di leg dɛn we de na da say de kin afɛkt.
Spastik kwadriplejia/kwadriparesis
Dis na de kayn sik wae de pasmak. Di sayn dɛm kin afɛkt ɔl tu di an dɛm, ɔl tu di leg dɛm, ɛn di fes . Sɔm pikin dɛn kin gɛt disabiliti bak fɔ lan (cognitive delay) ɛn dɛn kin gɛt sik we dɛn kɔl seizure.
Wetin na di sayn dɛm fɔ Spastic Cerebral Palsy?
Okay, naw lɛ wi si us sayn dɛm we pikin kin sho pan dis sityueshɔn.
- Tayt mɔsul dɛn
- Stif mכsul dεm, dεn de dכn fכ fleksibul
- Mɔsul dɛn kin pen
- di mכsul dεm we yu nכ de muv כ spam
Dɛn simptom ya kin mek di limb dɛm we afɛkt kin muv rili jɔk ɛn nɔ kin smol smol. Dɛn sayn ya kin nɔr kin so pan sɔm pikin dɛm, bɔt kin tranga pasmak pan ɔda wan dɛm.
Wetin na di fɔs sayn dɛm fɔ Spastic Cerebral Palsy?
Sɔntɛnde, sayn dɛn de we pɔsin kin no we i smɔl. Yu dɔktɔ go pe spɛshal atɛnshɔn to dɛn tin ya we i de chɛk yu pikin.
- di tכn we de kכmכt na di limb dεm ( dεn kin no dis we dεn de du dכkta in egzamin) .
- Difεlεnt fכ fulכp εksεnd di jכyn dεm
- Dilay fɔ kɔmplit di divɛlɔpmɛnt maylston dɛm (fɔ ɛgzampul, fɔ kray, waka, fɔ ol sɔntin) .
- I nɔ izi fɔ mek yu ebul fɔ du tin togɛda
- I nɔ izi fɔ waka ɔ di we aw yu de waka we nɔ kɔmɔn (fɔ ɛgzampul, fɔ nak yu ni dɛn togɛda we yu de waka) .
- Wach pan tiptoes nɔmɔ
Wetin mek Spastik Sɛribra Palsi kin apin?
Dis kכndyushכn kin rili kכz fכ di damej pan di bren path dεm we de kכntro di mכsul dεm εn muvmεnt. Dis damej kin bi bikɔs ɔksijɛn nɔ de na di bren, injuri na di bren, ɔ , we nɔ kin apin so ɔltɛm, we di jɛnɛtik chenj (di chenj na di DNA).
Bɔku tin dɛn de we kin apin we di bren pwɛl ɔ we i nɔ gɛt ɔksijɛn we i gɛt bɛlɛ, we i de bɔn pikin, ɔ jɔs afta dɛn bɔn am:
- di bכdi fכ fכlכ to di bren (e.g., wan kכndyushכn we dεn kכl ``ischemic stroke'') .
- Blɔd we de kɔmɔt na di bren (e.g., wan sik we dɛn kɔl ɛmoraji strok) .
- Bren damej bikɔs ɔf wan infɛkshɔn
- Traumatik bren injuri (TBI) .
Apat frɔm dat, pikin kin gɛt Spastic Cerebral Palsy smɔl if:
- Fɔ bɔn pikin bifo tɛm
- Di wet we dɛn bɔn we dɛn bɔn smɔl
- Sivɛri jaundice wae nɔr de trit fayn
- Infεkshכn we de afekt di mama, di pikin we de insay di bεlε, כ di plasεnta we i bεlε
- fכ gεt sεvεra pikin dεm na di bεlε, lεk twins כ triplet (Multiples) .
- di kכmplikεshכn dεm we di bεlε de kam (fכ egzampl, siriכs kכndyushכn dεm lεk di plasεnta abrupshכn כ di uterin rכpchכ) .
- We pɔsin gɛt pɔyzin kemikal we kin pwɛl di bren (fɔ ɛgzampul, we pɔsin de yuz mɛkkyuri insay sifud fɔ lɔng tɛm) .
Us ɔda kɔmplikɛshɔn dɛn kin apin bikɔs ɔf Spastic Cerebral Palsy?
Dis kכndyushכn nכ de כnli afekt di pikin in mכsul dεm. Ɔda prɔblɛm dɛn kin apin. Dɛn tin ya na:
- I nɔ izi fɔ tɔk ɛn tɔk to pipul dɛn
- Prɔblɛm dɛn we gɛt fɔ du wit aw pɔsin kin ebul fɔ lan (Intellectual disability) .
- Di sik dɛn we kin mek pɔsin sik
- We pɔsin nɔ de si fayn igen
- I nɔ de yɛri fayn igen
Aw dɛn kin no se pɔsin gɛt Spastik Sɛribra Palsi?
Dɛn kin no dis sik we dɛn smɔl ɔ we dɛn smɔl. Di fɔs tin we yu fɔ du fɔ no if yu gɛt di sik na fɔ mek yu dɔktɔ ɔ midwayf chɛk yu pikin in bɔdi.
Di dɔktɔ go chɛk yu pikin in mɔsul dɛn trɛnk, aw i de muv, aw i de muv, ɛn aw i de wok togɛda. I go aks yu bak if yu pikin de divɛlɔp fayn fayn wan fɔ in ej (e.g., i de kray ɔ i de waka).
Us kayn tɛst kin kɔnfirm dis kɔndishɔn?
If we yu chɛk yu bɔdi sho se na spastik sɛribra palsi na di tin we kin mek yu gɛt dis sik, yu dɔktɔ kin tɛl yu fɔ du imej tɛst fɔ luk fɔ say dɛn we yu bren dɔn pwɛl. Dɛn kin ɔda bak fɔ mek dɛn du tɛst fɔ no ɔda tin dɛn we kin mek pɔsin gɛt di sem kayn sik.
- MRI (Magnetik Rizɔnans Imej) tɛst
- CT skan (`(CT skan - Kɔmpyuta Tomografi skan)`)
- Blɔd tɛst dɛn
- Test fɔ di jenɛtiks
Aw dɛn kin trit Spastik Sɛribra Palsi?
Di men gol fɔ trit dis sik na fɔ mek di pikin ebul fɔ muv fayn fayn wan. Pan ɔl we dɛn nɔ go ebul fɔ mɛn am kpatakpata, dɛn kin kɔntrol di sik dɛn ɛn ɛp di pikin fɔ liv gud layf.
Dɛn kin yuz dɛn tin ya as tritmɛnt:
- Ɛvride fɔ strɛch ɛksesaiz na os fɔ mek di mɔsul dɛn nɔ tayt mɔ ɛn mɔ as tɛm de go
- Fizik tɛrapi, ɔkupeshɔn tɛrapi, ɛn/ɔ tɔk tɛrapi
- Yuz spɛshal bres, kast, ɔ splint fɔ ɛp fɔ strɛch di mɔsul dɛn bay we yu ol di an ɔ leg dɛn na di sem pozishɔn
- Yuz tin dɛn we de ɛp pɔsin lɛk fɔ waka ɔ wilchia
- Mεdisin dεm fכ ridyus di mכsul dεm stif εn spam (lεk `(Baclofen)`, `(Diazepam)`, `(Clonazepam)`, `(Dantrolene)` εn `(Tizanidine)`)
- Botulinum toxin injection (dεn kin kכl am bak Botox®) de εp fכ rilaks di mכsul dεm.
- Intrathecal baclofen therapy na wan we we dɛn kin gi mɛrɛsin dairekt insay di spaynal kɔd.
- sεlektiv dכsal rayzotomy, we na כpεrayshכn fכ ridyus di mכsul dεm stiffness
Di mɛdikal tim go disayd di tritmɛnt plan we go fayn fɔ yu pikin. Dis kin difrɛn frɔm wan pikin to ɔda pikin.
Wetin na di layf we pikin we gɛt Spastik Sɛribra Palsi kin liv?
Bɔrku tɛm, Spastic Cerebral Palsy nɔ kin afɛkt di pikin in layf dairekt wan. Bɔt if di sik bad bad wan ɛn dɛn nɔ trit am fayn , di prɔblɛm dɛn we kin apin kin afɛkt di pikin in layf sɔm tɛm. Mɛmba se pan ɔl we no mɛrɛsin nɔ de fɔ dis sik, if dɛn trit di pikin, i go ebul fɔ liv gud layf.
Dis sik kin wɔs as tɛm de go? (I de go bifo?)
Spastic Cerebral Palsy nɔto sik we de go bifo. Dis min se di sem mɔsul dɛm we dɛn bin afɛkt we dɛn bin smɔl, dɛn kin stil afɛkt am leta na layf. I nɔ de afɛkt nyu mɔsul dɛn. Bɔt if dɛn nɔ trit am, di mɔsul dɛn we gɛt di sik kin stif kin wɔs as tɛm de go.
Tritmɛnt rili impɔtant bikɔs fɔ ridyus di mɔsul dɛn we stif kin ɛp di pikin in wok bad bad wan (lɛk fɔ waka, chenj klos, ɛn fɔ ol tin dɛn). I kin mek bak di pen nɔ bɔku. Di pikin go nid di sɔpɔt fɔ wan mɛdikal tim ɔl in layf fɔ liv wit dis sik.
Ustɛm a fɔ go to dɔktɔ?
If yu notis ɛni fɔs sayn we de sho se yu pikin kin gɛt Spastic Cerebral Palsy, go to dɔktɔ wantɛm wantɛm. Yu fɔ wɔri mɔ if yu notis ɛni chenj ɔ delay pan yu pikin in muvmɛnt ɛn divɛlɔpmɛnt.
Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?
Yu kin gɛt bɔku kwɛstyɔn dɛn we yu kam fɔ no bɔt di sik we yu pikin gɛt. Na sɔm kwɛstyɔn dɛn we yu kin aks yu dɔktɔ:
- "Yu kin ɛp mi fɔ ɔndastand mi pikin in diagnosis?"
- "Us kayn tritmɛnt yu de rɛkɔmɛnd?"
- "Wetin na di gol dɛm fɔ tritmɛnt?"
- "Ɛni sayd ɛfɛkt de fɔ di tritmɛnt?"
- "Aw lɔŋ a fɔ du fizik tɛrapi ɔ ɔkupeshɔn tɛrapi?"
- "Opareshon go impruv mi pikin in simptoms?"
Di tin dɛn we impɔtant pas ɔl fɔ mek yu mɛmba (Take-Home Message) .
Spastik Sεribra Palsi kin bi wan chalenj kכndyushכn fכ pikin εn dεn famili biכs di pikin in bren εn mכsul dεm nכ de kכmכnik fayn fayn wan. Dɛn sayn ya kin afɛkt di pikin in ebul fɔ muv rawnd sef wan ɛn fɔ insɛf.
Bɔt pan ɔl we dɛn nɔ go ebul fɔ mɛn am, bɔt gud tin na dat, difrɛn tritmɛnt dɛn de we pɔsin kin ebul fɔ kɔntrol. Fyzikal tritmɛnt, wok tritmɛnt, tɔk, ɛn mɛrɛsin kin mek di pikin in layf bɛtɛ. Yu go nid fɔ de tɔk to yu pikin in mɛdikal tim. If yu ɔ yu famili gɛt ɛni kwɛstyɔn bɔt dis, nɔ fred fɔ aks dɔktɔ.
👩🏽 ⚕️ Ɔda kwɛstyɔn dɛn (FAQ dɛn)
💬 Spastic Cerebral Palsy (SCP) na sik we di bren nɔ de wok pan?
di bren kin tink nכmal, bכt insay dis kes, di pikin de sכfa wit siriכs damej to di ‘mכtal kכtεks' na di bren we de kכntro di mכsul dεm (e.g., bikoz fכ di כksijεn nכ de) bifo, di tεm we i bכn, כ ali afta dεn bכn am, we de rizulta in kכndishכn we di mכsul dεm na di bכdi de ‘stiff/tayt’ fכ tεm (Mכsul stiffness/Spassticity).
💬 Wetin na di sayn dɛm we de sho se mama ɛn papa kin no se pikin gɛt dis (Spastic CP)?
di tin we klia pas ɔl na dat di pikin in an ɛn leg dɛn kin stif ɔltɛm, lɛk ‘mashin/rɔbɔt’. di sem tεm, dεn kin kip di an dεm nia di bכdi εn bεn (Flexed arms), dεn kin kכros di leg dεm lεk siza we i de waka (Scissor gait), εn di pikin de waka ‘pan di tכp dεm fכ di tכd dεm' (Toe walking), i de es di il dεm we i nכ put di fut in sכl dεm na grכn.
💬 Wetin kin apin if dɛn nɔ trit dɛn tayt mɔsul ya? Wetin na di tritmɛnt dɛn?
Dis nɔr kin ɛva bi sik we pɔsin kin mɛn 100%. Bɔt if dɛn nɔ trit di pikin, di tayt mɔsul dɛn kin mek i kɔntrakt ɛn di pikin go de na bed sote go! Di tritmɛnt we go wok fayn pas ɔl fɔ dis na fisiotɛrapi. Botox injεkshכn εn mכsul rilaksant lεk Baclofen, כ if di wכs kes, כtכpεdik כpεrayshכn kin εp di pikin fכ waka to wan rili gud lεvεl.
` Spastik Sεribra Palsi, Spastik Sεribra Palsi, Sεribra Palsi, Mכsul Stiffnεs, Spasticity, Pikin Nyurכlכji, Muvmεnt Dizכrd, Pikin Divεlכpmεnt
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