Lɛ wi tɔk bɔt sik we nɔ de mɛn - Nɔto yu wan de.

A no se sɔntɛnde i kin at fɔ tɔk bɔt dis kayn tɔpik we rili impɔtant. Bɔt, wi nid fɔ tɔk bɔt sɔm rial tin dɛn na layf ɛn no bɔt dɛn. Na bikɔs dis no kin ɛp wi ɛn di wan dɛn we wi lɛk. So tide, lɛ wi tɔk bɔt `(Terminal Illness)`, ɔr wan kɔndishɔn wae de kam nia di ɛnd ɔf layf.

Wetin na dis ``Terminal Illness''? Lɛ wi ɔndastand am simpul wan, nɔto so?

Fɔ tɔk am simpul wan, ``Terminal Illness`` na sik we nɔ go mɛn we dɔktɔ dɛn se i go dɔn wit day. Dis min se de sik wae yu gɛt nɔr kin ebul fɔ rivεs ɔr wɛl kpatakpata. In ɔda wɔd, di sik nɔ go dɔn.

Sɔmtɛm dɛn kayn sik ya kin wɔs kwik kwik wan. Ɔ, sɔm sik dɛn de we kin kam smɔl smɔl, ɛn smɔl smɔl dɛn kin gɛt mɔ sik as tɛm de go ɛn kin mek di bɔdi wik. Tink bɔt am lɛk layt bɔl we de ɔf ɛn ɔn.

We yu no se yu gɛt sik we de mek yu nɔ ebul fɔ mɛn yu, yu kin fil lɛk se di wɔl dɔn kam fɔ krach pan yu. Yu nɔr kin ebul fɔ no ustɛm yu go fil na dis kayn tɛm. Yu kin fil bad, vɛks, fred, ɔ ivin sɔprayz fɔ mek yu fil fri. Yu kin fil lɛk se yu nɔ gɛt natin, yu nɔ gɛt natin, ɔ yu nɔ gɛt natin. Yu kin fil ɔl dɛn tin ya wan tɛm. Ilɛk wetin i bi, yu nid fɔ ɔndastand se na nɔmal tin . I go tek sɔm tɛm fɔ mek yu kam fɔ no dɛn filin ya.

Ilɛksɛf yu na pɔsin we gɛt dis sik ɔ pɔsin we de kia fɔ yu, fɔ tɔk bɔt day nɔ kin izi. Bɔt if yu no wetin fɔ ɛkspɛkt, dat go mek yu ɛn yu famili gɛt sɔm trɛnk ɛn rɛdi .

Wetin na di ``Terminal Illnesses'' wae kin pasmak?

Fɔ tru, i nɔ kin izi fɔ gi wan list fɔ "Dis na di `Terminal Illnesses" bikɔs ivin di sem sik kin afɛkt difrɛn pipul dɛn difrɛn we. Sɔm sik dɛn de we kin mɔs bi `Tɛminal` na dɛn las stej.

Fɔ gi sɔm ɛgzampul dɛn:

• Advans Kansa
• Di sik we dɛn kɔl Alzaima
• Siriɔs kes dɛm wae gɛt at pwɛl hat (Congestive Heart Failure) .
• Kidni we nɔ de wok fayn
• Liva we nɔ de wok fayn
• Kansa we dɔn skata ɔlsay na di bɔdi (Metastatic Cancer) .
• Sivɛri kes dɛm fɔ Multiple Sclerosis, we na wan sik we de na di nervɔs sistɛm
• Dis sik we dɛn kɔl Parkinson

Bɔt mɛmba se, jɔs bikɔs yu gɛt wan sik na dis list nɔr min se yu na ``Terminally Ill.'' I bɛtɛ fɔ tɔk to yu dɔktɔ fɔ no ustɛm yu sik ɛn aw i go afɛkt yu layf.

Wetin na di difrɛns bitwin ``Terminal Illness'' ɛn ``Kronik Illness''?

Dɛn tu tin ya na tin dɛn we kin apin to pɔsin in layf. Bɔt, `(Kronik Illness)` ɔ wan sik we nɔ de mɛnFɔ pɔrsin wae gɛt dis sik (lɛk dayabitis, asma, ɔr sɔm kayn ɔtoimyun disɔda), tritmɛnt kin ɛp am fɔ kɔntrol di sik ɛn liv nɔrmal layf.

Bɔt di tritmɛnt dɛm wae dɛn kin gi pɔrsin wae gɛt ``Terminal Illness'' nɔr kin ebul fɔ mɛn di sik. Dɛn kin jɔs ridyus di diskɔmfɔt we yu de fil ɛn ɛp yu fɔ fil fayn as yu ebul. Bɔt dɛn nɔ go ebul fɔ mek pɔsin nɔ day.

Aw lɔng pɔrsin wae gɛt sik wae nɔr de mɛn kin liv?

Dis kin rili difrɛn frɔm wan pɔsin to ɔda pɔsin. Aw lɔng yu go ebul fɔ liv kin dipen pan bɔku tin dɛn lɛk aw yu de mɛn yu, yu bɔdi wɛl bɔdi, ɛn di tritmɛnt we yu de gɛt.

Yu dɔktɔ go tray fɔ no aw lɔng yu dɔn tek. Bɔt i rili at fɔ tɔk fɔ tru. Pipul wae gɛt dis sik kin liv fɔ sɔm dez, wik, mɔnt, ɔr ivin sɔm ia. Yu dɔktɔ go jɔs tɛl yu dis infɔmeshɔn if yu want fɔ no. If yu nɔ want fɔ no, yu gɛt rayt fɔ tɛl yu dɔktɔ.

Wetin na di sayn dɛm fɔ wan `(Terminal Illness)`?

Di sayn dɛm kin difrɛn difrɛn wan fɔ di sik wae yu gɛt. Bɔt as yu de nia fɔ dɔn yu layf, yu go notis sɔm pan dɛn sayn ya:

• Kɔnfyushɔn, we pɔsin nɔ de no natin
• Fɔ si ɔ yɛri tin dɛn we nɔ de (Hallucinations) .
• I nɔ kin izi fɔ swɛla it ɔ wata
• Taya
• Nɔbɔdi nɔ go want fɔ it
• Pis smɔl pas aw i kin pis
• Fɔ Shot fɔ Briz
• Agiteshɔn
• Nɔ ebul fɔ kɔntrol yu urine ɔ stɔl (Urinary or Bowel Incontinence) .

Impɔtant: If yu gɛt ɛni nyu sayn ɔ if wan sik we yu dɔn gɛt de wɔs, tɛl yu dɔktɔ wantɛm wantɛm. Dɛn kin gɛt mɛrɛsin ɛn tritmɛnt wae kin ɛp fɔ kɔntrol dɛn sik ya.

Aw yu kin trit wan `(Terminal Illness)`?

Di men gol fɔ tritmɛnt ya na fɔ mek yu fil fayn ɛn gɛt di bɛst kwaliti fɔ liv, pas fɔ mɛn yu. Yu mɛdikal tim go pe atɛnshɔn pan wetin dɛn kɔl ``Palliative Care`` . Dis inklud:

• Impruv yu kwaliti layf as mɔ as yu ebul.
• Fɔ kɔntrol yu sayn dɛm (lɛk pen ɛn shɔt briz).
• Sɔpɔt yu maynd, filin ɛn spiritual wɛlbɔdi.

Yu palliativ kia tim kin ɛp bak wit ligal planin. Fɔ ɛgzampul, dɛn kin tich yu bɔt tin dɛn lɛk Livin Wil, Advans Dairekt, ɛn Pawa fɔ Atɔ.

Bɔt fɔ gɛt ``Palliative Care`` nɔ kin min ɔltɛm se yu gɛt ``Terminal Illness.`` Dɔktɔ dɛn kin rɛkɔmɛnd ``Palliative Care`` pan ɛni stej fɔ ɛni siriɔs sik .

Aw yu go no we yu nid `(Hospice Care)` savis?

Bɔrku pipul dɛm wae gɛt sik wae nɔr de mɛn kin kwalifay fɔ gɛt hospice care . Hospice care na spɛshal kayn kia wae de pe atɛnshɔn pan kɔmfɔt ɛn pen mɛnejɛmɛnt. Dɛn kin gi dis kia na yu yone os, na hospice center, norsing home, ɔr ɔspitul. Di hospice tim kin ɛp yu fɔ disayd usay di bɛst fɔ yu. Bɔrku tɛm, if yu layf na siks mɔnt ɔr less , yu kwalifay fɔ gɛt hospice care.

No rul nɔ de we se yu fɔ bigin fɔ kia fɔ yu hospice "rayt naw." Bɔt yu dɔktɔ kin ɛp yu fɔ disayd di bɛst tɛm fɔ bigin.

Aw a kin kia fɔ misɛf? (If yu sik)

We yu kam fɔ no se yu gɛt wan sik we de mek yu nɔ ebul fɔ mɛn, wan tawzin tin dɛn kin rɔn na yu maynd. Na nɔmal tin fɔ mek yu fil wɔri, wɔri, ɛn pwɛl at. Na nɔmal tin bak fɔ fil sɔri pan bɔku we dɛn. Dis tɛm, i impɔtant pas ɛni ɔda tɛm fɔ kia fɔ yusɛf. Na sɔm aidia dɛn we go ɛp yu:

• Aksept yu rialiti: Na nɔmal tin fɔ fil shɔk we yu yɛri dis kayn nyus. I kin tek sɔm tɛm fɔ mek i ful-ɔp fɔ prosɛs am. Fɔ gri se yu de day min se yu fɔ lɛf di tumara bambay we yu bin dɔn imajin. I nɔ izi fɔ du. Bɔt if yu ɔndastand di tru tin bɔt yu sityueshɔn ɛn gri wit am, dat go ɛp yu fɔ liv insay di tɛm we wi de naw ɛn yuz ɛvri mɔnt fayn fayn wan .
• Tink bɔt fɔ tɔk to wan ``Death Doula'': Dɛn pipul ya na wɛl bɔdi biznɛs pipul dɛm wae de gi yu ɛn yu pipul dɛm wae yu lɛk fɔ sɔpɔt yu maynd ɛn filin. Dɛn kin kɔdinɛt visit, ɛp wit ligal pepa wok, ɛn akt lɛk kɔmpin/padi.
• Fɛn pɔsin fɔ tɔk to (na if yu want): We yu tɔk to di wan dɛn we yu lɛk, dat kin ɛp yu fɔ dil wit dɛn kɔmpleks filin ya. I de gi dɛn chans bak fɔ sɔpɔt yu. If yu nɔ fil fɔ tɔk to ɛnibɔdi yet, dat bak nɔ bad. Du am we yu fil se yu want am. Insay da tɛm de, fɔ rayt bɔt aw yu de fil na wan jɔnal ɔ fɔ tɔk to dɔktɔ we de mɛn yu kin ɛp yu fɔ no aw yu de tink.
• Mek yu kɔntinyu fɔ du yu rutin: If yu fil fayn, plan yu de dɛn lɛk aw yu kin du. Rayt di tin dɛn we yu gɛt fɔ du na kalenda. Tray fɔ kɔntinyu fɔ du di tin dɛn we yu lɛk.
• Yu fɔ put gladi at fɔs:We wi gɛt `(Terminal Illness)`, dɛn kin fos wi, ilɛksɛf wi lɛk am ɔ wi nɔ lɛk am, fɔ liv insay di prɛsɛn mɔnt. Turn dis to yu advantej. Ɛnjɔy fɔ du smɔl smɔl tin dɛn we de mek yu gladi. I kin simpul lɛk fɔ drink ɔt kɔp ti, fɔ rid buk we yu lɛk, ɔ fɔ lisin to di bɔd dɛn we de siŋ na di gadin.
• Tray fɔ tek kɔmplimɛnt tritmɛnt dɛn: Akupankcha, Reiki, yoga, masaj, ɛn meditashɔn kin rili ɛp. Bɔt mek shɔ se yu aks yu dɔktɔ bɔt ɛni tritmɛnt we nɔ fayn fɔ yu.

Aw yu kin kia fɔ pɔrsin wae gɛt `(Terminal Illness)`? (If na yu na di pɔsin we de kia fɔ dɛn)

We yu kam fɔ no se pɔsin we yu lɛk gɛt sik we nɔ go mɛn, yu kin fil bad bifo dɛn day. Wi kin kɔl am anticipatory grief. I at fɔ tink bɔt day, aw i go apin, ɛn ustɛm i go apin.

If dis na di fɔs tɛm we yu lɔs pɔsin we de nia yu, yu nɔ go no wetin fɔ du ɔ tɔk. Na nɔmal tin fɔ mek yu fil wɔri bɔt tin dɛn lɛk dis. Bɔt fɔ kia fɔ pɔsin we gɛt sik we de mek i nɔ ebul fɔ mɛn nɔto tin we at fɔ du lɛk aw yu go tink. Pipul we de day want di sem tin we wi ɔl want - fɔ mek pipul dɛn si dɛn, fɔ mek dɛn yɛri dɛn, fɔ fil se dɛn lɛk dɛn. Na sɔm we dɛn ya we yu go ɛp:

• Bi gud lisin: Ilɛksɛf yu nɔ gɛt natin fɔ tɔk, mek ples fɔ dɛn. Lisin to aw dɛn de fil, ɛn kip di domɔt opin fɔ tɔk to dɛn. Dis na tɛm we una ɔl tu de mek una fred. Bi de fɔ unasɛf.
• Bi Prɛzɛnt: We yu de wit dɛn, dat kin rili kɔrej dɛn. Wach fim togɛda. Tek dɛn fɔ drayv. Lisin to di albam we dɛn lɛk pas ɔl. Rid wan buk to dɛn. Nɔto di aktiviti impɔtant, na di tru se yu de de.
• Ɛp bifo yu aks: Pipul dɛn we de nia fɔ dɔn dɛn layf kin shem fɔ aks fɔ ɛp bikɔs dɛn nɔ want fɔ bi lod pan ɔda pipul dɛn. If yu ebul fɔ si we fɔ ɛp, du am. I kin tan lɛk fɔ rɔn fɔ du sɔntin, fɔ mek dina, ɔ fɔ was klos.
• Involv dɛn bak: Nɔ tink se di pɔsin we yu lɛk nɔ go want fɔ jɔyn pan di ɛnjɔymɛnt jɔs bikɔs dɛn gɛt sik we nɔ de mɛn. Invayt dɛn bak, ɛn lɛ dɛn disayd fɔ du dat.
• Gi di trut ɛn mek shɔ se: Tɔk klia wan ɛn tɔk klia wan bɔt dɛn sik. Bi ɔnɛs wit dɛm bɔt dɛn ``Tɛminal Diagnosis''. Nɔ akt lɛk se i nɔ go apin. Na da sem tɛm de, yu kin gi dɛn op. Aks wetin dɛn want fɔ di ɛnd pan dɛn layf, ɛn put dɛn insay dɛn plan dɛn de. Mek dɛn no se yu de fɔ dɛn ɛn yu nɔ go lɛf dɛn.
• Rɛspɛkt dɛn bɔda dɛn:Lisin to wetin dɛn want, wetin dɛn nid. Ɛp dɛn di we aw dɛn nid ɛp, nɔto di we aw yu want fɔ ɛp dɛn .

``Terminal Diagnosis`` na sɔntin we de chenj yu layf insay wan instant. I rili at fɔ tink bɔt fɔ tɛl di wan dɛn we yu lɛk gudbay ɛn lɛf fɔ plan fɔ tumara bambay. Sɔm dez go bɛtɛ pas ɔda de dɛn. If yu taya, rɛst. Nɔ fɔgɛt fɔ tɛl yu dɔktɔ if yu gɛt ɛni nyu sayn. Bitwin di diagnosis ɛn day, layf de. Spend dem days as yu wish, wit di pipul dem we yu laik.

Di tin dɛn we impɔtant pas ɔl fɔ mɛmba (Take-Home Message) .

• ``Terminal Illness'' na sik wae nɔr kin mɛn wae kin dɔn wit day.
• Na nɔmal tin fɔ fil difrɛn difrɛn filin dɛn we yu gɛt nyuz lɛk dis. Nɔto yu wan de.
• Di men gol fɔ tritmɛnt na fɔ kɔntrol di sayn dɛm ɛn fɔ mek yu fil fayn ɛn gɛt bɛtɛ layf. Savis dɛm we dɛn kɔl ``Palliative Care`` ɛn ``Hospice Care`` rili impɔtant fɔ dis.
• If yu de sɔfa wit sik, i impɔtant fɔ tek kia ɔf yusɛf ɛn tink bɔt yu maynd wɛlbɔdi.
• If yu na pɔsin we de kia fɔ di pɔsin, i rili impɔtant fɔ lisin to di pɔsin, spɛn tɛm wit am, ɛn rɛspɛkt wetin i nid.
• Aks di sɔpɔt frɔm dɔktɔ, nɔs, advaysa, ɛn pipul dɛn we yu lɛk pan dis waka.

` Ɛnd-stej sik, palliativ kia, ɛnd ɔf layf, saykolojik sɔpɔt, famili sɔpɔt, pasɛnt kia, pen mɛnejɛmɛnt