Yu gɛt twins? Yu no bɔt dis denja sik? (Twin-to-Twin Transfyushɔn Sindrom - TTTS)

If yu na mama we go bi mama we de ɛkspɛkt twins, fɔs, yu de kɔle yu! Bɔt i impɔtant bak fɔ no di spɛshal tin dɛn we kin apin sɔntɛnde we dɛn gɛt twin bɛlɛ. Wan pan dɛn kayn tin ya we dɛn nɔ bin de ɛkspɛkt smɔl bɔt we fayn fɔ no bɔt na Twin-to-Twin Transfusion Syndrome , we dɛn kin kɔl bak TTTS fɔ shɔt tɛm. Nɔ wɔri, lɛ wi tɔk bɔt am simpul wan.

Wetin na Twin-to-Twin Transfyushɔn Sindrom (TTTS)? Fɔ tɔk am simpul wan...

Imajin se di tu twin dɛn we de na yu bɛlɛ gɛt di sem plasɛnta . Wi kin kɔl dɛn twin ya (monochorionic twins) . nכmal wan, di tu pikin dεm de gεt di sem bכdi εn di nyutriεnt frכm dis plasεnta. Bɔt, insay dis kes (TTTS), da divɛlɔpmɛnt de nɔ kin apin fayn.

Fɔ tɔk am simpul wan, wan pikin (lɛ wi kɔl am di ‘dona twin’ ) nɔ de gɛt inof blɔd frɔm di plasεnta. Di ɔda pikin (lɛ wi kɔl am di ‘recipient twin’ ) kin gɛt tumɔs. Dis imbalans na di blɔd flɔ na in de mek TTTS. Dis na sik wae nɔr kin bɔrku bɔt kin siriɔs. I impɔtant fɔ mek wan spɛshal pɔsin we de wok fɔ di Maternal-Fetal Medicine (MFM) de wach am gud gud wan. If yu no di pikin kwik kwik wan, wach am, ɛn trit am, dat kin mek di tu pikin dɛn gɛt bɛtɛ tin fɔ du.

Wetin kin apin to di ‘donor twin’?

di pikin de gεt sכm bכdi frכm di plasεnta. So, di blɔd we de na in bɔdi bak kin ridyus. dis kin mek di pikin gro sloslo, εn di amount of amniotic fluid we de rawnd am kin dכn bak. Dis na bikɔs di pikin nɔ de pis bɛtɛ. dis na biכs di amniotic fluid de mek כp mכst pan di pikin in urine. we di amniotic fluid dכn dכn, di sak we de ol di pikin kin shrink, כ ivin disappear. dis denja, biכs di pikin nכ kin muv fayn, εn di כmbilik kכd kin kכmprεs.

Wetin kin apin to di ‘recipient twin’?

Dis pikin de gɛt mɔ blɔd pas aw i fɔ gɛt. Dis ekstra blɔd de put bɔku strɛs pan di pikin in at, ɛn i kin ivin mek in at nɔ wok fayn . We di pikin we gi di pikin in bɔdi nɔ de it fayn, di pikin we de gi di pikin in bɔdi fɔ wok tranga wan. Bikɔs dis pikin gɛt fɔ prosɛs mɔ blɔd, i kin pis pas aw i kin pis. Dis kin mek in amniotic sak kin big pasmak.

Udat dis (TTTS) kɔndishɔn de afɛkt?

TTTS de afekt bεlε dεm nכmכ we twin dεm de sheb wan plasεnta (monochorionic) , εn luk di sem (idεntikal twin dεm). כltεm, dεn twin dεm ya we gεt TTTS gεt tu difrεnt amniotic sak dεm (diamniotic). Wi kin kɔl dɛn twin ya (monochorionic diamniotic twins) .

כltu, sכm tεm, kes dεm de we tu pikin dεn de sheb di sem plasεnta εn amniotic sak (monoamniotic). Insay dɛn kayn tin ya, TTTS kin apin bak. Bɔt, dɛn kayn twin dɛn de nɔ kin bɔku.

Aw let we uman gɛt bɛlɛ TTTS kin apin?

dis kכndyushכn kin bigin fכ divεlכp as ali as 16 wik, bכt i kin apin εni tεm we di bεlε de.

Aw kɔmɔn tin (TTTS)?

TTTS de apin insay lεk 15% pan di monochorionic twin bεlε dεm.

Wetin na di sayn dɛm fɔ TTTS?

Bɔrku mama dɛm wae gɛt TTTS nɔr kin gɛt ɛni patikyula sayn. Bɔt sɔm pipul dɛn kin gɛt:

• Fɔ fil lɛk se di uterus de gro fast pas aw dɛn bin de tink.
• Fɔ fil pen ɔ tayt na yu bɛlɛ.
• We yu de gɛt bɔku bɔku wet wantɛm wantɛm.

If yu gɛt dɛn sik ya, yu fɔ go to yu dɔktɔ wantɛm wantɛm.

Wetin kin mek pɔsin gɛt TTTS?

nכmal wan, insay twin bεlε we gεt wan plasεnta, di tu pikin dεm de sheb di sem bכdi we de kכmכt na di plasεnta. כltu, insay TTTS, di we aw di bכdi vεsul dεm na di plasεnta de kכnekt de mek di bכdi nכ de sheb di sem we. wan pikin (di pikin we de gi am) kin gɛt mɔ blɔd, ɛn di ɔda pikin (di pikin we gi am) kin gɛt smɔl blɔd.

yu nכ kin kכntro aw di plasεnta de divεlכp. (TTTS) na wan tin we kin apin we dɛn kin du random. I nɔto sɔntin we yu du ɔ yu nɔ du. So nɔ blem yusɛf. (TTTS) nɔto tin we pɔsin kin ebul fɔ avɔyd.

Udat de pan denja fɔ (TTTS)?

Dis nɔ gɛt ɛnitin fɔ du wit di jɛnɛtik ɔ ɛritayt. Na sɔntin we kin apin we pɔsin nɔ kin si. כltu, dis kin כnli apin insay twin bεlε dεm we de sheb wan plasεnta (monochorionic) .

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt TTTS?

If dɛn nɔ trit am, ɔ if di sik bigin rili ali we uman gɛt bɛlɛ, TTTS kin mek di pikin gɛt siriɔs wɛlbɔdi prɔblɛm, ɛn i kin ivin kil am. fכ dat, i implεnt fכ go fכ tritmεnt כ klos monitarin frכm spεshal mεdikal mεdikal mεdikal mεdikal mεdikal mεdikal mεntenal-fεtal (MFM spεshal mεdisin) כ fεtal kεriכn sεnta. Ivin if dɛn trit am kwik kwik wan, i kin izi fɔ mek di bɛlɛ kɔmɔt na di bɛlɛ.

Ɔda kɔmplikeshɔn dɛn we kin apin wit TTTS na:

• di kכmplikεshכn dεm we de kכmכt frכm di pikin we dεn bכn bifo tεm (lεk di prכblεm fכ brith, di nεv sεstem prכblεm).
• di twin we de gεt di tεm kin gεt at fεil כ כda at prכblεm bikoz fכ di εkstra wata.
• Di twin we gi di pikin kin gɛt prɔblɛm wit in kidni.

Aw dɛn kin no se pɔsin gɛt TTTS?

Di pɔsin we de kia fɔ yu bifo yu bɔn go no se yu gɛt TTTS wit ɔltra saund skan . di fכs tin we di dכkta go si pan di skan na dat tu twin dεm we fiba we de sheb di sem plasεnta.

If yu tink se yu gɛt TTTS, yu dɔktɔ kin rifer yu to maternal-fetal medicine specialist (MFM spɛshal) fɔ mek dɛn du mɔ tɛst yu.Na de, di spɛshal pɔsin go si wan ɔ mɔ pan dɛn tin ya na di ɔltra saund skan:

• di difrεns pan di saiz bitwin di tu bebi dεm.
• wan pikin gεt tu mכch amniotic fluid, we di כda pikin gεt tu sכm amniotic fluid.
• di blכd fכ fכlכ abnכmaliti na bebi dεm (dεn kin si dis wit Doppler ultrasound tεst).

sכm tεm dεm, i kin nid bak fכ du fεtal MRI (magnεtik rεsכnans imej) tεst εn fכ mek di pikin εkokadyografi (εko) bak .

di tim we de kia fɔ yu bifo yu bɔn go de wach yu gud gud wan ɔl di tɛm we yu gɛt bɛlɛ. Yu kin nid fɔ du ɔltra saund skan ɔltɛm fɔ no if di pikin gɛt wɛlbɔdi.

Di dɔktɔ go chɛk yu wɛlbɔdi bak. sכmtεm, di inkrεs pan di amniotic fluid na di sayd we di rεsεpshכn kin mek yu uterus big εn yu sεviks wik. Dɛn chenj ya kin mek bak pikin bɔn bifo tɛm.

Wetin na di stej dɛm fɔ (TTTS)?

Wan ɔltrasɔund skan de chɛk aw di sik siriɔs (TTTS), dat na di stej we i de pan.Dis kin mek di dɔktɔ si aw di sik de go bifo ɛn tɛl am di bɛst tritmɛnt we dɛn go yuz.

Fayv stej dɛn de fɔ TTTS:

• Stej 1: na sכm sכm כ nכ amniotic fluid de rawnd di pikin we dεn gi am. כltεm tu mכch amniotic fluid de rawnd di pikin we de gεt am.
• Stej 2: di pikin we dכn bכdi in blad nכ de si pan כltra saund. Dis min se di pikin we dɛn gi di pikin dɔn stɔp fɔ pis nɔmal wan.
• Stej 3: di bכdi fכ fכlכ bitwin di pikin dεm, i nכ de bכku bכku wan. Dis kin afɛkt di we aw wan pikin in at de wok.
• Stej 4: Wan ɔ ɔl tu di pikin dɛn de sho sayn dɛn we de sho se dɛn skin ɔ bɔdi de swel.
• Stej 5: Wan ɔ ɔl tu di pikin dɛn dɔn day.

Insay stej 1 (TTTS), ɔbshɔbishɔn nɔmɔ kin bi inof. Bɔt if di sik wɔs, i kin apin kwik kwik wan. afta stej 2 (TTTS), if yu bεlε nכ rich 26 wik, dεn kin rεkomεnd fכ du כpεrayshכn fכ di pikin .

Wetin na di tritmɛnt dɛm fɔ (TTTS)?

di tritmεnt dipכnt pan aw fa yu de na yu bεlε εn us stej yu de pan TTTS.

• Fɔ wach ɛn wach: Yu dɔktɔ go wach yu bɛlɛ gud gud wan wit ɔltra saund skan. Dis na opshɔn if yu gɛt stej 1 (TTTS) ɔ if rizin dɛn de we mek ɔpreshɔn ɔ ɔda tritmɛnt nɔ pɔsibul.
• sεptostomi: dis involv fכ mek sכm sכm ol na di mεmbran bitwin di tu pikin dεm in amniotic sak dεm. dis kin mek di prεshכn na di tu amniotic sak dεm ikwal. Dis nɔr kin gɛt bɛtɛ risk, bɔt i nɔr kin mɛn di ɔndalayn kɔz fɔ TTTS.
• Amnioredukshɔn: .insay dis prosidכs, di dכkta de yuz sכmכl nidul we olo fכ pul di εksyכs amniotic fluid frכm di pikin in sak. Yu dɔktɔ kin tɛl yu fɔ du dis we yu gɛt stej 1 (TTTS) ɔ we yu gɛt siriɔs TTTS leta we yu gɛt bɛlɛ. dis prosidur nכ de trit di כndalayn kכz fכ TTTS, so if di amniotic fluid inkrεs bak, i kin nid fכ du am plεnti tεm.
• di fεtoskopik lεzεr ablεshכn: dis prכsidכm involv fכ pas sכmכl kεmεra (fetoskop) insay di uterus εn yuz lεzεr bim fכ kכloz di bכdi vεsul dεm we de na di sεf fכ di plasεnta we de mek di bכdi fכ fכlכ bitwin di pikin dεm nכ ikwal. di gol fכ dis prכsidכm na fכ chenj di bכdi fכ fכm frכm wan pikin to di כda wan, so dat εvri pikin go gεt difrεn blכd volyum dεm. dis na opshכn fכ stej 2 כ hכy (TTTS) εn bεlε bitwin 16 εn 26 wik.
• כmbilikal kכd oklushכn: Dis na las tin we yu dכkta kin rεkכmand we dεn tu pikin dεm nכ ebul fכ sev, כ we wan pikin de pan layf we de pan denja. Dis ɔpreshɔn de stɔp di blɔd fɔ flɔ to wan pikin, ɛn dis de gi di ɔda pikin di bɛst chans fɔ liv.
• Di pikin: If di pikin dɔn pas di ej we i go ebul fɔ bɔn, di dɔktɔ kin tɛl am se i fɔ bɔn.

Yu wɛlbɔdi tim go ɛp yu fɔ pik di tritmɛnt we bɛtɛ fɔ yu. Dɛn go ansa ɔl yu kwɛstyɔn dɛn ɛn tɔk to yu bɔt di prɔblɛm dɛn, di bɛnifit dɛn, ɛn ɔda we dɛn fɔ du ɛni tritmɛnt.

Aw dɛn de manej TTTS?

Yu hεlth kεriכn, wit wan mεdikal mεdisin spεshal mεdisin (MFM spεshal), go kכl yu bεlε. Yu go de du ɔltra saund skan ɔltɛm (sɔntɛm wan ɔ tu tɛm insay di wik), ɛn yu kin nid bak fɔ gɛt fetal ɛkokadyografi we yu gɛt bɛlɛ. Yu tim we de kia fɔ yu go gi yu sɔpɔt fɔ mɛn pipul dɛn ɛn aw yu de fil ɔl di tɛm we yu gɛt bɛlɛ.

Wetin a fɔ ɛkspɛkt if na so i bi?

di autkam dipכnt pan aw fa yu de na yu bεlε we dεn no se yu gεt di sik εn aw di kכndyushכn siriכs (stej). Wit di advans na mεdikal sayɛns, fכ wach di pikin dεm gud gud wan εn trit di pikin kwik kwik wan kin gi bεtεh chans fכ liv. Tɔk to yu dɔktɔ bɔt di tin dɛn we yu de op fɔ ɛn di tin dɛn we go apin to yu fɔ ɔndastand aw TTTS go afɛkt yu bɛlɛ ɛn yu pikin. Bɔku twin pikin dɛn we de alayv nid fɔ de na di NICU (Neonatal Intensive Care Unit) fɔ shɔt tɛm afta dɛn bɔn dɛn fɔ gɛt di stat we dɛn nid.

(TTTS) kin bi wan tin wae de mek yu fil bad ɛn strɛs. Mɛmba fɔ tek kia ɔf yusɛf ɛn aks fɔ sɔpɔt frɔm yu wɛlbɔdi tim, patna, ɛn padi dɛm.

Wetin na di sɔvayv rɛt na (TTTS)?

Di rit wae de liv de dipen pan aw di TTTS tranga, wae dɛn no se yu gɛt am, ɛn if yu de gɛt tritmɛnt. Fɔ gɛt di rayt tritmɛnt kin mek big difrɛns pan yu sɔvayv rit wit TTTS:

• bכt 90% pan di twin dεm we dεn no se dεn gεt siriכs TTTS ali we dεn bεlε de pan risk fכ day bifo dεn bכn (if dεn nכ trit dεm).
• bitwin 85% εn 90% pan di bεlε dεm we dεn trit (TTTS) kin mek at le wan pikin de liv.
• insay bitwin 50% εn 65% pan di bεlε dεm we dεn trit (TTTS), di tu pikin dεm de liv.

Bikɔs bɔku tin dɛn kin afɛkt di we aw yu de liv, tɔk to di wan dɛn we de kia fɔ yu pikin bɔt di prɔgnosis we yu pikin go gɛt.

Us kwɛstyɔn dɛn a fɔ aks mi wɛlbɔdi tim?

Sɔm kwɛstyɔn dɛn we yu kin aks:

• Aw mi bɛlɛ difrɛn frɔm twin bɛlɛ we nɔ gɛt (TTTS)?
• A go nid fɔ go to spɛshal pɔsin? Udat de na di tim we de kia fɔ mi?
• Aw ɔltɛm a go nid fɔ du skan ɔ ɔda tɛst?
• Aw (TTTS) go afɛkt mi delivri plan dɛn?
• A go fil ɛni chenj na mi bɔdi bikɔs ɔf TTTS? If na so i bi, wetin a fɔ ɛkspɛkt?
• Us tritmɛnt yu kin advays fɔ mi sik? Wetin du?
• Us layf stayl abit (lɛk it, ɛksesaiz, rɛst, tritmɛnt) yu kin advays fɔ sɔpɔt mi wɛlbɔdi?

Wetin na dis ‘Daisy Baby’?

‘Daisy baby’ na ɔda nem fɔ pikin we gɛt TTTS. Di Twin-to-Twin Transfusion Syndrome (TTTS) Fɔdayshɔn bin yuz di nem fɔs. Di nem kam afta di pɔsin we mek am plant dezi sid dɛn na dɛn gadin wit in twin bɔy pikin dɛn we stil de alayv. Di dezi gadin na sayn fɔ op se ɛvri pikin we de sɔfa wit TTTS go liv.

Fɔ dɔn, di tin we impɔtant pas ɔl! (Mɛsej we dɛn kin tek go na os)

Fɔ gɛt diagnosis fɔ Twin-to-Twin Transfusion Syndrome (TTTS) kin bi tin we kin mek yu fred. Na nɔmal tin fɔ mek yu fred ɛn wɔri bɔt wetin go apin nɛks fɔ yu ɛn yu twins dɛn. Tɔk to yu dɔktɔ bɔt di bɛst tritmɛnt fɔ yu sityueshɔn. Aks sɔpɔt frɔm yu padi ɛn fambul dɛn as yu bɛlɛ de go bifo. Fɔ jɔyn sɔpɔt grup fɔ famili dɛm wae dɔn gɛt TTTS kin bi bak fayn we fɔ ɛp yu fɔ du dis joyn. Mɛmba se nɔto yu wangren de. If yu gi yu di rayt advays ɛn sɔpɔt we yu gi yu, yu go ebul fɔ bia wit dis prɔblɛm ed pan yu!

` Twin-to-Twin Transfyushכn Sεndrכm, TTTS, twins, bεlε, plasεnta, amniotic fluid, monochorionic