Yu smɔl pikin in ia tan lɛk tangled mɛs? Lɛ wi tɔk bɔt Uncombable Hair Syndrome!

Yu tink se i rili at fɔ kɔm yu smɔl pikin in ia? Yu tink se i tan lɛk bɔku bɔku straw instead fɔ de na wan ples? Sɔntɛnde, di ia bak kin luk dɔl smɔl ɛn dray. Dɔn dis na sɔntin we kin rili impɔtant to yu. Dis na rili mɛdikal kɔndishɔn, bɔt nɔto sɔntin fɔ wɔri tumɔs bɔt.

Wetin na dis ‘Uncombable Hair Syndrome’?

Fɔ tɔk am simpul wan, dis na wetin wi kɔl ‘ Uncombable Hair Syndrome’ . Dis na rili wan sik we pɔsin kin gɛt we i kam pan jɛnɛtiks . Wetin kin apin na dat di ia na yu pikin in ed, insted fɔ gro dɔŋ lɛk aw wi kin si, i kin gro to wan say, sɔm tɛm dɛn kin gro stret ɔp. Tink bɔt am lɛk smɔl smɔl waya dɛn. Na dat mek i at fɔ kɔm dis ia dɔŋ, ivin wit kɔm.

Dis ia kin dray smɔl ɛn i kin gɛt frizzy tɛkstɔr. Sɔm pikin dɛn ia kin layt smɔl bak (hypopigmented) pas ɔda wan dɛn, sɔntɛm i kin tan lɛk silva, wayt, ɔ layt brawn. Bɔt dis kin jɔs afɛkt di ia we de na di ed. Di ia we de na di ɔda pat na di bɔdi kin gro nɔmal wan. Di bɛst tin na dat bɔku tɛm dis sik kin bɛtɛ fɔ insɛf as tɛm de go . So nid nɔ de fɔ wɔri tumɔs.

Udat go ebul fɔ gɛt dis? Aw i kɔmɔn?

Dis sik (Uncombable Hair Syndrome) kin apin to ɛnibɔdi. Na bikɔs na wan chenj we de apin na di jɛnɛtiks de mek i apin . i kin apin bikoz fכ chenj dεm na difrεn jin dεm we de sho di kכntribyushכn dεm fכ wi bכdi. sכmtεm dis jεnεtik inflכεns kin kכmכt frכm di tu mama εn papa dεm (`(autosomal recessive)`), כ i kin kכmכt frכm wan mama εn papa nכmכ (`(autosomal dominant)`).

I at fɔ tɔk klia wan aw dis kin apin. Bikɔs bɔku tɛm di sik kin go as pikin dɛn de ol, nɔto ɔlman kin kip mɛdikal rɛkɔd bɔt am. I pas 100 pipul dɛm wae gɛt dis kayn sik wae dɛn dɔn ripɔt na di mɛrɛsin buk dɛm. Bɔt i go mɔs bi se i go kɔmɔn pasmak.

Yu tink se dis kin afɛkt di ia nɔmɔ?

Yɛs, dis kin jɔs afɛkt di ia we de na yu pikin in ed. As wi bin dɔn tɔk, di ia kin gro difrɛn say dɛn, ɛn dis kin mek i nɔ izi fɔ kɔm. Dis sik nɔ de afɛkt ɛni ɔda pat na di pikin in bɔdi ɔ mek ɛni ɔda wɛlbɔdi prɔblɛm. Dat na big rilif, nɔto so?

Wetin na di sayn dɛm fɔ dis?

Di ia na pikin in ed we gɛt Uncombable Hair Syndrome kin sho dɛn kayn tin ya:

• Di ia kɔs ɛn i kin fil strɔng we dɛn tɔch am.
• I layt, i kin friz , ɛn dɛn nɔ kin kɔm am ɛn kip am na wan ples.
• Di ia kɔlɔ layt (haypopigmented) . I kin bi silva, wayt, blant, ɔ layt brawn.
• Sɔntɛnde, i kin bi se na tin we de shayn .
• Wan dray filinDat na di wan we pas ɔl.
• In ia nɔ de fɔdɔm na wan say, bɔt bifo dat, i de spre ɔlsay na in bɔdi ɛn i de luk mɛs .

Bɔt nɔto ɔl pikin dɛn gɛt ɔl dɛn kwaliti dɛn ya. Fɔ ɛgzampul, sɔm pikin dɛn kin gɛt nɔmal blak ɔ dak brawn ia, bɔt dɛn kin gɛt di abit fɔ nɔ de kɔntrol dɛnsɛf.

Na us ej dɛn sik ya kin bigin?

Di sayn dɛm fɔ Uncombable Hair Syndrome kin bigin we dɛn smɔl , i kin notis mɔ arawnd di ej 3. Bɔt sɔm pikin dɛn kin gɛt dɛn sayn ya bifo ɔ leta, sɔmtɛm as ali as 12 ia. I kin difrɛn frɔm wan pɔsin to ɔda pɔsin.

Di gud nyus na dat, dɛn sik ya kin go dɔŋ smɔl smɔl as di pikin de rich di tɛm we i dɔn rich fɔ bɔn ɔ we i dɔn rich yɔŋ. Di ia kin bigin fɔ gro bak lɛk aw i bin de.

Wetin mek dis de apin? Wetin na di rizin?

Di men tin we kin mek dis apin na we di jɛnɛtiks chenj . in patikyula, dεn fכnshכn se chenj dεm na di jin dεm `(PADI3)`, `(TGM3)`, εn `(TCHH)` de rispansabl fכ dis. Wan ɔda jin we dɛn nɔ no kin gɛt bak.

Fɔ tɔk am simpul wan, na dɛn jin ya de tɛl wi ia fɔ kɔntinyu fɔ shep. Nɔmal wan, wan wɛlbɔdi ia shaft kin tek wan silinda shep (lɛk tin kan). dis shep de mek di ia shaft de gro na wan dairekshכn, dכn, frכm di ia fכlikul. Tink bɔt am lɛk flawa we de insay pɔt we tinap stret.

Bɔt we chenj de na di jin dɛn we wi dɔn tɔk bɔt, di shep we di ia shaft gɛt kin chenj. Dat min se, instead fɔ bi silinda, i kin bi triangul, ɔktagɔnal, ɔ shep lɛk at. Dɔn, bikɔs ɔf dɛn angul ɛn tip dɛn ya na di ia shaft, i kin skata na wan say ɔ ɔda say. Jɔs lɛk aw wata kin kɔmɔt na paip we kɔba, i kin skata na wan say ɔ ɔda say.

Aw dɔktɔ kin no dis?

Yu pikin in dɔktɔ go no se i gɛt Uncombable Hair Syndrome afta i dɔn tek wan kɔmplit mɛdikal histri ɛn du in bɔdi ɛgzam . Dɛn go tek tɛm lisin to yu pikin in sik. Bikɔs di sayn dɛm fɔ dis sik kin so spɛshal, bɔku tɛm di dɔktɔ kin no am bay we i jɔs luk di ia.

Us kayn tɛst dɛn kin du fɔ kɔnfɔm?

Sɔntɛnde, di dɔktɔ kin du tɛst dɛn lɛk dis bak fɔ no mɔ bɔt di sik:

• di tεst fכ di ia shaft: Dis na fכ tek wan strכng ia frכm di pikin εn egzamin di pat pan di ia shaft we yu kin si tru di skin כnda maykroskכp. dis kin kכnfכm if di ia shaft gεt abnכmal shep.
• Jɛnɛtik tɛst: Dɛn kin tek blɔd sɛmpul frɔm di pikin ɛn chɛk di pikin in jin fɔ si if ɛni chenj de. If dεn dεtekt wan mכtεshכn na di jin dεm we wi bin dכn tכk bכt, dis de kכnfכm di kכndyushכn bak.

Yu tink se tritmɛnt de fɔ dis? Aw dɛn de manej am?

Fɔ tru, no patikyula tritmɛnt nɔ de fɔ Uncombable Hair Syndrome.. Fɔ manej di ia we de skata ɔlsay ɛn we yu nɔ ebul fɔ brus dɔŋ kin bi prɔblɛm. Bɔt na sɔm tin dɛn ya yu kin mɛmba we yu de kia fɔ yu pikin in ia:

• Nɔ trit yu ia we gɛt harsh kemikal (e.g. perming, dyeing) bikɔs dɛn nɔ go gɛt bɔku ifɛkt pan dis ia ɛn i kin ivin mek di kɔndishɔn wɔs.
• Nɔ brus yu pikin in ia pasmak ɔ kɔm am pasmak .
• Limit di yus fɔ di tul dɛn fɔ stayl yu ia (e.g. kɔl ayɔn, blo drya).
• I fayn fɔ trim yu pikin in ia ɔltɛm .

Mɛmba se dis sik na fɔ shɔt tɛm nɔmɔ, so i impɔtant fɔ mek yu ɔmbul wit yu ia pas fɔ du ɛnitin we go pwɛl am.

Bɔku tɛm, prɔdak dɛn lɛk detanglers, kondishɔn, ɛn hair mask nɔ kin wok fayn fɔ dis kayn ia. Harsh kεmεkal dεm lεk pεrm כ hair rilaks nכ de bon fayn wit di ia shaft, so dεn de gi bכku rilif fכ dis kכndyushכn.

Aw lɔng dis tin go las?

di Uncombable Hair Syndrome kin bigin fכ bכku fכ insεf arawnd di biginin fכ puberty . I kin kɔntinyu bak te i yɔŋ. insay dis tεm, di pikin in ia kin bigin fכ gro na wan say (dכn) insted fכ spre כlsay. I kin tek sɔm ia fɔ mek ɛni ia strɛch bi dis we.

Yu tink se we de fɔ mek dis nɔ apin?

Dis na tin we pɔsin kin gɛt we i kam pan jɛnɛtiks ɛn dɛn nɔ go ebul fɔ avɔyd am . If yu de plan fɔ bɔn pikin tumara bambay ɛn yu de wɔri bɔt di tin dɛn we de apin to yu jɛnɛtiks, yu kin tɔk to dɔktɔ bɔt aw fɔ advays yu bɔt yu jɛnɛtiks ɛn aw fɔ tɛst yu.

Wetin dɛn kin ɛkspɛkt frɔm pikin we gɛt dis sik?

Uncombable Hair Syndrome na wan sik wae de kam fɔ shɔt tɛm . I kin go as di pikin de gro. Pan ɔl we i nɔ kin izi fɔ mɛn di ia, i kin izi fɔ mek i kɔt in ia ɔltɛm ɔ fɔ mek i shɔt.

I bɛtɛ fɔ avɔyd tritmɛnt dɛn we de pwɛl di ia. Yu pikin in ia kin gro di nɔmal rit ɔ i kin gro slo smɔl.

Di impɔtant tin na dat sɔm pikin dɛn kin gɛt prɔblɛm wit dɛnsɛf bikɔs dɛn ia difrɛn frɔm ɔda pipul dɛn ia. Dɛn kin wɔnda se, “Wetin mek mi ia tan lɛk dis?” Dɛn kayn tɛm ya, i rili impɔtant fɔ tɔk to di pikin, mek i ɔndastand am, ɛn if nid de, go to pɔsin we sabi bɔt mental wɛlbɔdi biznɛs fɔ ɛp am . Mɛmba se dis na jɔs sɔntin we de afɛkt di we aw di ia de luk, di pikin gɛt wɛlbɔdi ɛn i spɛshal pan ɔl ɔda we.

Yu nid fɔ go to dɔktɔ?

If yu tink se yu pikin in ia de afɛkt in sɛf ɔ in maynd, i go fayn fɔ go to dɔktɔ. If nɔto dat, di sayn dɛm fɔ dis sik nɔr de afɛkt yu pikin in ɔl wɛl bɔdi, na jɔs kɔsmɛtik.

Us kwɛstyɔn dɛn yu fɔ aks di dɔktɔ?

We yu go to dɔktɔ, yu kin aks kwɛstyɔn dɛn lɛk dɛn wan ya:

• Aw a go ebul fɔ manej mi pikin in ia we nɔ kɔm fayn fayn wan?
• Aw ɔltɛm yu fɔ kɔt yu pikin in ia?
• Ɛni prɔdak de we fayn fɔ dis kayn ia ɛn we nɔ go pwɛl?

Yu tink se Albɛrt Aynstayn bin gɛt dis bak?

Sɔm stɔdi dɛn sho se wan bigman pan fiziks we nem Albɛrt Aynstayn bin gɛt wan sik we dɛn kɔl Uncombable Hair Syndrome, ɛn na dat mek in ia bin rɔtin. Yu kin si am na in pikchɔ dɛn. Bɔt no pruf nɔ de fɔ sho if na so i bi. Na jɔs wan tin we intrestin.

Wetin na dis ‘Monilethrix’?

Dis na ɔda jɛnɛtik kɔndishɔn we kin afɛkt di ia, lɛk Uncombable Hair Syndrome. Insay `(Monilethrix)`, di ia de tek wan biad apinans. Dɛn ia fɔ pipul dɛm wae gɛt dis sik kin rili tan, dray, ɛn kin brok. I kin brok afta sɔm inch. Dis na tin bak we pɔsin kin gɛt frɔm in mama ɛn papa.

Fɔ dɔn, tin dɛn we wi fɔ mɛmba

Pan ɔl we Uncombable Hair Syndrome na rial mɛrɛsin, i nɔ denja. I kin jɔs afɛkt di we aw di pikin de luk, bɔt i nɔ de ambɔg in ɔl wɛlbɔdi. Yu pikin jɔs difrɛn frɔm ɔda pipul dɛn bikɔs ɔf dat.

Di tin we impɔtant pas ɔl na fɔ tek kia ɔf yu pikin in maynd ɛn aw i de tink bɔt insɛf. If dɛn de fil bad ɔr wɔri bɔt dis, tɔk to dɛn ɛn aks fɔ ɛp frɔm pɔrsin wae sabi du dis wok if nid de. I impɔtant fɔ dɛn ɛn fɔ mek yu mɛmba se dis go bɛtɛ as tɛm de go.

` Uncombable Hair Syndrome, uncombable hair, jenɛtik sik, pikin dɛn ia, kia fɔ dɛn ia, pikin dɛn wɛlbɔdi, sik dɛn we nɔ kin bɔku