Yu go dɔn yɛri pipul dɛn se, "Dis na sik we de rɔn na wi famili." Sɔm wɛl bɔdi prɔblɛm dɛn kin rɔn na famili. dכkta dεn kכl dεn kכndyushכn dεm ya "jεnεtik" כ "hεreditary" kכndyushכn dεm. If yu mama, papa, ɔ grani ɛn granpa bin gɛt siriɔs wɛlbɔdi prɔblɛm, yu go de wɔnda, "A de pan denja fɔ gɛt dis sik bak?" Yu kin wɔri bak se yu pikin go gɛt wan sik we yu gɛt frɔm yu ɔ yu patna. If yu gɛt advays bɔt yu jɛnɛtiks, dat kin ɛp yu fɔ fɛn ansa to dɛn kwɛstyɔn ya.
Fɔ tɔk am simpul wan, wetin na fɔ gi advays bɔt jɛnɛtiks?
Fɔ gi advays bɔt di jɛnɛtiks nɔto fɔ jɔs du tɛst ɛn gi ripɔt. I min fɔ tɔk bɔt di tin dɛn we de mɔna yu wit pɔsin we sabi du in wok ɛn we dɔn gɛt spɛshal trenin pan jenɛtiks ɛn bak fɔ advays yu maynd.
Fɔ tɔk am simpul wan, dɛn de gi sayɛns ɛksplen bɔt di chans fɔ mek wan sik we de na yu jɛnɛtiks afɛkt yu ɔ yu famili. Dɛn kin ɛp yu bak fɔ dil wit di strɛs , fred, ɛn sɔri-at we kin kam wit da infɔmeshɔn de. Lɛk flashlayt na dak rod, dɛn de de fɔ gayd yu fɔ dis waka.
Na ya yu go si ansa to impɔtant kwɛstyɔn dɛn. Fɔ ɛgzampul, "A want fɔ no bɔt dis jenɛtik kɔndishɔn ɔ nɔto so?", "Wetin a go du wit di infɔmeshɔn if a fɛn ɔut?", "Aw dis go afɛkt mi famili?" Dis advays go rili ɛp yu fɔ disayd bɔt tin dɛn lɛk:
Udat dɛn fɔ aks fɔ advays bɔt dɛn jɛnɛtiks?
Jɛnɛtik kɔyl kin impɔtant fɔ ɛnibɔdi, bɔt i fayn fɔ tink bɔt am mɔ pan tin dɛn lɛk dis.
| Ustɛm fɔ tink bɔt aw fɔ advays pipul dɛn bɔt dɛn jɛnɛtiks | Fɔ ɛksplen |
|---|---|
| Fɔ di wan dɛn we de plan fɔ bɔn pikin | Chek fɔ si if yu ɔ yu patna kin pas wan sik (e.g., Thalassemia) to yu pikin. |
| Fɔ di wan dɛn we nɔ kin izi fɔ gɛt bɛlɛ ɔ we kin gɛt bɛlɛ bak | Sɔntɛnde dis kin bi bikɔs ɔf wan jɛnɛtik prɔblɛm na wan pan di patna dɛn. I kin ɛp fɔ luk insay dat. |
| If pɔsin na di famili gɛt sik we pɔsin kin gɛt frɔm in mama ɛn papa | Fɔ ɛgzampul, if sɔm pipul dɛn na yu famili gɛt sik dɛn lɛk bɔdi kansa, at sik, ɔr Pakinsin sik, tray fɔ no wetin de pan yu. |
| Fɔ di wan dɛn we dɔn ɔlrɛdi gɛt pikin we gɛt prɔblɛm wit in jɛnɛtiks | Yu fɔ no se di nɛks pikin sɛf go gɛt di sem sik ɛn rɛdi fɔ am. |
| Fɔ di wan dɛn we want fɔ no bɔt fɔ tɛst dɛn jɛnɛtiks | Lan mɔ bɔt aw dɛn kin du dɛn tɛst ya, aw dɛn kin kɔrɛkt, ɛn aw fɔ ɛksplen di rizɔlt. |
Aw yu fɔ rɛdi we yu mit pɔsin we de advays yu bɔt yu jɛnɛtiks?
We yu go fɔ advays, i go izi fɔ mek di pɔsin we de gi yu advays ɛp yu bay we i go kam wit bɔku tin dɛn. Tray fɔ gɛda dɛn tin ya bifo tɛm.
- Famili mɛdikal istri : Di wɛlbɔdi ditil dɛm fɔ yu mama ɛn papa , grani ɛn granpa, anti, ɔnkul, ɛn brɔda ɛn sista dɛm. Ditiɛl dɛn bɔt ɛni prɔblɛm we dɛn bɔn wit , kansa, dayabitis , ɔ at sik .
- Ej fɔ no di sik: Us ej dɔktɔ tɛl yu fambul se dɛn gɛt wan patikyula sik? Dis impɔtant bikɔs sɔm sik dɛn we pɔsin kin gɛt we i kam pan jɛnɛtiks kin apin pan sɔm patikyula ej dɛn.
- Di tin we mek pɔsin day ɛn di ej we i ol: If ɛnibɔdi na di famili dɔn day, di tin we mek i day ɛn di ej we i ol we i day (if i pɔsibul).
- Yu pasɔnal mɛdikal rɛkɔd: Tin dɛn lɛk yu ripɔt, mɛrɛsin ditil, ɛn ɔda tin dɛn.
- Kwɛstyɔn dɛn fɔ aks:Rayt ɔl di kwɛstyɔn dɛn we yu gɛt na yu maynd pan pepa bifo tɛm. Da we de, yu nɔ go fɔgɛt ɛnitin.
Dis na nyu ɛkspiriɛns, so nɔ fred fɔ aks ɛni kwɛstyɔn. No tink se, "A no sabi if dis na stupid kweshon." Di tin we impɔtant pas ɔl na fɔ ɛksplen ɔl wetin de na yu maynd.
Yu tink se dɛn savis ya de na Sri Lanka?
Yɛs. Dɛn kin gi advays bɔt jenɛtiks na ɔspitul, spɛshal klinik dɛn, ɛn sɔm lɛbɔretri dɛn. Ples de we yu kin gɛt dɛn savis ya na Sri Lanka bak. Dɛn advaysa dɛn ya kin gɛt sɛns pan difrɛn tin dɛn.
Fɔ ɛgzampul:
- Kansa
- Pikin dɛn we de mɛn pikin dɛn
- Di we aw pɔsin nɔ ebul fɔ bɔn pikin
- Di wɛlbɔdi bifo dɛn bɔn pikin
- Di wɛlbɔdi biznɛs na di at ɛn di blɔd
- Spɛshal sik dɛn lɛk sistik fibrosis
Aw yu kin aproch dis?
Di bɛst ɛn trɔst gayd yu pan dis na yu famili dɔktɔ ɔ di spɛshal pɔsin we yu de trit. If yu fil se yu nid fɔ gɛt advays bɔt yu jɛnɛtiks, tɔk to am fɔs. Dɛn kin rifer yu to di ples we fit yu fɔ yu sityueshɔn.
Yu tink se dis kin kɔst ɛnitin?
Dɛn kin pe fɔ dɛn kayn spɛshal tɛst ɛn kɔnsultɛshɔn dɛn de. Dis fi kin difrɛn difrɛn wan bay di kayn tɛst we dɛn du ɛn di say we dɛn de gi di savis. So, i fayn fɔ aks bɔt dis wit di ɔspitul ɔ klinik we gɛt fɔ du wit am bifo yu gɛt di savis.
Mɛsej we dɛn kin kɛr go na os
- Fɔ gi advays bɔt jɛnɛtiks nɔto jɔs fɔ gi ripɔt. Na wan prɔses fɔ tɔk bɔt yu prɔblɛm, ɛksplen am to yu, ɛn sɔpɔt yu.
- Dis go ɛp yu fɔ ɔndastand di prɔblɛm dɛn we kin kam wit sik dɛn we yu kin gɛt frɔm yu mama ɛn papa fɔ yu ɔ yu pikin we yu go gɛt tumara bambay.
- I rili impɔtant fɔ du risach ɛn gɛda famili wɛlbɔdi infɔmeshɔn bifo yu go fɔ kɔnsultɛshɔn.
- Wan pɔsin we de advays yu bɔt yu jɛnɛtiks go ɛp yu bak fɔ kɔntrol di prɔblɛm dɛn we yu kin gɛt we yu de fil. So nɔ fred.
- Fɔ no mɔ bɔt dis ɛn gɛt di rayt riferal, fɔs tɔk to yu dɔktɔ we yu trɔst.
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