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Renal function (eGFR)
Measure kidney function based on creatinine value
Eddagala lino erya Jynarque liyamba litya abalwadde ba ADPKD?
Mu ngeri ennyangu, ADPKD bulwadde bwa buzaale obusiigibwa okuva ku mulembe okudda ku mulala . Eno mbeera nga ebizimba bingi ebijjudde amazzi (cysts) bikolebwa mu nsigo. Ekiseera bwe kigenda kiyitawo, ebizimba bino bikula, ne bikyusa enkula y’ensigo ne biba binene nnyo okusinga ebya bulijjo. Oluvannyuma ensigo tezikyasobola kukola mulimu gwazo ogw’okusengejja omusaayi obulungi. Ebiseera ebisinga, obubonero buno tebulabika mu bavubuka, wabula wakati w’emyaka 30 ne 50. Akabonero akatera okulabika ye puleesa . Obulumi mu nsigo nabwo busobola okubaawo. Kino kiyinza okuva ku yinfekisoni mu nsigo oba mu nkola y’omusulo, ebizimba ebikutuse oba amayinja mu kibumba. Kumpi buli muntu alina ADPKD okukkakkana ng’afunye obulwadde bw’ekibumba obutawona (CKD). Eno mbeera eyeeyongera mpolampola. Ka tulabe emitendera gyayo gye giri.| Omutendera gwa CKD | Embeera nnyangu. |
|---|---|
| Emitendera 1 ne 2 | Guno gwe mulundi ogusoose. Ensigo zikyakola bulungi, kale ebiseera ebisinga tewabaawo bubonero bwonna. |
| Emitendera 3 ne 4 | We tutuukidde wano, enkola y’ensigo ekendedde nnyo. Obubonero butandika okulabika kubanga tebasobola kusengejja bulungi musaayi. |
| Omutendera 5 | Guno gwe mutendera ogusembayo. Ensigo zifuuka ezitasobola kulongoosebwa ddala (Kidney Failure). Awatali kulongoosa kibumba oba okusimbuliza ekibumba, kiyinza okutta omuntu. |
Jynarque akola mu ngeri ey’enjawulo ennyo. Emibiri gyaffe girina obusimu obuyitibwa (vasopressin). Mu balwadde ba ADPKD , obusimu buno buweereza obubonero eri ensigo okukola ebizimba ebirala. Ekirungo ekikola mu Jynarque, (tolvaptan), kiziyiza obubonero obwo okutuuka mu nsigo. Kino kikendeeza ku kutondebwa kw’ebizimba ebipya n’okukula kw’ebizimba ebikadde. Kino kisobozesa ensigo okukola obulungi okumala ebbanga eddene.
Eddagala lino terisaanira buli muntu?
Yee, Jynarque tesaanira balwadde bonna. Kikulu okubuulira omusawo wo ku mbeera zo zonna ez’obujjanjabi ez’emabega n’ez’oliwo kati , naddala:- Bw’oba olina obuzibu bwonna mu kibumba.
- Bw’oba olina ekirungo kya sodium ekitono oba ekinene mu musaayi.
- Bw’oba olina obuzibu bwonna mu kufulumya omusulo (e.g. amayinja mu kibumba , okuzibikira kw’omusulo).
- Bw’oba towulira nnyonta oba ng’olina obuzibu okunywa amazzi olunaku lwonna.
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Check Availability →Okozesa otya eddagala?
Jynarque ddagala erimira emirundi ebiri olunaku. Kiyinza okumira nga tonnalya oba nga omaze okulya. Ekiseera ky’okumira kino kikulu nnyo.| Dozi | Ebiseera ebitwaliddwa |
|---|---|
| Dozi esooka (oku makya) . | Mutwale amangu ddala ng’ozuukuse ku makya. Eno ye ddoozi esinga obunene. |
| Dozi eyookubiri (emisana) . | Mwa ddoozi esooka nga wayise essaawa 8 zennyini oluvannyuma lw’okugiwa ddoozi esembayo. (Okugeza bw’ogitwala ku ssaawa 8 ez’oku makya, eddako twala ku ssaawa 4 ez’ekiro). Eno ddoozi ntono. |
Kikulu nnyo: Nga omira eddagala lino, omusawo ajja kukusaba okwekebeza omusaayi (Liver function tests) buli luvannyuma lwa kiseera okukebera enkola y’ekibumba kyo . Kikulu nnyo okwetaba mu bigezo bino ku nnaku ezitegekeddwa. Okusinziira ku bivuddemu, ddoozi yo eyinza okwetaaga okukendeezebwa, okuyimiriza okumala ennaku ntono oba okuyimiriza ddala.Bw’oba osubiddwa ddoozi, togimira. Buuka ddoozi gy’osubiddwa era onywe ddoozi yo eddako mu ssaawa gye wategese. Kikulu okugoberera enteekateeka entuufu, amangu ddala ng’ozuukuse ku makya n’oluvannyuma lw’essaawa 8. Kirungi okuteeka alamu ku ssimu yo okujjukira ddoozi eyookubiri.
Ebigezo byogera ki ku buwanguzi bw’eddagala lino?
Okunoonyereza okunene kubiri kukoleddwa okwekenneenya obukuumi n’obulungi bw’eddagala lya Jynarque.Abalwadde ba CKD abasooka (omutendera 1 oba 2) .
Mu kunoonyereza kuno, omuwendo gw’okukula kw’ekibumba mu abo abamira Jynarque gwakendeera nnyo bw’ogeraageranya n’abo abamira placebo. Okubeera omutuufu, omuwendo gw’okukula kw’ekibumba mu abo abamira Jynarque gwakendeera ebitundu nga 49% bw’ogeraageranya n’abo abamira placebo. Kino kitegeeza nti okwonooneka kw’ensigo kwafugibwa nnyo. Okugatta ku ekyo, abo abamira Jynarque nabo tebaafuna bulumi bungi obuva ku kibumba.Abalwadde ba CKD ab’omutendera ogusembayo (omutendera 3 oba 4) .
Mu kibinja kino eky’abalwadde, omutindo gw’okwonooneka kw’enkola y’ekibumba mu abo abamira Jynarque gwali gugenda mpola katono okusinga mu balala. Kino kitegeeza nti eddagala lino liyinza okuyamba okukuuma enkola y’ensigo zaabwe okumala akaseera, ne mu abo obulwadde bwabwe bwe bufuuse obw’amaanyi.Ebizibu ebivaamu n’engeri y’okubiddukanyaamu?
Waliwo ebizibu ebiyinza okuvaamu ng’okozesa Jynarque, era kikulu okubimanya.- Okufuka ennyo: Kino kye kisinga okutawaanya abantu. Kino kiyinza okukuleetera okwetaaga okugenda mu kaabuyonjo emirundi mingi, emisana n’ekiro. Okukendeeza ku butabeera bulungi ekiro, mira ddoozi eyookubiri mu kiseera kye kimu, so si akawungeezi.
- Okubulwa amazzi mu mubiri: Waliwo akabi k’okubulwa amazzi mu mubiri kubanga omubiri gufiirwa amazzi mangi. Okusobola okuziyiza kino, nywa amazzi mangi olunaku lwonna, nga tolinze okutuusa ng’owulira ennyonta . Nywa mangu amazzi ng’owulira ennyonta. Okubulwa amazzi mu mubiri kiyinza okuvaako sodium okubeera omungi mu musaayi. Bw’ofuna obubonero ng’okuziyira , obunafu , okukoowa ennyo, okuzirika, oba omutima obutakuba bulungi , tegeeza omusawo wo mu bwangu.
Wayinza okubaawo obuzibu ku ddagala oba emmere endala?
Yee, eno nayo nsonga nkulu nnyo.- Eddagala eddala: Jynarque ayinza okukwatagana n’eddagala eddala erimu. Eddagala erimu liyinza okwongera ku buzibu obuva mu Jynarque, ate eddala liyinza okukendeeza ku bulung’amu bwa Jynarque. N’olwekyo, kakasa nti otegeeza omusawo wo ku ddagala lyonna ly’omira (nga mw’otwalidde ne vitamiini n’eddagala ly’omuddo).
- Emmere: Tolya grapefruit oba okunywa omubisi gwa grapefruit nga omira eddagala lino. Grapefruit ayongera ku mutindo gwa Jynarque mu mubiri, ekyongera obulabe bw’ebizibu ebivaamu. Ekikolwa kino kiyinza okubaawo ne bw’olya grapefruit mu kiseera ekirala kyonna eky’olunaku, so si ng’omira eddagala, n’olwekyo weewale ddala grapefruit.
Waliwo enkola ey’enjawulo ey’okufuna eddagala lino?
Jynarque ddagala eririna obusobozi obutatera kulabika nnyo okwonoona ekibumba. Olw’akabi kano, eddagala lino lifunibwa wansi wa pulogulaamu ey’enjawulo yokka eyitibwa REMS Program . Olina okwewandiisa mu pulogulaamu eno nga tonnatandika kumira ddagala lino. Era ojja kwetaaga okwekebeza omusaayi okukebera engeri ekibumba kyo gye kikola. Ojja kwetaaga okugenda mu maaso n’okukeberebwa omusaayi guno buli luvannyuma lwa kiseera ng’omaze okutandika okumira eddagala lino. Kikulu nnyo okugenda mu maaso n’okukola ebigezo bino bw’oba oyagala okugenda mu maaso n’okumira eddagala. Omusawo wo ajja kunnyonnyola ebisingawo ku nsonga eno.Obubaka Obutwala Awaka
- ADPKD bulwadde bwa nsikirano obuleetera amayinja mu kibumba okutondebwawo, ekiyinza okukkakkana ng’ekibumba kiremye.
- Jynarque (Tolvaptan) ddagala lya njawulo eriyamba okukendeeza ku kukula kw’ebizimba bino mu kibumba.
- Eddagala lino terisaanira buli muntu. Buulira omusawo wo ku mbeera zonna ez’obujjanjabi.
- Eddagala limira mu kiseera ekituufu, mu ddoozi entuufu. Tobuuka kukebera musaayi okukebera enkola y’ekibumba kyo.
- Nywa amazzi mangi olunaku lwonna. Weewale okulya n’okunywa ddala grapefruit.
- Ne bw’oba towulira njawulo yonna, weewale okukomya eddagala lino oba eddagala eddala lyonna nga tolina magezi ga musawo.
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