Obwongo bw’omwana wo buli mu kabi? Ka twogere ku bulwadde bwa medulloblastoma!

Wali owuliddeko ku bulwadde bwa Medulloblastoma? Oboolyawo si bwe kiri. Kika kya kookolo w’obwongo asinga kubeera mu baana abato naddala abali wansi w’emyaka 16. Naye teweeraliikiriranga, kino tukitegeere bulungi. Kubanga kikulu nnyo okumanyiira embeera eno.

Kale, obulwadde bwa medulloblastoma kye ki?

Mu ngeri ennyangu, medulloblastoma kizimba kya kookolo ekikula mu busimu bwo obw’omu makkati (CNS) , nga buno bwe bwongo bwo n’omugongo. Kitera okukula mu kitundu ky’obwongo bwo ekiyitibwa cerebellum, ekisangibwa emabega w’obwongo bwo. Obadde okimanyi nti obwongo buno obutono bufuga ebintu bingi mu mubiri gwo, gamba nga bbalansi, okutambula, n’okutambuza emikono n’amagulu?

Obulwadde buno businga kukwata baana n’abato abakulu abali wansi w’emyaka 16. Kyokka era busobola okukwatibwa mu bantu abakulu wadde nga tebutera kukwatibwa. Singa kibeera mu bantu abakulu, kitera okulabibwa wakati w’emyaka 20 ne 45.

Mu butuufu kino kika kya kookolo ekitali kya bulijjo. Kyokka, kye kika kya kookolo w’obwongo ekisinga okubeera mu baana . Businga kuzuulibwa mu baana abali wakati w’emyaka 5 ne 9.

Ebizimba bya Medulloblastoma bikula mangu era bisobola okusaasaana mu bitundu ebirala eby’obwongo n’omugongo nga biyita mu mazzi g’omu bwongo – amazzi amatangaavu ageetoolodde obwongo bwaffe n’omugongo.

Bubonero ki obulaga kino? Okitegeera otya?

Obubonero bwa Medulloblastoma buyinza okwawukana okusinziira ku muntu. Bisinziira ku bintu ng’emyaka gyo, obunene bw’ekizimba, n’obuwanvu bwe kikuze. Obubonero obumu buyinza okuva ku kifo ekizimba we kiri oba puleesa okweyongera munda mu kiwanga. Kirungi okukuuma eriiso ku bintu bino:

• Omutwe ogutera okulumwa: Kino kiyinza okuba eky’enjawulo ku omutwe ogwa bulijjo, era guyinza okuba ogw’amaanyi ennyo ku makya.
• Okuziyira n’okusiiyibwa: Embeera eno osobola okugiraba naddala ku makya.
• Ensonga z’okutebenkeza: Okuwulira nga totebenkedde ng’otambula, nga tosobola kuyimirira butereevu.
• Okukaluubirirwa okutambula: Obutasobola kuyimirira bulungi ku bigere, okukaluubirirwa okulinnya n’okukka amadaala.
• Okuziyira: Okuwulira ng’ebintu bikwetoloola.
• Enkyukakyuka mu kulaba: Okulaba okuzibuwalirwa okw’amangu, okulaba emirundi ebiri.
• Obukoowu: Okuwulira nga tokoowa ne bw’ofuna otulo otya.
• Obulumi bw’omugongo: Oluusi, obulumi bw’omugongo buyinza okubaawo singa kookolo asaasaana n’agenda mu mugongo.
• Obutasobola kufuga musulo n’omusulo:Ne bw’oba ​​olina obuyinza obulungi emabegako, singa ebizibu nga bino bibaawo mu bwangu, olina okweraliikirira. Mu baana abato, emirundi ‘obubenje’ giyinza okweyongera.

Totya obulwadde bwa medulloblastoma olw’okuba olina obubonero buno bumu oba bubiri. Kyokka bw’oba ​​n’obubonero buno obuwerako mu lunyiriri naddala mu mwana omuto, kiba kya magezi okugenda ew’omusawo akuwe amagezi.

Lwaki obulwadde bwa medulloblastoma bubaawo? Biki ebivaako?

Abasawo n’okutuusa kati tebamanyi bulungi kiki ekivaako obulwadde bwa medulloblastoma. Kyokka kizuuliddwa nti obuzibu obumu obw’obuzaale busobola okwongera ku bulabe bw’okubufuna. Kino kitegeeza nti enkyukakyuka ezimu ez’obuzaale eziyisibwa okuyita mu milembe zisobola okubaako kye zikola.

Wano waliwo embeera z’obuzaale ezongera akabi ng’ako:

• Enkyukakyuka mu buzaale bwa BRCA1: Oboolyawo owulidde ku buzaale bwa BRCA1 ne BRCA2. Proteins ze bakola ze zivunaanyizibwa ku kuddaabiriza DNA yaffe nga eyonoonese. Abantu abasikira enjawulo ezimu ez’obuzaale buno bali mu bulabe obw’okufuna ebika bya kookolo ebiwerako.
• `Nevoid basal cell carcinoma syndrome (NBCCS): Kino era kiyitibwa `Gorlin syndrome.` Eno nayo mbeera ya nsikirano. Abantu abalina kino balina emikisa mingi egy’okufuna kookolo w’olususu ow’obutoffaali obuyitibwa basal cell. Era balina emikisa gya 5% egy’okulwala obulwadde bwa medulloblastoma.
• Turcot syndrome: Abantu abalina embeera eno bayinza okufuna ekizimba mu busimu obw’omu makkati, gamba nga medulloblastoma oba pituitary adenoma, wamu ne kookolo w’olubuto olunene.
• Obulwadde bwa Li-Fraumeni syndrome: Abantu abalina embeera eno bali mu bulabe obw’okufuna kookolo w’amabeere, kookolo w’amabeere, ebika ebirala ebya kookolo w’obwongo (gliomas, choroid plexus carcinomas), kookolo w’endwadde z’ekibumba, ne kookolo w’omusaayi.

Embeera zino ez’obuzaale nzibu nnyo. Bw’oba ​​oyagala okumanya ebisingawo ku nsonga eno, kirungi n’oyogera n’omusawo.

Abasawo kino bakizuula batya?

Singa ggwe oba omwana wo mulina obubonero bwonna obwogeddwako waggulu, omusawo wo ajja kusooka kwogera naawe ku bubonero bwo era yeekenneenye ebyafaayo by’obujjanjabi bw’amaka go. Olwo singa bateebereza obulwadde bwa medulloblastoma, bajja kulagira okukeberebwa okuwerako okukakasa nti bazuuliddwa.

Ebigezo ki ebitera okukolebwa?

• Okukebera obusimu: Mu kino, omusawo ajja kukebera engeri gy’owuliramu, okulaba, okukwatagana kwo, n’engeri gy’owuliramu. Kino kiyinza okukuwa endowooza ku kitundu ki eky’obwongo ekikosebwa.
• `Ebigezo by'okukuba ebifaananyi`:Kuno kw’ogatta okukebera MRI (Magnetic Resonance Imaging) oba okukebera CT (Computed Tomography). Sikaani zino zisobola okulaba obulungi oba waliwo ekizimba munda mu bwongo, obunene bwe kiri ne wa we kiri.
• Okukebera ebitundu by’omubiri: Oluusi, abasawo bajja kwetaaga okuggya akatundu akatono ku bitundu by’omubiri okuva mu kizimba ne bakasindika ew’omusawo w’endwadde, omusawo mukugu mu kukebera ebitundu by’omubiri. Okukebera omubiri (biopsy) kutera okukolebwa singa ekizuuliddwa tekisobola kukakasibwa na sikaani zokka.
• Spinal tap (Lumbar Puncture): Mu nkola eno, omusawo alongoosa akwata akatundu akatono ak’amazzi g’omu bwongo n’agakebera oba temuli butoffaali bwa kookolo. Okukebera kuno kutera kukolebwa ng’ekizimba kimaze okuggyibwako oba puleesa eri munda mu bwongo okufugibwa.

Bujjanjabi ki obw’obulwadde bwa Medulloblastoma?

Enkola z’obujjanjabi zisinziira ku bintu bingi, omuli emyaka gyo, obulamu bwo okutwalira awamu, n’obunene bw’ekizimba. Emirundi egisinga, obujjanjabi obukulu obw’obulwadde bwa medulloblastoma kwe kulongoosa okuggyamu ekizimba. Kino kiyinza okugobererwa eddagala eriweweeza ku bulwadde bwa ‘chemotherapy’, erya radiation therapy oba byombi.

• `Okulongoosa`: Okulongoosa kuno kukolebwa `Omusawo alongoosa obusimu`. Kino kiyinza okukendeeza ku puleesa eri munda mu bwongo oba okuggyawo ddala ekizimba. Kyokka oluusi singa ekizimba kiba kisangibwa munda mu bwongo, mu bitundu ebizibu, kiyinza okuba ekizibu okukiggyawo ddala.
• Obujjanjabi bw’amasannyalaze: Obujjanjabi buno bukozesebwa okusaanyaawo obutoffaali bwa kookolo bwonna obuyinza okusigalawo oluvannyuma lw’okulongoosebwa. Oluusi kiweebwa nga kigatta wamu n’eddagala eriweweeza ku bulwadde bwa Chemotherapy.
• Chemotherapy: Obujjanjabi buno buweebwa omusawo akola ku bulwadde bwa kkansa. Eddagala lino liyinza okuweebwa oluvannyuma lw’okulongoosebwa, oluvannyuma lw’okuweebwa obujjanjabi obw’amasannyalaze oba awamu n’obujjanjabi obw’amasannyalaze. Mu mbeera ezimu, okukyusa obutoffaali obusibuka mu mubiri kuyinza okuweebwa oluvannyuma lw’okuweebwa eddagala.

Jjukira nti obujjanjabi buno bwonna busalibwawo ttiimu y’abasawo, era nga butuukagana n’embeera yo entongole.

Kitwala bbanga ki okuwona? (Obudde bw'okudda engulu)

Obuwanvu bw’obujjanjabi n’obudde bw’okuwona bwawukana okusinziira ku muntu. Bw’oba ​​olongooseddwa obwongo, ebiseera ebisinga kikutwalira wiiki nga nnya oba munaana okudda engulu . Bw’oba ​​olina eddagala eriweweeza ku ddagala oba ery’amasannyalaze, kiyinza okukutwalira wiiki eziwera oba n’emyezi. Kisinziira ku butonde bw’obulwadde. Okumanya obulungi ebbanga lye kinaatwala ggwe oba omwana wo, kirungi okwogera n’omusawo wo.

Ddi lwe nnina okulaba omusawo?

Bw’oba ​​ggwe oba omwana wo mulina obubonero bwonna obulagiddwa waggulu (gamba ng’okulumwa omutwe, okuziyira, okutabulwa, enkyukakyuka mu kulaba), laba omusawo amangu ago . Ate era bw’oba ​​wajjanjabwa dda obulwadde bwa medulloblastoma, tegeeza omusawo wo ku bizibu byonna by’ofuna. Ziyinza okuyamba okuddukanya obubonero bwo n’okukendeeza ku buzibu bwo.

Omuntu alina obulwadde bwa medulloblastoma ayinza kusuubira ki?

Waliwo ttiimu y’abasawo ennene okukuyamba mu mbeera eno. Mu bino mulimu:

• `Abasawo abajjanjaba kookolo`
• `Abasawo abalongoosa obusimu`
• `Abakugu mu by'endwadde`
• `Abajjanjabi b'omubiri`
• `Abakugu mu by'okukuba ebifaananyi`
• `Abasawo ba kkansa abakozesa emisinde`
• Abantu nga `Neuropsychologists` bayinza okuzingirwamu.

Bombi awamu, bakola enteekateeka y’obujjanjabi ey’obuntu ng’etuukana n’ebyetaago byo.

Medulloblastoma esobola okuwona?

Yee, mu mbeera ezisinga obungi. Wadde nga medulloblastoma mbeera eyinza okusaasaana mu busimu bwonna, abantu bangi basobola okuwona. Naddala singa kookolo tasaasaana mu bitundu by’obwongo ebirala n’omugongo, emikisa gy’okuwona giri waggulu.

Kino kitegeeza ki?

Omuwendo gw’emyaka etaano egy’okuwangaala olw’obulwadde bwa medulloblastoma gusukka ebitundu 80% . Kino kitegeeza nti abantu abasoba mu 80% abazuuliddwa nga balina obulwadde bwa medulloblastoma bakyali balamu oluvannyuma lw’emyaka etaano. Ebibalo bino byesigamiziddwa ku bivudde mu bantu ababadde n’obulwadde buno mu biseera eby’emabega.

Naye jjukira nti ebibalo bino tebisobola kukubuulira ddala kiki ekigenda okutuuka ku mbeera yo. Okumanya obulungi embeera yo n’engeri gy’odda engulu, kirungi okwogera n’omusawo wo.

Okuwulira ku kizimba ku bwongo kiyinza okukuzitoowerera mu mubiri, mu birowoozo, ne mu nneewulira. Naddala bwe kiba nga kikosa omwana wo, kiyinza okukuzitoowerera. Kyokka, waliwo obujjanjabi obukola obulungi, n’olwekyo waliwo essuubi . Buuza omusawo wo ku bujjanjabi obupya, gamba ng’okugezesa mu malwaliro. Ate era, yogerako n’omusawo wo ku bikozesebwa n’ebibiina ebiwagira ebiyinza okukuyamba. Mu kiseera kino ekizibu, kiyinza okukuwa amaanyi n’okubudaabuda ennyo okubeera n’abantu abayise mu bintu bye bimu naawe.

Mu bufunze, ebintu eby’okujjukira

Okay, kale ka tukujjukize ebimu ku bintu ebikulu bye twogeddeko ku medulloblastoma:

• Medulloblastoma kookolo w’obwongo asinga kubeera mu baana., naye n’abantu abakulu basobola okubufuna.
• Weegendereze obubonero ng’okulumwa omutwe, okusesema, n’okubulwa bbalansi.
• Wadde nga ekituufu ekivaako tekimanyiddwa , embeera ezimu ez’obuzaale ziyinza okubaako kye zikola.
• Obulwadde buno buzuulibwa nga bayita mu kukeberebwa nga MRI, CT scan, ne biopsy.
• Waliwo enkola z’obujjanjabi ng’okulongoosa, okukozesa eddagala, n’okujjanjaba amasannyalaze.
• Emikisa gy’okuwona giri waggulu , naddala singa ozuulibwa n’ojjanjabibwa nga bukyali.
• Bwoba olina obubonero bwonna totya kulaba musawo .

Nsuubira nti amawulire gano gakuyamba. Jjukira nti toli wekka. Bw’oba ​​olina ekibuuzo kyonna, tolwawo kwogera na musawo.

` Medulloblastoma, kookolo w’obwongo, kookolo w’abaana, enkola y’obusimu, obubonero bwa kookolo, obujjanjabi bwa kookolo, endwadde z’obuzaale