Omwana wo alina obubonero buno obw’ekyewuunyo? Ka tuyige ku bulwadde bwa multiple sclerosis (MS) mu buto!

Omwana wo omuto afuna obuzibu mu kutambula mu bwangu? Oba okulaba kwabwe kuzibu oba kuzibuwalirwa? Oluusi bino biyinza okuba ebintu ebitonotono ebijja. Wabula mu mbeera ezitali nnyingi, obubonero buno buyinza okuba obubonero obusooka obw’obulwadde bwe tutayogerako nnyo, naye nga kikulu nnyo okubumanya. Leero tugenda kwogera ku mbeera emu ng’ezo, eyitibwa `Multiple Sclerosis` oba `MS`, ekosa abaana abali wansi w’emyaka 18. Tofaayo, kino tujja kwogera mu ngeri ennyangu, mu ngeri gy’osobola okutegeera.

``Obulwadde bwa ``multiple sclerosis (MS)'' abaana bano bwe bafuna kye ki?

Mu ngeri ennyangu, buno bulwadde obuva ku baserikale b’omubiri obutakola bulungi. Abaserikale b’omubiri gwaffe balinga eggye erikuuma eggwanga. Omulimu gwayo kwe kukuuma omubiri gwaffe nga gulwanyisa obuwuka n’endwadde eziva ebweru. Wabula mu mwana alina `MS`, abaserikale bano bakola ensobi entono. Kitandika okulumba obutoffaali obulamu obw’omubiri gwakyo.

Okubeera omutuufu, obulumbaganyi buno butunuulira obusimu bw’omwana obw’omu makkati. Kwe kugamba, obwongo n’omugongo. Obusimu obuli mu bwongo n’omugongo bulina ekibikka ekiziyiza okwetooloola, ng’ekikuta ky’akaveera okwetooloola waya y’amasannyalaze. Kino okubikka tukiyita ``Myelin.'' ``Myelin'' kye kisobozesa obubaka okutambula amangu era obulungi okuyita mu busimu.

Mu MS, abaserikale b’omubiri balumba n’okwonoona obutoffaali buno obwa myelin. Kiringa ekikuta kya waya y’amasannyalaze ekisaliddwa mu bifo ebimu. Kino kireetera obubaka obuva ku bwongo okutuuka mu mubiri gwonna okuzibikira oba okutaataaganyizibwa.

Okwonooneka kwa myelin eno kuleeta obubonero ng’okunafuwa kw’ebinywa, obukoowu, okubulwa okujjukira, okukaluubirirwa okutambula, n’enkyukakyuka mu kulaba.

Teebereza omwana wo alina mukwano gwe ayitibwa Nilanthi. Nilanthi atandika mangu okuwulira obulumi mu liiso erimu, era okulaba kwe kukendeera. Bw’agilaga omusawo lw’amanya nti kayinza okuba akabonero akasooka ak’obulwadde bwa MS.

Mu kiseera kino tewali ddagala lya MS. Wabula waliwo obujjanjabi obulungi okufuga obubonero n’okukendeeza ku bulemu obw’ekiseera ekiwanvu obuva ku bulwadde buno. N’olwekyo tekyetaagisa kweraliikirira.

Bika ki ebya MS ebibeerawo mu baana?

Ekika kya MS ekisinga okubeera mu baana ye ``Relapsing-Remitting MS (RRMS) .`` Abaana nga 98% balina ekika kino. Mu mbeera eno, obubonero bujja mangu (flare-up/relapse), bumala akaseera, olwo ne bukendeera oba ne bubula ddala (remission). Bayinza okuddayo oluvannyuma lw’akaseera. Mu ngeri eno, obubonero bujja ne bugenda mu bulamu bw’omwana bwonna.

Ekika ekirala ye `Primary Progressive MS (PPMS)`.Kino tekitera nnyo kubeera mu baana. Ekibaawo obubonero bweyongera mpolampola ng’obudde bugenda buyitawo. Waliwo okulongoosa okutono mu biseera eby’enjawulo.

Bubonero ki obusooka obw’obulwadde bwa MS mu baana?

Abasawo bwe baba bazuula obulwadde bwa MS, bafaayo nnyo ku bubonero buno obusooka:

• Optic Neuritis: Eno mbeera ereeta obulumi mu liiso erimu oba gombi, wamu n’okubulwa okulaba. Okusingira ddala, obusimu bw’amaaso obuli munda mu liiso buzimba. Abaana abamu nabo bayinza okuba n’enkyukakyuka mu kulaba kwabwe okwa langi.
• Transverse Myelitis: Kino kye kiseera okuzimba mu kitundu ky’omugongo ne kireeta enkovu, ne kiziyiza obubonero bw’obusimu. Kino kiyinza okuvaako obubonero ng’obunafu mu bitundu by’omubiri, okuzirika, n’obutasobola kutambula.

Teebereza omwana wo katugambe erinnya lye ye Kavindu. Olunaku lumu, Kavindu bw'akomawo okuva ku ssomero, agamba nti, "Maama, amagulu gange mpulira nga gazibye." Oluvannyuma lw’akaseera, asanga obuzibu okutambula. Kino kiyinza okuba nga kiva ku bulwadde bwa Transverse Myelitis.

Bubonero ki obutera okulabika ng’obulwadde bwa MS mu baana?

Obubonero bwa MS busobola okwawukana okusinziira ku muntu. Ne mu mwana omu, obubonero buyinza okwawukana buli lunaku. Si buli muntu nti ajja kuba n’obubonero buno bwonna, naye ebiseera ebisinga batono bokka be bajja okulabibwa.

• Okuziyira, okuwunya (paresthesia) : Okuwulira kuno kuyinza okubaawo mu bitundu ng’emikono, ebigere, ne mu maaso.
• Okuziyira
• Okukaluubirirwa okutambula oba okukuuma bbalansi
• Obukoowu: Kino si bukoowu bwa bulijjo bwokka. Kye kuwulira ng’okooye ne bw’ofuna otulo otya.
• Obunafu bw’ebinywa
• Okukankana/okukankana
• Ebizibu by‟okussa ebirowoozo ku kintu oba okujjukira
• Ensonga z‟okulaba: gamba ng‟okulaba okuzibu oba okulaba emirundi ebiri.

Olw’okuba olina obubonero buno bumu oba bubiri, tokitwala nti MS. Wabula singa obubonero buno busigala oba omwana wo n’afuna obuzibu, kikulu okugenda mu basawo amagezi.

Kiki ekivaako abaana okufuna obulwadde bwa MS?

Ekisinga okuvaako MS ye demyelination . Twayogedde emabegako ku kikuta kya myelin. Demyelination kwe kwonooneka kw’ekikuta kya myelin.

Abaserikale b’omubiri gw’omwana waffe, olw’ensonga ezimu, basobya ekitundu kino ekiramu ekiyitibwa `Myelin` ng’ekintu eky’obulabe eri omubiri. Olwo n’etandika okugilumba. Obulumbaganyi buno bwonoona `Myelin`. Enkovu (abasawo gye bayita `ebiwundu` oba `ebiwundu`) zisobola okutondebwa mu bitundu bino ebyonooneddwa. Enkovu zino osobola okuziraba ne sikaani nga `MRI (Magnetic Resonance Imaging)`.

Myelin bw’eyonooneka, okutambuza obubaka okuva mu bwongo okutuuka mu bitundu by’omubiri eby’enjawulo kutaataaganyizibwa. Ekyo kye kivaako obubonero bwa MS.

Abanoonyereza n’okutuusa kati tebamanyi bulungi lwaki abaserikale b’omubiri beeyisa bubi bwe batyo.

Biki ebiyinza okuvaako abaana okulwala MS?

Kizuuliddwa nti ebintu ebimu ebikosa maama ng’ali lubuto biyinza okwongera ku bulabe bw’omwana we okufuna MS:

• Okukwatibwa obutwa: Okugeza, okubeera mu mukka ogukozesebwa, eddagala eritta ebiwuka n’ebirala.
• Ebirungo bya vitamiini D ebitono mu musaayi.
• Okukwatibwa yinfekisoni ezimu ez’akawuka: Okugeza, akawuka ka Epstein-Barr oba mononucleosis (era emanyiddwa nga obulwadde bw’okunywegera).
• Obunene.

N’olwekyo kikulu nnyo okubeera omulamu obulungi ng’oli lubuto. Okugoberera amagezi g’abasawo kiyinza okukendeeza ku bulabe buno.

Bizibu ki ebiyinza okuva mu MS mu buto?

Abaana basobola okufuna ebizibu ebimu olw’obulwadde bwa MS. Bino bitera obutalabika mangu, era biyinza okubikosa nga batuuse mu bukulu.

• Okukaluubirirwa okutambula nga toyambiddwa.
• Okwennyamira n’Okweraliikirira.
• Okukaluubirirwa okukola emirimu gy’essomero.
• Okukwatagana obubi kw’emikono.
• Okukaluubirirwa okufuga omusulo oba omusulo (obutakwata musulo).

Ebintu bino byonna tebikwata ku buli mwana, naye kikulu okumanya ebintu bino osobole okufuna obuyambi mu bwangu bwe kiba kyetaagisa.

Abasawo bazuula batya obulwadde bwa MS mu baana?

Omusawo azuula omwana alina obulwadde bwa MS ng’akola okukebera omubiri, okukebera obusimu, n’okukeberebwa okulala okw’enjawulo okuwerako . Mu kukeberebwa kuno, omusawo ajja kukubuuza ebibuuzo ku bubonero bw’omwana wo n’okumanya oba waliwo omuntu yenna mu maka go eyabadde n’obulwadde buno.

Okukebera okuzuula obulwadde era kuyamba okugoba embeera endala ezirina obubonero obufaananako ne MS. Ebigezo bino mulimu:

• Okukebera omusaayi n’okukebera omusulo.
• Okukebera ebifaananyi nga MRI (Magnetic Resonance Imaging) scans (waliwo n’okukebera okutunuulira obusimu bw’eriiso, gamba nga Optical Coherence Tomography).
• Okufumita mu kifuba:Mu kino, agamu ku mazzi ageetoolodde omugongo gatwalibwa ne geekebejjebwa.
• Evoked Potential (EP) Test: Kino kipima sipiidi obubaka gye butambulira mu busimu.

Olw’okuba obubonero bwa MS bufaananako n’obw’endwadde endala nnyingi, kiyinza okutwala ekiseera okuzuula embeera yennyini. Kino kiyinza okukutawaanya abazadde katono, era kiyinza okwetaagisa okugenda ew’omusawo emirundi mingi. Kyokka, bwe bamala okuzuula omwana mu ngeri entuufu, kisoboka okujjanjaba obulungi omwana wo n’okumuyamba okuba n’obuto obw’essanyu era obutataataaganya nnyo.

Abaana abato basobola okutegeera `MS`?

Obubonero bwa MS tebulabika ng’azaalibwa. N’olwekyo, tekisuubirwa nnyo nti omwana ajja kuzuulibwa ng’alina obulwadde bwa MS. Obubonero bweyoleka ng’omwana akula. Embeera eno etera okutandika mu myaka gy’obuvubuka. Ebiseera ebisinga, obulwadde buno buzuulibwa nga tebannaweza myaka 16.

MS ejjanjabwa etya mu baana?

Obujjanjabi obukulu obw’obulwadde bwa MS obuddamu okuwona (RRMS), obutera okubeera mu baana, bwe bujjanjabi obukyusa endwadde (DMT). Eddagala lino erya DMT lifuga enkulaakulana y’obulwadde era ne likendeeza ku mirundi gy’obubonero. Eddagala erimu eryakkirizibwa ekitongole kya FDA (Food and Drug Administration) lye ddagala eriyitibwa fingolimod . Kirungi eri abaana ab’emyaka 10 n’okudda waggulu. Mu kiseera kino DMT endala zisomesebwa okukozesebwa mu baana.

Okugatta ku ekyo, abasawo era bajjanjaba obubonero obw’enjawulo obw’omwana. Mu bino biyinza okuli:

• Occupational Therapy: Eyamba mu mirimu gya buli lunaku.
• Obujjanjabi bw’omubiri: Buyamba okukulaakulanya amaanyi g’omubiri n’okutebenkera.
• Obujjanjabi bw’okwogera: Bw’oba ​​olina obuzibu okwogera oba okumira.
• Ebigezo by’obusimu n’obujjanjabi: Ayamba mu bintu ng’okujjukira, okufaayo, n’okuyiga.

Singa obulwadde buba bukosezza omwana okujjukira n’obusobozi bw’okulowooza (cognitive function), obuyambi obw’enjawulo buyinza okwetaagisa ku ssomero.

Oyinza n’okufuna omukisa okwetaba mu kugezesebwa okw’obujjanjabi okugezesa obujjanjabi obupya. Omusawo wo ajja kukubuulira ebisingawo ku nsonga eno.

Ddi lwe nnina okulaba omusawo w’omwana wange?

Singa omwana wo akubuulira ku kuziyira, enkyukakyuka mu kulaba oba obubonero obulala bwonna obutali bwa bulijjo, kikulu okwogera n’omusawo w’omwana wo amangu ago. Okuzuula amangu MS kisingako. Abasawo basobola okwekebejja omwana wo ne bazuula ekkubo erisinga obulungi okusobola okuzuula obulwadde buno.

Oluvannyuma lw’okuzuula obulwadde buno, ggwe oba omwana wo mulina okutegeeza ttiimu y’abasawo singa wabaawo obubonero obupya obulabika oba singa obubonero bweyongera mu bwangu (flare-up).

Ebiseera by’omu maaso by’abaana abalina MS mu buto bye biruwa?

Okutwalira awamu abaana abazuuliddwa nga balina MS basobola okuba n’endowooza ennungi ku biseera eby’omu maaso. Waliwo obujjanjabi okukendeeza ku mirundi n’obuzibu bw’obubonero. Okuziyiza obulemu obw’ekiseera ekiwanvu, obulwadde buno bulina okuddukanyizibwa obulamu bwonna. Omwana wo ajja kwetaaga okusisinkana ttiimu yaabwe ey’abasawo ba MS buli kiseera obulamu bwe bwonna.

Abaana abamu abalina obulwadde bwa MS obuddamu okuwona (RRMS) basobola okufuna embeera eyitibwa secondary progressive MS (SPMS) nga bakuze. Wano obubonero bwe bugenda bweyongera mpolampola. Wabula okunoonyereza kulaga nti abantu abazuulibwa nga balina MS mu buto balina obulwadde buno bugenda mpola okusinga abo abafuna SPMS mu bukulu.

MS ejja kukosa obulamu bw’omwana wange ku ssomero?

Olw‟okuba MS esobola okukosa omwana okujjukira n‟obukugu bw‟okulowooza (cognitive function), omwana ayinza okufuna okusoomoozebwa mu mirimu gy‟essomero. N’olwekyo, kirungi okukola waakiri okukeberebwa okumu okw’obusimu n’eby’omwoyo. Oluvannyuma lw’ekyo, kikulu okwogera n’abasomesa b’omwana buli kiseera. Osobola okufuna obuwagizi okuyamba omwana okugenda mu maaso ku sipiidi ye n‟okutuuka ku biruubirirwa bye eby‟okusoma.

Abaana bangi abalina MS bakwatagana bulungi n’abaana abalala ab’emyaka gyabwe. Basobola okuzannya n’okwetaba mu mirimu ng’abaana abalala.

Bw’oba ​​olina ekibuuzo kyonna, omusawo ajja kukubuulirira oba emirimu egimu tegirina bulabe eri omwana.

Ng’omuzadde, oyinza okweraliikirira ennyo ng’okitegedde nti omwana wo alina obulwadde bwa MS. Ekyo kya bulijjo. Naye jjukira nti emisango egisinga egya MS egikwata abaana giba gya kuddamu kuddamu (RRMS). Kino kitegeeza nti obubonero bujja ne bugenda. Omusawo asobola okukola enteekateeka y’obujjanjabi okukendeeza ku mirundi n’obuzibu bw’obubonero. Wadde nga MS bulwadde bwa bulamu bwonna nga tebulina ddagala, singa buddukanyizibwa bulungi, osobola okuyamba omwana wo okuzannya n’okuyiga nga tasalako kitono.

Obubaka Obutwala Awaka

• MS mu baana mbeera abaserikale b’omubiri gye balumba myelin mu busimu.
• Obubonero bwa njawulo, era buyinza okuli obuzibu mu kulaba, okuzirika, okukaluubirirwa okutambula, n’okukoowa.
• Obulwadde buno busobola okufugibwa nga buzuuliddwa nga bukyali n’okubujjanjaba nga `DMT`.
• Omwana ayinza okwetaaga obuyambi obw’enjawulo ku ssomero ne mu bulamu obwa bulijjo, naye abaana abasinga basobola okubeera mu bulamu obwa bulijjo.
• Omwana wo bw’aba alina obubonero bwonna obutali bwa bulijjo, genda mangu omusawo amagezi. Tosattira, ng’olina amawulire amatuufu n’obuwagizi, osobola okugumira embeera eno.

`MS mu buto, Multiple Sclerosis, Enkola y’obusimu, Myelin, Abaserikale b’omubiri, Obubonero, Obujjanjabi