Emisuwa eminene egy’omutima gw’omwana wo gikyusiddwa? (Transposition of the Great Arteries) - Ka twogere ku nsonga eno!

Kizibu okuteeka mu bigambo okutya n’ennaku by’owulira ng’owulira nti omwana wo eyaakazaalibwa alina obulwadde bw’omutima, si bwe kiri? Naye teweeraliikiriranga. Oluusi abalongo basobola okuba n’emisuwa ebiri emikulu mu mitima gyabwe nga gikyusiddwa nga bazaalibwa. Leero twogera ku mbeera emu ng'ezo, eyitibwa `(Transposition of the Great Arteries)`. Kino kiyinza okulabika ng’ekizibu katono, naye ka tukikuume nga kyangu.

Transposition of the Great Arteries kye ki?

Mu ngeri ennyangu, eno mbeera ya ``congenital`` ebeerawo ng'omwana azaaliddwa. Kwe kugamba, obuzibu buno bubaawo ng’omwana akyali mu lubuto lwa maama. Tulina emisuwa emikulu ebiri egitambuza omusaayi okuva ku mutima gwaffe okutuuka mu mubiri gwaffe gwonna. Ekimu gwe musuwa gw’amawuggwe, ogutwala omusaayi mu mawuggwe , ate omulala gwe musuwa oguyitibwa aorta, ogutwala omusaayi mu mubiri gwaffe gwonna . Ekibaawo mu mbeera eno kwe kuba nti emisuwa gino eminene ebbiri giyungiddwa ku mutima mu bifo ebikyamu, so si mu bifo ebituufu. Kiringa payipu ezigenda mu ttanka z’amazzi bbiri bwe zikyusibwa.

Mu budde obwa bulijjo omusaayi gutambula gutya? Kiki ekibaawo mu mbeera eno?

Mu budde obwabulijjo, kino kye kibaawo: omusaayi gw’omubiri ogutaliimu mukka gwa oxygen (omusaayi ogwa bbululu) gugenda ku mutima, okuva awo ne gugenda mu mawuggwe okulonda omukka gwa oxygen. Olwo omusaayi omupya ogulimu omukka gwa oxygen (omusaayi omumyufu) ne gudda ku mutima, okuva awo ne gugenda mu mubiri gwonna nga guyita mu misuwa eminene. Naye mu mbeera eno eya ``Transposition of the Great Arteries'', olw'okuba emisuwa gyombi gikyusibwa, omusaayi ogutaliimu mukka gwa oxygen gudda mu mubiri mu kifo ky'okugenda mu mawuggwe. Mu ngeri y’emu, omusaayi ogulimu omukka gwa oxygen oguva mu mawuggwe gudda mu mawuggwe mu kifo ky’okugenda mu mubiri. Teebereza engeri kino gye kinaatuuka ku mukka gwa oxygen omutono mu bitundu by’omwana.

Waliwo ebika bya kino?

Yee, kino kirina ebika bibiri ebikulu: 1. Levo-transposition (Levo-transposition oba l-TGA): Mu mbeera eno, omusuwa gw’omwana guba ku ludda olwa kkono olw’omusuwa gw’amawuggwe. Mu mbeera eno, si misuwa gyokka gyokka, wabula n’ebisenge ebya wansi eby’omutima bye bikyusibwa. Wabula mu kika kino, omusaayi ogutaliimu mukka gwa oxygen gugenda mu mawuggwe ate omusaayi ogutaliimu mukka gwa oxygen ne gugenda mu mubiri, kale teguleeta bulabe bungi. Kino kitono nnyo. 2. Dextro-transposition (Dextro-transposition oba d-TGA): Mu mbeera eno, omusuwa gw’omwana guba ku ludda olwa ddyo olw’omusuwa gw’amawuggwe. Kino kye kika ekisinga okubeerawo, era era kye kika ekyetaaga okufaayo ennyo. Tujja kwogera ebisingawo ku `(d-TGA)` eno mu kiwandiiko kino.

Lwaki embeera eno eyitibwa d-TGA ya bulabe eri abalongo?

Nga bwe nnagambye emabegako, mu nsonga ya `(d-TGA)`, omubiri gw'omwana gujjudde omusaayi ogutaliimu oxygen. Kino kitegeeza nti ebitundu byonna ebikulu eby’omwana, gamba ng’obwongo, ensigo, n’ekibumba, tebifuna mukka gwa mukka ogwetaagisa. Kino kyabulabe nnyo eri obulamu bw’omwana. Oluusi, abalongo bano bwe bazaalibwa, wayinza okubaawo ekituli wakati w’ebisenge ebya waggulu eby’omutima `(Atrial Septal Defect oba ASD)` oba ekituli wakati w’ebisenge ebya wansi eby’omutima `(Ventricular Septal Defect oba VSD)`. Wadde ng’ebituli bino ddala mbeera za njawulo, mu mbeera ng’ezo, ebituli bino tebiyinza kuyamba nnyo. Kwe kugamba, ebituli bino bisobozesa omusaayi ogumu ogulimu omukka gwa oxygen okutabula n’omusaayi ogutalina mukka gwa oxygen. Kyokka obungi bwa oxygen afunibwa tebumala n’akatono. N’olwekyo, omwana mazima ddala yeetaaga obujjanjabi.

Teweeraliikiriranga, waliwo okulongoosebwa ku mbeera eno. Abasawo bamaze emyaka nga bakola bulungi okulongoosa kuno.

Bubonero ki obulaga nti omwana wo alina embeera eno? (Obubonero)

Abalongo abalina `(d-TGA)` bayinza okufuna embeera eyitibwa `(cyanosis),` nga eno langi ya bbululu/enzirugavu ey'olususu olw'obutaba na mukka gwa oxygen. Era bayinza okuba n’omutima omunafu. Obubonero obukulu bwe buno:

• Okukaluubirirwa okussa .
• Omukka gw’omukka gunafu nnyo.
• Alaga obutayagala n’okukaluubirirwa okunywa amata.
• Omutima gwange guwulira nga gukuba nnyo, nga gukuba nnyo.
• Olususu n’enjeru z’amaaso biyinza okulabika nga bbululu (mu baana abalina olususu olutangaavu) oba enzirugavu (mu balongo abalina olususu oluddugavu).

Obubonero buno butandika ddi?

Omwana alina `(d-TGA)` ajja kutandika okulaga obubonero buno nga azaalibwa. Wabula oluusi, olw’ebintu nga `(ASD)`, obutuli obutono mu mutima gw’omwana busobola okuvaako omusaayi ogumu ogulimu omukka gwa oxygen okutuuka mu mubiri, kale obubonero buyinza obutalabika nnyo. Ekirala, `(patent ductus arteriosus)`, omusuwa gw’omusaayi omwana gw’akozesa ng’ali mu lubuto, gusobola okusigala nga guggule okumala ennaku ntono oluvannyuma lw’okuzaalibwa, ekivaako omusaayi okutabula. Kyokka ebituli bino eby’ekiseera n’emisuwa bwe bimala okuggalwa, obubonero buno busobola okweyongera mu bwangu. Mu mbeera eyo, omwana yeetaaga okujjanjabibwa mu bwangu.

Lwaki kino kigenda mu maaso? (Ensonga)

Abasawo n’okutuusa kati tebamanyi bulungi kiki ekivaako Transposition of the Great Arteries. Okufaananako n’endwadde endala ez’omutima ezizaalibwa, kirowoozebwa nti kiva ku nkyukakyuka mu buzaale oba okukwatibwa obutwa ng’oli lubuto. Ebimu ku bintu ebiyinza okuvaako embeera eno mulimu:

• Singa walina ssukaali ow'olubuto ng'oli lubuto .
• Singa ofuna obulwadde nga Rubella ng’oli lubuto.
• Bw’oba ​​obadde ofunye eddagala erimu eritta ebiwuka oba eddagala ly’omuddo.
• Bw’oba ​​obadde omira eddagala erimu erijjanjaba obulwadde bw’okusannyalala.

Ebintu bino tobitya. Si buli muntu abadde n’ekimu ku bintu bino nti kino ajja kukifuna.

Abasawo kino bakizuula batya ? (Okuzuula obulwadde)

Oluusi, abasawo basobola okuzuula embeera eno ng’okyali lubuto. Kino kikolebwa nga bayita mu kukeberebwa nga tebannazaala. Singa omusawo ateebereza nti waliwo ekikyamu mu kiseera ky’okukebera omwana wo mu ddoboozi ery’omwanguka, ayinza okukusaba okukeberebwa omutima gw’omwana mu lubuto. Kino kifaananako n’eky’okukebera (ultrasound) naye kitunuulira omutima gw’omwana mu bujjuvu. Kino kiyinza okukakasa oba olina d-TGA. Singa tebuzuulibwa ng’oli lubuto, ebiseera ebisinga buzuulibwa mu wiiki esooka oluvannyuma lw’okuzaalibwa.

Kino kigezo ki ekikolebwa?

Ebigezo abasawo bye bakozesa okukakasa embeera eno bye bino:

• Echocardiogram (Echo): Kino nakyo kibeera kya ultrasound scan y’omutima.
• Electrocardiogram (EKG): Okukebera okutunuulira enkola y’amasannyalaze g’omutima.
• Okukebera abalongo (newborn pulse oximetry screening): Kino kitera okukolebwa ku baana bonna abaakazaalibwa.
• Okukebera X-ray mu kifuba.
• Okussa omutima: Kino kigezo kizibu nnyo. Tubu ennyimpi ( catheter ) eyingizibwa okuyita mu kigere oba omukono mu mutima. Kino kikolebwa singa ebigezo ebirala tebitegeerekeka bulungi.
• Okukebera CT (CT scan) kwe kukebera.

Kino okijjanjaba otya? Omwana wo yeetaaga obuyambi mangu!

Omwana azaalibwa ne `(d-TGA)` alina okulongoosebwa okusobola okuwangaala. Ebiseera ebisinga, okulongoosa kuno kukolebwa mu wiiki esooka ng’azaalibwa. Okulongoosa kuno kuyitibwa enkola y'okukyusa emisuwa . Mu ngeri ennyangu, kino kizingiramu okuddamu okuyunga emisuwa ebiri egyakyusibwa (omusuwa gw’omusaayi n’omusuwa gw’amawuggwe) okudda mu bifo byabwe ebituufu. Kino kisobozesa omusaayi okutambula obulungi. Omwana wo bw’aba n’ekituli ku mutima gwe, gamba nga `(VSD)`, ekyo nakyo kijja kuddaabirizibwa mu kiseera kino eky’okulongoosebwa.

Ebintu eby’akaseera obuseera by’olina okukola nga tonnalongoosebwa

Abasawo bakozesa obujjanjabi obuwerako obw’ekiseera okutebenkeza embeera y’omwana okutuusa ng’alongooseddwa ennyo. Mu bino mulimu:

• Prostaglandin: Eddagala lino likozesebwa okuggulawo ductus arteriosus, omusuwa gw’omusaayi omwana gwe yalina mu lubuto kyokka ne guggalawo ng’amaze okuzaalibwa. Kino bwe kiggulwawo, omusaayi ogumu ogulimu omukka gwa oxygen gutandika okukulukuta mu mubiri.
• Enkola eyitibwa Balloon atrial septostomy:Mu kino, ttanka ennyimpi (catheter) ekozesebwa okugaziya ekifo eky’obutonde wakati w’ebisenge bibiri ebya waggulu eby’omutima. Kino kisobozesa omusaayi ogulimu omukka gwa oxygen n’ogutaliimu mukka gwa oxygen okutabula, ne guwa omubiri omukka ogubalagala.

Embeera eno esobola okuziyizibwa?

Tewali ngeri emanyiddwa ey’okuziyiza Transposition of the Great Arteries. Wabula kikulu okugoberera enkola ennungi ey’ebyobulamu ng’oli lubuto. Funa amasasi go gonna mu budde, mira eddagala lyo erya multivitamin, era kuuma essaawa z’omusawo. Singa omuntu yenna mu maka go alina ebyafaayo by’obulwadde bw’omutima obuzaalibwa, yogerako n’omusawo wo. Ayinza okumuwa amagezi okubudaabudibwa ku buzaale.

Kiki ekibaawo oluvannyuma lw’okulongoosebwa? Engeri y'okubeera ne TGA

Wadde ng'okulongoosa "tekuwonya" ddala mbeera eno, abantu bangi abalina `(d-TGA)` babeera mu bulamu obujjuvu, obulungi. Wabula abo abalina embeera eno eya `(congenital)` beetaaga okulabirirwa omusawo obulamu bwabwe bwonna. Omusawo w’omutima ajja kulondoola embeera y’omwana wo buli kiseera era n’akuwa amagezi gonna ageetaagisa. Omuwendo gw’abawona oluvannyuma lw’okulongoosebwa `(arterial switch)` gusukka ebitundu 95%. Kigambibwa nti omuwendo guno gusigala gwe gumu ne bwe guweze emyaka 25.

Omwana wo asobola okubeera obulungi ne TGA?

Yee, ddala. Oluvannyuma lw’okujjanjabwa embeera `(Transposition of the Great Arteries)`, omwana wo asobola okubeera n’obulamu obwa bulijjo. Kyokka omutima gwetaaga okufaayo obulamu bwonna. Ekyo kitegeeza nti:

• Olina okukwatagana buli kiseera n’omusawo w’omutima mukugu mu mbeera ez’ekika kino.
• Olina okumira eddagala lye bakulagidde ddala.
• Ebigezo ebikebera enkola y’omutima, nga `(EKG), `(Holter monitor), `(exercise stress tests), ne `(echocardiogram),' bijja kwetaaga okukolebwa buli kiseera.

Abasawo b'omutima bangi tebakuwa magezi kuzannya mizannyo gya kuvuganya oluvannyuma lw'okulongoosebwa `(d-TGA)`. N’olwekyo, ggwe n’omwana wo, omusawo w’abaana n’omusawo w’omutima mulina okukolera awamu okusalawo ekisinga obulungi ku bulamu bw’omwana wo. Abakyala bangi abalongooseddwa `(d-TGA)` bazadde bulungi abaana. Wabula olina okwogera n’omusawo wo n’omusawo w’omutima nga tonnafuna lubuto.

Mu biseera eby’omu maaso kinaaba kyetaagisa okulongoosa omutima okusingawo?

Yee, kiyinza okwetaagisa okulongoosebwa okusingawo oluvannyuma. Ebiseera ebisinga, ziba za kutereeza kizibu ky’okukuba kw’omutima oba okuddaabiriza obusuwa bw’omutima.

Waliwo akabi k’okulwala endwadde z’omutima?

Endocarditis mbeera ebaawo ng’obulwadde bwa bakitiriya buyingidde mu mutima. Abantu abalina embeera z’omutima nga TGA batera okufuna kino. N’olwekyo, abantu abalongooseddwa okukyusa amannyo bayinza okwetaaga okumira eddagala eritta obuwuka nga tebannajjanjabwa mannyo.

Kiyinza okukosa enkula y’obwongo?

Abaana abamu ababadde n’okukyusa emisuwa bayinza okuba nga balina ADHD (attention deficit hyperactivity disorder). Oba bayinza okwetaaga obuyambi obw’enjawulo ku mirimu gy’essomero. Kino nakyo kimanye.

Ddi lwe nnina okulaba omusawo?

Singa omwana wo alina obubonero buno...

• Bw’owulira ng’olina obuzibu mu kussa.
• Singa pulse eba nnafu nnyo.
• Singa olususu okwetoloola akamwa lufuuse bbululu/mweru.

Bw’olaba ekintu nga kino, laba omusawo mu bwangu.

Singa olongoosebwa kuno ng’okyali mwana muto...

Ojja kwetaaga okukeberebwa abasawo buli kiseera n’okulondoola obulamu bwo bwonna. Laba omusawo w’omutima alina obumanyirivu mu bulwadde bw’omutima obw’abantu abakulu (obuzaalibwa).

Bibuuzo ki by’osaanidde okubuuza omusawo?

Omwana wo bw’aba alina Transposition of the Great Arteries, osobola okubuuza omusawo ebibuuzo bino:

• Omwana wange yeetaaga okulongoosebwa mangu?
• Bujjanjabi ki obusinga obulungi?
• Omwana wange yeetaaga ndabirira ya ngeri ki ey’okugoberera?
• Anaalina okulongoosebwa omulundi omulala?
• Waliwo obukwakkulizo bwonna ku mirimu gye?
• Nnalabirira ntya omwana wange oluvannyuma lw’okulongoosebwa?

Bw’oba ​​walongoosebwa olw’embeera eno ng’okyali mwana muto, osobola okubuuza omusawo wo nti:

• Nnaaba nneetaaga okulongoosebwa okulala?
• Kika ki eky’okulabirirwa kw’abasawo kye nneetaaga?
• Waliwo obukwakkulizo bwonna ku mirimu gyange?
• Nsobola okuzaala omwana?

N’ekisembayo, ekisinga obukulu (Obubaka bw’okutwala awaka) .

Okuzuula nti omwana wo omuwere alina obulwadde bw’omutima obuzaaliranwa si kintu omuzadde yenna ky’asuubira. Kiyinza okumenya omutima. Naye, toli wekka. Abasawo b’omwana wo basobola okukuyamba mu lugendo luno n’okukulambika mu kusalawo kw’osalawo.

Jjukira nti abasawo bamaze emyaka nga bajjanjaba abalongo nga bakozesa TGA, era ebivaamu biba birungi nnyo. Beera mugumu ku lw’omwana wo. Totya kubuuza musawo wo bibuuzo ku kintu kyonna ky’ototegeera oba ky’otokakasa. Okumanya kwo ge maanyi g’omwana wo agasinga okubeera n’ebiseera eby’omu maaso ebirungi.

Okukyusa omutima, obulwadde bw’omutima obuzaalibwa, okulongoosa okukyusa emisuwa, cyanosis, obulwadde bw’omutima mu baana abawere, d-TGA, okulongoosa omutima