Khawvel zai intihsiaknaa hnehna a chan hnua a nun hrehawm titu ruh natna: Ankylosing Spondylitis (AS) chungchanga hriat tur

I hnungzang leh ruh natna i nei fo em? Zing khum atanga i tho chuan i rilru a hah a, i rilru a hahdam lo em? Hei hi hahna leh tarna nena lo awm thil pangngai tak niin i ngai mai thei. Mahse natna zawng zawng hi a pangngai vek lo. Vawiin hian chutiang thawnthu kan sawi dawn a ni. Hei hi khawvel huapa zai thiam hmingthang Alicia Graff Mack chanchin a ni. Hei hi natna pakhat chungchang a ni a, a zai lam a nghawng nasa hle a, a titawp a, mahse a tawpah chuan a tichak zawk a ni.

'Olympian ang maiin training ka nei a, mahse a natna chu a reh lo'.

Alicia hi kum 10 vel a nih laiin doctor-te chuan a khup aṭanga tui an chhuah hmasak ber a ngai a. Chumi hnuah chuan kum sawm chuang zet chu natna a tuar tawh a, operation vawi tam tak a nei tawh a, professional dancer anga a hun hlu tak chu rukbo a ni tawh bawk. Eng thil nge a chhan dik tak tih hriat nan hun rei tak a ngai a ni. He natna hi Ankylosing Spondylitis (AS) a ni. A awlsam zawngin sawi ila, kan taksa immune system-in kan ruhkawr a beih hian arthritis natna a ni.

Ni engemaw zat chu a khup chu lemon ang maiin a hring chhuak thin. A kal tha thei lo bawk. Zai nana a hman thin kekawr bik ha chunga zai tur pawh a ngaihtuah thei lo.

"Dancer ka ni tawh ngai lovang," tiin a ngaihtuah vawi chhiar sen loh a awm.

A naupan lai, zai thiam tak anga training a neih lai khan heng symptoms te hi a ngaihven vak lo. A sawi angin, "Olympian ang maiin ka training a. Chuvangin natna leh natna neih hi thil pangngai a ni. Chutiang chu dancer tam zawkah chuan a thleng fo thin."

Mahse a symptoms chu a zual sauh sauh a. A khup ruh (cartilage)-a mittui tla tlemte operation leh physical therapy hnuah pawh a natna chu a reh lo. Subway station thlengin enkawlna dawng turin kein a kal thei lo.

"Operation hnu thla ruk vel chhung chu tumahin chhanna min pe thei lo. Ka nun pumpui mumang chu ka taksa hriselnaah a innghat a ni. Ka nun hnuai berah ka awm tak zet a ni," a ti.

Ankylosing Spondylitis (AS) hi eng nge ni tak tak?

Okay, he AS an tih condition hi eng nge a nih kan en ang. Autoimmune natna a ni . Chu chu kan taksa natna laka humhimtu system chuan kan taksa hrisel tak tak, a bik takin ruhkawrte chu a rawn bei tan ta tihna a ni.

AS hian ruhro (spine) ruh (spine) a nghawng ber a ni. Hei vang hian zing lamah hnungzang khauh leh na a awm thin. Hun kal zelah heng ruhte hi a inzawm khawm thei a, ruhro pawh a inthlak danglam thei lo thei bawk. Mahse, ruhroah chauh a innghat lo. Taksa ruh dang, khup, hip, leh ke ruh te pawh a nghawng thei bawk. Hei hi Alicia chunga thil thleng chu a ni.

He natna hi hriat a harsat chhan pakhat chu a lan chhuah hmasak dan hi taksa natna pangngai nen a inang hle a ni.

Nun hian kawng dang a zawh a, mahse ka mumang chu ka bansan lo.

A zai duhthusam chu a bo zel a, Alicia chuan nun danglam tak a ngaihtuah tan ta a. Arts administration lama career neih tumna nen university-ah a inziak lut a ni. Chutih lai chuan physiotherapy leh damdawi a dawng chhunzawm zel a. Zawi zawiin a taksa chu a chak chho ta zel a. University a zir kum tawp ber a nih meuh chuan zai class-ah a kir leh thei ta a, chu chu a hlim theihna tur chauh a ni.

A zir zawh hnua company tha takah hna a zawn laiin, summer off khat chu a nei a. New York-a dance company lar tak pakhat chu a pan a, administration emaw marketing department emaw-ah hna hmuh a beisei a ni.

Mahse chu pawl dintute chuan ngaihdan dang an nei a. "I zai leh tih kan hria. Italy-ah tour kan nei a, kan zai zinga pakhat chu accident a tawk tawh bawk. Min rawn zawm leh thei ang em?"

Alicia chu a tirah chuan a hlauthawng hle mai. Full-time a zai leh concert-a a zai tawh lohna chu a rei tawh hle. Mahse hei hi a chance hnuhnung ber a ni mai thei. "Ka dam chhung zawng hian desk-ah ka thu dawn a ni. Chumi hma chuan hetiang hi tih ka duh a ni,' tiin ka ngaihtuah a ni."

Chu hun remchang chu hmang tangkaiin dance floor-ah a kir leh ta a ni.

Mit lama harsatna a awm tih hriat chian dan dik

Hun a kal zel a, Alicia mit chu a fiah tan a, a mit chu a sen a, a na bawk. Hei hi AS a vei tih chhinchhiahna hmasa ber a ni.

A mitmeng chuan uveitis , mit natna (inflammation of the eye) tih natna a lo nei tawh a. A rheumatologist chuan AS vei zingah uveitis hi a awm fo tih a sawifiah a. Hei hi a dinhmun chu AS a ni tih finfiah theihna awmchhun a ni a, reactive arthritis a ni lo.

Diagnosis dik tak a neih chuan a tana tha tur enkawlna a tan ta a ni. Natna tidanglam thei damdawi (DMARD) Adalimumab (Humira) ang chi chu a ei tan a. Mahse, harsatna thar a lo thleng ta a ni. “Ram hrang hrangah injection syringe hmangin ka zin a ngai a. Darkar 18 chhung thlawhnaah chuan an vawt tir a, ka awmna hotel-ah refrigerator an nei em tih enfiah te, damdawi chu a hun taka hotel-a thlentir te... chu chu a takin zai a ni!” nui chung hian a ti a.

Enkawlna dik tak a neih chuan kum 5-6 chhung zet chu professional takin a zai leh thei ta a ni. "Ka beisei ngai loh malsawmna a ni," a ti. Tunah chuan khawvel hriat hlawh Juilliard School-a dance department hotu leh director a ni tawh.

"Humira hi ka la ei reng a, natna a lo chhuah chuan prednisone ang chi damdawi round khat ka ei thin," a ti. "Ni tam zawkah chuan ka hnungzang leh hip hi a nghet tak zet a ni. Mahse, ka theih ang tawkin ka active reng a ni."