Ankylosing spondylitis, a tawi zawngin AS hmanga nun hi a chang chuan a harsa thei tih ka hria. A tuar tawh chuan hnungzang leh ruh na reng reng leh zing lama natna hrik awm reng reng chunga ni khat chhunga kal chu a harsat zia an hria. Mahse, nangmah chauh i ni lo. He zinkawng chungchangah hian kawng leh hmanraw tam tak a awm a, chu chuan a pui thei che a, chakna a pe thei che a, thu thar a pe thei bawk che a ni. Chu chu vawiina kan sawi tum chu a ni.
Engvângin nge hetiang ṭanpuina hi i tân a pawimawh?
A awlsam zawngin AS hi thil awm lo tak a ni a, i nun kawng tam takah nghawng a nei thei a ni. Chronic condition a nih avangin a hun taka damdawi ei a, a nunpui zir a pawimawh. Hei hi support group leh information source rintlak tak takte hman tangkaina hmun a ni.
I hrehawmna leh harsatna i tawhte hrethiamtu i biak theih chuan a thlamuanthlâk dâwn êm tih han ngaihtuah teh. Tin, i natna lan chhuah dan tur enkawlna thar ber ber leh i enkawl dan awlsam tak takte i zir chuan i nun chu a va awlsam zawk dawn em ni. Chuvangin heng ang resources te hi hriat chian a pawimawh em em a ni.
Khawiah nge thlawpna leh thu hriat tur ka hmuh theih ang?
I tanpui thei tur leh kawng dik kawhhmuh thei tur hmun engemaw zat a awm. Chûng pâwl ṭhenkhat chu hmaichhanah an inhmachhawn thei a ni. Mi dangte chu online chauhvin an thawk thei bawk. I tana remchang ber tur method i thlang mai tur a ni.
| Khawi atanga tanpuina dawn nge | Support i dawn thin chu |
|---|---|
| I doctor chu. | I dinhmun nena inmil support group emaw resources rintlak tak tak zawt tur mi tha ber. |
| I enkawlna damdawi in emaw clinic emaw | Hospital tam takah chuan damlote tan special support program emaw awareness programme emaw an nei a. Anmahni hi lo en ve teh. |
| Khawtlang hriselna hmunpui te | I awmna hmuna hetiang center kaltlangin health program hrang hrang chungchang pawh i dawng thei bawk. |
| University hrang hranga medical faculty hrang hrangte | A châng chuan research university kaltlangin patient-focused programme chungchang kan zir ṭhin. |
Group i thlan hmain, group-in eng thil nge a ngaih pawimawh ber, engtin nge an inhmuh (online emaw, mimal emaw), leh group kaihruaitu tih te zirchian hmasa phawt ang che.
Online-a i luh dawnin heng thilte hi fimkhur rawh!
Tunlai hian social media Facebook leh YouTube-ah te information tam tak i hmu thei a. AS natna vei te thil tawn, an thil tih te chu i chhiar thei a, i en thei bawk. Chûngte chuan min ti thlamuang thei a ni. Mahse, hei hi fimkhur hle tur hmun a ni .
Online-a i hmuh apiang, a bik takin mi pakhat mimal thil tawn chu damdawi lam thurawn atan la suh tih hre reng ang che. Eng thil pawh i tih hmain doctor nena inbiakna neih hmasak a pawimawh.
Online-a thu hriatte i en hian heng zawhnate hi inzawt rawh:
- He website emaw Facebook page emaw hi tuin nge enkawl? Damdawi pawl hriat hlawh takin a enkawl em, a nih loh leh mi hriat lohin a enkawl em?
- Thil zawrh an tum em ni? A châng chuan an thil siamte chu "He damdawi hian i rilru a ti hahdam ang" tih ang chi thu sawiin hralh an tum ṭhin. Chutiang chuan bum suh ang che.
- A tha lutuk angin a ri em? "Ni 7 chhunga AS tihdam theihna thuruk" tih ang chi i hmuh chuan dawt a ni mai thei.
- He thu hi thil thar a ni em? Science lama innghat a awm em? Thu chhuahte chu zirchianna aṭanga chhuak leh tunlai a nih leh nih loh enfiah rawh.
International organization leh website rintlak tak tak te
Sri Lanka tana hman tur bik AS pawl tlemte chauh an la awm. Mahse, he natna hi zirchiangtu leh khawvel hmun hrang hranga damlote tanpui thin international organization lian tak tak an awm a. Heng website-te hi sap tawng ni mah se, he natna chungchang te, enkawl dan thar te, exercise lak dan tur te, leh natna nena nun dan tur te, thu hlu tak tak leh dik tak tak an chhuah thin. Sap tawng i thiam deuh chuan hengte hi a tangkai hle ang.
- Spondylitis Association of America (SAA) chuan a rawn tichhuak leh ta a ni.Hei hi United States-a spondylitis lama inpe pawl lian ber pawl a ni a, AS pawh a tel. An website (spondylitis.org) ah hian damlo conference, support group leh information thar ber ber tam tak a awm a.
- Arthritis Foundation: Hei hi pawl lian tak a ni a, arthritis chi hrang hrang chungchang hriattirna pe thin a ni. An website (arthritis.org) ah hian AS chungchang bik a awm a.
- Arthritis National Research Foundation: Arthritis damdawi zawng tura zirchianna an thawhpui thin. Research thar ber berte chu an website (curearthritis.org) ah i hre thei ang.
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS): Hei hi US sorkar agency a ni a, hei hi US sorkar agency a ni. An website (niams.nih.gov)-a thu chhuah te hi a rintlak hle a, scientifically proven a ni bawk.
Midangte thil tawn chhiar theihna tur online community
Social media platform hmang hian khawvel hmun hrang hranga nangmah ang bawka AS natna vei te nen inzawmna siam theih a ni. I thlawpna chu fuihna nasa tak a ni thei. Mahse, a hmaa ka sawi tawh ang khan i doctor nen inbia lovin engmah ti lo la.
| Dawhsan | Hrilhfiahna |
|---|---|
| Ankylosing Spondylitis tih i zawn chuan group tam tak i hmu ang. Ṭhenkhat chu private group an ni a, join turin dil a ngai a ni. Chûngahte chuan mi dangte chuan zawhna an zawt a, thil tawn an sawi chhuak bawk. | |
| Reddit hmanga siam a ni | Hei hi thu leh hla leh ngaihtuahna insemna hmun lar dang a ni bawk. `r/ankylosingspondylitis` an tih khawtlang zinga mi ni la, chutah chuan zawhna i zawt thei ang a, midangte tawnhriat i chhiar thei ang. |
| Instagram / Twitter ah te pawh a awm | Post kaihhnawih te chu `#ankylosingspondylitis`, `#arthritis`, `#chronicpain` tih ang chi hashtag hmangin i hmu thei ang. Amaherawhchu, heng thute hi a dik leh dik loh chungchangah fimkhur hle tur a ni. |
Engtin nge online account hi rintlak a nih leh nih loh i enfiah ang?
- I gut kha ngaithla rawh: Account i en hian thil dik lo emaw, fake emaw i tih chuan a ni ngei ang.
- Verified Account zawng rawh: Pawl lian leh hmingthang tak tak atanga account lo chhuakte chuan an kiangah blue tick an nei a, chu chu account chu a tak tak a ni a, fake a ni lo tihna a ni.
- Thu hriatte quality chu zawhna siam rawh: A hmaa kan sawi tawh ang khan, tuin nge hetiang titu, hralh tur nge, science lam thil a ni em tih hi ngaihtuah fo ang che.
He natna nena zin hi a chang chuan mahni chauhna leh harsa tak a ni thei. Mahse thu dik leh puihna dik tak i neih chuan i dinhmun chu i enkawl tha thei a, nun hlim takin i hmang thei bawk.
Take-Home Thuchah a ni
- Ankylosing Spondylitis (AS) natna vei i zinkawngah hian nangmah chauh i ni lo. Nang ang bawk hian midang sang tam tak pawhin he dinhmun hi an nei mek a ni.
- I enkawltu doctor chu i thu hriatna tha ber a ni. Eng thil pawh sawipui hmasa phawt ang che.
- Internet, a bikin social media hi thu hriatna tha tak ni mahse, i chhiar zawng zawng hi ring suh. Mi pakhat mimal thil tawn chu i tan a hman theih ang tih ring suh.
- Exercise thar, diet thar emaw, thil dang emaw i tih hmain i doctor hnenah i tan a tha em tih zawt hmasa phawt ang che.
- International organization-te website-te chu English-a awm ni mah se, an thu dik tak, science lam hawi thilte hian i hriatna tihpunna kawngah a pui hle ang.
💬 Comments (0)
Comment a la awm lo. Hetah hian i comment hi a vawikhatna atan add rawh.
I comment kha add rawh