Hunter Syndrome vei te hnena Idursulfase vaccine pek thin chungchang hi i zir dawn teh ang.

Nangmah emaw i hriat emaw hian Hunter Syndrome tih hming pu natna hlauhawm tak i nei em? Chutiang a nih chuan Idursulfase tih vaccine hi i hre tawh ngei ang. A hming hi a buaithlak deuh a, mahse vawiinah hian he damdawi chungchang hi a awlsam zawngin, i hriatthiam theih tur angin kan sawi dawn a ni. A chhan chu hetiang thil hi hriat chian a pawimawh hle.

He damdawi hi Idursulfase an tih hi eng nge ni?

A awlsam zawngin Hunter Syndrome hi kan taksaa chemical process hrang hranga puitu protein, ``enzyme`` bik pakhat a awm loh emaw, a thawk tha lo emaw a ni. He ``enzyme`` hian kan taksa chhunga molecule complex thenkhat chu a tichhia a, a ti awlsam thei a, chu chu an hnathawh zawh hunah taksa atangin lakchhuah theih a ni tihna a ni. Chuvangin he ``enzyme`` hi a awm loh chuan chu complex molecule te chu taksa hmun hrang hrangah an pung khawm a, harsatna leh symptom hrang hrang a thlen thin.

Idursulfase hi chu enzyme bo thlak nan laboratory-ah siam a ni a, a thawk tha hle. Chu chu chu enzyme bo chu a thlak a, a nih loh leh enzyme thlak danglamna therapy a ni tihna a ni. Mahse thil pakhat i hriat reng tur chu hei hi damdawi tling tak a ni lo tih hi a ni . Mahse a natna lan chhuah dan a thunun thei a, a natna zual zel chu a thunun thei a, nun pawh tlem a ti awlsam thei bawk.

He damdawi hi a chang chuan thil dang atan hman theih a ni a, chuvangin zawhna i neih chuan i doctor emaw pharmacist emaw zawt la.

He damdawi brand name tlanglawn tak chu `(Elaprase)` tih a ni.

He damdawi hi i ei hmain doctor hnenah eng nge i hrilh tur?

Tunah chuan he damdawi hi i ei tan hmain i doctor emaw i care team emaw hnena i hrilh tur tlemte a awm . Hei hi him taka enkawlna dik tak an pek theih nan a ni. Kawngpuiah eng harsatna nge i tawh dawn tih hriat lawk angin ngaihtuah rawh.

Hriat tur pawimawhte chu hetiang hi a ni:

• Tunah hian natna hrik leh khawsik i nei em?
• Lung natna i nei em? Chu chu thinlung lama harsatna eng emaw tak a awm tihna a ni.
• Lung natna i nei em? Thâwk lama harsatna ang maiin.
• Idursulfase, damdawi dang, ei tur, ei tur rawng, a nih loh leh preservatives emaw allergy i nei tawh em? Hei hian hives, itching, thawk harsatna emaw a huam thei .
• I lei, hmai, hmui a hring, thawk harsa, ei harsa, ri bengchheng, a nih loh leh i rilru a tikhauh tawh ngai em?Chutiang chu a thleng tawh em? Hei hi a pawimawh hle a, a chhan chu he damdawi hi i ei lai pawhin chutiang thil chu a thleng thei a ni.
• Nau i pai em, naupai i beisei em?
• Nau hnute i pe em?

Heng thilte hi thup lova sawi chhuah hi mahni himna atan a pawimawh hle.

He damdawi hi engtin nge i hman?

He damdawi hi vein pakhatah injection angin pek thin a ni . A dik zawk chuan saline ``infusion`` a ni a, darkar engemaw zat chhung taksaah pek a ni. Hei hi in lama tih theih a ni lo . Damdawi in emaw clinic emaw-ah doctor emaw nurse emaw ang chi health care professional trained-in a pe tur che a ni.

He damdawi hi naupangte hnena i pek chuan:

He damdawi hi a chang chuan naute thla 16 mi te hnenah pek theih a ni a, naupang kum 1 leh thla 4 te tan pawh, dinhmun thlan bik atan pek theih a ni bawk. Mahse, fimkhurna bik a awm. Chuvangin, hei hi i fa hnena i pek a nih chuan i naupang enkawltu doctor nen uluk taka inbia a, a chipchiar zawka hriat chhuah a pawimawh hle.

Overdose hman dan: 1.1.

He damdawi hi i ei tam lutuk nia i hriat chuan, emaw, i ei nia i rinhlelh chuan poison control center emaw, damdawi in emergency room hnai ber emaw i biak nghal tur a ni. Thil tih vat a pawimawh hle.

Hriat tur pawimawh: He damdawi hi i tan chauh pek a ni. He damdawi hi midang hnenah eng vangin pe suh , nangmahni symptoms inang nei pawh nise.

Damdawi dose i ei loh chuan engtin nge i tih ang?

He damdawi dose khat pawh skip hi a tha lo . Hei hi damdawi ei chhunzawm zel tur leh a hun bi neia ei ngai a ni. I miss a nih chuan a enkawlna result a tlahniam mai thei. Ni ruat saah damdawi i ei thei lo a nih chuan i doctor emaw, health professional emaw nen inbiakna neihpui ngei ang che . I tih leh tur chu an hrilh ang che.

He damdawi nen hian thil dang a inzawm thei em?

He damdawi hian damdawi dang nen harsatna lian tham a thlen lo tih hmuhchhuah a ni tlangpui (interaction beisei a ni lo). Chu chu damdawi dang nen a inrem tlem hle tihna a ni.

Mahse, i damdawi i ei zawng zawngte chu i doctor hnenah hrilh vek a tha ber , chutah chuan damdawi, damdawi pek loh, thing leh mau, leh ei leh in lama tihpunna te pawh a tel. Tin, zu i in emaw, zu i in emaw, ruihhlo dang i hman chuan doctor hnenah hrilh bawk ang che.I tih chuan anmahni pawh hrilh bawk ang che, a chhan chu thil thenkhat chuan i damdawi nen hian eng emaw ti takin a inzawm thei a, a side effect pawh a tipung thei bawk.

He damdawi hi ka hman dawnin eng thil nge ka fimkhur ang?

He damdawi i ei lai hian doctor pan a, check-up neih reng a pawimawh hle . I natna lan chhuah dan a ṭhat loh emaw, a zual deuha lang emaw a nih chuan doctor hnenah hrilh rawh. Engmah ngaihthah suh.

Hunter Syndrome vei te tan pawh registry a awm bawk. Hei hian hun rei tak chhung i hnen atangin information an la khawm thei a, chu chu natna hi an zirchiang lehzual thei tihna a ni. Hemi chungchang hi i healthcare professional hnenah i zawt thei ang. I duh chuan i join thei bawk.

He damdawi hian eng side effect nge a neih theih?

Damdawi dang ang bawkin Idursulfase vaccine hian side effect engemaw zat a nei thei a ni. Ṭhenkhat chu a nasat em avangin doctor hnenah hriattir nghal tur a ni. Ṭhenkhat chu mi pangngai an ni a, ni rei lote hnuah an bo vek ang.

Side effects i doctor hnena i hrilh nghal tur:

If you experience any of these symptoms , i doctor emaw healthcare professional emaw hnenah a rang thei ang bera hrilh tur a ni. Chungte chu natna khirh tak chhinchhiahna a ni thei.

• Allergic reaction, vun natna, vun hring emaw, hive emaw, hmai, hmui emaw lei emaw a hring. Hengte hi vaccine pek lai emaw, pek hnu rei vak loah emaw a thleng thei a ni.
• Thâwk lama harsatna a awm. I thawk hah ang maia inhriatna, thawk hah vat a ngai.
• Chest na emaw tightness emaw.
• Luak chhuak; rilru hah emaw, lu hah emaw tih hriat; balance hloh vanga tlak; danglam taka chak lo emaw, chau emaw anga inhriatna.
• Thinlung thawk chak leh mumal lo.
• Khawsik emaw, khawsik emaw. Hengte hi hri kai chhinchhiahna a ni thei.

Side effects nasat loh tlangpui, mahse a awm reng chuan doctor hnenah hriattir tur:

Heng thilte hi ni rei lo te chhungin a reh tlangpui. Mahse an nghet tlat a nih chuan, emaw, an tibuai che a nih chuan i doctor hnenah hrilh rawh.

• Khuh.
• Kawthalo.
• Hmai a rawn sen chhuak. Chumi awmzia chu hmai a sen a, a lum tih hriat a ni.
• Lu na.
• Muscle emaw joint emaw a na.
• Nausea, luak chhuak.
• Chau lutuk.

He list-ah hian side effect awm thei zawng zawng a tel lo mai thei. Thil danglam tak i hriat chuan doctor ko la, damdawi lam thurawn pe rawh. Heng side effects te hi United States-a FDA (Food and Drug Administration) hnenah 1-800-FDA-1088 ah i report thei ang. Sri Lanka-ah chuan i doctor kaltlangin health authority kaihhnawih hnenah i report thei a ni.

He damdawi hi khawiah nge i dah?

Hei pawh hi mi tam takin an zawh thin a ni. He Idursulfase damdawi hi in lamah dah phal a ni lo. Damdawi in emaw, clinic emaw-ah chauh hman leh dahkhawm a ni. A chhan chu a pek dan leh a dahna tur temperature bik (special temperature conditions) a ni.

A tawp berah chuan hriat tur pawimawh tak

Hei hi kan sawi tawh zawng zawng khaikhawmna mai mai a ni em? A chipchiar zawng zawng a huam vek lo. Mi zawng zawng dinhmun a inang lo. Chuvangin, he damdawi chungchanga zawhna emaw, ngaihtuahna emaw i neih chuan i doctor, pharmacist emaw, healthcare provider dang emaw zawt ngei ang che. I dinhmun atana thu dik ber an pe thei che a ni.

Thil hriat reng tur (Take-Home Message) .

Okay, chuvangin kan sawi tawh atanga i hriat reng tur thenkhat chu hetiang hi a ni:

• Idursulfase hi nunna chhanhimna damdawi a ni a, Hunter Syndrome vei te zingah enzyme bo chu a thlak a ni.
• This is not a complete cure , mahse symptoms control leh quality of life tihchangtlun nan a pui thin.
• Before starting the medication , i hriselna dinhmun zawng zawng, allergy, leh damdawi dang i ei zawng zawngte chu i doctor hnenah hrilh hmasak a pawimawh hle.
• Hei hi damdawi in pakhata thisen zam chhunga infusion angin mi trained takin a pe thin.
• Damdawi dose khat pawh skip suh. I theih loh chuan doctor hnenah hrilh nghal rawh.
• Side effect na tak tak a awm thei bakah side effect tlangpui a awm thei bawk. Thil danglam tak, eng ang pawhin tenau pawh ni se, i doctor hnenah hrilh rawh.
• He damdawi hi i tan chauh a ni. Midang hnenah pe suh.
• Zawhna emaw, ngaihtuahna emaw i neih chuan i doctor zawh hreh suh. I hriselna chungchang hriat theihna tur dikna i nei vek a ni.

` Idursulfase, Hunter Syndrome, Enzyme thlak danglamna damdawi, Elaprase, Side effects, Damdawi, Natna hmuh tur awm lo