I doctor-in nangmah emaw i fa emaw tan Nitisinone tih damdawi a pek hian tlem a hlauhthawn leh hlauhthawn hi thil pangngai a ni. Hei hi damdawi hman tlanglawn tak a nih loh vang a ni. Mahse, lungngai suh. He thuziak ah hian he damdawi chungchang hi i hriatthiam theih tur khawpa awlsam takin kan sawi dawn a ni. Ṭhian pakhatin a hrilhfiah ang che.
He damdawi hi Nitisinone an tih hi eng nge ni?
A awlsam zawngin sawi ila, Nitisinone hi kan taksaa amino acid tyrosine tihchhiatna tikhawtlai thei damdawi a ni. A bulpui ber chu thil awm lo tak, genetic condition , hereditary tyrosinemia type I an tih enkawlna atan hman a ni.
Ngaihtuah teh, hetiang natna vei hian tyrosine hi a ei tha thei lo va, a ti chhe thei lo bawk. Tichuan taksaah a pungkhawm thei a, thin leh kal ang chi taksa peng hrang hrang a tichhe thei a ni. Damdawi Nitisinone hian chu thil tha lo tak pungkhawm chu a titawp a ni. He damdawi hi Orfadin tih brand name hnuaiah pawh a awm bawk.
He damdawi hi ka hman hmain doctor hnenah eng nge ka hrilh ang?
I doctor-in he damdawi a pek hma hian i hriselna chanchin kimchang hriat a pawimawh hle. Chuvangin, a hnuaia mite hi hriattir ngei ang che:
- Nitisinone emaw damdawi dang emaw, ei tur emaw, dye dang emaw allergy i neih chuan min hrilh rawh .
- Naupai i nih chuan, a nih loh leh naute i beisei thuai chuan chutiang chuan sawi rawh.
- Nu hnute petu i nih chuan min hrilh bawk ang che.
Heng thute a\ang hian i doctor chuan he damdawi hi i tan a tha em tih emaw, a dose thlak a ngai em tih emaw a rel ang.
Engtin chiah nge he damdawi hi i hman?
Damdawi pakhat atanga hlawkna tam ber hmu tur chuan a hman dik a pawimawh hle.
- He damdawi hi tui glass khat nen ei tur a ni.
- A pawimawh ber chu he damdawi hi ei hma darkar khat tal ei tur a ni. Chaw ei rualin ei suh. Hei hi a chhan chu chaw ei ruala ei hian damdawi taksaa a lakluh a tihtlem theih vang a ni.
- Naupang tê tê i pe a nih chuan uluk takin capsule chu i hawng thei a, damdawi powder chu tui tlemteah emaw, formula emaw, applesauce-ah emaw i hmin thei a, spoon hmangin i pe thei bawk. Amaherawhchu, i hmin hnuah i pe nghal tur a ni a, dahkhawm a tha lo.
- I doctor-in a sawi angin a dose dik tak ei rawh. Eng thil vang pawh nise a zat aia tam ei loh tur a ni.
- Doctor thurawn tel lo chuan damdawi ei kha titawp thut suh.
He damdawi hi i tan chauh a ni. Eng vangin pawh midang hnenah share suh.
Naupang te te hnena pek a nih chuan
He damdawi hi nau piang tharte hnenah pawh dinhmun thlan bik thenkhatah pek thin a ni. Mahse, hei hi i naupang enkawltu doctor nen sawiho la, a thupekte chu uluk takin zawm rawh.
Damdawi ka ei tam lutuk chuan engtin nge ni ang?
Dose pek aia tam i ei palh nia i hriat chuan Colombo National Hospital-a National Poisons Information Center-ah call nghal la, a nih loh leh damdawi in hnai ber Emergency Treatment Unit (ETU)-ah kal nghal rawh.
Damdawi ei tur appointment i neih loh chuan engtin nge i tih?
I hriatreng veleh missed dose kha ei nghal rawh. Mahse, i dose leh tur hun a lo thleng tawh a nih chuan missed dose kha skip la, a hnuaia dose chu a hun ruatah ei rawh. Dose theihnghilh tawh chu siam that nan double dose ei ngai suh.
He damdawi hman huna fimkhur tur thilte
He damdawi i ei lai hian thil pawimawh engemaw zat i ngaihven tur a awm a.
1. Damdawi lam enfiah fo: Doctor appointment-ah a hun takah kal rawh. Damdawi hian i taksaah engtin nge hna a thawh tih hriat nan thisen hna pawimawh tak tak i thawh a ngai mai thei. Skip suh.
2. Special Diet: Hei hi a pawimawh ber leh tih ngei ngei tur a ni. He damdawi hi i ei lai hian amino acid tyrosine leh phenylalanine awmna ei tur kha khauh takin i tihtlem a ngai dawn a ni. I doctor leh nutritionist te chuan i ei tur leh ei loh tur list chiang takin an pe ang che. He ei leh in hi khauh taka zawm hi enkawlna hlawhtlinna atan a pawimawh hle.
He damdawi hian eng side effect nge a neih theih?
Damdawi dang ang bawkin Nitisinone hian side effect a nei thei a ni. Mi zawng zawngin dawng lo mah se, fimkhur a pawimawh hle.
| Side effect hrang hrangte thliar hranna | |
|---|---|
| Side effects te chu doctor hnenah report nghal tur a ni | |
| Allergy nei te pawh a awm | Vun vun rawng, hnim hring, hmai, hmui emaw lei emaw a hring. |
| Mit lama harsatna nei | Mit a danglam a, mit a na a, a sen a, êng a sensitive bawk. |
| Liver lama harsatna a awm | Zun dum, bawlhhlawh dum, pum dinglam chunglam na, mit emaw vun emaw a sen (jaundice ang chi). |
| A lan chhuah dan tlangpui | Chaw ei chak lohna, rilru hahna, khawsik, leh malaise te. |
| Symptom na tak dang a awm bawk | Thisen chhuak emaw, hliam emaw, kutphah leh kephah natna nei, natna hrik awm. |
| Side effects nasat loh tlangpui, mahse a awm reng chuan doctor hnenah hriattir tur a ni | |
| Pum natna | Diarrhea (bloating) a awm. |
| Vun leh sam a inthlak danglam thin | Vun vawt, sam tlakchham. |
He list-a tel lo thil danglam tak i hmuh chuan i doctor nen pawh sawipui rawh.
Engtin nge damdawi hi him taka i vawn reng?
He damdawi quality vawng nung tur hian dik taka dahkhawm a pawimawh hle bawk.
- Fridge-ah dah ngei ngei tur a ni. 2 leh 8 degree Celsius (36 leh 46 degree Fahrenheit) inkar ah dah tur a ni.
- Eng vangin freezer-ah dah loh tur a ni. Damdawi chu freeze tir suh.
- Naupangte’n an man theihna hmunah dah suh.
- Damdawi expire tawh chu paih vek rawh.
He information sheet hi a tawi zawng chauh a ni. Zawhna dang i neih chuan doctor zawt hreh suh.
Take-Home Thuchah a ni
- Nitisinone hi damdawi bik a ni a, genetic disease hmuh tur awm lo, hereditary tyrosinemia type I tih enkawlna atana pek thin a ni.
- He damdawi hi chaw ei hma darkar khat vel ei tur a ni . Chaw ei rualin ei suh.
- Damdawi lam thurawn tel lo chuan damdawi ei hi bansan nghal suh.
- He enkawlna chhung hian special diet neih a ngai a ni. Doctor leh nutritionist-in a pek angin dik takin zawm rawh.
- Mit na, vun sen, emaw thisen chhuak danglam tak ang chi side effect na tak i neih chuan doctor hnenah hriattir nghal rawh.
- Damdawi chu refrigerator-ah him takin dah la , naupangte hmuh theih lohna hmunah dah rawh.
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