Nang emaw i fa emaw hian MPS I i nei em? Laronidase vaccine chungchang hi i zir dawn teh ang!

A chang chuan kan ngaihtuah phak loh natna kan nei thin a ni lawm ni? Chutiang dinhmun pakhat chu Mucopolysaccharidosis I a ni a, a tawi zawngin MPS I kan ti a ni. Hei hi thil awmdan tlemte a ni. Nangmah emaw i fa emaw hian hetiang dinhmun hi i nei a nih chuan a harsatzia leh a lungkham theihzia ka hrethiam. Mahse lungngai suh, heng symptoms te hi control thei tur treatment a awm. Vawiin hian chutiang damdawi pawimawh tak pakhat kan sawi dawn a, chu chu Laronidase an tih vaccine a ni. Engtin nge a tih a, engtin nge a hman tih i lo en ang u.

Laronidase hi eng damdawi nge ni?

A awlsam zawngin sawi ila, Laronidase hi kan taksaa enzyme bik awm lo emaw, tlakchham emaw siam thattu damdawi a ni. Ngaihtuah teh, heng enzyme te hian kan taksa chhunga thil awm zawng zawng hi a thawk tha thei ang. Hnathawktu tlemte ang maiin. Tunah chuan MPS I vei taksaah hian enzyme pakhat a bo emaw, a thawk tha lo emaw a ni. He damdawi hi chu tlakchhamna phuhruk nan pek a ni. Hei hian natna lan chhuah dan thenkhat chu a thunun thei a ni. Mahse thil pakhat hriat reng tur chu hei hi natna tidam kim thei damdawi a ni lo tih hi a ni. Mahse a natna lanchhuahna tihziaawmna leh nun a awlsam zawkna hmangin nasa takin a pui a ni.

He damdawi hi Aldurazyme brand name hmangin i hmu fo mai thei. He damdawi hi thil dang atan pawh hman theih a ni. Hemi chungchanga zawhna i neih chuan i doctor emaw pharmacist emaw zawt rawh .

He damdawi hi i ei tan hmain i medical team hnenah eng thil nge i hrilh tur?

He Laronidase enkawlna hi i tan hmain i medical team, chu chu doctor leh nurse hnenah heng thilte hi i hrilh ngei ang. A chhan chu dik taka an puih theih nan heng thilte hi an hriat a pawimawh em em a ni.

• He damdawi, damdawi dang, ei tur, dye, emaw, preservatives dang emaw allergy i neih tawh chuan min hrilh rawh.
• Naupai emaw, naupai beisei emaw i nih chuan hrilh rawh.
• Nu hnute petu i nih chuan chu chu sawi tel tur a ni bawk.

Hêng thute hi thup lova i hrilh chuan i inhmeh ber angin an cheibâwl thei ang che. Dik?

Engtin nge he damdawi hi i hmuh theih?

Laronidase hi vein pakhatah infusion angin pek thin a ni. Hei hi mahnia in lama ei theih damdawi a ni lo.Hospital emaw clinic emaw-a medical professional trained-in a pek a ni. Chu chu doctor emaw nurse emaw in a pe ang che tihna a ni. Chuvangin hlauh tur a awm lo, an thiam a ni.

He damdawi hi naupang te te tan pek theih a ni em?

Ni e, he damdawi hi naute thla 6 mi lek te tan pawh thlan bik thenkhatah pek theih a ni. Mahse, naupang tê tête hnena pek dawnin fimkhur tur thil engemaw zat a awm. Chuvangin, he damdawi hi i fa hnenah i pe dawn a nih chuan naupang enkawltu doctor nen uluk taka sawiho a, a chipchiar zawng zawng hriatchhuah a tha ber.

Damdawi i ei tam lutuk chuan eng nge thleng ang?

He damdawi hi doctor enkawlna hnuaia pek a nih avangin overdose chance a tlem hle. Mahse, a tlem berah chuan damdawi i ei tam lutuk nia i hriat emaw, thil danglam tak i hriat chuan poison control center emaw emergency room emaw i call nghal tur a ni. Mahse, ka sawi nawn leh a, hetiang thil hi a thlen theihna chance a tlem hle, a chhan chu hei hi medical supervision hnuaia pek a nih vang a ni.

Pawimawh: He damdawi hi i tan chauh a ni. Midang hnenah share ngai suh.

Damdawi dose i ei loh chuan engtin nge i tih ang?

He damdawi hi a hun taka ei a pawimawh hle. Ni emaw hun ruat saah damdawi in emaw clinic emaw i kal thei lo a nih chuan, emaw, dose i ei loh chuan i doctor emaw healthcare professional emaw ko nghal rawh. I tih leh tur chu an hrilh ang che.

He damdawi hian damdawi dang nen a inzawm thei em? (Inbiakpawhna) .

A tlangpuiin he damdawi, Laronidase hian damdawi dang nena inzawmna lian tham a thlen beisei a ni lo. Chu chu damdawi dang nen a inrem tlem zawk tihna a ni.

Mahse, hei hian harsatna a awm dawn lo tihna erawh a ni lo. Chuvangin, i damdawi ei zawng zawng, i doctor-in a pek chauh ni lovin, damdawi dawr atanga i lei (non-prescription drugs), traditional medicines (herbs), vitamins (dietary supplements ) te pawh i doctor hnenah hrilh vek a tha ber. Tin, zu i in emaw, zu i in emaw, ruihhlo dang i hman emaw chuan i doctor hnenah hrilh bawk ang che. Thil thenkhat chu eng emaw ti takin i damdawi nen a inzawm thei. He list hian inpawhna awm thei zawng zawng a sawifiah lo.

He damdawi hi i ei dawnin eng thilte nge i fimkhur bik tur?

He damdawi, Laronidase hi pek i nih chuan i dinhmun hi i doctor-te chuan uluk takin an enfiah ang.Chu chu an lo thlir reng che tihna a ni.

Tin, i natna lan chhuah dan a tha lehzual em tih hriat nan doctor pan fo a pawimawh bawk. I natna lan chhuah dan a ṭhat loh emaw, a zual zel ang tih emaw a nih chuan i doctor emaw, healthcare professional emaw hnenah hrilh ngei ang che.

"Thil pakhat dang, MPS I leh a enkawlnate hriatthiamna tha zawk neih theih nan damlo chanchin khawlkhawmna special registry a awm a. Hemiah hian i hming telh tur hian i doctor nen inbia ang che. He natna chungchanga nakin lawka zirchianna atan pawh a \angkai hle ang.

He damdawi hian eng side effect nge a neih theih?

Damdawi dang ang bawkin he Laronidase vaccine hian mi thenkhatah side effect a nei thei a ni. Mahse, mi zawng zawngin an hmu vek lo. Side effect thenkhat a awm a, i hriat chuan doctor hnenah i hrilh nghal tur a ni. A dang pawh a tlangpuiin hlauhawm vak lo an awm bawk. Eng nge an nih i en ang u.

Side effects i doctor hnena report nghal tur:

"Hetiang symptoms te hi i neih chuan i doctor emaw healthcare professional emaw hnenah a rang thei ang bera hrilh tur a ni:"

• Allergic reaction : Chung zingah chuan vun vun rawng, hnim hring emaw, hive emaw, hmai, hmui emaw lei emaw a hring chhuak te a tel.
• Thâwk lak harsatna .
• Mit hmuhna lama inthlak danglamna .
• A rilru a na .
• Khuh .
• Khawsik .
• Ke emaw kut emaw a hring chhuak .
• Hmai sen emaw, a sen emaw .
• Thisen sang hniam .
• Kut emaw ke emaw natna, tingling, rilru natna .
• Injectna hmunah a sen, natna, emaw, a hring emaw .
• Mit emaw vun emaw a sen - Hei hi liver problem a ni thei.

Side effects, damdawi lam thurawn mamawh lo, mahse a awm reng chuan doctor hnena hriattir tur:

"Heng thilte hi vaccine lak hnuah pawh a thleng thei fo. A tam zawkah chuan a pawi lo hle a, mahse a awm reng a nih chuan, a nih loh leh a tibuai che a nih chuan doctor hnenah hrilh a tha

• Injection pekna hmuna kang emaw natna emaw tlem a awm .

He list hi side effect awm thei zawng zawng a ni lo. Thil dang dik lo anga lang i hmuh chuan i doctor nen inbia ang che. Heng side effects te hi FDA (Food and Drug Administration) hnenah 1-800-FDA-1088 ah i report thei bawk.

He damdawi hi khawiah nge i dah?

Hei hi thil pawimawh tak a ni lo, a chhan chu he damdawi hi in lama hruai theih a ni lo. Damdawi in emaw, clinic emaw-ah chauh pek a ni. Chuvangin damdawi hi him taka vawn reng tur ngaihtuah a ngai lo, chu chu medical staff ten an buaipui ang.

A tawp berah chuan a pawimawh ber

Okay, chuvangin tunah chuan kan sawi tawh Laronidase vaccine hi in hriatthiam ka beisei. Hei hi damdawi a ni tih hre reng ang che, MPS I tih hming pu natna hlauhawm tak chhinchhiahna control nana pui turin specialist doctor enkawlna hnuaia pek a ni.

"Nangmah emaw, i fa emaw hian he enkawlna hi i dawng a nih chuan doctor-in a hrilh ang chiah chein zawm rawh. Zawhna emaw rinhlelhna emaw i neih chuan i rilruah dah suh. I tanpui turin an awm reng a ni. He damdawi hian natna hi a tidam kim lo nachungin, nun hi tlem a ti awlsam ang a, a natna lanchhuahna do turin chakna a pe ang che. Beiseina chu thlahthlam ngai suh!

He leaflet hi a tawi zawng chauh a ni. Thu hriat zawng zawng a keng tel lo mai thei. He damdawi chungchanga zawhna dang i neih chuan i doctor, pharmacist, emaw healthcare provider emaw nen inbia ang che.

` Laronidase, MPS I, Mucopolysaccharidosis I, Enzyme hmanga enkawlna, Aldurazyme, Natna hmuh tur awm lo