Ngā mea me mōhio koe mō te Adenoid Cystic Carcinoma (ACC)!

Ki te kite koe i tētahi mea rerekē pērā i te puku i tētahi wāhi o tō tinana, ahakoa kāore e mamae, he mea noa te mataku, te hiahia rānei ki te mōhio, tika? Ki te mau tonu tētahi mea pērā i te rerekētanga o tō reo, te uaua rānei ki te horomi, ka āwangawanga tātou. I ēnei wā, he mea nui kia mōhio ki tēnei momo mate pukupuku onge e kōrerohia nei e tātou i tēnei rā, arā, ko te adenoid cystic carcinoma, ko te "ACC" rānei hei whakarapopototanga.

He aha te adenoid cystic carcinoma (ACC)? Kia mārama tātou!

Ki te whakarapopoto, he momo matepukupuku tino rerekē, arā, he onge te Adenoid Cystic Carcinoma. Ko te nuinga o te wā ka puta i roto i ō tātou repe huware, i ngā wāhi pēnei i te upoko me te kaki. Heoi, i ētahi wā ka puta i ētahi atu wāhanga o te tinana, hei tauira, i roto i te kiri, i te kiko o te ū, i te cervix, i te repe prostate rānei.

Kei reira ēnei pukupuku "(ACC)", he totoka, he porowhita, he takoto kau. Tērā pea he āhua kōhao, pērā i te "tīhi Huiterangi" . Whakaarohia, he rerekē te whanonga o ēnei pūtau matepukupuku.

He puhoi te tipu o ēnei pukupuku ACC. Arā, kāore e tino nui te tipu i te wā kotahi. Heoi, i roto i te wā, ka kaha rawa te riri, ā, ka kore e taea te matapae i ngā whanonga . Ko te tikanga, ahakoa ka tangohia te mate pukupuku mā te pokanga, he nui ake te tūponotanga ka hoki mai anō i muri mai. Inaa, he maha ngā tāngata e pāngia ana e te adenoid cystic carcinoma ka hoki anō ki te mate i roto i ngā tau e rima ki te tekau. Koia te take, ki te kitea koe kei a koe tēnei mate, he mea nui kia haere tonu ngā matawai me ngā tirotiro hei aroturuki i tō āhua.

He pēhea te auau o tēnei āhuatanga? Me āwangawanga ahau?

Ina hoki, he momo mate pukupuku tino onge te adenoid cystic carcinoma. Tata ki te 1% o ngā mate pukupuku katoa o te pane me te kaki e pāngia ana. Tata ki te 4.5% o ia 100,000 tāngata o te taupori whānui e pāngia ana. Hei tauira, i te Hononga o Amerika, tata ki te 1,200 tāngata ka kitea he mate pēnei i ia tau.

I te nuinga o te wā, ka puta te ACC i roto i te hunga i waenga i te 40 me te 60 tau te pakeke. He paku noa ake tēnei mate i roto i ngā wāhine. Nō reira, e kite ana koe, ehara i te mea tino noa.

He aha ngā tohu o tēnei? Kei a au anō ēnei?

Ka rerekē ngā tohu o te adenoid cystic carcinoma i runga i te rahi o te pukupuku me tōna wāhi . Tērā pea ka pāngia koe e ēnei e whai ake nei:

• He puku kāore he mamae kei tētahi wāhi o te tinana.
• Te uaua ki te manawa.
• Te uaua ki te horomi.
• Te reo pāorooro.
• Te ngoikore o te uaua.
• Te pupuhi o te ihu.
• Te toto o te ihu.
• Mamae (i ētahi wā).
• Ngā panonitanga o te tirohanga.

Engari kia maumahara, nā te mea he mate pukupuku puhoi te tipu o te ACC, kāore e whakaatu i ngā tohu i ngā wā katoa . Tērā pea ka kitea kāore he tohu. Koia te mea nui kia rapu tohutohu hauora mēnā ka kite koe i tētahi mea rerekē.

He aha tēnei e tupu ai? He aha ngā take?

Ki te pono, kāore anō kia tino mārama ngā tohunga ki te pūtake o te adenoid cystic carcinoma . Ki tā rātou whakaaro, tera pea nā ētahi whakarerekētanga ira ka puta i roto i te wā. Ko te mea nui, ehara te ACC i te mate tuku iho , ā, kāore he take mōrearea e mōhiotia ana mōna. Ko te tikanga, kāore koe e manukanuka ki te pātai "Nāku i mahi i puta ai tēnei?"

He aha ngā raruraru pea ka pā mai i te ACC?

E rua ngā huarahi matua e horapa ai te adenoid cystic carcinoma (metastasize) puta noa i te tinana. He mea tēnei hei āwangawanga māu.

1. Te whakaekenga perineural: I roto i te nuinga o ngā take o te ACC, ka whakaekea e ngā pūtau matepukupuku ngā muka io e karapoti ana i te pukupuku. He tino pukumahi tēnei mahi, ā, he uaua ki ngā tākuta te kite, ahakoa mā te matawai, mā te pokanga rānei.

2. Te horapa mā roto i te toto: Ka taea e ngā pūtau matepukupuku e wehe atu ana i te pukupuku te haere ki ētahi atu wāhanga o te tinana mā roto i tō toto.

Ko tēnei momo mate pukupuku adenoid cystic, he wāhanga 4 , ka horapa nui ki ngā pukahukahu me te ate . Kāore i rite ki ētahi atu momo mate pukupuku, he onge te horapa o te ACC ki ngā kōpū lymph. Heoi, ka pā pea i roto i te 5% ki te 10% o ngā take.

Me pēhea te tautuhi i tēnei mate? (Tautuhinga)

Ki te whakapae tō tākuta kei a koe te adenoid cystic carcinoma, tera pea ka mahia e ia he koiora . Ko te tikanga o tēnei me tango he tauira iti o tō kiko ka tukuna ki te taiwhanga hei whakamātautau. Tērā pea ka mahia e te tākuta tētahi, neke atu rānei ngā whakamātautau whakaahua, pēnei i:

• Ngā matawai CT (ngā matawai tomography rorohiko)
• MRI (whakaahua aukume)
• Ngā matawai PET (ngā matawai tomografi tukunga positron)
• Ultrasound

Nā te mea he mate onge te ACC, ka roa pea te wā ki te tautuhi i te mate . Tērā pea ka maha ngā whakamātautau ka pau i mua i te whiwhinga o te tautuhi mate me te tīmatanga o te maimoatanga. Nō reira, he mea nui kia manawanui, kaua e mataku.

He aha ngā maimoatanga mō te ACC?

Ko te maimoatanga mō te adenoid cystic carcinoma e whakawhirinaki ana ki te wāhi kei reira te mate pukupuku me te mea kua horapa . He maha ngā kōwhiringa maimoatanga matua:

• Pokanga:Ko te pokanga te maimoatanga matua mō te adenoid cystic carcinoma. Ko te whāinga he tango i te nuinga o te pukupuku e taea ana. I ētahi wā, me tango pea e tō taote pokanga ngā kōpū lymph, tetahi wāhanga rānei o te io.
• Whakaora irahiko: Ka āwhina tēnei ki te patu i ngā pūtau matepukupuku e toe ana i muri i te pokanga. Mēnā rānei, ka taea te hoatu i te rongoā irahiko hei maimoatanga kotahi.
• Te rongoā matū: Ka whakamahia ngā rongoā pēnei i te cisplatin, te vinorelbine, te paclitaxel, me te carboplatin hei rongoā i ngā mate kua horapa haere, kua horapa rānei (ACC).
• Whakaora arotahi: Ka āraihia e ngā rongoā pēnei i te lenvatinib me te sunitinib te mahi a ngā pūmua e āwhina ana i te tipu o te mate pukupuku. Ka whakamahia e ngā tākuta ēnei whakaora arotahi i roto i ngā take o te ACC kua horapa, kua whānuitia rānei.

He ara hei ārai i tēnei?

Nā te mea kāore he take mōrearea e mōhiotia ana mō (ACC), kāore he huarahi i tēnei wā hei whakaiti i tō mōrearea . Waihoki, kāore he huarahi hei ārai i te whanaketanga anō o (ACC). He ahua uaua tēnei, engari koinei te āhua i tēnei wā.

He aha te tirohanga mō ACC? (Tirohanga)

He mate pukupuku puhoi te tipu o te adenoid cystic carcinoma. Nā tēnei, ka taea e ngā tākuta te kite wawe me te rongoā angitu. Heoi, e ai ki tā mātou i kōrero ai i mua ake nei, he mea noa te hokinga mai o te ACC i muri i ngā tau maha - ka noho pea i te wāhi kotahi i noho ai ia i mua, ka noho rānei i tētahi atu wāhanga o te tinana. Ina puta, ka uaua ake te rongoā.

Kia ako tātou mō ngā reiti oranga.

Ko te ōrau oranga mō te hunga e pāngia ana e te mate pukupuku adenoid cystic i roto i ngā tau e rima ko te 80.4% . Ko te tikanga tēnei ko te 80.4% o te hunga e pāngia ana e te mate kei te ora tonu i muri i ngā tau e rima. Ko te ōrau oranga mō te 10 tau ko te 61.3% .

Kia maumahara, he whakatau tata noa iho ēnei ōrau oranga. Kāore e whakaatu tika ana i te roa o tō oranga, me te āhua rānei o tō urupare ki te maimoatanga. He pai ake te kōrero ki tō tākuta mō ētahi atu kōrero.

Me pēhea taku tiaki i ahau anō? He mea nui te oranga hinengaro!

Nā te mea he mate onge te ACC, ka roa pea te wā kia kitea ai he mate. Ka pā kino pea ki tō hauora hinengaro me tō hauora kare ā-roto . Nō reira, mā te kōrero ki tētahi kaiwhakatakoto whakaaro, ki tētahi kaiwhakaora hinengaro rānei, ka āwhina i a koe ki te whakatau i ngā kare ā-roto uaua e pā ana ki a koe. He tokomaha te hunga e kite ana he whai hua ngā rōpū tautoko.Tērā pea ka kitea e koe te whakaoranga mai i te ahotea mā roto i ngā akomanga puoro, toi rānei. Ngāna ki te whakaiti i te ahotea mā roto i ngā mahi whakaaroaro, pērā i te whakaaroaro .

Āhea koe me toro atu ki te tākuta?

Mena he adenoid cystic carcinoma tōu, me kōrero tonu atu ki tō tākuta mēnā he tohu hou kei a koe, mēnā rānei ka kino haere ō tohu . Mā te panoni o ngā tohu ka tohu pea kua tipu tō matepukupuku. Nō reira, kaua e warewarehia tetahi mea, ahakoa he iti noa iho.

He aha ngā pātai nui hei pātai atu ki te tākuta?

Anei ētahi pātai ka taea e koe te pātai atu ki tō tākuta mō te ACC:

• Kei hea te pūtau matepukupuku?
• He aha ngā tohu ka pā mai pea ki ahau?
• Kua horapa te mate pukupuku ki ētahi atu wāhanga o tōku tinana?
• Ka taea te tango i te pukupuku mā te pokanga?
• Me whai maimoatanga irahiko ahau?
• Ka taea e au te haere ki te mahi i a au e rongoatia ana mō te mate pukupuku?
• Kia pēhea te roa o te maimoatanga?

Kaua e wehi ki te pātai i ēnei pātai. He mea tino nui kia kōrero koe ki tō tākuta mō ngā mea katoa e pā ana ki tō hinengaro.

Hei whakamutunga, ngā mea hei maumahara (Karere hei tango ki te kāinga)

He mea nui te tātaritanga o te mate pukupuku adenoid cystic. He maha ngā wā ka angitu te maimoatanga wawe . Heoi, he uaua ki te aro atu ki te koretake o te āhua. He roa te wā e hiahiatia ana hei ako ki te noho tahi me te mate pukupuku adenoid cystic.

Ko te mea nui ko te mōhio kāore koe i te mokemoke. Whakaarohia te whakauru atu ki tētahi rōpū tautoko hei kōrero ki te hunga kua pāngia e ngā āhuatanga ōrite ki a koe. Kei reira tonu tō tākuta hei tautoko i a koe. Whakawhirinaki ki a rātou, me te tono mō ngā rauemi me te āwhina e hiahiatia ana e koe. Mā te tirotiro i a koe anō me te whai i ā rātou tohutohu, ka taea e koe te anga whakamua me tēnei mate.

` Te mate pukupuku adenoid cystic, ACC, mate pukupuku, mate pukupuku o te upoko me te kaki, mate pukupuku o te repe huware, ngā tohu o te mate pukupuku, te maimoatanga o te mate pukupuku