He tauira "kanohi puru" kei roto i ō kanohi? Me ako tātou mō tēnei (Maculopathy Kanohi Puru) !

Kei te pēhea koe? I tēnei rā ka kōrero tātou mō tētahi mate kanohi kāore i te tino mōhiotia, engari he mea nui rawa atu. I ētahi wā ka taea e ō tātou kanohi te whakarerekē i te tirohanga me te kore e mōhiotia e tātou. Kua rongo kē koe i tētahi tauira e rite ana ki tētahi ūnga i runga i tētahi papa ūnga? Koinei te mea e tupu ana i roto i tēnei mate e kiia nei ko te "Bull's Eye Maculopathy". He ahua rerekē te ingoa, kāore? Engari kaua e manukanuka, me kōrero tātou mō tēnei mea me te taipitopito me te ngāwari.

He aha te "Bull's Eye Maculopathy"? Ki te kī māmā noa iho...

He tino onge te mate Maculopathy o te Kanohi o Bull e meinga ai ngā pūtau o te macula, te wāhanga tino nui o te retina, kia ngoikore haere, kia tika ake, kia pirau.

Whakaarohia, mēnā he rite tō kanohi ki te kāmera, ko te retina he rite ki te kiriata, ki te pūoko rānei i muri i te kāmera. Ka tuhia ngā whakaahua e kitea ana e tātou ki reira. I waenganui tonu o te retina, he wāhi iti engari he mea nui rawa atu e āwhina ana i a tātou ki te kite i ngā mea me te tino mārama me te koi. Koinei te mea e kiia nei ko te macula. Mā tēnei macula tātou e āwhina ki te kite i ngā taipitopito iti me te mārama, pērā i te wā e pānui pukapuka ana tātou, e titiro ana ki te mata o te tangata, i te wā rānei e herea ana e tātou he miro angiangi.

Nō reira, i roto i te "Maculopathy Kanohi Pūru", ina pakaru ngā pūtau o tēnei "macula", ina tirohia e te tākuta te roto o te kanohi, ka kite rātou i tētahi tauira o ngā mowhiti kua memeha te tae i roto i taua "macula". Ka tapaina tēnei ingoa nā te mea he rite tōna āhua ki ngā mowhiti i runga i te whāinga kopere (tauira kanohi pūru). Ka taea e tēnei āhuatanga te arahi ki te ngaronga tirohanga tuturu.

Ka taea te tuku iho i tēnei mate (arā, he tuku iho i ō mātua mā roto i ngā ira). I ētahi wā ka kiia tēnei momo tuku iho o te "Bull's Eye Maculopathy" ko te "Benign Concentric Annular Macular Dystrophy (BCAMD)". Ka taea hoki te whanake hei hua o ētahi atu mate kanohi, hei pānga taha rānei o te whakamahinga roa o ētahi rongoā .

He mea whakamataku pea tetahi raruraru tirohanga. Engari ka taea e tō tākuta te āwhina i a koe ki te kimi i te pūtake me te whakarato i te maimoatanga me te tautoko e hiahiatia ana e koe hei whakatau i te mate.

He aha ngā pānga o te Maculopathy o te Kanohi o Bull ki te tirohanga?

Ko te Maculopathy o te Kanohi o te Puru ka puta mai i te kino o ngā pūtau e āwhina ana i a tātou ki te kite i ngā mea. Nō reira, ka pā pea tēnei ki tō tirohanga matua ki ngā taumata rerekē.

• Tērā pea ka uaua ki ētahi tāngata te kite mārama i ngā kōrero iti.
• Kāore pea koe e taea te wehewehe tika i ngā tae, kāore rānei tō tirohanga tae e kitea.
• Ka heke pea te tirohanga i te pō.
• I te ngoikore o te tirohanga matua , ka uaua ki te pānui pukapuka, ki te taraiwa waka, me te kite i ngā mea tika ki mua.
• Ka pā pea tēnei mate ki te kanohi kotahi anake, ki ngā kanohi e rua rānei.

Engari i te nuinga o te wā, kāore he raruraru nui o te tirohanga taha o te hunga whai Bull's Eye Maculopathy - arā, ko ngā mea ka kitea e rātou i te kokonga o ō rātou kanohi. Heoi, nā te mea he mate haere tonu tēnei, ka kino haere te tirohanga i roto i te wā .

Ko wai kei te nui ake te mōrearea ki te whakawhanake i te "Bull's Eye Maculopathy"?

Ko te "tūponotanga mōrearea" he mea e whakanui ake ai i te tūponotanga o te whanaketanga o tētahi mate. He maha ngā tūponotanga mō te "Maculopathy o te Kanohi Pūru":

• Mena kei tētahi o te whānau te "Bull's Eye Maculopathy" (he hītori tuku iho).
• Kei a koe ētahi atu mate kanohi pēnei i te macular degeneration .
• Ko ētahi āhuatanga ira , hei tauira, te mate Batten, te mate Stargardt rānei.
• Te whakamahinga roa o ētahi rongoā, inā koa ko ērā e whakamahia ana hei rongoā i ngā mate pūnaha ārai mate (ko ngā mate pūnaha ārai mate, i roto i ngā kupu ngāwari, he āhuatanga e whakaekehia ai e te pūnaha ārai mate o tō tinana ō ake pūtau hauora).

He pēhea te noa o tēnei āhuatanga?

He tino onge te mate kanohi puru (Bull's Eye Maculopathy). Hei tauira, ahakoa i te United States, he tokoiti noa iho ngā tāngata e pāngia ana e tēnei mate. Nō reira, kaua e mataku mēnā ka kite koe i ētahi panonitanga o tō tirohanga.

He aha ngā take o te "Maculopathy o te Kanohi Pūru"?

He maha ngā take e pā ai tēnei:

1. Ngā Ira:

Ko te Bull's Eye Maculopathy, e mōhiotia ana ko te BCAMD, he mate autosomal dominant. Ki te kī ngāwari, mēnā he ira whakarerekētanga tō tētahi o ngā mātua mō te mate, e 50% te tūponotanga ka riro i tā rāua tamaiti te mate. Ko ēnei ira he wāhanga o tō tātou DNA e penapena ana i ngā mōhiohio i roto i ō tātou tinana.

2. Ētahi atu mate:

Ka taea hoki e ētahi atu mate kanohi, pērā i te cone-rod dystrophy, te retinitis pigmentosa rānei, te whakaputa i te Bull's Eye Maculopathy. Waihoki, e ai ki te kōrero i mua ake nei, ko te hunga whai mate ira pērā i te mate Batten, te mate Stargardt rānei, kei te mōrearea hoki ki te whakawhanake i tēnei mate.

3. Paitini:

Ka taea e ētahi matū, inā koa ētahi rongoā, te kino i ngā pūtau i waenganui o tō tirohanga (te macula). Hei tauira, ko te whakamahinga roa o ngā rongoā pēnei i te chloroquine, te hydroxychloroquine rānei, e whakamahia ana hei rongoā i ngā mate pēnei i te rheumatoid arthritis, te lupus rānei, ka taea te whakaputa i te Bull's Eye Maculopathy.

Waihoki, ko te hunga e hiahia ana ki te whakawhiti toto i ngā wā katoa ka pāngia e te mate e kiia nei ko te hemochromatosis (he nui rawa te rino). Ka taea hoki e tēnei te kino i tō macula.

He pēhea te take o te rongoā (Hydroxychloroquine) i te (Bull's Eye Maculopathy)?

Kāore anō kia tino mōhiotia e ngā tohunga te āhua o tēnei mahi. Engari e kī ana ngā rangahau ka herea pea te rongoā ki ngā pūtau i roto i tō retina, ā, ka pā ki te mahi a aua pūtau. He maha ngā wā ka puta tēnei ina tangohia e koe he horopeta nui o te rongoā mō te wā roa. Koia te take e taunaki ana ngā tākuta kia tirotirohia ngā kanohi e te hunga e tango ana i ēnei rongoā.

He aha ngā tohu o te "Bull's Eye Maculopathy"?

Ka pā te mate nei ki te tirohanga. Ko ētahi o ngā tohu ko:

• Te tirohanga pōuri, te tirohanga kohu rānei.
• Te kite i ngā ira pōuri, i ngā atarangi pōuri rānei i roto i tō tirohanga.
• Te uaua ki te kite i ngā tae, te matapo tae katoa rānei.
• Te kitenga i ngā mea pēnei i ngā miro e mānu ana i mua i ngā kanohi (ngā kanohi e mānu ana), te kite rānei i ngā uira mārama.
• He tino iti te tirohanga.

Kia maumahara, kaua e whakaaro kei a koe te Bull's Eye Maculopathy nā te mea kotahi, e rua rānei o ēnei tohu kei a koe. He tohu anō hoki ēnei o ētahi atu mate kanohi. Nō reira, he mea nui kia rapu tohutohu hauora.

He aha te āhua o te "Bull's Eye Maculopathy" i roto i te kanohi?

Ehara tēnei i te mea ka taea e koe te tautuhi mā te titiro ki te whakaata. Ka tirohia e te tākuta kanohi tō macula me tō retina mā te whakamahi i tētahi taputapu motuhake e kiia nei ko te ophthalmoscope hei whakatau mēnā kei a koe, kāore rānei.

I te nuinga o te wā, ka puta mai tēnei tauira "kanohi puru" he pokapū porowhita, pōuriuri me ētahi mowhiti tae mārama e karapoti ana. Ko te pokapū pōuriuri te tohu o te retina noa. He rerekē ngā mowhiti e karapoti ana. Tērā pea he karaka mārama, he māwhero, he papura rānei ēnei mowhiti. Ko ēnei tae rerekē ka puta mai i te kino, i te pirau rānei o te pokapū tirohanga (te macula).

Me pēhea te tautuhi i te Maculopathy o te Kanohi o Bull?

Tērā pea ka whakahaerehia e tō tākuta ētahi whakamātautau kanohi hei whakatau mēnā kei a koe te Bull's Eye Maculopathy. Ko ētahi o ēnei ko:

• Whakamātautau tirohanga matatau: He whakamātautau tēnei hei tirotiro i te pai o tō tirohanga. Ka tonoa koe ki te pānui i tētahi tūtohi reta paerewa (he "tūtohi Snellen"), i tētahi mata tirotiro rānei he rerekē te rahi o ngā reta. Ka whakamātauria tō tirohanga me ngā kanohi e rua, me te kanohi kotahi e katia ana.
• Whakamātautau tirohanga:Mā tēnei ka tirohia tō tirohanga pokapū me tō tirohanga taha. Ka taea hoki e ia te kī atu ki a koe mēnā he wāhi matapo kei a koe. Tērā pea ka tonoa koe kia titiro ki tētahi rārangi rārangi, ka tonoa rānei koe kia whakakā rama, kia neke rānei ō ringaringa kia kite ai koe i te tawhiti ka taea e koe te kite i mua i a koe me ngā taha.
• Whakamātautau tirohanga tae: Ka whakaaturia ki a koe tētahi pikitia i hangaia ki ngā ira tae me te tau i waenganui (whakamātautau pereti tae). Ki te kore e taea e koe te kite i te tau, tera pea he matapo tae tōu. Ka taea hoki e koe te whakamahi i tētahi taputapu e kiia nei ko te anomaloscope hei tirotiro i te āhua o tō kitenga i te māramatanga me te kanapa o ngā tae.
• Ophthalmoscopy: Ko te whakamahi i ngā pata kanohi hei whakawhanui i ngā karu o te kanohi. Kātahi ka whakamahia he ophthalmoscope hei tirotiro i tō cornea, te karāhe kanohi, te retina, te macula, te io whatu, me ngā oko toto e karapoti ana. Ka kiia hoki tēnei whakamātautau he fundoscopy.
• Whakamātautau Optical Coherence Tomography (OCT): He whakamātautau kore mamae tēnei. Ka whakamahia ngā ngaru mārama hei tango pikitia tino taipitopito, toru-ahu (3D) o ngā paparanga o tō retina, inā koa te macula, kei waenganui o tō tirohanga. Ka taea e tēnei whakamātautau te kite wawe i te kino me te pirau o te macula, ā, he mārama ake i ētahi atu whakamātautau.
• Whakamātautau whakaahua ā-aunoa o te fundus (FAF): He tikanga whakaahua hou tēnei. Ka whakamahia he mārama kikorangi hei tirotiro i ngā pūtau tae i roto i tō retina. He rerekē te mimiti, te whakaata rānei o ētahi pūtau i tēnei mārama i ētahi atu. Mā tēnei ka āwhina i te tākuta kia kite mēnā he kino, he whakangaromanga rānei kei te retina.

Ka taea te whakaora katoa i te Maculopathy o te Kanohi o te Puru?

Heoi, kāore anō kia kitea he rongoā katoa mō te "Bull's Eye Maculopathy".

Me pēhea te rongoā i te Maculopathy o te Kanohi o te Puru?

Kāore he maimoatanga i tēnei wā hei whakaora i te tirohanga ngaro nā te "Bull's Eye Maculopathy." Heoi, ki te mea nā te rongoā, nā te nui rawa rānei o te rino i roto i te tinana (paitini) te take o te mate, mā te whakamutu i te rongoā, te whakahaere rānei i ngā taumata rino ka ārai, ka whakahaere rānei i te kino haere o te mate.

I te nuinga o te wā, ko te whāinga matua o te maimoatanga he āwhina i ngā tūroro kia ora me ngā āhuatanga pēnei i te ngaronga o te tirohanga me te matapo tae. Tērā pea ka tūtohu tō tākuta i ēnei e whai ake nei:

• Hangarau āwhina: Hei tauira, ngā whakanui ataata, ngā pūwhakaata, ngā kaipānui mata rānei.
• Ngā mōhiti, ngā karaihe whakapā rānei.
• Te whakaora i te tirohanga iti, te whakaora mahi rānei: Ka akohia e ēnei tikanga me ngā tikanga maha hei mahi i ngā mahi o ia rā me te tirohanga iti.
• Ngā Āwhina Tirohanga: Ngā mea pēnei i ngā whakanui ringaringa, ngā karu tiro, ngā karāhe tātari mārama rānei.

He aha te tirohanga mō te tangata whai "Bull's Eye Maculopathy"?

Ko te ngaronga o te tirohanga i puta mai i te Bull's Eye Maculopathy he mea pumau tonu, ā, ka taea te haere tonu i roto i te wā . Heoi, e ai ki te kōrero i mua ake nei, ki te mea nā tetahi matū paitini te kino o te kanohi i puta, mā te karo i te matū paitini ka āwhina pea ki te ārai i te kino haere o te mate.

He ara hei ārai i te "Maculopathy o te Kanohi Pūru"?

Ina hoki, kāore he huarahi motuhake hei aukati i te whanaketanga o te "Bull's Eye Maculopathy".

Heoi, i te mea he mōrearea pea ētahi rongoā (hei tauira, te hydroxychloroquine) ki te whakaputa i tēnei mate, ki te tangohia aua rongoā mō te wā roa, mā te tirotiro kanohi auau e ai ki ngā tohutohu a te tākuta ka āwhina i te kite wawe i tētahi kino me te ārai i te kino haere o te mate.

He aha ngā pātai me pātai atu ahau ki taku tākuta mō te "Bull's Eye Maculopathy"?

Mena kei a koe te "Bull's Eye Maculopathy", me pātai atu pea koe ki tō tākuta i ētahi pātai pēnei i:

• "E te tākuta, he rongoā kei te tangohia e au i tēnei wā ka kino ake ai tēnei āhua?"
• "He tāpiringa kai kei reira hei āwhina i taku tirohanga kia pai ake?"
• "Me pēhea taku mahi i roto i tōku ao o ia rā me tēnei ngaronga o te tirohanga? He aha ētahi huarahi hei āwhina i ahau mō tēnā?"
• "Me pēhea taku mōhio mēnā he haumaru tonu te taraiwa māku?"
• "He ngaronga tūturu tēnei o tōku tirohanga?"
• "E hia te tūponotanga ka kino haere taku tirohanga?"

He mate onge te Maculopathy o te Kanohi Pūru. Ki te kite koe i ētahi huringa o tō tirohanga, kāore pea i puta mai i tēnei mate. Heoi, kaua e warewarehia tētahi raruraru tirohanga. Ahakoa he whakamataku, he ahotea hoki te ngaronga o tō tirohanga, he huarahi hei whakatau i tēnei. Ka taea e tō tākuta te tuku i a koe ki ngā āwhina tirohanga, ki ngā ratonga tautoko, me ngā maimoatanga e hiahiatia ana e koe.

Ki te kite koe i ētahi panonitanga o tō tirohanga, i ētahi atu tohumate hou rānei, me toro atu ki te tākuta tonu. Ahakoa te take o tō ngaronga tirohanga, ka taea e te maimoatanga wawe te whakaroa, te whakamutu, me te whakakore pea i ngā raruraru tirohanga.

Ngā mea tino nui hei maumahara (Karere hei kawe ki te kāinga)

Āe, me whakarāpopoto tātou i ētahi o ngā mea i kōrerohia e tātou i tēnei rā, ā, tera pea ka kitea e koe he mea nui:

• Ko te Maculopathy o te Kanohi Puru he mate kanohi tino onge e pakaru ai te pokapū tirohanga (macula) i roto i te kanohi, ka hua ake he tauira rite ki te "kanohi puru".
• Ka ngoikore pea te tirohanga matua. Ka pā pea tēnei ki ngā mea pēnei i te pānui pukapuka me te mōhio ki ngā kanohi.
• Ka puta pea tēnei i ngā āhuatanga ira, i ētahi atu mate, me te whakamahinga roa o ētahi rongoā .
• Kāore anō kia kitea he rongoā tuturu mō tēnei mate. Heoi anō, kei reira ngā huarahi hei āwhina i te whakahaere i ngā tohumate me te whakangāwari ake i te oranga.
• Ki te kite koe i ētahi panonitanga o tō tirohanga, he mea nui kia toro atu koe ki tētahi tākuta kanohi tonu. Mā te tātaritanga me te maimoatanga wawe ka āwhina i te ārai i te kino haere o te āhua.

Ko tō kawenga te tiaki i ō kanohi. He māramatanga nui ngā kanohi hauora i te ao.