Kua rongo kē koe i tētahi momo mate pukupuku tino onge, tino kino hoki e puta ana i roto i ngā whatukuhu, inā koa i roto i ngā taiohi? Kāore pea. Ko te Renal Medullary Carcinoma tēnei, ko te RMC rānei te whakarapopototanga. Ahakoa kāore i te tino noa, he mea nui kia mōhio ki tēnei, inā koa mō ētahi tāngata. Ahakoa he kaupapa nui tēnei, kaua e mataku. Me kōrero tātou mō tēnei i roto i tētahi huarahi māmā, e mārama ana i tēnei rā.
He aha rawa te RMC?
Ki te whakarapopoto, he momo mate pukupuku whatukuhu te Renal Medullary Carcinoma (RMC). Engari he tino onge, he tino kaha, ā, he tere te horapa. He mea noa i roto i te hunga rangatahi, inā koa ko te hunga he mate toto e kiia nei ko te 'sickle cell disease', ko te 'sickle cell trait' rānei.
Ina kōrero tātou mō te mate pukupuku whatukuhu, ko te momo tino noa ko te 'renal cell carcinoma'. He momo anō hoki te RMC o te 'renal cell carcinoma'. Engari kāore tetahi o te 100 o ngā tūroro mate pukupuku whatukuhu e pāngia e tēnei mate RMC. He tino onge.
He aha te take o tēnei mate pukupuku?
Kāore anō kia kitea e ngā kaipūtaiao me ngā tākuta te tino take o tēnei, engari kotahi te mea nui kua tautuhia.
Kei roto i ō tātou whatukuhu tētahi wāhanga e kiia nei ko te 'renal medulla'. I ētahi wā, ka huri ngā toto whero o te tangata whai mate 'sickle cell' hei āhua 'sickle'. Ina tupu tēnei, ka piri ngā pūtau ki a rātou anō, ka ārai i ngā oko toto i te wāhanga 'renal medulla' o te whatukuhu.
Ka pakaru ngā pūtau i taua wāhi nā te aukati i te rere o te toto. Ina koa, ka pakaru te ira e kiia nei ko `INI1` (e kiia ana ko `SMARCB1`) i roto i aua pūtau. Ka mahi tēnei ira `INI1` hei `kaitiaki` e aukati ana i ngā pūtau kia kore e mate pukupuku. Ina tirohia ngā pūtau mate pukupuku RMC, kāore tēnei ira `INI1` i roto i a rātou. Nō reira, ka tirohia e ngā tākuta te aroaro o tēnei ira `INI1` hei whakaū mēnā he RMC te pukupuku, kāore rānei.
Kei te tūpono anō hoki ahau ki te pāngia e te RMC?
He uaua ki te kī ko wai ka pāngia e tēnei mate. Ki te whai tētahi o tō whānau me te RMC, kāore e nui ake te tūponotanga o te pāngia e tēnei mate. Arā, ehara tēnei i te mea e ahu mai ana i roto i ngā whānau.
Ko te tino take mōrearea ko te mate toto e kiia nei ko te `sickle hemoglobinopathy`. Arā, he `sickle cell disease`, he `sickle cell trait` rānei. Engari he tino onge , ka taea hoki e te hunga kāore i ēnei āhuatanga te whakawhanake i te RMC. Ka kiia ko te "renal cell carcinoma, unclassified with medullary phenotype" (RCCU-MP).
Ki te titiro koe ki ngā tatauranga:
- He nui ake te kitea i roto i ngā tāne i ngā wāhine.
- Ko te whatukuhu matau te mea tino pāngia ai.
- Ko te tikanga ka kitea te mate i te wā taitamariki, i waenga i te 11 me te 39 tau te pakeke.
He mea nui kia mōhio te hunga rangatahi, inā koa te hunga he mate pūtau maripi, he āhuatanga pūtau maripi rānei, ki ēnei tohu, nā te mea ka māmā ake te rongoā i te kitenga wawe. Mēnā ka puta ngā tohu, me toro atu ki te tākuta tonu.
He aha ngā tohu o te RMC?
He maha ngā tohu noa o tēnei mate. Mēnā kei a koe tētahi, neke atu rānei o ēnei, he mea pai kia rapu tohutohu hauora i te wā e taea ai.
| Tohu | Whakaahuatanga |
|---|---|
| Te mamae i te rohe whatukuhu | He mamae pumau kei ngā taha e rua o te puku me te tuara o raro (i runga ake i te hope). |
| Te toto i roto i te mimi | He mimi māwhero, whero, parauri rānei. I ētahi wā, tera pea he toto kāore e kitea e te kanohi. |
| Puku puku | He puku, he puranga rānei e rite ana ki te puku i tetahi taha o te puku. |
| Te ngaronga taumaha mō te kore take | Te tere o te ngaronga taumaha i roto i te wā poto, me te kore he kaha. |
| Te kirika pinepine me te werawera i te pō | Mena he maha tonu ōu kirika, kāore he take kē atu, ā, he nui te werawera i te pō ka mākū ō whāriki kakahu. |
Me pēhea te tātaritanga a te tākuta i tēnei?
Ina kōrero mai koe i ō tohumate, ko te mea tuatahi ka mahia e te tākuta ko te tirotiro i a koe. Kātahi ka taea e koe te whai i ēnei mahi.
1.Matawai ultrasound: Ka taea e tēnei te homai he whakaaro whānui mēnā he pukupuku kei roto i ngā whatukuhu.
2. Matawai CT, MRI rānei: Mena kei te whakapaetia he pukupuku, ka tonoa pea he matawai CT, he MRI rānei kia mārama ai te āhua o te pukupuku. I runga i ēnei whakaahua, ka taea e te tākuta te whakatau i te tūponotanga he mate pukupuku.
3. Kohikohi pūtau: Mena he tino whakapaetia te mate pukupuku, ka mahia tēnei whakamātautau hei whakaū. Ko te whakauru i tētahi ngira angiangi ki te rohe o te pukupuku whatukuhu, ka tangohia he wahi kiko iti rawa , ka tirotirohia i raro i te karu hiko.
4. Whakamātautau ira: Ka tirohia ngā pūtau i tangohia mai i te koiora mō te aroaro o te ira `INI1` e whawhai ana ki te mate pukupuku i kōrerohia e tātou i mua ake nei.
- Mena kei te ngaro te ira `INI1`, ka kiia ko te RMC.
- Mena kei te ngaro te ira `INI1`, ā, kāore he mate `pūtau maripi` o te tūroro, ka tātaritatia ko `RCCU-MP`.
- Mena kei reira te ira `INI1` , ehara i te RMC, engari he momo pukupuku rerekē.
He aha ngā maimoatanga mō tēnei?
Nā te mea he mate pukupuku tere horapa, kaha hoki te RMC, me tere tonu, me kaha hoki te maimoatanga.
- Te rongoā matū: Koinei te maimoatanga tuatahi e tino kitea ana. Ko te hoatutanga o ngā rongoā ki te tinana hei patu i ngā pūtau matepukupuku.
- Pokanga: Te tango i te pukupuku matepukupuku me te whatukuhu pea e pāngia ana.
- Whakaora Irahiko: Te whakangaro i ngā pūtau matepukupuku mā te whakamahi i ngā hihi irahiko kaha.
Nā te mea he onge tēnei mate, kei te haere tonu ngā rangahau. Kei te rapu tonu ngā kaipūtaiao i ngā maimoatanga hou, whai hua ake hoki mō te RMC.
He ara hei ārai i te RMC?
Engari, kāore anō kia mōhiotia he huarahi hei ārai i te whanaketanga o te RMC, ā, kāore anō kia whakamahia he whakamātautau hei kite i mua i te putanga mai o ngā tohu.
Ko te mea pai rawa atu ka taea e koe ko te mōhio . Ki te mōhio koe kei a koe te mate pūtau maripi, te āhuatanga pūtau maripi rānei, kia tūpato ki ngā tohu kua whakahuatia ake nei. Ki te mea he āwangawanga āu, me toro atu ki tō tākuta tonu.
I te nuinga o te wā, i te wā e kitea ai tēnei mate, kua horapa kē te mate pukupuku ki ngā pona lymph, ki ētahi atu whekau rānei pērā i ngā pukahukahu, te ate, me ngā wheua. Nō reira, ko te kitenga wawe te huarahi pai rawa atu hei whakatutuki i ngā hua pai rawa atu.
Karere Tangohia ki te Kāinga
- Ko te Renal Medullary Carcinoma (RMC) he momo mate pukupuku tākihi tino onge engari he tino kino, e pā nui ana ki te hunga rangatahi.
- Ko te tino take mō te whakawhanaketanga o tēnei ko te whai i tētahi mate toto e kiia nei ko
sickle cell disease,sickle cell traitrānei. - Ko te mamae o te tuara/puku, te toto i roto i te mimi, te pupuhi i roto i te puku, me te ngaronga taumaha kāore i te mārama ngā tohu matua.
- Mena kei a koe te mate pūtau mariao, ā, ka pāngia koe e tētahi, e ētahi rānei o ngā tohu o runga ake nei, me toro atu ki tō tākuta tonu atu.
- I roto i tēnei mate, ko te tautuhi wawe me te tīmatanga o te maimoatanga te huarahi pai ki te whakaora i ngā oranga.
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