Me tino mataku koe, me tino ohorere hoki i te kīnga mai a te tākuta kotahi anake te pūaha o tō pēpi hou, arā, ko te wāhi tika mō te tara, te urethra, me te nono. He mea tino noa tēnei. Kāore he tangata e pai ki te rongo i tētahi mea pēnei. Kaua e manukanuka. He tino onge tēnei mate whānau ka taea te whakatika mā te pokanga. Me kōrero tātou mō ngā mea katoa i roto i te huarahi māmā, mārama hoki.
He aha te Cloacal Malformation?
He tino onge te Cloacal Malformation i te whānautanga, ā, ko ngā kōtiro anake ka pā ki tēnei mate. I te nuinga o te wā, me toru ngā whakatuwheratanga o te ira tangata me te nono o te kōtiro (e kiia ana tēnei wāhi ko te perineum).
1. Te urethra ( te ngongo e puta ai te mimi)
2. Te tenetene , te wāhi e puta ai te paheketanga me te moepuku.
3. Te nono ( te ara e puta ai te paru)
Heoi, kotahi anake te pūaha o te tamaiti e pāngia ana e te Cloacal Malformation, kaua ki ēnei e toru. Ko te tikanga o tēnei, ka puta te mimi, te paru, me ngā wai o te tara i roto i te tinana mā tēnei pūaha kotahi. He āhuatanga motuhake tēnei nō te rōpū o ngā whānautanga hapa e kiia nei ko te `(Anorectal Malformation)`.
Whakaarohia, i ngā wiki tuatahi o te whanaketanga o te pēpi i te wā e hapu ana, ko ngā pūnaha e toru—te pūnaha whekau, te pūnaha mimi, me te pūnaha whakaputa uri—e hono katoa ana ki tētahi rūma kotahi e kiia nei ko te "cloaca." I te tipu haere o te pēpi, ka wehea haeretia tēnei rūma kia toru ngā wāhanga, ka hangaia ngā pūaha e toru i kōrerotia i mua ake nei. I ētahi wā, kāore e tika te mahi a tēnei tukanga wehewehe. Koinei te wā e hono ana ngā pūnaha e toru ki tētahi ngongo kotahi, e puare ana i waho o te tinana mā tētahi pūaha kotahi.
Ko te rongoā mō tēnei mate ko te pokanga ki te hanga i ngā pūaha motuhake e toru, kaua ki tēnei pūaha noa. I te nuinga o te wā ka mahia tēnei pokanga i roto i te tau tuatahi o te oranga o te tamaiti.
He rerekē ngā momo o tēnei āhuatanga?
Āe. Ko te kaha o te mate Cloacal Malformation ka whakatauhia e te roa o te "awa whānui" e hono ana i ngā pūnaha e toru i kōrerohia e tātou. Ka taea e tēnei awa whānui te roa mai i te 1 henimita ki te 10 henimita. Mā tēnei roa ka whakatauhia te uauatanga o te pokanga e hiahiatia ana e te tamaiti.
- He Poto te Hongere Kotahi: Koinei te wā e hono ai ngā pūnaha e toru ki te pūaha i waho o te tinana. Ko te tikanga he poto te hongere kotahi. I ēnei wā, he māmā ake te puta o ngā para i te tinana. He tino māmā hoki te pokanga. Waihoki, he pai ake te hauora o te tamaiti ā muri ake nei.
- Te whai i tētahi Hongere Roa Kotahi:Koinei te āhuatanga tino uaua. I konei, ka honoa ngā pūnaha e toru ki roto i te tinana. Nō reira, he roa ake te awaawa noa. Nā tēnei ka uaua te puta atu o ngā para i te tinana. Ka uaua ake hoki te pokanga.
He tino onge tēnei mate, e pā ana ki te kotahi i roto i te 25,000 ki te 50,000 pēpi hou.
He aha ngā tohu o tēnei mate me ētahi atu raruraru e pā ana ki tēnei?
Ko te āhuatanga matua, ko te mea tino kitea, ko te whānautanga mai o te tamaiti wahine me te kotahi anake te kōhao, kaua ko ngā mea e toru e tika ana kia puta. Hei tāpiri, ka taea hoki e tēnei āhuatanga te whakararu i ētahi atu raruraru hauora. Me titiro tātou ki tēnei ripanga.
| Tohumate/raruraru e pā ana | He whakamārama māmā |
|---|---|
| Āhuatanga matua | Kotahi te pūaha hei whakakapi i te nono, te tara, me te urethra. |
| Te whakanui ake i te kiore | Ka rite te āhua o ētahi tara o ngā tamariki ki te ure o tētahi tama. |
| Te remu rerekē | He panonitanga o te tūnga o te nono, he āhua rerekē rānei. |
| Ngā raruraru o te pūnaha whakaputa uri | I ētahi wā, neke atu i te kotahi te tenetene, te kōpū, te kaki rānei. |
| Ngā raruraru o te pūnaha mimi | Ka puta pea ngā raruraru maha i roto i ngā whatukuhu, i ngā ureter, i te pūhā rānei. |
| Ngā raruraru i roto i ētahi atu pūnaha | Tērā pea ka pā mai ētahi atu raruraru ki te ngākau, ki te tuaiwi, ki te pūnaha nakunaku rānei. |
He aha i pā ai tēnei ki taku tamaiti? He aha te take?
He mea noa te puta ake o tēnei pātai ki roto i tō hinengaro. Engari kāore ngā tākuta i te tino mōhio he aha te take. E whakapono ana ngā kairangahau he mea tupu noa iho, kāore he take motuhake.
Ehara tēnei i tōu he. Kaua e pouri ki te whakaaro nā tetahi mea i mahia e koe, i kore rānei i mahia e koe i tō wā e hapu ana tēnei āhuatanga i puta ai. He tino hē tēnā.
Me pēhea te mohio ki tēnei āhuatanga?
Ka taea te tautuhi i tēnei mate i mua atu i te whānautanga me muri mai hoki.
I mua i te whānautanga (i te wā e hapu ana)
I ētahi wā, ka kitea tēnei āhuatanga i te wā o te matawai ultrasound, e mahia ana i te 20 wiki pea o te hapūtanga. E whakapae ana ngā tākuta i tēnei mēnā ka kitea i te matawai he pēke pupuhi, kī tonu i te wai i roto i te tara o te pēpi. Hei whakaū i tēnei whakapae, ka taea te whakahaere i te whakamātautau Magnetic Resonance Imaging (MRI) i te wā e hapū ana.
I muri i te whānautanga
I te nuinga o te wā ka kitea tēnei mate i muri i te whānautanga o te pēpi. Ka kite te tākuta tamariki e tirotiro ana i te pēpi kotahi anake te pūaha, kaua e toru. Tērā pea he puku pupuhi anō hoki tō te pēpi. Kātahi ka mahia ētahi whakamātautau hei mārama ki te āhua o roto i te tinana.
- Matawai ira-oro: Tirohia te āhua o ngā whatukuhu, te pūhā, me te tuaiwi o te pēpi.
- Ngā hihi-X: Ka taea te whakamahi i ngā tikanga hihi-X motuhake, pērā i te fluoroscopy, hei tirotiro i te mahi a te pūnaha mimi.
- Echocardiogram: Ka mahia tēnei whakamātautau hei tirotiro mēnā he raruraru kei te ngākau.
Me pēhea te rongoā? Me ako tātou mō te pokanga
Ko te rongoā mō te Cloacal Malformation he pokanga . Ko te whāinga matua he hanga i ngā pūaha motuhake e toru (anus, tenetene, me te urethra) hei utu mō te pūaha kotahi. Ko te whāinga he hoatu ki te tamaiti te kaha ki te tūtae me te mimi i te āhua noa, me te whakahaere i aua pūaha.
Ehara tēnei i te mea ka taea te mahi mā te pokanga kotahi. I te nuinga o te wā, me mahi he raupapa pokanga. Mō tēnei, he mea nui kia rapu awhina i te taote pokanga tamariki me te tākuta mimi tamariki.
Ka taea te wehewehe i te tukanga maimoatanga kia toru ngā taahiraa matua.
Hipanga 1: Pokanga tuatahi (i roto i ngā haora 48 o te whānautanga)
Ko te whāinga matua o tēnei he waihanga i tētahi ara kia puta tika ai ngā para (te paru me te mimi) i te tinana o te tamaiti.
- Colostomy: Nā te mea kāore he ara mō te tamaiti ki te tūtae, ka mahia he pokanga hei hanga i tētahi pūaha i roto i te puku mā te kawe i tētahi wāhanga o te whekau ki te mata o te kiri. Ka tāpirihia he pēke ki tēnei pūaha, kia kohia ai ngā tūtae.
- Te kore e taea te pupuri i te mimi: Ka whakamahia he catheter hei tango i te mimi nā te mea kua pupuhi, kua ārai rānei te pūkahukahu.
- Tenetene: Mena he wai kei roto i te tenetene, ka tangohia e te taote pokanga te wai.
Hipanga 2: Pokanga hanga hou nui (i waenganui i te 6 me te 12 marama te pakeke)
Ka mahia tēnei pokanga nui i muri i te pakeketanga o te tamaiti, ā, kua tau tōna hauora. Ko te mea e tupu ana i konei, ka wehea te awaawa whānui kia maha ngā wāhanga, ka hangaia he nono motuhake, he tara, me te urethra. Mena he poto te awaawa whānui, he māmā noa iho tēnei pokanga. Mena he roa te awaawa whānui, ka uaua ake te pokanga.
Hipanga 3: Te whakahurihanga o te colostomy
I muri i te pokanga matua, ina ora te nono hou i hangaia, ka tangohia te colostomy taketake. Ko te tikanga o tēnei ka katihia te whakatuwheratanga i hangaia i roto i te puku, ā, ka honoa anō ngā whekau ki tōna tūranga noa. Kātahi ka taea e te tamaiti te tūtae mā te nono hou i hangaia.
Tērā pea ka hiahiatia ētahi atu pokanga mō ētahi tamariki ā muri ake nei, ā, mā tō tākuta koe e whakamārama atu.
Ka pēhea te āhua o te tamaiti ā muri ake nei?
Koinei te pātai nui rawa atu kei roto i te hinengaro o ngā mātua katoa. Ko te rongo pai, he tino pai ngā hua.
- Te whakahaere i te whekau me te pūhā: Ko ngā tamariki he poto te pūhā noa, he māmā ake te uaua, e 90% te tūponotanga ka taea e rātou te whakahaere katoa i ō rātou whekau me te pūhā. Ko te tikanga ka taea e rātou te whakangungu wharepaku i te āhua noa. Ahakoa ngā tamariki he roa te pūhā noa, he uaua ake, e 70% te tūponotanga ka taea e rātou te whakahaere pai. Tērā pea ka uaua ki ētahi tamariki te whakahaere i ō rātou mimi (te kore e taea te pupuri i te mimi). I roto i ēnei āhuatanga, me whakamahi pea rātou i te ngongo i ētahi wā i te rā hei whakawātea i ō rātou pūhā.
- Te oranga moepuku me te hapūtanga: He maha ngā tamariki e pāngia ana e tēnei mate ka taea te whai oranga moepuku noa, whakamīharo hoki i a rātou e pakeke ana. Ka taea hoki e rātou te hapu. Heoi, tera pea he uaua ake i te wahine noa. Mena ka hapu rātou, he maha ngā wā ka tūtohuhia kia whānau te pēpi mā te pokanga tākihi (C-section).
He aha tāu e taea ai hei mātua?
He mea tino nui tō takoha i tēnei haerenga.
- Mahi tahi me te tīma hauora: Me noho tonu ki te taote pokanga, te tākuta mimi, me te tākuta tamariki o tāu tamaiti.
- Kia mahara ki te whai i ngā whakamātautau whai muri:I muri i te pokanga, me haere tonu tāu tamaiti ki te whare hauora kia mōhio ai kei te mahi tika ngā pūnaha o tōna tinana. Kaua e mahue tetahi o aua pokanga.
- Tautokohia tāu tamaiti: I a tāu tamaiti e tipu ake ana, ki te mea he raruraru kei a koe ki te whakahaere mimi, ki te whakahaere puku rānei, kaua e whakama ki te kōrero ki te tākuta.
- Pātai atu: Pātai atu ki te tākuta ō pātai, ō ruarua rānei. Nāu te tika.
Ko ētahi pātai ka taea e koe te pātai atu ki te tākuta:
- Me pēhea te mahi i tēnei pokanga? I tehea tau?
- Kei te mamae taku tamaiti?
- He aha ngā mea me tumanako atu ahau ina ora ake taku tamaiti i muri i te pokanga?
- Me nui ake ngā pokanga e hiahiatia ana e te tamaiti i a ia e pakeke haere ana?
- Ka puta ake rānei he raruraru ki te nono, ki te urethra, ki te tenetene rānei ā muri ake nei?
- Ka taea e taku tamaiti te whānau haumaru i tētahi tamaiti ā muri ake nei?
Kāore e taea te whakapuaki i te ohorere, te wehi, me te manukanuka e puta mai ana i te ako i tētahi mea pēnei. Engari kia maumahara, he tino matatau te pūtaiao hauora i ēnei rā. Ka taea e te pokanga te whakatika angitu i tēnei āhuatanga, ka hoatu ki tāu tamaiti te whai wāhi ki te ora noa, ki te ora harikoa pērā i ētahi atu tamariki.
Karere Tangohia ki te Kāinga
- He tino onge te Cloacal Malformation i te whānautanga, ā, ka puta anake i ngā pēpi wahine.
- Ehara tēnei i te he nāu, ehara rānei i te he o tō hoa. Kaua e manukanuka.
- Ko te maimoatanga he raupapa pokanga, e hanga ana i ngā pūaha e toru motuhake i roto i te tamaiti.
- He tino angitu ngā hua o te maimoatanga, inā koa i ngā take kāore i te tino uaua.
- He mea tino nui mō te hauora o te tamaiti a meake nei te noho hono atu ki ngā tākuta me te haere ki ngā wāhi tirotiro hauora.
- He tokomaha ngā tamariki e pāngia ana e tēnei mate e ora noa ana, e hauora ana, e harikoa ana hoki.
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