He harikoa nui te whānau ki te whānau mai i tētahi pēpi hou. I taua wā anō, ka nui te kawenga o te whaea, o te pāpā rānei, ā, i ētahi wā ka mataku ia mō ngā mea iti rawa. E māharahara ana tātou katoa mēnā kei te pai ngā mea katoa mō te pēpi, mēnā kei te hauora ia. Nō reira, i ētahi wā ka tirohia te pēpi e te tākuta, ka kōrero ki a ia mō tētahi huringa iti i whānau mai ai ia, ā, he mea noa te rongo i te taumahatanga nui ki te ngākau. I tēnei rā ka kōrero tātou mō tētahi mate tino onge, engari ka taea te rongoā mā te rongoā. Ko Epispadias tēnā.
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He aha te tikanga o Epispadias?
He mate whānau onge te epispadias. Ka pā ki te ngongo e kawe ana i te mimi i waho o te tinana. Ka kiia e mātou ko te urethra. I roto i ngā kupu māmā, koinei te ngongo e kawe ana i te mimi mai i tō tātou pūkahukahu i waho o te tinana. I roto i te pēpi he epispadias, kāore anō kia tino whanake tēnei urethra.
Ahakoa he nui ake te kitea o tēnei āhuatanga i roto i ngā tama, he onge noa iho te kitea i roto i ngā kōtiro. Kaua e manukanuka, ka taea te whakatika katoa i tēnei āhuatanga mā te pokanga e ngā tākuta mimi tamariki, e tohunga ana ki ngā mate e pā ana ki te pūnaha mimi i roto i ngā tamariki.
He maha ngā wā ka kitea ngātahitia ngā epispadias me tētahi atu hapa whānau e kiia nei ko te Bladder Exstrophy. He tino onge ake tēnei mate, arā, kei waho o te puku te pūkahukahu o te pēpi, kaua ki roto.
He aha ngā pānga o ngā Epispadias ki tētahi tamaiti tāne?
Mena kei te pāngia te tamaiti e tēnei mate, tera pea he rerekē te āhua o ōna ira tangata. Ko ngā tohu noa ko:
- Ure poto, ure whānui: Tērā pea ka paku poto, ka paku whānui te ure, ā, ka piko pea ki runga (dorsal chordee).
- Te urethral stricture: I te nuinga o te wā, kei te pito o te ure te urethral meatus. Heoi, i roto i ēnei tamariki, kei te tihi o te ure te mīti. I ētahi wā, tera pea he awaawa roa mai i te mīti ki te pito o te ure.
Ngā momo Epispadias i roto i ngā Tama
Ka whakarōpūhia tēnei mate e ngā tākuta ki ētahi momo, i runga i te wāhi tuturu o te mīti urethral. Nā te mea ko te tata o te mīti ki te pūtake o te ure ka pā ki te kaha o te pūkahukahu ki te pupuri mimi. Me titiro tata atu tātou ki te ripanga i raro nei.
| Momo Epispadias | He whakamārama māmā |
|---|---|
| Ngā epispadia pūngāwerewere | Koinei te momo tino noa. I konei, kei runga ake i te pane o te ure (te upoko o te ure) te pūwaha o te ure. |
| Ngā epispadia o te ure | Kei konei, kei te taha o te kakau o te ure te pūwaha o te ure. |
| Ngā epispadia penopubic | He āhua uaua ake tēnei. Kei te taha tonu o te wheua tūtae te pūwaha o te urethra. Nā te mea kāore i te honoa tika ngā wheua hope e rua o ēnei tamariki, kāore e taea e te uaua sphincter e whakahaere ana i te mimi te kati katoa. |
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Check Availability →He aha ngā pānga o ngā Epispadias ki tētahi kōtiro?
He tino onge tēnei āhuatanga i roto i ngā kōtiro, engari ki te puta, koinei ngā tohu ka kitea e koe:
- Tērā pea kei te taha o te clitoris te pūwaha o te urethra, kei te puku o raro rānei i ētahi wā.
- Nā te mea he tawhiti ngā wheua tūtae, ka wehea pea te tenetene kia rua ngā wāhanga, engari kāore e honoa ki waenganui.
- Tērā pea te āhua kāore anō kia tino whanake te labia.
- Tērā pea ka puta he raruraru ki te kaki o te pūkahukahu, ka uaua ai te whakahaere i te mimi.
He aha te rerekētanga i waenga i ngā Epispadia me ngā Hypospadia?
Tērā pea he āhua ōrite te tangi o ēnei ingoa e rua. He whānautanga hapa e rua e puta ana i roto i te ara mimi. Ko te rerekētanga ko te wāhi kei reira te pūaha o te urethra. Ko te tikanga o Epi ko "runga ake. " Ko te tikanga o Hypo ko "raro iho".
| Āhuatanga | Ngā Epispadia | Ngā hypospadia |
|---|---|---|
| Te wāhi o te whakatuwheratanga o te urethra | Kei tētahi wāhi i runga i te ure. | Kei tētahi wāhi i te taha raro o te ure. |
| Ko wai ka pāngia? | He nui ake te kitea i roto i ngā tama, engari ka taea hoki te pā ki ngā kōtiro. | Ko ngā tamariki tāne te nuinga e pāngia ana. |
He aha te take o tēnei āhuatanga?
Kāore anō kia kitea e ngā kairangahau tētahi take motuhake mō tēnei, engari e whakapono ana rātou ko te take o tēnei mate he raruraru e puta ana i ngā wāhanga tōmua o te whanaketanga o ngā wāhanga tinana o te pēpi i roto i te kōpū, inā koa i roto i te kiriuhi cloacal, te wāhi e hangaia ai ngā pūnaha mimi, te pūnaha nakunaku, me te pūnaha whakaputa uri.
Ko te mea nui, ehara tēnei i te he o te whaea, o te pāpā rānei. Kaua e pouri mō tēnei mea nā te mea i mahia e koe, i kore rānei i mahia e koe i te wā e hapū ana koe.
Me pēhea te tautuhi i te mate?
Ko te tikanga ka kitea tēnei mate i ngā tirotiro tuatahi a te tākuta i muri i te whānautanga o te pēpi i te hōhipera. Ka taea e ngā tākuta te kite ngāwari i tēnei mate nā te āhua rerekē o te ure i roto i te tama, i te kiriuhi me te waha o te kōpū i roto i te kōtiro.
Heoi, i ētahi wā he tino ngawari tēnei āhua, ā, kāore pea e kitea i te hōhipera. Mēnā koinei te āhua, ka kitea pea e ngā mātua he iti noa te turuturu o te mimi i te wā e whakangungu ana ki te wharepaku. He nui ake te tūponotanga ka kitea ngā kōtiro kua pāngia e tēnei āhua i muri mai.
Mena kei te whakapae tō tākuta kei a koe tēnei mate, ka tukuna koe e ia ki tētahi tākuta mimi tamariki.
Me pēhea te rongoā? Me mahi pokanga?
Āe, me pokanga hei whakatika i ngā Epispadia. Ko ngā whāinga matua o tēnei pokanga he whakaora i te āhua me te mahi a ngā ira tangata.
E taunaki ana ngā tākuta kia mahia wawetia tēnei pokanga, arā, i te wā e tamariki tonu ana te pēpi, nā te mea koinei te wā ka taea te whakatutuki i ngā hua pai rawa atu e pā ana ki ngā mahi pēnei i te whakahaere i te pūkahukahu. I ētahi wā, me mahi pea te tamaiti i ngā pokanga neke atu i te kotahi.
Ngā whāinga o te pokanga
- Mō ngā tama: Ka whakaora i te mahi, te rahi, me te āhua o te ure, ka whakahaere i te mimi, ā, ka tiaki i te momonatanga ā muri ake nei.
- Mō ngā kōtiro: He tino māmā te pokanga mō ngā kōtiro. Ko te nuinga o te mahi he hono i ngā wāhanga e rua o te tara, me te whakanoho i te urethra ki te tūranga tika.
He rerekē ngā tikanga pokanga, pērā i te "tikanga Cantwell-Ransley kua whakarerekētia" me te "tikanga Mitchell". Mā tō tākuta koe e kōrero ko tēhea tikanga te mea pai mō tāu tamaiti.
Ngā pātai e pā ana ki a koe hei mātua
He mea noa te puta ake o ngā pātai maha i roto i tō hinengaro i tēnei wā. Kia ngana tātou ki te whakautu i aua pātai.
Kia pēhea te roa o te wā e ora ai i muri i te pokanga?
Kei te uauatanga o te pokanga tēnei. Mena he pokanga iti noa iho, ka tere te ora o te tamaiti. Heoi, mena i mahia te pokanga mō tētahi āhuatanga pēnei i te (Bladder Exstrophy), tera pea he pokanga o tētahi raupapa, nō reira ka roa te wā e ora ai.
Ka taea e te pokanga te whakaputa raruraru?
I mua, i tūpono te puaretanga o te fistula mai i te urethra ki te kiri i muri i te pokanga. Engari i roto i ngā tikanga pokanga matatau o ēnei rā, he onge tēnei. Ahakoa i taua wā, ka taea tonu te kati i te kōhao i a ia anō, ka taea rānei te kati mā tētahi atu pokanga iti.
I roto i ēhea āhuatanga me toro atu koe ki te tākuta tonu?
I muri i te pokanga, rapua tonutia he tohutohu hauora mēnā ka pāngia tō tamaiti e ēnei tohu:
- Te kirika nui
- Mena he pupuhi te wāhi i pokangahia, he whero, he pupuhi rānei (he tohu mate)
- Ētahi atu tohu e whakararuraru ana i a koe
Ka pāngia te mahi ā-ira tangata e tēnei āhuatanga?
Kāo. Kāore te pokanga Epispadias e pā ki te mahi ure.
He pānga kei te momonatanga?
Kāore te momonatanga o te wahine e pāngia ana. Heoi, ko ngā tāne he mate uaua pēnei i te penopubic epispadias, te exstrophy-epispadias complex rānei, ka raru pea ki te hapu. Heoi, mā te pokanga ka āwhina i te whakaiti i ēnei raruraru. He mea nui kia kōrerohia tēnei ki tō tākuta.
Ka taea te kotia taku tama?
Tērā pea ka tohutohu tō tākuta kia whakaroa koe i te kotinga kia whai muri i te pokanga. Nā te mea pea ka hiahia te taote pokanga ki te kiri matamata hei hanga anō i te ure i te wā o te pokanga. I muri i te pokanga epispadias, ka taea e koe te kōrero ki tō tākuta mō te kotinga mēnā e hiahia ana koe.
Karere Tangohia ki te Kāinga
- He mate whānau onge a Epispadias, ehara i te he o ngā mātua.
- Ka kitea tēnei mate e ngā tākuta i te hōhipera i te whānautanga tonu o te pēpi. Nō reira, kāore he take e manukanuka ai.
- Ka taea e te pokanga te whakatika katoa i tēnei āhuatanga, te whakahoki anō i te āhua me te mahi a ngā ira tangata kia noho noa.
- Mā te pokanga i te wā e taea ai, ka taea te whakatutuki i ngā hua tino pai mō ngā mahi pēnei i te whakahaere mimi.
- Ka hoatu e tō tākuta he tohutohu mārama ki a koe mō te tiaki i tāu tamaiti i muri i te pokanga me te wā e tika ai kia kite anō i te tākuta. He mea tino nui kia whai i aua tohutohu.
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