Kāore rānei te rongoā e whakahaere i te hauora o te tamaiti? Me kōrero tātou mō te pokanga Hemispherectomy

He maha ngā mate hopuhopu o tāu tamaiti? Me tino āwangawanga koe nā te mea kāore e taea e koe te whakahaere i aua mate ahakoa ngā rongoā katoa e hoatu ana ki a koe. I ētahi wā, ka kōrero ngā tākuta mō tētahi pokanga nui e kiia nei ko te 'Hemispherectomy' i roto i tēnei āhuatanga. He mea noa te mataku nui ina rongo koe i tēnei ingoa. Nā te mea ko te tikanga o tēnei ko te tango i te haurua o te roro. Kaua e manukanuka, i tēnei rā ka kōrerohia e mātou tēnei mea me te tino māmā, i roto i tētahi huarahi e mārama ai koe.

Ki te kī ngāwari, he aha te Hemispherectomy?

Ko te hemispherectomy he tango pokanga i te katoa, i te wāhanga rānei o te roro o te tamaiti (te taha kotahi) me te motu i tōna hononga ki te toenga o te roro. Ko te tikanga o "Hemi" he "haurua". He pokanga tino onge tēnei, he tino motuhake.

Ko te nuinga o tēnei mahi he mahi mā ngā tamariki e pāngia ana e te mate haurangi kāore e taea te whakahaere mā te rongoā. Mō ēnei tamariki, he tino rerekē tetahi taha o te roro, ā, ko taua taha te mea e puta ai ngā mate hopuhopu. Nō reira, ko te whāinga o tēnei pokanga he whakamutu i ngā mate hopuhopu mā te tango, te momotu rānei i taua wāhanga mate.

E rua ngā momo matua o tēnei pokanga.

E rua ngā tikanga matua mō te mahi i tēnei pokanga. Ka whiriwhiria e ngā tākuta te tikanga tino tika i runga i te āhua o tāu tamaiti.

He aha te momo tamariki e hiahia ana ki tēnei pokanga?

Kāore tēnei pokanga e mahia mō ngā tamariki katoa e pāngia ana e te mate pāwera. Ka mahia i roto i ngā āhuatanga tino motuhake. Mena kei tō tamaiti ēnei tohu, ngā āhuatanga rānei e whai ake nei, ka whakaarohia pea e tō tākuta tēnei pokanga:

• Kei te pāngia koe e te mate haurangi (epilepsy) e kore e taea te whakahaere ki te rongoā .
• Te ngoikore o te taha kotahi o te tinana. Hei tauira, te kore e taea te whakamahi i te ringa kotahi me te ringa o tetahi atu.
• Te ngaronga o te tirohanga taha.
• E whakaatu ana te matawai MRI o te roro i tētahi āhua rerekē i te taha kotahi anake o te roro.
• Ka taea e ngā mate urutā pinepine te whakaroa i te tipu me te whanaketanga o te tamaiti .

Ngā āhuatanga ka puta ai ēnei tohu:

• Ngā Hanganga Kore o te Whanaketanga o te Uho: Ko ētahi hapa ka puta i te wā e whanake ana te uho o te roro.
• Te Whiu i te Whānautanga (Whiu): He whiu e puta ana i roto i te kōpū, i muri rānei i te whānautanga.
• Hemimegalencephaly: He nui ake tetahi taha o te roro i tetahi atu.
• Te Mate Sturge-Weber: He āhuatanga e tipu rerekē ai ngā uaua toto. Ka puta anō hoki ēnei i roto i te roro.
• Te Pūkahukahu o Rasmussen: He mate e pā ana ki te taha kotahi o te roro, ā, ka puta he mate pōrearea nā te mumura.

He aha ngā mea ka tupu i mua atu, ā, i te wā o te pokanga?

He wero nui pea māu te whakarite i tāu tamaiti mō tētahi pokanga nui pēnei, engari mā ngā tākuta me ngā nēhi o te hōhipera koe e āwhina mā te whakamārama i ngā mea katoa.

I mua i te pokanga

I te rā i mua i te pokanga, ka tonoa koe kia mutu te kai me te inu i muri i tētahi wā kua whakaritea. Ka hoatu he tohutohu mārama ki a koe mō ngā rongoā e tangohia ana e tāu tamaiti, ko ēhea me mutu, me ēhea me haere tonu. Tērā pea ka tapahia ētahi makawe, ka tangohia katoatia rānei i te taha o te māhunga o tāu tamaiti ki te wāhi e mahia ai te pokanga.

I te wā o te pokanga

Ka hoatu he rongoā whakamoe whānui ki te tamaiti, kia moe rawa ai rātou, kia kore ai he mamae. E rima hāora te roa o te pokanga, i ētahi wā ka roa ake. Ko ēnei ngā mahi matua ka whaihia e te taote pokanga:

1. Te tango i tētahi wāhanga iti o te angaanga (e kiia ana tēnei ko te `Craniotomy`).

2. Te tango, te tango katoa rānei i tētahi wāhanga o te kiko o te taha mate o te roro.

3. Te tapahi i ngā muka e hono ana i ngā taha e rua o te roro (corpus callosum). (Ka kiia tēnei ko te 'Corpus Callosotomy').

4. Ka whakahokia te wāhanga o te angaanga kua tangohia, ā, ka tuia te kiri kia kati.

He aha ngā mea ka tupu i muri i te pokanga? Ā, he aha ngā hua?

I muri i te pokanga, ka whakaurua te tamaiti ki te Wāhanga Tiaki Kaha (ICU) ā, ka tirotirohia rawatia. I muri i ngā rā e rua, e toru rānei, ka nekehia ia ki te wāhanga noa.

Kei te mahi tetahi rōpū tohunga ki te āwhina i te tamaiti kia ora.

• Whakaora Tinana: Ka āwhina i a koe ki te hikoi, ki te oma, me te pupuri i te taurite.
• Whakaora Mahi: Ka ako koe ki te mahi i ngā mahi o ia rā pēnei i te kai me te whakakakahu i a koe anō.
• Whakaora Kōrero: Ka āwhina i te wikitoria i ngā uauatanga ki te kōrero me te whakapuaki whakaaro.

Kāore ianei he mōrearea me ngā raruraru?

Pērā i ngā pokanga nui katoa, tera pea ētahi mōrearea me ngā raruraru ka pā mai, engari he tino onge ēnei.

Ina hiahia koe ki te kōrero wawe ki te tākuta

I muri i tō hokinga atu i te hōhipera, me aro nui koe ki tāu tamaiti. Mēnā ka kite koe i tētahi o ngā tohu e whai ake nei, waea atu ki tō tākuta tonu, kawe rānei i tāu tamaiti ki te Tari Whawhati Tata (ETU) o te hōhipera tata.

• Te whakaatu i ngā tohu o te mate pāwera, pērā i te kirika , te pupuhi, te whero, te pupuhi rānei mai i te patunga pokanga.
• Te ruaki pinepine, te ānini nui, me ngā huringa whanonga (he tohu pea ēnei o te mate e kiia nei ko te Hydrocephalus).
• Te hokinga mai o te hopukanga.

Ehara i te mea ngāwari te whakatau i tēnei mō te pokanga mā ngā mātua. He kawenga nui tēnei. Engari kia mahara, ka tūtohu noa te tākuta i tētahi pokanga pēnei mēnā ka tino mōhio ia kāore he kōwhiringa kē atu, ā, ka tino whai hua ki te oranga o te tamaiti.