He ngenge tonu koe? Me kōrero tātou mō te Idiopathic Hypersomnia?

He mea noa ki a tātou katoa te ngenge me te hiamoe i ētahi wā. Engari, kei te ngenge tonu koe, kei te tino ngenge hoki i te rā roa, ahakoa kua moe koe mō ngā hāora i te pō? He uaua ki a koe te ara ake i te ata? Kei te whakaaro koe kāore koe i te nui te moe ahakoa kua whakatakotohia ngā whakaoho maha? He mea nui pea tēnei ki a koe. I tēnei rā, ka kōrero tātou mō tēnei āhuatanga e kiia nei ko te "idiopathic hypersomnia," e kīia ana rānei e ngā tākuta.

He aha te Hypersomnia Idiopathic?

Ki te kī ngāwari, ko te `(Idiopathic Hypersomnia)` he mate moe e hiahia ana koe ki te moe nui rawa. Ko te mea ka tupu, ahakoa ka moe koe i te pō kia rite ki te nui e hiahiatia ana e koe, arā, mō ngā haora neke atu i te iwa, kāore koe e okioki, e ora rānei i te oho ake i te ata. Ko te tikanga o te kupu "idiopathic" kāore i te mōhiotia te tino take o tēnei mate .

Mena kei a koe tēnei mate, tera pea ka ara ake koe i te ata me te kore e marino, me te kore e okioki. Me whakatakoto pea e koe he maha ngā whakaoho, ā, me uaua ki te ara ake i te moenga. Tērā pea ka ngenge koe ahakoa kua moe koe. Ko te ngenge i te rā katoa he arai nui ki ō mahi o ia rā.

Kaua e manukanuka, ka taea e koe te rapu awhina i te taote hei whakahaere i ēnei tohumate.

E hia te onge o tēnei āhuatanga?

E ai ki ngā rangahau i whakahaerehia i te Hononga o Amerika, e pāngia ana e tēnei mate (Idiopathic Hypersomnia) te tekau i roto i te rau mano tāngata. Ko te tikanga he mate tino onge.

He aha ngā tohu o tēnei?

Ko ngā tohu matua o te mate "Idiopathic Hypersomnia" ko:

• Te hiamoe nui rawa atu i te awatea: Ka taea e koe te moe i ngā wā katoa o te rā.
• Te moe neke atu i te 11 hāora i roto i te wā 24-hāora: Kei roto i tēnei ko te moe i te awatea. Te moe neke atu rānei i te 9 hāora i te pō.
• Te uaua ki te ara ake: Ahakoa he moe pai i te pō, he uaua tonu te ara ake i te ata. Ka pōuri koe, ka pōuri hoki ina ara ake ('moe koretake').

Ka uaua pea te mahi i ngā mahi o ia rā nā ēnei tohu. I te nuinga o te wā, ka whakaū te tākuta i tēnei mate mena kei te kitea ēnei tohu i ētahi rā o te wiki, tata ki ia rā, mō te iti rawa e toru marama. I ētahi wā, ka kitea pea ēnei tohu mō ngā tau, ā, kāore pea e taea te whakatau i tētahi mate tuturu.

Ahakoa kei te ara koe, haunga te ngenge, tera pea ka pāngia koe e ngā āhuatanga penei:

• Kohu roro: He uaua ki te whakaaro mārama.
• Pōhēhē: Me te mea kāore e taea te mārama he aha te mea e tupu ana.
• Pouri: Te āhua pouri, me te mea kua hoha koe ki ngā mea katoa.
• Pōuriuri.
• Ngā mamae o te upoko.
• Te riri.

He aha te take mō tēnei?

Kāore anō kia mōhiotia te tino pūtake o te Idiopathic Hypersomnia . Kei te haere tonu ngā rangahau, engari e kī ana ētahi rangahau ko ēnei āhuatanga pea te take:

• Ngā rerekētanga ira/ngā whakarerekētanga ira: Ka taea e ngā huringa o ētahi ira te whakararuraru i te huarahi e kōrero ai ō pūtau roro me te whakahaere i tō huringa moe-ara.
• He urupare rerekē a te pūnaha ārai mate: Tērā pea ka whakaekea e tō ake pūnaha ārai mate ngā pūtau hauora o te pūnaha io, ka kitea he tūmomo mōrearea.

He aha ngā mea e whakaoho ana i tēnei āhuatanga?

Ko ngā mea e whakaoho ana i ngā tohu he mea ka taea te whakararu, te whakararu rānei i ngā tohu. Ka taea te whakaoho i te Idiopathic Hypersomnia e:

• Ngā huringa ohorere o tō huringa moe-ara.
• Te whakapau kaha rawa.
• Te rongoā whakamoe whānui mō tētahi mea pērā i te pokanga.
• He mate huaketo.
• Te whara o te upoko.

Ko wai te mea tino mōrearea mō tēnei?

Tērā pea he mate ira tōu ki te Idiopathic Hypersomnia. Ko te tikanga, mēnā kei roto i tō whānau tēnei āhuatanga, tētahi atu mate moe rānei, he iti noa te tūponotanga ka pāngia koe e tēnei mate.

He aha ngā raruraru ka pā mai i tēnei?

Ki te ngenge tonu koe, he mea noa te whakaaro kāore e taea e koe te mahi i tō mea pai. Tērā pea he wero ēnei mea māu:

• Te mahi i ngā mahi e tumanakohia ana i te awatea (pēnei i ngā mahi o ia rā, te arotahi ki te mea kotahi).
• Te pupuri i ngā whanaungatanga ki te hunga e arohaina ana.
• Te whakatutuki i ngā kawenga i te mahi, i te kura, me te oranga whaiaro.
• Te pupuri i tō hauora hinengaro me tō taurite kare ā-roto.

Whakaarohia, ko te taraiwa waka, ko te whakahaere mīhini taumaha rānei, me aro nui koe. Ki te moe koe i tētahi wā pēnei, ka tūpono he mōrearea mōu, mō ētahi atu hoki.

Me pēhea te tautuhi i tēnei?

Ka tirohia koe e te tākuta, ka whakahaerehia hoki ngā whakamātautau e tika ana hei whakatau mēnā he Idiopathic Hypersomnia tōu. I te wā o te whakamātautau, ka āta whakarongo te tākuta ki ō tohumate, ā, ka tono pea kia whakautua e koe tētahi pātai e kiia nei ko te Epworth Sleepiness Scale, e ine ana i te nui o tō hiamoe.

Tērā pea ka tonoa koe kia pupuri i tētahi pukapuka moe mō ētahi wiki. Mā tēnei ka āwhina i a koe ki te aroturuki i ngā wā e haere ana koe ki te moenga me te ara ake. Tērā pea ka hoatu e tō tākuta he taputapu iti e kiia nei ko te actigraph hei mau ki tō ringa. Mā tēnei ka āwhina i a koe ki te aroturuki i ō tauira moe.

Hei tāpiri, he rangahau moe motuhakeHei tauira, ka taea te mahi i te polysomnography, i te whakamātautau moe maha rānei (MSLT). Ka arotakehia e te tākuta ngā hua o ēnei whakamātautau, ā, ka whakahaerehia he whakamātautau tāpiri hei whakakore i ētahi atu āhuatanga ka puta pea ngā tohu rite.

He rongoā tino pai mō tēnei?

Kāore anō kia kitea he rongoā mō te mate "Idiopathic Hypersomnia." Heoi, kei reira ngā maimoatanga hei āwhina i te whakahaere i ngā tohu.

Me pēhea te rongoā mō tēnei?

He maha ngā wā ka whakamahia ngā rongoā hei whakahaere i ngā tohu o te "Idiopathic Hypersomnia".

Hei tāpiritanga, kei reira tētahi rongoā hinengaro motuhake e kiia nei ko te "Cognitive Behavioral Therapy for Hypersomnia (CBT-H)". He mea hanga tēnei hei āwhina i te mate "Idiopathic Hypersomnia". Ina whakamahia ngātahi me te rongoā, ka taea e tēnei rongoā te whakapai ake i te kounga moe whānui me te mahi o ia rā.

Ngā rongoā mō te hypersomnia idiopathic

He maha ngā momo rongoā ka taea te whakamahi hei rongoā i tēnei mate:

• Ngā rongoā e whakaoho ana i te pūnaha io matua ('Ngā whakaohooho pūnaha io matua') - hei tauira, ngā rongoā o te momo '(amphetamines)'.
• Ngā rongoā e whakaoho ana i te pūnaha io matua kāore i te rōpū amphetamine - hei tauira, `(modafinil)`.
• Ngā rongoā whakaiti i te pūnaha io matua - hei tauira, te konutai oxybate (he rongoā tēnei kua whakaaetia e te FDA).
• Ngā kaitukino i ngā kaiwhakawhiwhi GABA - hei tauira, flumazenil.

He rerekē ngā pānga taha o ēnei rongoā. Mena kei te tango koe i ētahi atu rongoā i tēnei wā, he mea nui kia kōrero koe ki tō tākuta kia kite ai mēnā ka taunekeneke pea rātou me te rongoā hou. Kaua e whakarerekē i tō tikanga rongoā me te kore whakaae a tō tākuta.

Ka tono pea te tākuta kia tangohia e koe te Epworth Sleepiness Scene i mua i te tīmatanga o te maimoatanga, me te wā hoki e maimoatanga ana kia kitea ai te whai huatanga o te maimoatanga.

He aha tāu e tumanako ai ina noho tahi koe me tēnei mate?

He mea noa te pōuri i te wā e noho tahi ana me te Idiopathic Hypersomnia. Ahakoa e moe ana koe mō ngā hāora i ia pō, e ngenge tonu ana koe i te awatea. Ka uaua pea tēnei ki te mahi i ngā mahi o ia rā, pērā i te haere ki te kura, ki te mahi rānei i te wā tika.

Tērā pea ka tohua e tō tākuta he rongoā hei āwhina i a koe kia ara ake i te awatea. Tērā pea ka roa te wā ki te kimi i te rongoā me te horopeta tika māu, ā, me whakamātau pea koe i ētahi momo rongoā. Ka tirotirohia koe e tō tākuta i ia wā kia kite ai me pēhea te whai huatanga o te maimoatanga māu.

Āhea ahau me toro atu ki te tākuta?

Ki te moe pai koe i te pō engari ka tino ngenge, ka hiamoe rānei i te awatea, he mea nui kia toro atu koe ki te tākuta . Hei tauira, ki te kite koe kei te moe koe i roto i te akomanga, i te mahi, i a koe e kōrero ana ki ngā hoa, kaua e warewaretia. Ka taea e te tākuta te āwhina i a koe ki te whakahaere i ō tohu i roto i ngā huarahi hei āwhina i a koe kia noho mataara.

He aha ngā pātai me pātai atu e au ki te tākuta?

Ina kite koe i tō tākuta, ka taea e koe te pātai i ēnei pātai:

• He aha ahau i tino ngenge ai i te awatea?
• Me whakarerekē taku hōtaka moe?
• He aha te momo maimoatanga e taunaki ana koe?
• He pānga taha anō kei te puta mai i tēnei maimoatanga?
• Āhea ahau me tango i te rongoā i tohua e koe?

Ahakoa he pai tō moe i te pō, he uaua ki te pārekareka ki te ora ina kore e whiwhi tō tinana i te okiokinga e hiahiatia ana. Ka taea e te Idiopathic Hypersomnia te mea ka ngaro koe i ngā hui, ka noho roa, ka ngaro te arotahi, ā, i ētahi wā ka hiahia koe ki te ara ake i te moenga. Tērā pea ka hiahia koe ki te karo i ngā taunekeneke pāpori nā te wehi kei moe koe i a koe e kōrero ana ki ngā hoa. Ka pā nui ēnei katoa ki tō hauora hinengaro.

Waimarie, kāore koe e hiahia ki te noho tahi me ēnei tohu. Ka taea e te tākuta te āwhina i a koe ki te rapu i te take kāore koe e whiwhi ana i te okiokinga e hiahiatia ana e koe, me te tuku maimoatanga hei āwhina i a koe kia noho mataara.

Hei whakamutunga, he karere hei kawe ki te kāinga:

Ki te mea kei te hiamoe koe, kei te ngenge hoki i te roanga o te rā, kaua e kīia he "hoha" noa iho. He tohu pea tēnei nō tētahi mate hauora kei raro iho. Ko te Idiopathic Hypersomnia tētahi o aua mate.

Kia maumahara, he rongoā kei reira mō tēnei. Ko te kōrero ki te tākuta mō ō tohu te taahiraa tuatahi. Mēnā he tātaritanga tika me te maimoatanga tika, ka tino pai ake te kounga o tō oranga. Kāore koe i te mokemoke, ā, kaua e wehi ki te tono āwhina!

` Moe, hiamoe, nui rawa te hiamoe, hiamoe kore whakamārama, hypersomnia idiopathic, insomnia, tohu