Mena kei a koe, kei tētahi rānei o tō whānau te mate Cystic Fibrosis (CF), e mōhio ana pea koe ki ngā wero o te noho tahi me tēnei mate. Engari ko te rongo pai, nā te whanaketanga o te pūtaiao hauora, kua puta mai ngā rongoā hou hei āwhina i a koe ki te whakatau i tēnei mate. I tēnei rā, ka kōrero tātou mō tētahi o aua rongoā. Ko Ivacaftor te ingoa. Tērā pea e mōhiotia ana e koe mā te ingoa waitohu Kalydeco. Me titiro poto tātou ki tēnei rongoā.
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He aha rawa te mea ka tupu ki tēnei rongoā?
He kupu whakarāpopoto, he rongoā a Ivacaftor hei rongoā i te Cystic Fibrosis (CF) . Heoi, kāore e pai mō ngā tūroro CF katoa. Ka mahi noa tēnei rongoā i roto i te hunga he whakarerekētanga motuhake kei roto i ngā ira e puta ai te CF. Ma tō tākuta e whakahaere ngā whakamātautau e tika ana hei whakatau mēnā he pai tēnei rongoā māu.
Ko te Cystic Fibrosis he mate ira e whakararu ana i te mahi a te pūmua i roto i te tinana. Ka puta he putunga matotoru, piri ki roto i ngā whekau pērā i te pukahukahu me te repeure, ka puta he maha ngā raruraru. Ko te mahi a te rongoā Ivacaftor mā te whakahoki mai i te mahi a te pūmua kua ngoikore ki tētahi taumata, ka whakaiti i ngā putunga, ā, ka taea ai te tango ngāwari atu i te tinana.
Ngā mea me kōrero e koe ki tō tākuta i mua i te tīmatanga o te rongoā
I mua i te whakamahinga o tēnei rongoā, he mea nui kia mārama te whakamārama ki tō tākuta mō tō hauora whānui. Me whakamōhio atu koe ki a rātou mō ēnei mea:
- Mate ate: He mea nui kia kōrero ki tō tākuta mēnā he mate ate tōu. Nā te mea ka whakapūpūtia tēnei rongoā e te ate. Mēnā he raruraru ate tōu, me whakarerekē pea e tō tākuta tō horopeta.
- Mate whatukuhu: Waihoki, ki te mea he raruraru whatukuhu tōu, kōrero mai hoki ki a mātou.
- Mate pāwera: Kōrero ki tō tākuta mēnā he mate pāwera koe ki a Ivacaftor, ki tētahi atu rongoā, kai, tae rānei.
- Te haputanga, te whakamahere rānei kia whānau tamariki: Mena kei te hapu koe, kei te ngana rānei kia hapu, kōrero ki tō tākuta.
- Mena he whaea whāngai u koe: Kia mahara ki te whakahua i tēnei mena kei te whāngai u koe.
Hei oranga mōu ake te kōrero atu ki te tākuta me te kore e huna i ēnei kōrero. Nō reira kaua e wareware ki te kōrero atu ki a ia ahakoa he mea iti noa iho.
Me pēhea te whakamahi tika i tēnei rongoā?
Hei whakatutuki i te hua pai rawa atu o te rongoā, he mea nui kia whakamahia tika.
Me pēhea te tango i te rongoā
Ko tēnei rongoāMe kai tahi me te kai kei roto te ngako. Hei tauira, ki te kai tahi koe i tēnei pire me te hua manu, te tōhi tiihi, te poro taro me te pata pīnati, te omelet rānei i hangaia ki te pata, ka pai ake te mimiti o te rongoā e te tinana. Kaua e kai i te wā e takoto kau ana te puku.
Ko te mea nui: Kaua e tangohia tēnei rongoā me te wai karepe mō tetahi take. Kāore hoki ngā karaka Seville i te pai. Ka pā pea ēnei ki te whai huatanga o te rongoā.
Me tango noa i te horopeta kua tohua, ina tohua e tō tākuta. Kaua e tango i te nui atu. Kaua e mutu ohorere te tango i te rongoā me te kore he tohutohu a tō tākuta.
Ki te hoatu e koe ki ngā tamariki
I ētahi wā ka tohua tēnei rongoā mō ngā tamariki neke atu i te 6 tau te pakeke. Heoi anō, kōrero atu ki tō tākuta tamariki mō tēnei mea me te whai i ana tohutohu.
Mena ka nui ake te horopeta o te rongoā (Tāpiri rawa)
Ki te whakaaro koe kua nui rawa te rongoā i tangohia e koe, haere tonu ki te Wāhanga Maimoatanga Ohotata (ETU) tata rawa atu. Waea atu rānei ki te Pokapū Mōhiohio Paitini ā-Motu i te Hōhipera ā-Motu o Colombo mō ētahi tohutohu.
Ki te ngaro koe i tētahi horopeta rongoā
Ki te ngaro koe i tētahi horopeta, me tango tonu i te wā e mahara ana koe. Heoi, ki te iti iho i te 6 hāora i mua i tō horopeta e whai ake nei, me peke atu i te horopeta i ngaro, ka tango i tō horopeta e whai ake nei i te wā kua whakaritea. Kaua rawa e tango takirua i te horopeta.
Ētahi atu rongoā ka taunekeneke pea me Ivacaftor
He mea tino nui kia kōrero koe ki tō tākuta mō ngā rongoā katoa e tangohia ana e koe, tae atu ki ngā huaora me ngā hua otaota. Tērā pea ka taunekeneke ētahi rongoā me Ivacaftor. Tirohia tēnei ripanga.
| Momo rongoā/matū | Taumata o te āwangawanga |
|---|---|
| Ko ētahi rongoā e whakamahia ana mō ngā haurangi (hei tauira, carbamazepine, phenobarbital, phenytoin) | Ka whakaiti i te whai huatanga o Ivacaftor. |
| Wai karepe me ngā karaka Seville | Ka whakanuia te kukū o te rongoā, kāore e tika ana. |
| Rifampin, Rifabutin (ngā rongoā mō te mate kohi) | Ka tino whakaiti i te whai huatanga o Ivacaftor. |
| Te Wōti o Hato Hoani (hua otaota) | Ka whakaiti i te whai huatanga o Ivacaftor. |
| Ngā rongoā ārai harore (hei tauira, ketoconazole, itraconazole, fluconazole) | Ka piki ake pea te kukū o te Ivacaftor. |
| Ko ētahi paturopi (hei tauira, clarithromycin, erythromycin) | Ka piki ake pea te kukū o te Ivacaftor. |
| Cyclosporine, Tacrolimus, Digoxin | Tērā pea ka pā te Ivacaftor ki te whai huatanga o ēnei rongoā. |
Kāore tēnei rārangi i oti, nō reira he mea pai kia kōrerotia e koe ki tō tākuta ngā rongoā katoa e tangohia ana e koe.
Ngā pānga taha pea o te tango i te rongoā
Pērā i ngā rongoā katoa, ka pāngia ētahi tāngata e te pānga taha o te Ivacaftor. Ko ētahi he kino, ko ētahi he ngawari.
| Ki te pāngia koe e ēnei tohu, kōrero tonu atu ki tō tākuta. | |
|---|---|
| Ngā tohu mate pāwera | He ponana kiri, he mākūkū, he pupuhi o te mata, o ngā ngutu, o te arero rānei. |
| Ngā pānga ki te ate | Te mimi pōuri, te tūtae mārama, te kōwhai o ngā kanohi, te kiri rānei, te mamae o te taha matau o runga o te puku, te kore hiahia kai. |
| Ngā huringa tirohanga | Te tirohanga pōuri, tetahi atu huringa rānei. |
| Ētahi atu | E tino ngenge ana koe, e ahua ana kei te pāngia koe e te kirika. |
| Kāore ēnei i te tino kino, engari ki te mau tonu, kōrero ki tō tākuta. | |
| Pūnaha nakunaku | Te koretake o te kai, te whakapairuaki, te korere. |
| Ētahi atu | Te ānini , te whanoke , te mamae o ngā hononga. |
I a koe e tango ana i tēnei rongoā, me tirotiro pea tō tākuta i ō tirohanga me te taumata o ngā whākōkī ate i roto i ō toto i ia wā. He mea noa tēnei.
Me pēhea te pupuri i te rongoā kia haumaru?
- Puritia kia matara atu i ngā tamariki.
- Penapena ki te pāmahana rūma (i waenga i te 15-30 nekehanga Celsius).
- Maka atu te rongoā kua pau te wā, kaua e whakamahia.
Kua tohua tēnei rongoā māu anake. Kaua e tohaina ki tētahi atu mō tetahi take.
Karere Tangohia ki te Kāinga
- He rongoā motuhake te Ivacaftor hei rongoā i ētahi momo cystic fibrosis.
- Me tango tonu tēnei rongoā me te kai kei roto te ngako.Tangohia. Kaua rawa e tangohia me te wai karepe.
- Kōrerotia ki tō tākuta ngā rongoā katoa e tangohia ana e koe me ō mate katoa.
- Ki te pāngia koe e ētahi pānga kino pēnei i te kōwhai o ngā kanohi, te mimi pouri, te ponana kiri rānei, me kōrero tonu atu ki tō tākuta.
- Māu anake tēnei rongoā. Kaua e hoatu ki tētahi atu. Mēnā he pātai āu, me kōrero tonu ki tō tākuta.
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