Kua whakaarohia e koe te mīharo me te matatini o tō tātou roro? Ko tēnei okana iti nei te kaiwhakahaere o ō tātou whakaaro katoa, o ia nekehanga, me ia mahara katoa. Nō reira, me rere tonu te toto o te roro, e whakarato ana i te hāora me ngā matūkai. Engari whakaarohia te mea ka puta mēnā ka āraia ngā uaua matua e kawe ana i te toto ki te roro? I tēnei rā ka kōrero tātou mō tētahi mate onge, engari he tino nui hei tūpato. Ko te Mate Moyamoya tēnā.
He aha te tikanga o Moyamoya?
He mate te whiu e pā ana ki ngā oko toto o roto i te roro. I roto i te rongoā, he mate toto roro. E rua ngā oko toto matua i roto i tō tātou kaki e kawe ana i te toto ki te roro, e kiia nei ko ngā uaua carotid. I roto i te whiu, ka āta whaiti tetahi, ētahi wā rānei o ēnei uaua matua e rua, ā, ka āraia. Ka pā anō hoki ki tētahi atu uaua nui i roto i te roro, arā, ko ngā uaua roro. Koinei ngā oko toto matua e tuku toto ana ki ngā wāhanga o mua o tō tātou roro.
Whakaarohia kua āraia te paipa wai matua e kawe mai ana i te wai ki tō whare. Ka ahatia? Kāore he wai. Nō reira, ka ngana ia ki te tiki wai mai i ngā paipa iti i roto i te whare. Pērā anō hoki tō tātou roro. Ina āraia te uaua toto matua, ka hangaia e te roro he maha ngā uaua toto hou, iti, angiangi hei whakakapi i te korenga. He rite ēnei ki ngā rori taha. Engari ko te raruraru, he ngoikore rawa, he angiangi hoki ēnei uaua toto hou. Nō reira, kāore e taea te tuku toto ki a rātou me te uaua matua. Ka pakaru pea ēnei uaua ngoikore i ētahi wā. I roto i ēnei āhuatanga, ka taea hoki e te Mate Moyamoya te whakaheke toto i roto i te roro (te toto o te roro). Waihoki, ka puta ngā āhuatanga kino pēnei i te whiu nā te mea kāore e nui te toto e whiwhihia ana e te roro.
He aha i huaina ai tēnei ko "Moyamoya"?
He kupu Hapanihi a "Moyamoya". Ko tōna tikanga he "pērā i te paowa." I te wā i whakahaerehia ai e ngā tākuta Hapanihi i kite tuatahi i tēnei mate he angiogram o ngā oko toto i roto i te roro, i kite rātou kua raranga te whatunga o ngā oko toto iti hou kua rite ki te paowa. Koia i tapaina ai tēnei mate ko "Moyamoya."
He aha ngā tohu o te mate moyamoya?
Ko ngā tohu matua o tēnei mate ka puta mai i te hekenga o te rere o te toto ki te roro. I ētahi wā ka kitea tuatahitia te mate i muri i te whiu, i ētahi whakaekenga ischemic poto rānei (TIA). Ka kiia ēnei whiu iti ko ngā "whiu-iti". Ko te tikanga ka haere mai, ka ngaro atu ngā tohu o te whiu mō tētahi wā.
Kia tirohia ētahi o ngā tohu e kitea whānuitia ana i roto i tēnei mate.
| Tohu | He whakamārama māmā |
|---|---|
| Ngā whiu, ngā whiu iti rānei (TIA) | Ngā tohu pēnei i te ngoikore o te taha kotahi o te tinana, te uaua ki te kōrero, me te piko o te taha kotahi o te mata. Ka memeha haere ēnei tohu i muri i te wā poto i roto i ngā TIA. |
| Te toto o te roro | Ka puta te toto i roto i te roro ina pakaru te uaua toto ngoikore, iti. Ka pā mai pea he mamae nui ki te upoko. |
| Ānini | Te ānini pinepine, i ētahi wā he nui te mamae. |
| Ngā mate hopuhopu | Te putanga mai o ngā āhuatanga e rite ana ki te taunga. |
| Ngā nekehanga kore whakahaere | Kāore e taea te whakahaere i ngā wāhanga o te tinana, pērā i ngā peka me ngā waewae. |
| Ngā whakaroa whanaketanga | Mena ka pāngia ngā tamariki nohinohi e tēnei mate, ka roa pea te whanaketanga me te ako o rātou. |
| Ngā raruraru pūoro | Ngā raruraru ki te tirohanga, ki te whakarongo, ki te hongi, ki te pā, ki te reka rānei. |
He aha te take o te mate Moyamoya?
Ki te pono, kāore anō kia kitea te tino pūtake o tēnei mate.. Engari e whakapono ana ngā kairangahau he hononga ira kei roto i tēnei. Arā, ka taea te tuku iho i roto i ngā whakatipuranga. Nā te mea he tino noa tēnei mate i waenga i te iwi Hapanihi, kua kitea he hononga kei roto i ō rātou ira. Kua tautuhia inaianei ko ngā huringa o tētahi ira e kiia nei ko te `RNF213` ka whai wāhi pea ki tēnei.
I ētahi wā, ka puta tēnei āhuatanga Moyamoya me ētahi atu mate hauora. Kātahi ka kiia ko te mate Moyamoya. Hei tauira:
- Te mate Down
- Te mate o Graves
- Neurofibromatosis momo 1
- Mate pūtau hāripiri
- Te atherosclerosis
Ko te tangata whai mate pēnei i a Moyamoya ka tūpono ki te whakawhanake i tētahi āhuatanga e kiia nei ko Moyamoya.
Ko wai te mea tino tūpono ka pāngia e tēnei mate?
He mate tino onge a Moyamoya. Kāore i te tino kitea i ngā whenua pēnei i a Sri Lanka. Engari he mea nui kia mōhio koe ki tēnei mate.
- Ka taea e tēnei mate te pā ki ngā tau katoa, engari ko te nuinga o te wā ka pā ki ngā tamariki i waenga i te 5 me te 10 tau te pakeke , me ngā pakeke i waenga i te 30 me te 50 tau te pakeke .
- Ahakoa kāore i te mōhiotia te tino take, e rua ngā wā ka nui ake te tūponotanga o ngā wāhine ki te pāngia e tēnei mate i ngā tāne.
- He mea noa tēnei mate i waenga i te iwi o Hapani me ētahi atu whenua o Āhia ki te Rawhiti.
Me pēhea te tautuhi tika i tēnei mate?
Mena kei a koe ngā tohu i kōrerotia i mua ake nei, ka tirohia koe e tō tākuta, ka pātai atu mō ō tohu. Kātahi, ki te whakapaehia he mate moyamoya, ka tūtohu rātou i ētahi whakamātautau motuhake hei whakaū.
| Whakamātautau | He aha tāu e mahi ai ki tēnei? |
|---|---|
| Te whakaahua o te arteriography roro | Koinei te whakamātautau pai rawa atu hei tautuhi i tēnei mate. I roto i tēnei whakamātautau, ka whakauruhia he ngongo iti (catheter) ki roto i te uaua toto i te ringa, i te waewae rānei, ā, ka werohia he tae motuhake ki roto i ngā uaua toto mā roto. Kātahi ka tangohia ngā whakaahua hihi-X hei tirotiro i te angiangi o ngā uaua toto me te pai o te rere o te toto. |
| Matawai MRA (Angiography Resonance Aukume) | He whakamātautau kore mamae tēnei e whakamahi ana i te papa aukume me ngā ngaru reo irirangi hei tango pikitia taipitopito o ngā oko toto i roto i te roro. |
| Matawai MRI (Whakaahua Āhua Aukume) | He tikanga rite ki te MRA e whakamahia ana hei tirotiro i te āhua o te kiko roro. Mā tēnei ka āwhina ki te whakatau mēnā he kino kei te roro nā te hekenga o te rere o te toto. |
He rongoā kei te wātea mō te mate moyamoya?
Ae, kei reira ngā maimoatanga hei whakahaere i tēnei mate. E rua ngā whāinga matua o te maimoatanga. Ko tētahi he whakahaere i ngā tohu. Ko tētahi he whakapai ake i te rere o te toto ki te roro me te whakaiti i te mōrearea o ngā mate kino pēnei i te whiu.
1. Te rongoā
Ka tohua pea e te tākuta ngā momo rongoā rerekē i runga i te āhua o te tūroro.
- Āpipirini: Ka āwhina tēnei rongoā ki te aukati i ngā toto totoka me te whakahaere i te rere o te toto mā roto i aua uaua toto iti.
- Ngā rongoā ārai-hopu: Mena ka puta ngā hopu haurangi i te mate, ka hoatu ēnei rongoā hei whakahaere i aua hopu.
- Ngā rongoā ārai toto: Ahakoa ka āwhina ēnei ki te aukati i ngā totoka, ka tūtohu noa ngā tākuta i ēnei i roto i ngā take tino motuhake nā te mea he tūponotanga o te totoka.
- Ngā aukati hongere konupūmā: Ka taea e ēnei te āwhina ki te whakaiti i ngā tohu pēnei i te ānini. Heoi anō, ka taea hoki e rātou te whakaheke i te toto toto, ka piki ake ai te mōrearea o te whiu, nō reira me tūpato te whakamahi.
Ko te mea nui , kāore e taea e ngā rongoā te aukati i te angiangi o ngā oko toto , nō reira ka kino haere te mate.
2. Maimoatanga pokanga (Pokanga Ārai)
Ki te kore e taea te whakahaere i te mate mā te rongoā, ā, ki te kino haere, ka tūtohu pea te tākuta i te pokanga. Ka kiia tēnei ko te pokanga bypass.
I te whakarapopototanga, ko te waihanga i tētahi ara hou mō te rere o te toto ki te roro, mā te karo i tētahi oko toto kua āraia. Ko te tango i tētahi uaua hauora e tuku toto ana ki te tumuaki, ka hono atu ki tētahi oko toto i roto i te roro. He rite ki te hanga i tētahi ara rere hou hei karo i tētahi rori pukumahi. Ka taea e tēnei pokanga te whakanui ake i te nui o te toto e tae atu ana ki te roro, ka whakaiti nui i te mōrearea o te whiu.
Mā tō tākuta koe e whakamārama taipitopito ko tēhea tikanga pokanga te mea pai mōu, me ōna painga me ōna ngoikoretanga.
Āhea me rapu awhina hauora ohorere? Ngā tohu o te whiu (FAST)
He mea tino nui kia mōhio te tangata whai mate Moyamoya ki ngā tohu o te whiu . Mā te tere o te whiwhi maimoatanga, ka iti ake te kino o te roro ka taea te ārai. Ka whakamahia te kupu whakarāpopoto FAST hei āwhina i a koe ki te maumahara ki ngā tohu o te whiu.
| Ngā Tohu o te Whiu (TERE) - Mahi Tonu! | |
|---|---|
| F - Kanohi | Kei te mākū tetahi taha o tō mata? Kei te wiri tetahi taha o tō mata ina menemene koe? |
| A - Ngā Ringa | Ka taea e koe te hapai i ō ringa e rua? Ka taka tetahi ringa ki raro? |
| S - Kōrero | Ka pōhēhē te kōrero? Ka kōrero pōturi koe? He uaua ki te kī i tētahi rerenga kōrero māmā? |
| T - Wā | Ki te pā mai tētahi o ēnei tohu ki a koe, kaua e whakaroa. Haere tonu ki te Tari Ohotata (ETU) o te hōhipera, waea atu rānei ki te waka tūroro. He mea nui te wā! |
Haunga ēnei, ko ngā tohu pēnei i te pōhēhē ohorere, te ngoikore o te taha kotahi o te tinana, ngā raruraru tirohanga, te uaua ki te hikoi, te mamae upoko kino e kore e taea te manawanui, he tohu anō hoki ēnei o te whiu.
I te noho tahi me tēnei mate, ki te kitea wawetia te mate, ā, ki te rongoatia tika, ka taea e te nuinga o te tangata te noho noa. Ki te kore e rongoatia, ka kino rawa te mate, ā, ka mate pea. Nō reira, he mea nui kia mōhio ki ngā tohu me te whai i ngā tohutohu a te tākuta.
Karere Tangohia ki te Kāinga
- He mate onge te mate Moyamoya, e whaiti haere ana, e aukati ana hoki te uaua matua e tuku toto ana ki te roro.
- Ka taea e tēnei te whakaheke i te rere o te toto ki te roro, ka arahi atu ki ngā āhuatanga kino pērā i te whiu, te toto rānei o te roro.
- Ko ngā tohu matua ko ngā tohu e rite ana ki te whiu, te mamae o te upoko, me ngā haurangi.
- Ka taea te whakahaere angitu i te mate mā te kite wawe me te maimoatanga mā te rongoā, te pokanga rānei.
- Mena kei te pāngia koe, tetahi atu rānei e mōhio ana koe e ngā tohu o te whiu (FAST), me haere tonu koe ki te Tari Ohotata (ETU) o te hōhipera. Mā te moumou taima ka nui ake te kino o te roro.
- Mena he pātai, he feaa rānei āu mō tēnei mea, kōrero ki tō tākuta mō ētahi tohutohu.
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