He ngoikore, he mamae hoki ō wheua? Me ako tātou mō tēnei (Osteitis Fibrosa Cystica - OFC)!

Kei te mamae koe i ētahi wā i roto i tō tinana, inā koa i roto i ō wheua? Kei te ahua rānei kei te whati ō wheua ahakoa he mea iti noa iho? Tērā pea he āhuatanga kei muri i ēnei mea kāore tātou e kōrero nui ana, engari he mea nui kia mōhio. Ko tētahi o aua āhuatanga ko te `(Osteitis Fibrosa Cystica - OFC)`. Ahakoa he ahua uaua tēnei ingoa, me whakamārama noa iho.

He aha te Osteitis Fibrosa Cystica (OFC)?

Ki te kī ngāwari, he mate onge te `(Osteitis Fibrosa Cystica - OFC)` e pā ana ki ō tātou wheua. He hononga tika ki ngā repe parathyroid i roto i tō tātou tinana. Kua rongo koe mō te repe tairoiti. Kei muri ko ēnei repe parathyroid e whā. Ka whakaputahia e ēnei repe te homoni parathyroid (`Parathyroid Hormone - PTH`) .

He mea nui tēnei homoni `(PTH)` hei pupuri i te kaha me te hauora o ō tātou wheua. Ka āwhina hoki ki te whakahaere i te taumata o te konupūmā i roto i te toto. Engari, whakaarohia, he aha ka puta mēnā ka nui rawa te whakaputanga o tēnei homoni `(PTH)`? Koinei te wā ka tīmata ai te raruraru. Nā te nui rawa o taua `(PTH)`, i te kore e whakapakari i ngā wheua, ka tīmata haere te ngoikore . I roto i te wā, ka rerekē te āhua o ngā wheua, ā, ka puta hoki ngā mea pēnei i ngā kōhao (pēnei i ngā whēkau kī tonu i te wai) ki roto.

Ka taea e tēnei PTH nui rawa te whakanui ake i ngā taumata konupūmā i roto i te toto, ka arahi atu ki te hanganga o ngā kōhatu tākihi, te toto toto tiketike (te toto toto tiketike), me te ngoikore o te ngakau.

E huaina ana te mate nei ko `(OFC)` mā ētahi atu ingoa. Tērā pea kua rongo koe i ēnei ingoa:

• ``Ko te mate wheua a Von Recklinghausen''
• `Osteitis fibrosa`
• 'Cystica whānui'
• Te mate wheua o te wheua
• He pukupuku parauri o te wheua . Kaua e mataku ki tēnei ingoa. Ahakoa e kīia ana ko `(Pukupuku)`, ehara i te ``Pukupuku``. E whakamahia ana tēnei ingoa nā te mea he ira parauri kei te hunga whai `(OFC)` e puta mai ana i te toto me te kiko muka i roto i ō rātou wheua. Engari ehara i te mea he `(Pukupuku)` pukupuku.

Ko te tikanga o ngā kupu "(Osteitis Fibrosa Cystica)" he rite ki te 'rewa wheua me te hanganga o te whēkau'. Nō reira, ina piki te taumata `(PTH)`, ka taea te pakaru o ngā wheua i ngā wā katoa. Heoi, ki te kitea tēnei āhuatanga e kiia nei ko te `(Hyperparathyroidism)` (arā, te nui rawa o te whakaputanga o `(PTH)`) ā, ka rongoā wawetia, ka taea te whakaora, te ārai rānei i te whanaketanga o te āhuatanga `(OFC)`.

He pēhea te noa o tēnei āhuatanga (OFC)?

Tērā pea kei te whakaaro koe ki te whānui o te horapa o tēnei mate. Inaa, he tino onge tēnei i ngā whenua he pai te hauora . Hei tauira, ahakoa i te Hononga o Amerika, iti iho i te 5% o te hunga e pāngia ana e te hyperparathyroidism ka pāngia e te OFC. Ko te mea tino kitea i roto i te hunga e pāngia ana e te hyperparathyroidism kino kāore i rongoatia mō te wā roa.

Engari i ngā wā o mua, he mea noa ake tēnei. Tata ki te rima tekau tau ki muri, tata ki te 69% o te hunga e pāngia ana e te "Hyperparathyroidism" i pāngia e tēnei mate wheua. Engari nā te whanaketanga o te pūtaiao hauora, inā koa nā te taenga mai o ngā "Whakamātautau Toto Auau", kua tere ake te tautuhi me te rongoā i ēnei āhuatanga. He mea pai rawa atu tēnā?

He aha ngā tohu o tēnei mate (OFC)?

Āe, kia tirohia tātou he aha ngā tohu ka puta i te mate `(Osteitis Fibrosa Cystica)`.

Ko ngā tohu matua ko:

• Mamae wheua . Koinei te mea tuatahi ka pā ki te nuinga o te tangata. I ētahi wā, ka mamae pea te pā atu ki te wheua.
• Ngā whati . Ka ngawari te whati o ngā wheua, inā koa ko ngā mea i roto i ngā ringa, ngā waewae, te tuaiwi rānei. Ahakoa he hinganga iti noa iho, ka whati pea te wheua.

I te tīmatanga o tēnei āhua, ka puta pea ēnei tohu (he tohu pea ēnei o te "Hyperparathyroidism"):

• Te ngenge tonu.
• Ngāwari.
• Whakapairuaki me te ruaki.
• Te mate kōroke.
• Te mimi nui atu i te tikanga ('Polyuria'). Ko te tikanga me haere koe ki te wharepaku i ngā wā katoa.

Ki te mea kei a koe ēnei tohu, kaua e whakatau ko koe anake, "Āe, ko `(OFC)' tēnei." Nā te mea ka kitea pea ēnei tohu i roto i ētahi atu mate. Engari he mea tino nui kia mōhio koe ki ēnei me te kōrero ki te tākuta.

He aha ngā take o (OFC)?

He aha te take o te Osteitis Fibrosa Cystica? E ai ki taku kōrero i mua ake nei, ko te tino take o tēnei ko te Hyperparathyroidism kāore i rongoatia . Arā, he nui rawa te PTH e whakaputaina ana e ā tātou repe Parathyroid. E rua ngā huarahi matua ka puta ai tēnei:

1. Te Hiperparatiroitia Tuatahi: Ka puta tēnei i te raruraru o ō repe paratiroitia. Tērā pea he matepukupuku (matepukupuku) ēnei repe, he tipu kore-matepukupuku rānei (pērā i te adenoma) e hua ai te nui rawa o te PTH. Tērā pea rānei kua rahi rawa ngā repe e whā (hiperplasia) ā, kua nui rawa te homoni e puta ai.

2. Te Hyperparathyroidism Tuarua: Ka puta tēnei nā tētahi atu āhuatanga hauora. Hei tauira, ki te pāngia te tangata e te mate tākihi mau tonu, ka pakaru te taurite o te konupūmā me te huaora D i roto i tōna tinana. Kātahi, hei whakautu, ka tīmata ngā repe parathyroid ki te whakaputa i te PTH. Waihoki, ina he nui te korenga o te huaora D, ka iti te taumata konupūmā i roto i te toto, nō reira ka kaha ake te mahi a ngā repe parathyroid ki te whakanui ake i te taumata konupūmā. I taua wā, ka piki ake hoki te homoni PTH, ā, i roto i te wā, ka taea te whakawhanake i te Osteitis Fibrosa Cystica.

Whakaarohia, kua roa nei tō mātou whaea kēkē a Kamala e pāngia ana e ngā mate tākihi. Kāore ia i tango i te rongoā tika mōna. I muri i tētahi wā, ka tīmata āna repe `(Parathyroid)`, e kaha ana ki te whakahaere i te konupūmā i roto i tōna tinana, ki te whakaputa i te `(PTH)` nui atu i te mea e tika ana. I te mutunga, ka pāngia a Whaea Kamala e te `(OFC)` me te mamae wheua. E mārama ana koe ki te hononga?

He aha ngā raruraru ka pā mai i te (OFC)?

Ko ngā raruraru matua o te hyperparathyroidism me te OFC kāore i rongoatia e pā ana ki te wheua. Ko te tikanga o tēnei ko te mamae, ko ngā āhua rerekē o te wheua (ngā huringa o te āhua), me ngā whati ngāwari . Koinei ngā mea ka kitea tonutia. Tērā pea ka heke te roa o te tangata.

Heoi, hei tāpiri atu ki tēnei, ka puta pea ētahi atu raruraru. Ko ēnei:

• Te hanganga o ngā kohatu whatukuhu.
• Te ngoikore o te whatukuhu.
• Te iti o te kaha, te ngenge tonu.
• Mamae puku.
• Ngā raruraru hinengaro pērā i te pouri.
• Ngā raruraru mahara me te aro.

Tirohia te tawhiti ka taea e te raruraru e tīmata ana i tētahi wāhi. Ka taea hoki e te raruraru i tētahi pūnaha o tō tātou tinana te pā ki ētahi atu pūnaha. Koia te mea nui o te tātaritanga me te maimoatanga wawe.

Me pēhea te tautuhi i te OFC?

Āe, me pēhea te tākuta e tātaritanga ai i tēnei mate `(Osteitis Fibrosa Cystica)`?

Tuatahi, ka tangohia e tō tākuta he hītori hōhonu mō tō hauora . Ka pātai atu ia ki a koe kia pēhea te roa o te pāngia e ēnei tohu, mēnā he mate hauora kē atu āu (pēnei i te mate tākihi) ka pā ki ō taumata PTH, me ngā rongoā e tangohia ana e koe. Kātahi ka tirotirohia e ia te mamae o te wheua, te ngawari, te āhua rerekē rānei.

Hei whakaū i te mate, ka whakamahia pea e ngā tākuta ngā whakamātautau pēnei i:

• Ngā whakamātautau toto: Ka tirohia e ēnei ngā kore taurite o ngā homoni me ngā kohuke. Ina koa, ka tirohia ngā taumata o te homoni parathyroid (PTH), ngā taumata konupūmā, ngā taumata whākōkī, ngā taumata huaora D, me te phosphatase kawakore (he whākōkī e tukuna ana mai i ngā wheua). I roto i te OFC, ka tino teitei ngā taumata o te PTH me te phosphatase kawakore.
• Ngā whakamātautau mimi: Ka taea hoki e koe te tirotiro i te nui o te konupūmā i roto i tō mimi.
• Ngā whakamātautau whakaahua:
• Ngā hihi-X: Ka taea e ēnei te whakaatu i te kikokore o ngā wheua, ngā mea pēnei i ngā cysts, me te mea he whati iti rawa (ngā whati iti) he huringa āhua rānei kei roto i ngā wheua (pēnei i te mimiti o raro i te periosteal).
• Ngā Matawai CT (`CT - Computed Tomography scans`) ngā Matawai MRI rānei (`MRI - Magnetic Resonance Imaging scans`): Ka whakaatuhia e ēnei te āhua o ngā wheua me te taipitopito atu i ngā hihi-X.

He aha ngā maimoatanga mō (OFC)?

Āe, me kōrero tātou mō te rongoā mō te `(Osteitis Fibrosa Cystica)`. Ko te rongoā e whakawhirinaki ana ki te momo me te kaha o te `(Hyperparathyroidism)` i puta ai te `(OFC)`.

• Mena ko te hyperparathyroidism tuatahi te take:
• I te nuinga o te wā, mēnā ko te take o tēnei āhuatanga `(OFC)` he mahi rerekē o te repe `(Parathyroid)` (pērā i te pukupuku), ko te maimoatanga paerewa ko te tango pokanga i te repe, i tētahi wāhanga rānei o te repe (`Parathyroidectomy`) . Ka taea e tēnei pokanga te aukati i te angiangi o ngā wheua me te whakaora i ētahi o ngā kino o te wheua kua puta kē (`remineralization`). I te nuinga o te wā, e whā ā tātou repe `(Parathyroid)`. Nō reira, ina tangohia te repe raruraru, ka taea e ngā repe e toe ana te whakaputa i te homoni `(PTH)` e hiahiatia ana e te tinana.

• Mō te hunga kāore e taea te pokanga, mō te hunga rānei he hyperparathyroidism tuarua:
• Te rongoā i te pūtake: Hei tauira, mēnā ko te korenga o te huaora D te take, ka hoatu he tāpiringa huaora D. Mēnā he mate tākihi, ka rongoāhia kia rite.
• Calcimimetics: Ka whai ēnei rongoā i te konupūmā i roto i tō toto. Ka "tinihanga" rātou i tō repe parathyroid kia iti ake te PTH e whakaputaina ana. Ko Cinacalcet tētahi o aua rongoā.
• Ngā Bisphosphonates: Ka mahi ēnei rongoā mā te whakaroa i te tere o te ngaronga o te wheua. He maha ngā wā ka tohua ēnei rongoā mō te hunga e pāngia ana e te osteoporosis. Heoi, ka taea hoki e ēnei rongoā te āwhina i te wā poto mō te hunga e pāngia ana e te OFC, inā koa hei whakapakari i ngā wheua i mua i te pokanga.
• Huaora D me ngā tāpiringa konupūmā: Ka hoatu ēnei ina hiahiatia. Heoi, ki te nui te taumata konupūmā i roto i te toto, kāore e hoatu ngā tāpiringa konupūmā.

He aha te tirohanga mō te tūnga (OFC)?

He aha te tumanako mō tēnei āhuatanga `(OFC)`? Ina hoki, mā te whakahaere tika me te maimoatanga, ka taea te whakatutuki i ngā hua pai . Ka taea e te maimoatanga te aukati i te angiangi o ngā wheua me te whakapakari i ngā wheua (`whakahou anō i ngā matū`). Ka taea e ngā wheua whati te whakaora me te whakaiti i te mamae. Heoi, ki te tino hē ngā wheua, kāore pea e tino ora.

Ka taea te ārai i te (OFC)?

Ka taea te ārai i te putanga mai o tēnei mate `(Osteitis Fibrosa Cystica)`? Ae, ki tētahi taumata ka taea. Ko te mea nui ko te kite me te rongoā i te mate `(Hyperparathyroidism)` i te wā wawe.

• He mea tino nui te whai i ngā whakamātautau toto auau , inā koa mēnā he āhuatanga mōrearea tōu pēnei i te mate tākihi. Mā tēnei ka āwhina i te kite i ngā huringa o ngā taumata konupūmā me te PTH o tō toto i mua i te pānga kino nui.
• Me kōrero hoki ki tō tākuta, kia mau tonu hoki te nui o te konupūmā me te huaora D i roto i a koe.Mahia tāu e hiahia ana. Hei tauira, ki te noho koe i tētahi rohe kāore e nui te rā i te takurua, me tango pea koe i ngā tāpiringa huaora D. Mā tō tākuta anō hoki koe e tohutohu ki te tiki i ngā matūkai e hiahiatia ana e koe mai i ngā kai e kainga ana e koe.

Kia maumahara, ko te wawe o te kitenga me te rongoā i te mate `(Hyperparathyroidism)`, ko te iti ake o te tūponotanga ka pā mai `(Osteitis Fibrosa Cystica)`.

Āhea ahau me toro atu ki te tākuta?

Ki te mamae ō wheua, ki te ngawari rānei, ki te āhua whati rānei tō wheua , me toro atu ki te tākuta tonu. Waihoki, ki te mea kei a koe ētahi o ngā tohu tōmua o te hyperparathyroidism (pērā i te ngenge, te whakapairuaki, me te mimi pinepine) i kōrerotia e au i mua ake nei, me kōrero ki tō tākuta mō ēnei tohu. Ki te mea kua pāngia koe e te hyperparathyroidism, he mea pai kia whakamātauria tō toto i ia wā hei tirotiro i ō taumata konupūmā me te PTH, e ai ki tā tō tākuta i tohutohu ai.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Mena kua tāpaetia koe kei te mate koe i te `(Osteitis Fibrosa Cystica)`, he pai pea te pātai atu ki tō tākuta i ēnei pātai:

• He pēhea te kino o tōku āhua?
• He aha ngā kōwhiringa maimoatanga kei a au? He aha ngā painga me ngā huakore o ia mea?
• He pai ki ahau te tango i ngā tāpiringa? He aha te momo?
• Me pokanga ahau? Mena koinā, he aha taku e tumanako ai i muri mai?
• He aha ngā whakarerekētanga kai ka taea e au te mahi hei āwhina i ahau?
• He aha te pānga o tēnei āhuatanga ki tōku oranga o ia rā?

Hei whakamutunga, ētahi kōrero nui

Nō reira, me kī atu tēnei ki a koe. Ka pā nui te ngoikore o ngā wheua me te mamae ki ō tātou oranga o ia rā. Ki te ngāwari te whati o ō wheua, tera pea ka hiahia koe ki te karo i ētahi mahi. Ki te pāngia koe e ngā tohu pēnei i te ngenge, te ngoikore, te whakapairuaki, me te mimi pinepine, tera pea he "Hyperparathyroidism" he raruraru rānei ko te "OFC".

Ki te pā mai ētahi o ēnei tohu ki a koe, me toro atu ki te tākuta i runga i te wā tonu. Mā te tere o tō kitenga me tō rongoā i te mate, ka iti ake te kino ka pā ki ō wheua. He mea nui rawa tō hauora ki a koe. Nō reira, kia tiakina.

` Osteitis Fibrosa Cystica, OFC, Mate Wheua, Parathyroid, PTH Hormone, Hyperparathyroidism, Mamae Wheua