Kua tāpaetia koe ki te Primary Biliary Cholangitis, arā, ko te PBC, ā, kua tīmata noa koe i te maimoatanga? Tērā pea he pātai iti kei roto i tō hinengaro, he ruarua iti, "Ka tino mahi tēnei rongoā māku? Ka pai ake te mate?" Ina hoki, ehara i te mea māu anake tēnei, engari he mea anō hoki e pā ana ki te tini o te hunga e rongoatia ana mō tēnei momo mate. I ētahi wā, kāore pea te rongoā tuatahi e tohua ana e te tākuta e mahi māu. He mea noa tēnei, kaua e manukanuka. Ko te mea nui ko te kōrero tuwhera ki tō tākuta mō ō kare ā-roto me ngā hua o te maimoatanga.
Tuatahi, me mārama tātou he aha te PBC?
Tērā pea he āhua whakamataku te ingoa ki a koe. Engari kia māmā noa iho. Ko te Primary Biliary Cholangitis (PBC) he mate e pā ana ki ngā awaawa iti o roto i tō ate . Whakaarohia ēnei awaawa o roto i ō tātou tinana he paipa wai. Ka haria e ēnei paipa te awaawa, he wai e hangaia ana i roto i te ate e āwhina ana ki te nakunaku kai.
I roto i te PBC, ka whakaekea e tō tātou ake pūnaha ārai mate ēnei awaawa aukume, ā, ka whakangaromia haeretia. Kātahi ka kore e taea e te wai aukume te rere tika, ka mau ki roto i te ate. Pērā i te wā e aukatia ana te paipa wai, ka kī te wai i te wāhi kotahi, ā, ka mākū ngā mea katoa e karapoti ana, ka tīmata tēnei wai ki te kino i te ate. Ki te kore e rongoatia, i roto i te wā, ka puta he kiriuhi o te ate i tēnei kino, e kiia nei e tātou ko te cirrhosis .
Engari ko te rongo pai, he maha ngā rongoā pai hei whakahaere i tēnei mate, hei whakaiti hoki i tōna kino. Ka taea e kōrua ko tō tākuta te whakawhanake i tētahi mahere maimoatanga e tika ana māu.
Te haerenga maimoatanga PBC - kāore e tere te haere o ngā mea katoa
He mea tēnei me mārama tātou katoa. He rite tonu te rongoā i te PBC ki tētahi whakamātautau i ētahi wā. Arā, nā te mea he rerekē te tinana o te katoa, kāore e pai te rongoā kotahi mō te katoa. Tērā pea kāore te rongoā tuatahi e hoatu e tō tākuta ki a koe e pai ki tāu e hiahia ana.
Ehara i te he nāu, ehara hoki i te he nā te tākuta. Ko te āhua o tēnei mate. Ko te mea nui kia noho koe hei mema kaha o tō tīma maimoatanga i tēnei haerenga.
He aha te tikanga o tēnā? Ko tōna tikanga me aro koe ki ngā huringa o tō tinana, ngā tohu, me te āhua o ō kare ā-roto i muri i te tango i te rongoā. Ā, me kōrero e koe ēnei mea katoa ki tō tākuta. Ko reira anake ka taea e ia te mārama mēnā kei te whai hua te maimoatanga, mēnā rānei me huri koe.
Tō tīma maimoatanga PBC - ehara i te mea ko koe anake i tēnei haerenga!
He mahi ā-rōpū te whakahaere i tētahi āhuatanga pēnei i te PBC. He maha ngā tohunga hauora ka taea te āwhina i a koe. Kia maumahara, ehara i te mea ko koe anake. Me titiro tātou ko wai te hunga e hanga ana i tēnei tīma.
| Tohunga hauora / tohunga hauora | Me pēhea taku āwhina i a koe? |
|---|---|
| Kaimātai pūnaha nakunaku (tohunga pūnaha nakunaku) | He tākuta e tohunga ana ki ngā mate o te pūnaha nakunaku, pērā i te ate, te puku, me ngā whekau. Koinei pea te tākuta tuatahi ka toro atu koe i muri i te tātaritanga o te PBC. |
| Tohunga ate (tohunga ate) | He tino mātau tēnei tākuta ki ngā mate ate, ā, he mea nui tana mahi ki te rongoā i ngā āhuatanga pēnei i te PBC. |
| Tākuta Tiaki Tuatahi (tō tākuta whānau) | I haere pea koe ki a ia i te wā i tīmata ai koe ki te pāngia e ngā tohumate. Ka tirohia e ia tō hauora whānui, ka mahi tahi me ētahi atu tohunga ki te aromatawai i tō oranga. |
| Tohunga irahiko (tohunga irahiko) | Ko ia te tangata e whakahaere ana i ngā whakamātautau motuhake, pērā i ngā matawai CT me ngā matawai MRI, hei tirotiro i te āhua o tō ate, me te tātari hoki i ngā pūrongo e pā ana ki aua whakamātautau. |
| Kaitohutohu Kai kua rēhitatia | Mēnā he mate ate tōu, me tino tupato koe ki tāu e kai ana. Māna koe e āwhina ki te whakamahere i tētahi kai hauora e kore e whakararuraru i tō ate. |
| Taote Ate | Mena e hiahiatia ana he koiora ate hei tautuhi i te mate, ki te kaha haere rānei te mate ā muri ake nei, ā, me whai whakawhitinga ate, me āwhina te taote pokanga. |
Me pēhea te kōrero ki te tākuta? - Kaua e wareware ki te pātai i ēnei mea!
He mea tino nui kia hanga he whanaungatanga pai, pono hoki ki tō Tākuta Gastroenterologist, ki tō Tākuta Ati rānei, kia taea ai e koe te pātai i ō pātai me te kore e mataku, e ruarua rānei.
Whakaritea he iti i mua i te hui.
He tino āwhina te whakarite i a koe i te kāinga i mua i tō haerenga ki te tākuta.
- Tuhia ō tohumate: Tuhia ki roto i tētahi puka tuhi ngā taipitopito pēnei i te wā e pāngia ai koe e te mākati, te ngenge, me te mamae, me ō kare ā-roto.
- Waihangahia he rārangi pātai: I ētahi wā ka wareware koe ki tāu e hiahia ana ki te pātai ki te tākuta, nō reira tuhia ngā pātai katoa kei roto i tō hinengaro.
- Kōrerotia ki tō tākuta ngā rongoā kē atu e tangohia ana e koe: Mena kei te tangohia e koe ētahi atu rongoā, huaora, rongoā tuku iho rānei i tua atu i te rongoā e tangohia ana e koe mō te PBC, kia tino kōrerotia e koe ki tō tākuta .
Ngā kōrero nui hei matapaki
Kaua e mangere ki te pātai atu ki tō tākuta i ngā pātai pēnei i raro nei. He mea tino nui ēnei mō tō haerenga maimoatanga.
- "E te tākuta, he aha ngā whāinga matua o tēnei maimoatanga? He aha tā tātou e tumanako atu ai i ēnei rongoā?"
- " Me pēhea tātou e tino mōhio ai kei te tika te mahi a tēnei rongoā? He aha ngā whakamātautau toto, ngā matawai rānei e hiahiatia ana?"
- "Kua pā mai tēnei tohu ki ahau. He pānga taha pea tēnei nō te rongoā? Me aha ahau?"
- "Ki te kore tēnei maimoatanga e whai hua mōku, he aha ā māua kōwhiringa e whai ake nei? "
- "He aha ngā huringa me mahi e au ki taku kai me taku momo noho ?"
Kia maumahara, kāore he 'pātai kuware'. Kei a koe te tika ki te pātai i tetahi mea e hiahia ana koe mō tō tinana me tō maimoatanga. E hiahia ana tō tākuta kia mōhio koe.
Ko tēnei kōrerorero ki tō tākuta te huarahi pai rawa atu hei whakahaere i tō mahere maimoatanga. Kōrerohia mai ō kare ā-roto katoa, ō wehi, ō tumanako. Kātahi ka taea e kōrua te whakatau tahi hei whakatutuki i ngā hua pai rawa atu.
Karere Tangohia ki te Kāinga
- Ahakoa he mate te Primary Biliary Cholangitis (PBC) e pā ana ki ngā awa au o te ate, ka taea tonu te whakahaere i tēnei āhuatanga mā roto i ngā maimoatanga hou.
- He mea noa te kore e angitu te maimoatanga tuatahi i tohua ki a koe. Kaua e mataku, kaua hoki e mutu te maimoatanga.
- Kia mau tonu te whanaungatanga pai, tuwhera hoki ki tō tīma maimoatanga, inā koa ko tō Tākuta Gastroenterologist, ko tō Tākuta Ati rānei.
- I mua i tō haerenga ki te tākuta, he mea tino āwhina te tuhi i ō kare ā-roto me ngā pātai e hiahia ana koe ki te pātai.
- Kia kaha te whai wāhi atu ki ngā whakataunga maimoatanga. Whakaaturia ō whakaaro me ō kare ā-roto. He kaha nui tēnei i roto i tō haerenga whakaora.
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