Whakaarohia tētahi tangata e mōhiotia pai ana e koe, ā, i mua he hauora, ka tīmata whakarere mai ki te mahi rerekē. Ka ngaro tōna mahara, ka uaua ki te hikoi , ā, ka kōrero pōturi. Ki te puta ēnei mea i te tere e kore e taea te whakaaro i roto i ētahi marama, tera pea nā tētahi mate roro tino onge engari he tino kino. I tēnei rā ka kōrero tātou mō tētahi o aua mate, ko te Mate Creutzfeldt-Jakob, ko te CJD rānei e kīia nei e tātou katoa. Ahakoa he kaupapa whakamataku tēnei, he mea tino nui kia mōhio pai koe ki tēnei mea.
He rite tonu te CJD me te "mate kau porangi"?
He tokomaha te hunga e whakapoauau ana i te CJD me te "Mate Kau Pōrangi." Heoi, he rerekē ngā mea e rua.
Ki te kī ngāwari, ko te Bovine Spongiform Encephalopathy (BSE) he mate roro e pā ana ki ngā kau anake. Ina pā mai, ka pakaru te pūnaha io o ngā kau, ka kore e taea te nekeneke, ka rerekē hoki ā rātou whanonga.
Heoi anō, tera tetahi momo CJD ka taea te pangia e te tangata mā te kai i te mīti o te kau i pangia e te mate kau porangi . Ko tōna ingoa ko te Variant CJD (vCJD) . Engari he tino onge tēnei. He iti noa ngā kēhi kua pūrongohia puta noa i te ao. Nō reira, ehara i te mea koinei te āhua o te mate CJD e kōrerohia ana e tātou.
He aha i puta ai tēnei mate CJD?
Ko te tino take o te CJD he panonitanga rerekē o te pūmua i roto i tō tātou tinana. Ko tēnei pūmua rerekē, kua whakarerekētia, e kiia ana he prion .
Whakaarohia he pūmua hauora i roto i tō tātou roro he rite ki tētahi pepa kua whakapikohia ataahua. Ka puta mai tēnei pūmua kua whakarerekētia, ko te prion, ka whakapikohia he pepa pai. Kātahi ka haere tonu taua pepa kua whakapikohia he whakapiko i ngā pepa pai kē atu. Nō reira, ka whakangaromia haeretia ngā pūtau roro. Ki te tirohia i raro i te karu hiko, ka rite tēnei kiko roro kua pakaru ki tētahi hautai.
E toru ngā momo CJD, i runga i te āhua o te hanganga o te prion.
| Momo CJD | Te take me te whakamārama |
|---|---|
| CJD tūpono | Koinei te momo tino noa. Mō te kore take e kitea, ka huri whakarerekētia te pūmua hauora, ka huri hei prion. He momo tēnei kei te nuinga o ngā tūroro CJD. |
| CJD whānau | Nā te hapa ira tēnei i puta ai. Mēnā he ira whakarerekē kei tētahi o ngā mātua e puta ai tēnei mate, ka taea te tuku atu ki ngā tamariki. Engari he tino onge hoki tēnei. Tata ki te 10%-15% noa iho o ngā tūroro CJD ka taka ki tēnei wāhanga. |
| I whiwhi CJD | Koinei te momo tino onge. Ka taea e te tangata te pangia e te CJD mā roto i ngā taputapu hauora kua poke (hei tauira, i te wā pokanga), i te whakawhitinga okana, i ngā werohanga homoni tipu kua poke rānei. Kua tino whakaitihia tēnei mōrearea e ngā tikanga haumaru pakari i roto i ngā hōhipera i ēnei rā. |
He aha ngā tohu o te CJD?
Ko te mea tino mōrearea mō te CJD ko te tere o te tīmatanga o ngā tohu, ā, ka tere tonu te kino haere. He maha ngā wā, he rite ēnei tohu ki ērā o te mate wareware.
Ko ngā āhuatanga matua e kitea ana ko:
- Te ngaronga o te mahara me te pōhēhē
- Te uaua ki te hikoi me te ngaro o te taurite
- Ngā nekehanga ohorere o te uaua (ngā nekehanga ohorere)
- Ngā huringa o te āhua (te riri ohorere, te āwangawanga)
- Te uaua ki te whakaaro me te whakatau kaupapa
- Ngā raruraru tirohanga
- Te kore moe me te pouri
Te rerekētanga i waenga i te CJD me te mate a Alzheimer
Tērā pea ka whakamaharatia koe e ēnei tohu ki te mate a Alzheimer . Engari ko te rerekētanga matua ko te tere . I roto i te mate a Alzheimer, ka puta āta ngā mea pēnei i te ngaronga o te mahara i roto i ngā tau. Engari i roto i te CJD, ka tere te kino haere o te āhua o te tūroro, i roto i ngā wiki, i ngā marama rānei i muri i te tīmatanga o ēnei tohu.
Me pēhea te tautuhi tika i tēnei mate?
Engari, kāore he whakamātautau kotahi hei whakaū i te CJD. Ka whakatauhia e ngā tākuta te mate i runga i ngā tohu o te tūroro me te tere o te whanaketanga. Heoi, ki te whakapaetia te mate, ka mahia he maha ngā whakamātautau hei whakaū.
- Matawai MRI (Atahanga Āhua-Mate): Ka taea e tēnei te tango pikitia taipitopito o te roro. Ka taea te rapu i ngā huringa motuhake o te roro e puta ana i roto i te CJD.
- Whakamātautau EEG (Electroencephalogram): Ka inehia e tēnei whakamātautau te ngohe hiko o te roro mā te whakamahi i ngā pūoko iti e piri ana ki te tumuaki. Ka taea e tēnei whakamātautau te whakaatu i ngā tauira e kitea ana i ngā tūroro CJD.
- Werohanga Lumbar: Mā te whakamahi i tētahi ngira tino angiangi, ka tangohia he iti o te wai cerebrospinal mai i roto i te taurakira, ka whakamatautauria mō ngā pūmua motuhake e kitea ana i roto i te CJD.
Ko te huarahi anake hei whakaū i tēnei mate me te tino pono 100% ko te tango i tētahi tauira kiko roro (biopsy). Heoi, he tino mōrearea te tango i tētahi tauira pēnei mai i te roro o te tangata ora mō te tūroro me te tākuta, nō reira kāore i te nuinga o te wā e mahia ana. He maha ngā wā, ka whakaūtia te mate i muri i te matenga o te tūroro.
Te kino haere o te mate i roto i te wā
He maha ngā wāhanga ka whanake haere te CJD i roto i te wā, ka waiho hei wheako tino mamae mō te tūroro me tōna whānau.
| Te wāhanga o te mate | Ngā āhuatanga e tumanakohia ana |
|---|---|
| Te wā tōmua | Te koretake o te kōrero i te wā e kōrero ana, te whanoke, te ngoikore o te tinana, te kite i ngā mea kāore i reira (te moemoeā), te riri kore take, te wehe atu i te hapori, me te kore moe. |
| Wāhanga o muri mai | Te kore e taea te whakahaere i te puku me te pūhā, te uaua ki te horomi me te kōrero, te ngaronga mahara nui, te paranoia, te takoto i te moenga, te koma. |
Tata ki te 70% o te hunga whai CJD ka mate i muri i te tautuhi i a rātou anō.Ka mate koe i roto i te tau kotahi. Ina rongo koe i tēnei, tera pea ka tino mataku koe, ka pouri, ka riri hoki. He mea noa tēnei. Kaua e mamae ko koe anake i tēnei wā. He mea tino nui kia kōrero koe ki tō tākuta me te tiki i te tautoko hinengaro e tika ana.
He rongoā kei te wātea mō te CJD?
Engari, kāore anō kia kitea he rongoā, he rongoā rānei mō te CJD. He maha ngā rongoā kua whakamātauhia e ngā kairangahau, engari kāore anō kia angitu.
Ko te mea anake ka taea te mahi i tēnei wā ko te whakahaere i ngā tohumate . Ko te tikanga:
- Te hoatu i ngā rongoā whakamamae mamae.
- Te hoatu rongoā mō te pakari me te māuiui o te uaua.
- Te whakarato i ngā ratonga e tika ana kia pai ai te noho o te tūroro.
Kia kaha rawa te mate, me tiaki tonu te tūroro. Kei te haere tonu ngā rangahau hei kimi maimoatanga mō tēnei mate ā muri ake nei. Ki te hiahia koe, ka taea e koe te pātai ki tō tākuta mō ngā whakamātautau haumanu e whakamātautau ana i ngā maimoatanga hou.
Karere Tangohia ki te Kāinga
- He mate roro tino onge te mate Creutzfeldt-Jakob (CJD), ā, he tere te horapa.
- Nā te pūmua kua whakarerekētia te ahua e kiia nei ko te prion e whakangaro ana i ngā pūtau roro tēnei.
- He mate rerekē te CJD me te "Mate Kau Pōrangi". Heoi, he momo tino onge o te CJD (vCJD) ka taea te pangia e te kai mīti kau pangia.
- Kāore anō kia kitea he rongoā mō tēnei mate. Ko te mea anake ka taea ko te whakahaere i ngā tohu me te whakamarie i te tūroro.
- Ki te pāngia tētahi e mōhiotia ana e koe e ngā panonitanga nui o te mahara, te whanonga, me te mahi tinana i roto i te wā poto, me toro atu ki te tākuta tonu . He mea nui te tātaritanga wawe mō te whakamahere me te tiaki tika.
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