I ētahi rā ka tino ngenge tātou, kāore? Engari ina moe pai tātou i te pō, ā, ka okioki, ka ngaro atu taua ngenge. Engari whakaarohia, ahakoa te nui o te okiokinga, ka tino ngenge koe, ā, ka ngaro atu tō ora? I tēnei rā ka kōrero tātou mō tētahi mate pēnei i te Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, te ME/CFS rānei. Kāore anō kia tino mōhio ngā tākuta he aha te take. Engari e whakapono ana rātou he nui ake te mōrearea o ētahi tāngata ki te pāngia e tēnei mate. Me titiro tātou ki aua āhuatanga mōrearea.
He aha te pānga o te tau me te ira tangata?
He mea whakamiharo, he nui ake te kitea o te ME/CFS i roto i ngā wāhine i ngā tāne. Inaa, e whā ngā wā ka nui ake te tūponotanga o ngā wāhine ki te pāngia e tēnei mate i ngā tāne. Nō reira, ki te mea he wahine koe, he mea pai kia aro nui atu koe ki tēnei.
He tino onge tēnei mate i waenga i ngā tamariki nohinohi, engari ahakoa i taua tau, he nui ake te tūponotanga ka pāngia ngā kōtiro e tēnei mate i ngā tama.
Ki te titiro tātou ki ngā pakeke, ka tīmata tēnei mate i roto i te hunga i waenga i te 30 me te 50 tau te pakeke. I roto i ngā tamariki nohinohi, ko te hunga i waenga i te 13 me te 15 tau te pakeke ka tino kitea tēnei mate.
Ehara tēnei mōhiohio i te kī kāore ngā tāne me ētahi atu rōpū reanga e pāngia e tēnei mate. Engari ko ngā rōpū anake e tohu ana i te mōrearea nui ake i roto i ngā tatauranga.
He hononga ira kei reira?
Ae, he ira tuku iho pea. Mena kei roto i tō whānau te ME/CFS, pērā i tō whaea, tō pāpā, tō teina rānei, he iti noa iho te tūponotanga ka pāngia koe e te mate. He māmā noa iho, ka puta pea tēnei tūponotanga i te ngoikore o ngā ira i riro mai i ō tātou mātua.
Engari ehara i te mea ko te hanganga o ngā ira anake te mea nui i konei. Ko te mea nui ake ko te tika o te 'whakakā' o aua ira. He rite ki te tahuri me te whakaweto i te rama. Kua kitea e ngā rangahau he rerekē te mahi a ēnei ira i roto i te hunga whai ME/CFS, inā koa i ngā wāhanga o te tinana pērā i ngā toto toto mā .
Hei tauira, kua kitea ko ngā ira e whakaoho ana i tō tātou pūnaha ārai mate, e whakarite ana i a ia ki te whawhai, kei te 'whakahaere' tonu, kei te kaha rawa rānei te mahi i roto i te tinana o ēnei tūroro. Koia te take e ngenge ai rātou, e kore hoki e ora.
Te whanaungatanga i waenga i ngā ira me te taiao
He maha ngā mate e kore e puta mai i ngā ira anake, engari i ngā āhuatanga anō hoki o te taiao e noho nei tātou. Arā:
- Ngā mate pāwera huakita
- Ngā paitini
- Tā mātou kai
- Te ahotea nui
- Tauira whakakori tinana
Tērā pea ka puta te ME/CFS i ngā āhuatanga ira me te taiao . Ko te tikanga, ahakoa he mate ira tō te tangata, ka taea tonu e te mate pāwera, te ahotea nui rānei te whakaoho i a ia.
Ētahi atu mate ka pā mai me tēnei mate
Ko te hunga whai ME/CFS he nui ake te tūponotanga ka pāngia rātou e ētahi atu mate. Tērā pea ka piki ake te mōrearea o te whakawhanake i te ME/CFS i tētahi mate. Tērā pea nā te ME/CFS ētahi atu mate. Kāore anō kia tino mārama ngā tākuta ki tēnei hononga. Me titiro tātou ki ētahi o ngā mate e tino kitea ana.
| Āhua | He whakamārama māmā |
|---|---|
| Te mate pukupuku | He āhuatanga e mamae ai te tinana katoa, e ngenge nui ana, e raru ai hoki te moe. |
| Te Mate Puku Whakararuraru (IBS) | He mate pūnaha nakunaku e puta ai te mamae o te puku, te pupuhi, me ngā huringa o ngā tikanga whekau (te kōroke, te mate korere rānei). |
| Ngā tairongo matū maha | Te tairongo nui o te tinana ki ngā kakara me ngā matū o te taiao whānui. |
| Ngā mate o te roro o te ringa (TMD, TMJ rānei) | Te mamae me ngā raruraru mahi o te hononga kauae me ngā uaua ngaungau. |
| Te mate pukupuku interstitial | He āhuatanga e mamae ai te pūkahukahu, te hope rānei. |
| Te mate muri-marumaru | Ngā tohu e mau tonu ana (pēnei i te ānini, te whanoke) i muri i te whara o te upoko. |
| Ānini taumahatanga | Ngā ānini e pāngia ana e te ahotea. |
| Te mamae pūmau o te hope (i roto i ngā wāhine) | Te mamae o te hope mō te wā roa i roto i ngā wāhine. |
| Te mate pūkahukahu mau tonu (i roto i ngā tāne) | Te mumura me te mamae roa i roto i te repe prostate i roto i ngā tāne. |
Mena kei a koe tētahi, ētahi rānei o ēnei tohu, kei te āwangawanga koe, kei te whakapae rānei kei a koe te ME/CFS, tēnā kōrero ki tō tākuta whānau mō tēnei mea. Kaua e rapu mōhiohio i runga i te ipurangi hei tātaritanga māu anō. Ko tō tākuta te wāhi pai rawa atu hei tiki i ngā tohutohu me ngā aratohu pai rawa atu.
Karere Tangohia ki te Kāinga
- He āhua tūturu, he āhua ngoikore te mate ngenge mau tonu (ME/CFS). Ehara i te mea "hoha" te "ngoikore" rānei.
- Ko ngā wāhine, inā koa ko te hunga i waenga i te 30-50 tau te pakeke, he nui ake te mōrearea ki te pāngia e tēnei mate.
- Mena kua pāngia tētahi o tō whānau e tēnei mate, tera pea he iti noa te mōrearea ira kei a koe.
- Mā te whai i ētahi atu āhuatanga hauora, pērā i te fibromyalgia, te IBS rānei, ka piki ake te mōrearea o te ME/CFS.
- Ko te mea nui, ki te mea he ruarua, he mataku rānei ōu mō tēnei mea, kaua e whakatau i a koe anō , engari me toro atu ki tō tākuta tonu mō ētahi tohutohu.
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