ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯊꯝꯃꯣꯌ ꯑꯗꯨ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯆꯥꯎꯈꯠꯂꯛꯂꯤꯕꯔꯥ? (ꯍꯥꯏꯄꯣꯞꯂꯥꯁ꯭ꯇꯤꯛ ꯂꯦꯐꯠ ꯍꯥꯔꯠ ꯁꯤꯟꯗꯣꯝ - HLHS) ꯃꯁꯤꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯋꯥꯔꯤ ꯁꯥꯁꯤ!

ꯉꯁꯤ ꯑꯩꯈꯣꯌꯅꯥ ꯈꯔꯥ ꯋꯥꯈꯜ ꯋꯥꯕꯥ, ꯑꯃꯁꯨꯡ ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ ꯊꯣꯀꯄꯥ, ꯑꯗꯨꯕꯨ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯍꯥꯔꯇꯀꯤ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯋꯥꯔꯤ ꯁꯥꯅꯔꯤ꯫ ꯃꯁꯤ ꯍꯥꯏꯄꯣꯞꯂꯥꯁ꯭ꯇꯤꯛ ꯂꯦꯐꯠ ꯍꯥꯔꯠ ꯁꯤꯟꯗꯣꯝ , ꯅꯠꯠꯔꯒꯥ (HLHS) ꯀꯧꯕꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯅꯤ꯫ ꯃꯁꯤ ꯇꯥꯕꯗꯥ ꯅꯍꯥꯛꯅꯥ ꯋꯥꯈꯜ ꯅꯨꯡꯉꯥꯏꯇꯕꯥ ꯐꯥꯎꯔꯀꯄꯥ ꯌꯥꯏ, ꯑꯗꯨꯕꯨ ꯋꯥꯈꯜ ꯅꯨꯡꯉꯥꯏꯇꯕꯥ ꯂꯩꯔꯣꯏꯗꯕꯅꯤ꯫ ꯃꯁꯤꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ, ꯑꯗꯣꯝꯅꯥ ꯈꯉꯕꯥ ꯉꯝꯕꯥ ꯃꯑꯣꯡꯗꯥ ꯋꯥꯔꯤ ꯁꯥꯁꯤ꯫ ꯃꯔꯃꯗꯤ, ꯑꯁꯤꯒꯨꯝꯕꯥ ꯋꯥꯐꯃꯁꯤꯡꯗꯥ ꯆꯦꯀꯁꯤꯟꯅꯥ ꯂꯩꯕꯥ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨ ꯑꯣꯏ꯫

ꯍꯥꯏꯄꯣꯞꯂꯥꯁ꯭ꯇꯤꯛ ꯂꯦꯐꯠ ꯍꯥꯔꯠ ꯁꯤꯟꯗ꯭ꯔꯣꯝ (HLHS) ꯍꯥꯌꯕꯁꯤ ꯀꯔꯤꯅꯣ?

ꯌꯥꯝꯅꯥ ꯂꯥꯏꯅꯥ ꯍꯥꯌꯔꯕꯗꯥ, (HLHS) ꯑꯁꯤ ꯄꯣꯀꯄꯥ ꯃꯇꯃꯗꯥ ꯊꯣꯀꯄꯥ ꯀꯣꯟꯖꯤꯅꯤꯑꯦꯜ ꯍꯥꯔꯇꯀꯤ ꯂꯥꯌꯅꯥ ꯑꯃꯅꯤ . ꯃꯁꯤꯗꯥ ꯑꯉꯥꯡꯒꯤ ꯊꯝꯃꯣꯌꯒꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯁꯔꯨꯛ ꯈꯔꯗꯤ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯆꯥꯎꯈꯠꯄꯥ ꯉꯃꯗꯦ꯫ ꯃꯁꯤ ꯄꯝꯄ ꯑꯃꯒꯨꯝꯅꯥ ꯈꯅꯕꯤꯌꯨ꯫ ꯄꯝꯄ ꯑꯁꯤꯒꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯁꯔꯨꯛ ꯑꯁꯤꯅꯥ ꯍꯀꯆꯥꯡ ꯄꯨꯝꯕꯗꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯝꯅꯥ ꯌꯥꯎꯕꯥ ꯏ ꯊꯥꯏ꯫ ꯑꯗꯨꯅꯥ, ꯃꯁꯤꯒꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯃꯐꯝ ꯑꯁꯤ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯆꯥꯎꯈꯠꯄꯥ ꯉꯃꯗꯕꯥ ꯃꯇꯃꯗꯥ, ꯁꯃꯁ꯭ꯌꯥ ꯑꯃꯥ ꯊꯣꯀꯏ꯫ ꯃꯁꯤꯒꯤ ꯀꯦꯁ ꯑꯁꯤꯗꯥ, ꯍꯥꯔꯇꯀꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯁꯔꯨꯀꯁꯤꯡ ꯑꯁꯤ ꯃꯔꯨꯑꯣꯏꯅꯥ ꯁꯣꯀꯍꯜꯂꯤ:

• ꯂꯦꯐꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔ (left ventricle ) : ꯃꯁꯤ ꯍꯥꯔꯇꯀꯤ ꯃꯈꯥ ꯊꯪꯕꯥ ꯁꯔꯨꯛꯇꯥ ꯂꯩꯕꯥ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯆꯦꯝꯕꯔꯅꯤ꯫ ꯃꯁꯤꯅꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯕꯥ ꯏ ꯑꯗꯨ ꯑꯦꯑꯣꯔꯇꯥꯗꯥ ꯄꯝꯄ ꯇꯧꯏ . HLHSꯗꯥ, ꯃꯁꯤ ꯑꯌꯥꯝꯕꯗꯤ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯊꯕꯛ ꯇꯧꯕꯥ ꯉꯃꯗꯕꯥ ꯌꯥꯝꯅꯥ ꯄꯤꯀꯄꯥ ꯑꯣꯏ꯫
• ꯑꯦꯑꯣꯔꯇꯥ : ꯃꯁꯤ ꯑꯩꯈꯣꯌꯒꯤ ꯍꯀꯆꯥꯡꯗꯥ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯆꯥꯎꯕꯥ ꯕ꯭ꯂꯗ ꯚꯦꯁꯦꯂꯅꯤ꯫ ꯃꯁꯤꯅꯥ ꯊꯝꯃꯣꯌꯗꯒꯤ ꯍꯀꯆꯥꯡ ꯄꯨꯝꯕꯗꯥ ꯏ ꯄꯨꯊꯣꯀꯏ꯫ (HLHS)ꯗꯥ, ꯃꯁꯤꯁꯨ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯆꯥꯎꯈꯠꯄꯥ ꯉꯃꯗꯕꯥ ꯌꯥꯏ꯫
• ꯃꯥꯏꯠꯔꯜ ꯑꯃꯁꯨꯡ ꯑꯦꯑꯣꯔꯇꯤꯛ ꯚꯜꯌꯨꯁꯤꯡ: ꯃꯈꯣꯌ ꯑꯁꯤ ꯊꯣꯡꯅꯥꯎꯒꯨꯝꯅꯥ ꯑꯣꯏ꯫ ꯃꯈꯣꯌꯅꯥ ꯃꯥꯌꯀꯩ ꯑꯃꯈꯛꯇꯗꯥ ꯏ ꯆꯦꯅꯕꯥ ꯌꯥꯍꯜꯂꯤ꯫ ꯑꯦꯑꯣꯔꯇꯤꯛ ꯚꯜꯌꯨ (aortic valve) ꯑꯁꯤꯅꯥ ꯂꯦꯡ-ꯑꯣꯠꯄꯒꯤ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯗꯒꯤ ꯑꯦꯑꯣꯔꯇꯥꯗꯥ ꯏ ꯆꯦꯅꯕꯥ ꯌꯥꯍꯜꯂꯤ꯫ ꯃꯥꯏꯠꯔꯜ ꯚꯜꯌꯨ ꯑꯁꯤꯅꯥ ꯍꯥꯔꯇꯀꯤ ꯈꯥꯃꯗꯥ ꯂꯩꯕꯥ ꯃꯊꯛꯀꯤ ꯆꯦꯝꯕꯔ (ꯑꯦꯠꯔꯤꯌꯥꯝ)ꯗꯒꯤ ꯃꯈꯥ ꯊꯪꯕꯥ ꯆꯦꯝꯕꯔ (ꯃꯥꯏꯠꯔꯜ ꯚꯜꯌꯨ)ꯗꯥ ꯏ ꯆꯦꯅꯕꯥ ꯌꯥꯍꯜꯂꯤ꯫ HLHSꯗꯥ, ꯚꯜꯌꯨ ꯑꯁꯤꯅꯥ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯊꯕꯛ ꯇꯧꯕꯥ ꯉꯃꯗꯕꯥ ꯅꯠꯠꯔꯒꯥ ꯌꯥꯝꯅꯥ ꯄꯤꯀꯄꯥ ꯑꯣꯏꯕꯥ ꯌꯥꯏ꯫

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ, HLHSꯅꯥ ꯅꯥꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯗꯥ ꯍꯥꯔꯇꯀꯤ ꯃꯊꯛꯀꯤ ꯆꯦꯝꯕꯔ ꯑꯅꯤꯒꯤ ꯃꯔꯛꯇꯥ ꯂꯩꯕꯥ ꯋꯥꯜ ꯑꯗꯨꯗꯥ ꯑꯄꯤꯀꯄꯥ ꯍꯨꯔꯥꯅꯕꯥ ꯑꯃꯥ ꯂꯩꯕꯥ ꯌꯥꯏ (ꯑꯦꯠꯔꯤꯌꯥꯜ ꯁꯦꯞꯇꯜ ꯗꯤꯐꯦꯛꯇ) . ꯅꯣꯔꯃꯦꯜ ꯑꯣꯏꯅꯥ, ꯃꯁꯤ ꯑꯀꯅꯕꯥ ꯋꯥꯜ ꯑꯃꯥ ꯑꯣꯏꯒꯗꯕꯅꯤ꯫

ꯅꯣꯔꯃꯦꯜ ꯍꯥꯔꯠ ꯑꯃꯁꯨꯡ (HLHS) ꯂꯩꯕꯥ ꯍꯥꯔꯠ ꯑꯃꯒꯤ ꯃꯔꯛꯇꯥ ꯀꯔꯤ ꯈꯦꯠꯅꯕꯥ ꯂꯩꯕꯒꯦ?

ꯑꯩꯈꯣꯌꯒꯤ ꯅꯣꯔꯃꯦꯜ ꯍꯥꯔꯠ ꯑꯁꯤꯒꯤ ꯃꯥꯌꯀꯩ ꯑꯅꯤ ꯂꯩ꯫ ꯔꯥꯏꯠ ꯁꯥꯏꯗꯅꯥ ꯍꯀꯆꯥꯡꯗꯒꯤ ꯗꯤꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯔꯕꯥ ꯏ ꯑꯗꯨ ꯂꯪꯁꯇꯥ ꯄꯝꯄ ꯇꯧꯗꯨꯅꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯈꯣꯃꯖꯤꯜꯂꯤ꯫ ꯃꯗꯨꯒꯤ ꯃꯇꯨꯡꯗꯥ, ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯕꯥ ꯏ ꯑꯗꯨ ꯂꯦꯡ-ꯑꯣꯠꯄꯗꯥ ꯆꯠꯂꯤ ꯑꯃꯁꯨꯡ ꯍꯀꯆꯥꯡꯒꯤ ꯑꯇꯩ ꯃꯐꯃꯁꯤꯡꯗꯥ ꯄꯝꯄ ꯇꯧꯏ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, HLHSꯅꯥ ꯅꯥꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯗꯥ, ꯍꯥꯔꯇꯀꯤ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯁꯔꯨꯛ ꯑꯗꯨ ꯌꯥꯝꯅꯥ ꯄꯤꯀꯄꯥ ꯑꯣꯏꯕꯅꯥ ꯍꯀꯆꯥꯡꯒꯤ ꯑꯇꯩ ꯃꯐꯃꯁꯤꯡꯗꯥ ꯏ ꯃꯔꯥꯡ ꯀꯥꯌꯅꯥ ꯄꯨꯊꯣꯀꯄꯥ ꯉꯃꯗꯦ꯫ ꯃꯗꯨꯒꯤ ꯃꯇꯨꯡꯗꯥ, ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔ ꯑꯗꯨꯅꯥ ꯃꯗꯨ ꯂꯧꯁꯤꯜꯂꯤ꯫ ꯃꯁꯤꯅꯥ ꯂꯪꯁ ꯑꯃꯁꯨꯡ ꯍꯀꯆꯥꯡꯒꯤ ꯑꯇꯩ ꯃꯐꯃꯁꯤꯡꯗꯥ ꯏ ꯄꯝꯄ ꯇꯧꯅꯕꯥ ꯍꯣꯠꯅꯩ꯫ ꯃꯁꯤ ꯗꯛꯇꯁ ꯑꯥꯔꯇꯦꯔꯤꯑꯣꯁꯀꯤ ꯈꯨꯠꯊꯥꯡꯗꯥ ꯇꯧꯏ꯫ꯗꯛꯇꯁ ꯑꯥꯔꯇꯦꯔꯤꯑꯣꯁꯁ ꯀꯧꯕꯥ ꯑꯈꯟꯅꯕꯥ ꯕ꯭ꯂꯗ ꯚꯦꯁꯦꯜ ꯑꯃꯒꯤ ꯈꯨꯠꯊꯥꯡꯗꯥ꯫ ꯃꯁꯤ (ductus arteriosus) ꯑꯁꯤ ꯑꯉꯥꯡ ꯈꯨꯗꯤꯡꯃꯛꯀꯤ ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ ꯂꯩꯕꯥ ꯕ꯭ꯂꯗ ꯚꯦꯁꯦꯜ ꯑꯃꯅꯤ꯫ ꯃꯍꯧꯁꯥꯅꯥ ꯃꯁꯤ ꯄꯣꯀꯄꯒꯤ ꯅꯨꯃꯤꯠ ꯈꯔꯅꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯂꯣꯏꯁꯤꯜꯂꯤ꯫ ꯑꯗꯨꯕꯨ (HLHS) ꯂꯩꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯗꯥ, ꯀꯔꯤꯒꯨꯝꯕꯥ ꯕ꯭ꯂꯗ ꯚꯦꯁꯦꯜ ꯑꯁꯤ ꯊꯤꯡꯖꯤꯜꯂꯕꯗꯤ, ꯀꯔꯤꯒꯨꯝꯕꯥ ꯂꯥꯏꯌꯦꯡꯗꯕꯥ ꯑꯣꯏꯔꯕꯗꯤ, ꯃꯁꯤꯅꯥ ꯄꯨꯟꯁꯤꯗꯥ ꯈꯨꯗꯣꯡꯊꯤꯕꯥ ꯊꯣꯀꯍꯅꯕꯥ ꯌꯥꯏ꯫ ꯂꯦꯃꯍꯧꯔꯤꯕꯥ ꯃꯐꯝ ꯑꯗꯨꯅꯥ ꯊꯕꯛ ꯇꯧꯗꯕꯅꯥ ꯃꯔꯝ ꯑꯣꯏꯗꯨꯅꯥ ꯍꯀꯆꯥꯡꯗꯥ ꯏ ꯌꯧꯔꯀꯄꯒꯤ ꯑꯃꯠꯇꯥ ꯉꯥꯏꯔꯕꯥ ꯄꯥꯝꯕꯩꯗꯤ ꯕ꯭ꯂꯣꯛ ꯇꯧꯏ꯫

(HLHS) ꯑꯁꯤ ꯀꯌꯥ ꯌꯥꯝꯅꯥ ꯀꯃꯟ ꯑꯣꯏꯕꯒꯦ?

(HLHS) ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ ꯊꯣꯀꯄꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯅꯤ꯫ ꯌꯨꯅꯥꯏꯇꯦꯗ ꯁ꯭ꯇꯦꯇꯁꯀꯤ ꯁ꯭ꯇꯦꯇꯤꯁ꯭ꯇꯤꯀꯦꯂꯒꯤ ꯃꯇꯨꯡꯏꯟꯅꯥ, ꯆꯍꯤ ꯈꯨꯗꯤꯡꯒꯤ ꯄꯣꯀꯄꯥ ꯑꯉꯥꯡ 3800ꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯆꯥꯎꯔꯥꯛꯅꯥ ꯑꯃꯗꯥ ꯁꯣꯀꯍꯜꯂꯤ꯫ (HLHS) ꯑꯁꯤꯅꯥ ꯀꯣꯟꯖꯤꯅꯤꯑꯦꯜ ꯍꯥꯔꯠ ꯗꯤꯖꯤꯖ (CHD) ꯄꯨꯝꯅꯃꯛꯀꯤ 2% ꯑꯃꯁꯨꯡ 3%ꯒꯤ ꯃꯔꯛꯇꯥ ꯑꯣꯏ꯫ ꯃꯁꯤ ꯅꯨꯄꯤꯃꯆꯥꯁꯤꯡꯗꯒꯤ ꯅꯨꯄꯥꯃꯆꯥꯁꯤꯡꯗꯥ ꯍꯦꯟꯅꯥ ꯀꯃꯟ ꯑꯣꯏ꯫

(HLHS) ꯂꯩꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯒꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯗꯨ ꯀꯔꯤꯅꯣ?

(HLHS) ꯂꯩꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯒꯤ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯈꯨꯗꯛꯇꯥ ꯎꯕꯥ ꯐꯪꯗꯕꯥ ꯌꯥꯏ꯫ ꯃꯈꯣꯌ ꯑꯁꯤ ꯄꯣꯀꯄꯥ ꯃꯇꯨꯡ ꯄꯨꯡ ꯈꯔꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯅꯠꯠꯔꯒꯥ ꯅꯨꯃꯤꯠ ꯈꯔꯅꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯊꯣꯀꯄꯥ ꯌꯥꯏ꯫ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡꯗꯤ:

• ꯁꯥꯏꯅꯣꯁꯤꯁ (cyanosis) : ꯈꯣꯡ, ꯃꯤꯠ ꯑꯃꯁꯨꯡ ꯅꯥꯀꯣꯡꯗꯥ ꯕ꯭ꯂꯨ-ꯒ꯭ꯔꯦ ꯃꯆꯨꯒꯤ ꯃꯆꯨ ꯑꯃꯥ꯫ ꯃꯁꯤ ꯑꯀꯪꯕꯥ ꯈꯣꯡꯎꯞ ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯗꯥ ꯑꯉꯧꯕꯥ ꯃꯆꯨ ꯑꯃꯥ ꯑꯣꯏꯅꯥ ꯎꯕꯥ ꯐꯪꯏ꯫ ꯃꯁꯤ ꯍꯦꯟꯅꯥ ꯂꯨꯝꯕꯥ ꯈꯣꯡꯎꯞ ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯗꯥ ꯅꯤꯜ ꯃꯆꯨ ꯑꯃꯥ ꯑꯣꯏꯅꯥ ꯎꯕꯥ ꯐꯪꯏ꯫ ꯃꯁꯤ ꯍꯀꯆꯥꯡꯅꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯃꯔꯥꯡ ꯀꯥꯌꯅꯥ ꯐꯪꯗꯕꯅꯥ ꯊꯣꯀꯍꯅꯕꯅꯤ꯫
• ꯁ꯭ꯕꯔ ꯍꯣꯅꯕꯗꯥ ꯋꯥꯕꯥ : ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯁ꯭ꯕꯔ ꯍꯣꯅꯕꯥ ꯋꯥꯕꯥ (breathing) ꯐꯥꯎꯕꯥ ꯐꯥꯎꯕꯥ ꯌꯥꯏ꯫
• ꯁꯉ꯭ꯒꯣꯝ ꯊꯀꯄꯗꯥ ꯑꯋꯥꯕꯥ: ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯁꯉ꯭ꯒꯣꯝ ꯊꯀꯄꯥ ꯄꯥꯃꯗꯕꯥ ꯌꯥꯏ, ꯅꯠꯠꯔꯒꯥ ꯁꯉ꯭ꯒꯣꯝ ꯊꯀꯄꯥ ꯃꯇꯃꯗꯥ ꯊꯀꯄꯥ ꯌꯥꯏ꯫
• ꯂꯦꯡ-ꯑꯣꯠꯄꯒꯤ ꯃꯑꯣꯡ : ꯑꯉꯥꯡ ꯑꯗꯨ ꯇꯨꯝꯕꯥ ꯌꯥꯗꯕꯥ ꯑꯃꯁꯨꯡ ꯂꯦꯡ-ꯑꯣꯠꯄꯒꯤ ꯃꯑꯣꯡ ꯂꯩꯕꯥ ꯎꯕꯥ ꯐꯪꯏ꯫
• ꯌꯥꯝꯅꯥ ꯊꯨꯅꯥ ꯍꯥꯔꯇꯀꯤ ꯈꯣꯡꯖꯦꯜ ꯌꯥꯡꯕꯥ꯫
• ꯁ꯭ꯕꯔ ꯍꯣꯅꯕꯥ ꯋꯥꯕꯥ , ꯈꯣꯡ ꯍꯥꯝꯕꯥ ꯌꯥꯗꯕꯥ, ꯅꯠꯠꯔꯒꯥ ꯅꯣꯡꯖꯨ-ꯅꯨꯡꯁꯥ ꯈꯥꯛꯇꯅꯥ ꯂꯩꯕꯥ꯫
• ꯋꯥꯏꯛ ꯄꯂꯁ .

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛꯅꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯑꯁꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯑꯃꯥ ꯅꯠꯠꯔꯒꯥ ꯑꯅꯤ ꯎꯕꯥ ꯐꯪꯂꯕꯁꯨ, ꯈꯨꯗꯛꯇꯥ ꯃꯦꯗꯤꯀꯦꯂꯒꯤ ꯄꯥꯎꯇꯥꯛ ꯂꯧꯕꯥ ꯍꯥꯌꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫ ꯋꯥꯈꯜ ꯋꯥꯕꯥ ꯂꯩꯔꯣꯏꯗꯕꯅꯤ, ꯑꯗꯨꯕꯨ ꯊꯨꯅꯥ ꯊꯕꯛ ꯄꯥꯌꯈꯠꯀꯗꯕꯅꯤ꯫

(HLHS)ꯒꯤ ꯃꯔꯃꯁꯤꯡ ꯀꯔꯤꯅꯣ?

ꯑꯌꯥꯝꯕꯥ ꯀꯦꯁꯁꯤꯡꯗꯗꯤ, HLHSꯒꯤ ꯑꯀꯛꯅꯕꯥ ꯃꯔꯝ ꯑꯃꯠꯇꯥ ꯂꯩꯇꯦ꯫ ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ ꯃꯁꯤ ꯖꯦꯅꯦꯇꯤꯛ ꯐꯦꯛꯇꯔꯁꯤꯡꯅꯥ ꯃꯔꯝ ꯑꯣꯏꯗꯨꯅꯥ ꯑꯣꯏꯕꯥ ꯌꯥꯏ꯫ GJA1 ꯅꯠꯠꯔꯒꯥ NKX2-5ꯒꯨꯝꯕꯥ ꯑꯀꯛꯅꯕꯥ ꯖꯤꯟ ꯃ꯭ꯌꯨꯇꯦꯁꯟ ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯗꯥ HLHS ꯂꯥꯀꯄꯒꯤ ꯔꯤꯁ꯭ꯛ ꯍꯦꯅꯒꯠꯂꯀꯏ꯫ ꯃꯁꯤꯗꯁꯨ ꯅꯠꯇꯅꯥ, ꯇꯔꯅꯔ ꯁꯤꯟꯗꯣꯝ ꯅꯠꯠꯔꯒꯥ ꯇ꯭ꯔꯥꯏꯁꯣꯃꯤ 18ꯒꯨꯝꯕꯥ ꯑꯀꯛꯅꯕꯥ ꯖꯦꯅꯦꯇꯤꯛ ꯀꯟꯗꯤꯁꯅꯁꯤꯡ ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯗꯥ HLHS ꯂꯥꯀꯄꯥ ꯌꯥꯏ꯫

HLHS ꯑꯁꯤ ꯀꯔꯝꯅꯥ ꯈꯪꯗꯣꯀꯄꯒꯦ?

ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯅꯟ-ꯏꯅꯚꯦꯁꯤꯚ ꯏꯃꯦꯖꯤꯡ ꯇꯦꯁ꯭ꯇꯁꯤꯡꯅꯥ HLHS ꯈꯪꯗꯣꯀꯄꯥ ꯌꯥꯏ꯫ ꯃꯁꯤ ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ ꯅꯠꯠꯔꯒꯥ ꯑꯉꯥꯡ ꯑꯗꯨ ꯄꯣꯀꯄꯥ ꯃꯇꯨꯡꯗꯥ ꯇꯧꯕꯥ ꯌꯥꯏ꯫ ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ: ꯱.

• ꯄ꯭ꯔꯤꯅꯦꯇꯦꯜ ꯑꯂꯠꯔꯥꯁꯥꯎꯟꯗ : ꯃꯁꯤ ꯃꯍꯧꯁꯥꯅꯥ ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ ꯄꯥꯡꯊꯣꯀꯄꯥ ꯁ꯭ꯀꯦꯟ ꯑꯃꯅꯤ꯫
• ꯐꯤꯇꯁꯀꯤ ꯏꯀꯣꯀꯥꯔꯗꯤꯑꯣꯒ꯭ꯔꯥꯐ (fetal echocardiogram): ꯃꯁꯤ ꯑꯉꯥꯡ ꯑꯗꯨ ꯈꯣꯝꯂꯥꯡꯗꯥ ꯂꯩꯔꯤꯉꯩꯗꯥ ꯍꯥꯔꯇꯀꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯃꯁꯤꯡ ꯂꯩꯕ꯭ꯔꯥ ꯍꯥꯌꯕꯗꯨ ꯆꯦꯛ ꯇꯧꯕꯥ ꯌꯥꯕꯥ ꯑꯈꯟꯅꯕꯥ ꯁ꯭ꯀꯦꯟ ꯑꯃꯅꯤ꯫

ꯑꯉꯥꯡ ꯑꯗꯨ ꯄꯣꯛꯂꯕꯥ ꯃꯇꯨꯡꯗꯥ: ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯂꯥꯏꯑꯣꯡꯁꯤꯡ ꯌꯦꯡꯗꯨꯅꯥ ꯑꯃꯁꯨꯡ ꯇꯦꯁ꯭ꯇꯀꯤ ꯔꯤꯖꯜꯇ ꯌꯦꯡꯗꯨꯅꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯗꯨ ꯈꯪꯗꯣꯀꯏ꯫ ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ, ꯁ꯭ꯇꯦꯊꯣꯁ꯭ꯀꯣꯞ ꯑꯃꯅꯥ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯊꯝꯃꯣꯌ ꯑꯗꯨ ꯇꯥꯕꯥ ꯃꯇꯃꯗꯥ, ꯅꯍꯥꯛꯅꯥ ꯊꯝꯃꯣꯌꯒꯤ ꯋꯥꯈꯜ ꯅꯨꯡꯉꯥꯏꯇꯕꯥ ꯑꯃꯥ ꯇꯥꯕꯥ ꯌꯥꯏ . ꯃꯁꯤꯅꯥ ꯇꯥꯀꯄꯗꯤ ꯏ ꯑꯗꯨ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯆꯦꯅꯕꯥ ꯉꯃꯗ꯭ꯔꯤ ꯍꯥꯌꯕꯅꯤ꯫

ꯗꯥꯏꯑꯦꯒ꯭ꯅꯣꯁꯤꯁ ꯇꯧꯕꯗꯥ ꯁꯤꯖꯤꯟꯅꯔꯤꯕꯥ ꯇꯦꯁ꯭ꯇꯁꯤꯡ (HLHS) ꯑꯁꯤ ꯀꯔꯤꯅꯣ?

• ꯆꯦꯁ꯭ꯠ ꯑꯦꯛꯁ-ꯔꯦ: ꯃꯁꯤꯅꯥ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯍꯥꯔꯠ ꯑꯃꯁꯨꯡ ꯂꯪꯁꯀꯤ ꯁꯥꯏꯖ ꯑꯃꯁꯨꯡ ꯃꯑꯣꯡ-ꯃꯇꯧ ꯑꯗꯨ ꯆꯦꯛ ꯇꯧꯕꯥ ꯉꯝꯃꯤ꯫
• ꯏꯀꯣꯀꯥꯔꯗꯤꯑꯣꯒ꯭ꯔꯥꯐ: ꯃꯁꯤꯁꯨ ꯑꯂꯠꯔꯥꯁꯥꯎꯟꯗ ꯇꯦꯁ꯭ꯠ ꯑꯃꯅꯤ꯫ ꯍꯥꯔꯇꯀꯤ ꯃꯅꯨꯡꯒꯤ ꯑꯣꯏꯕꯥ ꯁ꯭ꯠꯔꯀꯆꯔꯁꯤꯡ ꯑꯁꯤ ꯃꯌꯦꯛ ꯁꯦꯡꯅꯥ ꯎꯕꯥ ꯐꯪꯏ꯫
• ꯏꯂꯦꯛꯠꯔꯣꯀꯥꯔꯗꯤꯑꯣꯒ꯭ꯔꯥꯐ (EKG/ ECG ): ꯃꯁꯤ ꯍꯥꯔꯇꯀꯤ ꯂꯥꯌꯅꯥ ꯑꯃꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯊꯣꯀꯄꯥ ꯏꯂꯦꯛꯠꯔꯤꯀꯦꯂꯒꯤ ꯑꯍꯣꯡꯕꯁꯤꯡ ꯑꯗꯨ ꯌꯦꯡꯁꯤꯟꯅꯕꯥ ꯁꯤꯖꯤꯟꯅꯩ꯫
• ꯄꯂꯁ ꯑꯣꯛꯁꯤꯃꯦꯠꯔꯤ ꯁ꯭ꯛꯔꯤꯅꯤꯡ: ꯃꯁꯤꯅꯥ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯏꯗꯥ ꯑꯣꯛꯁꯤꯖꯦꯅꯒꯤ ꯆꯥꯡ ꯑꯗꯨ ꯈꯪꯗꯣꯀꯄꯥ ꯉꯝꯃꯤ꯫

(HLHS)ꯒꯤ ꯂꯥꯏꯌꯦꯡ ꯑꯃꯥ ꯂꯩꯕ꯭ꯔꯥ?

ꯍꯣꯌ, ꯂꯥꯌꯦꯡꯁꯤꯡ ꯂꯩꯔꯤ꯫ ꯑꯍꯥꯅꯕꯗꯥ, ꯑꯉꯥꯡ ꯑꯗꯨꯗꯥ ꯄ꯭ꯔꯣꯁ꯭ꯇꯥꯒ꯭ꯂꯥꯟꯗꯤꯟ ꯀꯧꯕꯥ ꯍꯤꯗꯥꯛ ꯑꯃꯥ ꯄꯤꯕꯥ ꯃꯊꯧ ꯇꯥꯏ꯫ ꯃꯁꯤꯅꯥ ꯗꯛꯇꯁ ꯑꯥꯔꯇꯦꯔꯤꯑꯣꯁ ꯑꯁꯤ ꯍꯥꯡꯗꯣꯛꯇꯨꯅꯥ ꯊꯝꯃꯤ꯫ ꯃꯁꯤꯅꯥ ꯍꯀꯆꯥꯡꯗꯥ ꯏ ꯆꯦꯅꯕꯥ ꯂꯝꯕꯤ ꯑꯃꯥ ꯁꯦꯝꯃꯤ꯫ ꯃꯁꯤꯒꯤ ꯃꯊꯛꯇꯥ, ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯊꯝꯃꯣꯌꯅꯥ ꯍꯦꯟꯅꯥ ꯏꯐꯤꯁꯤꯑꯦꯟꯇ ꯑꯣꯏꯅꯥ ꯊꯕꯛ ꯇꯧꯕꯗꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯅꯕꯥ ꯑꯇꯩ ꯍꯤꯗꯥꯀꯁꯤꯡ ꯄꯤꯕꯥ ꯌꯥꯏ꯫ ꯑꯉꯥꯡ ꯑꯗꯨꯕꯨ ꯁ꯭ꯕꯔ ꯍꯣꯅꯕꯗꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯕꯁꯨ ꯃꯊꯧ ꯇꯥꯕꯥ ꯌꯥꯏ꯫ ꯃꯗꯨꯒꯤ ꯃꯇꯨꯡꯗꯥ, ꯁꯔꯖꯔꯤ ꯀꯌꯥ ꯄꯥꯡꯊꯣꯀꯄꯥ ꯌꯥꯏ꯫ ꯍꯥꯌꯔꯤꯕꯥ ꯁꯔꯖꯔꯤꯁꯤꯡ ꯑꯁꯤ ꯏꯒꯤ ꯈꯣꯡꯖꯦꯜ ꯑꯁꯤ ꯂꯪꯁ ꯑꯃꯁꯨꯡ ꯍꯀꯆꯥꯡꯗꯥ ꯑꯃꯨꯛ ꯍꯟꯅꯥ ꯂꯃꯖꯤꯡꯅꯕꯥ ꯁꯤꯖꯤꯟꯅꯩ꯫ ꯁꯔꯖꯔꯤꯁꯤꯡ ꯑꯁꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ, ꯍꯥꯔꯇꯀꯤ ꯊꯕꯛ ꯑꯁꯤ ꯆꯥꯎꯔꯥꯛꯅꯥ ꯃꯄꯨꯡꯐꯥꯅꯥ ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯗꯥ ꯇ꯭ꯔꯥꯟꯁꯐꯔ ꯇꯧꯏ꯫ ꯃꯁꯤ ꯍꯀꯆꯥꯡ ꯄꯨꯝꯕꯗꯥ ꯏ ꯄꯝꯄ ꯇꯧꯕꯥ ꯑꯗꯨꯅꯤ꯫

(HLHS)ꯒꯤꯗꯃꯛꯇꯥ ꯀꯔꯤ ꯁꯔꯖꯔꯤꯁꯤꯡ ꯄꯥꯡꯊꯣꯀꯄꯒꯦ?

ꯁꯔꯖꯔꯁꯤꯡꯅꯥ ꯃꯔꯨꯑꯣꯏꯕꯥ ꯊꯧꯑꯣꯡ ꯑꯍꯨꯝ ꯄꯥꯡꯊꯣꯀꯏ: ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯖꯔ , ꯒ꯭ꯂꯦꯟ ꯄ꯭ꯔꯣꯁꯤꯖꯔ ꯑꯃꯁꯨꯡ ꯐꯣꯟꯇꯟ ꯄ꯭ꯔꯣꯁꯤꯖꯔ ꯫ ꯍꯥꯌꯔꯤꯕꯥ ꯊꯧꯑꯣꯡꯁꯤꯡ ꯑꯁꯤ ꯑꯣꯔꯗꯔꯒꯤ ꯃꯇꯨꯡ ꯏꯟꯅꯥ ꯄꯥꯡꯊꯣꯀꯏ꯫ 1. ꯅꯣꯔꯎꯗ ꯄ꯭ꯔꯣꯁꯤꯗ꯭ꯌꯨꯑꯣꯔ: ꯄ꯭ꯔꯣꯁꯤꯗ꯭ꯌꯨꯑꯣꯔ ꯑꯁꯤ HLHS ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤ ꯄꯨꯟꯁꯤꯒꯤ ꯑꯍꯥꯅꯕꯥ ꯅꯨꯃꯤꯠ ꯑꯅꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯄꯥꯡꯊꯣꯀꯏ꯫ ꯃꯁꯤꯒꯤ ꯊꯧꯑꯣꯡ ꯑꯁꯤꯗꯥ ꯁꯔꯖꯔꯤꯁꯤꯡꯅꯥ:

• ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯑꯟꯗꯔꯗꯦꯕꯦꯂꯞ ꯇꯧꯔꯕꯥ ꯑꯦꯑꯣꯔꯇꯥ ꯑꯗꯨ ꯍꯀꯆꯥꯡꯗꯥ ꯏ ꯆꯦꯅꯕꯥ ꯌꯥꯅꯕꯥ ꯅꯧꯅꯥ ꯁꯦꯃꯗꯣꯛ-ꯁꯦꯃꯖꯤꯟ ꯇꯧꯏ꯫
• ꯁꯟꯊꯤ , ꯑꯄꯤꯀꯄꯥ ꯇꯤꯎꯕ ꯑꯃꯥ ꯍꯥꯌꯕꯁꯤ ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯗꯒꯤ, ꯑꯦꯑꯣꯔꯇꯥꯗꯒꯤ ꯅꯠꯠꯔꯒꯥ ꯂꯪꯁꯇꯥ ꯆꯠꯂꯤꯕꯥ ꯄꯂꯃꯣꯅꯥꯔꯤ ꯑꯥꯔꯇꯦꯔꯤꯁꯤꯡꯗꯥ ꯏ ꯂꯧꯊꯣꯛꯅꯕꯥ ꯊꯥꯏ꯫
• ꯃꯁꯤꯅꯥ ꯍꯥꯔꯇꯀꯤ ꯃꯊꯛꯀꯤ ꯆꯦꯝꯕꯔꯁꯤꯡ (atria)ꯒꯤ ꯃꯔꯛꯇꯥ ꯀꯅꯦꯛꯁꯟ ꯑꯃꯥ ꯁꯦꯝꯃꯤ꯫ ꯃꯁꯤꯅꯥ ꯍꯀꯆꯥꯡꯗꯥ ꯂꯪꯁꯇꯒꯤ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯝꯅꯥ ꯌꯥꯎꯕꯥ ꯏ ꯐꯪꯍꯅꯕꯗꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯏ꯫

2. ꯕꯥꯏꯗꯔꯥꯏꯖꯦꯁꯅꯦꯜ ꯒ꯭ꯂꯦꯟ ꯁꯟꯇ ꯑꯣꯄꯔꯦꯁꯟ: ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤꯗꯃꯛ꯫ꯑꯅꯤꯁꯨꯕꯥ ꯁꯔꯖꯔꯤ ꯑꯗꯨ ꯆꯥꯎꯔꯥꯛꯅꯥ ꯊꯥ 4ꯗꯒꯤ 6 ꯐꯥꯎꯕꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯄꯥꯡꯊꯣꯛꯀꯗꯕꯅꯤ꯫ ꯒ꯭ꯂꯦꯟ ꯁꯔꯖꯔꯤꯒꯤ ꯃꯇꯃꯗꯥ:

• ꯑꯔꯤꯕꯥ ꯁꯟꯇ ꯑꯗꯨ ꯂꯧꯊꯣꯛꯂꯤ꯫
• ꯑꯅꯧꯕꯥ ꯁꯟꯇ ꯑꯃꯥ ꯍꯥꯄꯆꯤꯟꯗꯨꯅꯥ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯁꯨꯄꯤꯔꯤꯌꯔ ꯚꯦꯅꯝ ꯀꯥꯚꯥ (SVC) (ꯃꯁꯤꯅꯥ ꯃꯊꯛꯀꯤ ꯍꯀꯆꯥꯡꯗꯒꯤ ꯍꯥꯔꯇꯇꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯗꯕꯥ ꯏ ꯄꯨꯊꯣꯀꯏ) ꯑꯗꯨ ꯄꯂꯃꯣꯅꯥꯔꯤ ꯑꯥꯔꯇꯦꯔꯤꯒꯥ ꯁꯝꯅꯍꯜꯂꯤ꯫
• ꯃꯁꯤꯒꯤ ꯁꯟꯊꯤ ꯑꯁꯤꯅꯥ ꯑꯔꯣꯏꯕꯥ ꯚꯦꯟꯇꯤꯂꯦꯇꯔꯗꯥ ꯂꯩꯕꯥ ꯂꯣꯗ ꯑꯗꯨ ꯍꯟꯊꯍꯜꯂꯤ, ꯃꯔꯃꯗꯤ ꯃꯁꯤꯅꯥ ꯏ ꯑꯗꯨ ꯍꯀꯊꯦꯡꯅꯅꯥ ꯂꯪꯁꯇꯥ ꯆꯠꯄꯥ ꯌꯥꯍꯜꯂꯤ꯫

꯳.ꯐꯣꯟꯇꯥꯟ ꯄ꯭ꯔꯣꯁꯤꯖꯔ: ꯑꯔꯣꯏꯕꯥ ꯄ꯭ꯔꯣꯁꯤꯖꯔ ꯑꯁꯤ ꯆꯍꯤ ꯱꯸ ꯑꯃꯁꯨꯡ ꯆꯍꯤ ꯴ꯒꯤ ꯃꯔꯛꯇꯥ ꯄꯥꯡꯊꯣꯀꯏ . ꯄ꯭ꯔꯣꯁꯤꯗ꯭ꯌꯨꯑꯣꯔ ꯑꯁꯤꯅꯥ ꯍꯀꯆꯥꯡꯗꯒꯤ ꯍꯟꯖꯤꯜꯂꯀꯄꯥ ꯏ ꯄꯨꯝꯅꯃꯛ ꯍꯥꯔꯇꯇꯥ ꯕꯥꯏꯄꯥꯁ ꯇꯧꯗꯨꯅꯥ ꯂꯪꯁꯇꯥ ꯂꯃꯖꯤꯡꯏ꯫ ꯐꯣꯟꯇꯟ ꯄ꯭ꯔꯣꯁꯤꯖꯔꯒꯤ ꯃꯅꯨꯡꯗꯥ:

• ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯏꯅꯐꯦꯔꯤꯌꯔ ꯚꯦꯅꯥ ꯀꯥꯚꯥ (IVC) (ꯃꯁꯤꯅꯥ ꯃꯈꯥꯒꯤ ꯍꯀꯆꯥꯡꯗꯒꯤ ꯍꯥꯔꯇꯇꯥ ꯑꯣꯛꯁꯤꯖꯦꯟ ꯌꯥꯎꯗꯕꯥ ꯏ ꯄꯨꯊꯣꯀꯏ) ꯑꯁꯤ ꯄꯂꯃꯣꯅꯥꯔꯤ ꯑꯥꯔꯇꯦꯔꯤꯒꯥ ꯁꯝꯅꯩ꯫

ꯂꯥꯏꯌꯦꯡꯕꯗꯥ ꯀꯃꯞꯂꯤꯀꯦꯁꯟ ꯂꯩꯕ꯭ꯔꯥ?

ꯍꯣꯌ, ꯑꯉꯥꯡ ꯈꯔꯗꯤ ꯁꯔꯖꯔꯤ ꯑꯃꯗꯒꯤ ꯑꯇꯣꯞꯄꯥ ꯁꯔꯖꯔꯤ ꯑꯃꯗꯥ ꯆꯠꯄꯥ ꯃꯇꯃꯗꯥ ꯃꯈꯣꯌꯒꯤ ꯄꯨꯟꯁꯤ ꯐꯥꯎꯕꯥ ꯃꯥꯡꯍꯅꯕꯥ ꯌꯥꯏ꯫ ꯃꯁꯤꯗꯁꯨ ꯅꯠꯇꯅꯥ, ꯁꯔꯖꯔꯤ ꯈꯨꯗꯤꯡꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯝ ꯈꯔꯗꯤ ꯂꯩꯕꯥ ꯌꯥꯏ꯫ ꯈꯨꯗꯝ ꯑꯣꯏꯅ:

• ꯔꯥꯏꯠ ꯚꯦꯟꯇꯤꯂꯦꯇꯔ ꯑꯗꯨ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯊꯕꯛ ꯇꯧꯗꯕꯒꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯃꯁꯤꯡ꯫
• ꯑꯦꯑꯣꯔꯇꯤꯛ ꯚꯜꯌꯨ ꯂꯤꯛ ꯑꯣꯏꯕꯥ꯫
• ꯂꯤꯚꯔꯒꯤ ꯂꯥꯌꯅꯥ꯫
• ꯑꯦꯕꯅꯣꯔꯃꯦꯜ ꯍꯥꯔꯇꯀꯤ ꯔꯤꯗꯃꯁꯤꯡ꯫
• ꯏ ꯊꯣꯀꯄꯥ꯫
• ꯃꯍꯤꯛ ꯄꯛꯄ.
• ꯆꯥꯕꯗꯥ ꯑꯋꯥꯕꯥ ꯊꯣꯀꯄꯥ꯫
• ꯁꯤꯖ꯭ꯌꯨꯔꯁꯤꯡ (seizures) ꯂꯩꯕꯥ꯫
• ꯀꯤꯗꯅꯤꯒꯤ ꯄ꯭ꯔꯣꯕ꯭ꯂꯦꯝ ꯂꯩꯕꯥ꯫
• ꯀꯥꯔꯗꯤꯌꯦꯛ ꯑꯦꯔꯦꯁ꯭ꯠ ꯇꯧꯕꯥ꯫

ꯍꯥꯌꯔꯤꯕꯁꯤꯡ ꯑꯁꯤ ꯇꯥꯕꯗꯥ ꯌꯥꯝꯅꯥ ꯁꯥꯊꯤꯕꯥ ꯋꯥꯐꯃꯁꯤꯡꯅꯤ, ꯑꯗꯨꯕꯨ ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯑꯗꯣꯃꯒꯥ ꯂꯣꯌꯅꯅꯥ ꯈꯨꯗꯣꯡꯊꯤꯕꯁꯤꯡ ꯑꯁꯤꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯋꯥꯔꯤ ꯁꯥꯅꯒꯅꯤ ꯑꯃꯁꯨꯡ ꯑꯗꯣꯃꯗꯥ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯐꯕꯥ ꯂꯥꯌꯦꯡ ꯄꯤꯅꯕꯥ ꯍꯣꯠꯅꯒꯅꯤ꯫

ꯍꯥꯔꯠ ꯇ꯭ꯔꯥꯟꯁꯞꯂꯥꯟꯇ ꯇꯧꯕꯥ ꯍꯥꯌꯕꯁꯤ ꯑꯐꯕꯥ ꯂꯥꯏꯌꯦꯡ ꯑꯃꯅꯤ ꯍꯥꯌꯕꯁꯤꯅꯤ?

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ, ꯁꯔꯖꯔꯤꯁꯤꯡꯅꯥ ꯁꯔꯖꯔꯤ ꯑꯍꯨꯝ ꯑꯗꯨ ꯇꯧꯕꯒꯤ ꯃꯍꯨꯠꯇꯥ ꯍꯥꯔꯠ ꯇ꯭ꯔꯥꯟꯁꯞꯂꯥꯟꯇ ꯇꯧꯅꯕꯥ ꯄꯥꯎꯇꯥꯛ ꯄꯤꯕꯥ ꯌꯥꯏ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯍꯥꯔꯠ ꯇ꯭ꯔꯥꯟꯁꯞꯂꯥꯟꯇ ꯇꯧꯔꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯅꯥ ꯄꯨꯟꯁꯤ ꯆꯨꯞꯄꯥ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯀꯁꯤꯡ (ꯏꯝꯌꯨꯟ ꯁꯞꯔꯦꯁꯦꯟꯇ ꯗ꯭ꯔꯒꯁꯤꯡ) ꯂꯧꯒꯗꯕꯅꯤ꯫

ꯄꯣꯀꯄꯒꯤ ꯃꯃꯥꯡꯗꯥ HLHS ꯂꯥꯏꯌꯦꯡꯕꯥ ꯌꯥꯕ꯭ꯔꯥ?

ꯍꯧꯖꯤꯛꯀꯤ ꯑꯣꯏꯅꯥ ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ ꯁꯔꯖꯔꯤ ꯇꯧꯗꯨꯅꯥ HLHS ꯃꯄꯨꯡꯐꯥꯅꯥ ꯐꯍꯅꯕꯥ ꯉꯃꯗ꯭ꯔꯤ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯀꯔꯤꯒꯨꯝꯕꯥ ꯃꯇꯃꯗꯥ ꯐꯤꯇꯁ ꯁꯔꯖꯔꯤꯁꯤꯡꯅꯥ HLHSꯅꯥ ꯅꯥꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯗꯥ (ꯈꯨꯗꯝ ꯑꯣꯏꯅꯥ, ꯑꯄꯤꯀꯄꯥ ꯑꯦꯑꯣꯔꯇꯤꯛ ꯚꯜꯌꯨ ꯑꯃꯥ) ꯊꯣꯀꯄꯥ ꯌꯥꯕꯥ ꯑꯁꯣꯛ-ꯑꯄꯟ ꯈꯔꯗꯤ ꯊꯤꯡꯅꯕꯥ ꯏꯟꯇꯔꯚꯦꯟꯁꯟ ꯈꯔꯗꯤ ꯄꯥꯡꯊꯣꯀꯄꯥ ꯌꯥꯏ꯫ ꯑꯗꯨꯕꯨ ꯃꯁꯤ ꯌꯥꯝꯅꯥ ꯑꯈꯟꯅꯕꯥ ꯀꯦꯁ ꯈꯛꯇꯗꯥ ꯊꯣꯀꯏ꯫

(HLHS)ꯒꯤ ꯔꯤꯁ꯭ꯛ ꯍꯟꯊꯍꯅꯕꯥ ꯉꯃꯒꯗ꯭ꯔꯥ?

HLHSꯒꯤ ꯑꯌꯥꯝꯕꯥ ꯀꯦꯁꯁꯤꯡꯒꯤ ꯃꯔꯝ ꯈꯪꯗꯕꯥ ꯃꯔꯝꯅꯥ, ꯃꯁꯤ ꯀꯔꯝꯅꯥ ꯃꯄꯨꯡꯐꯥꯅꯥ ꯊꯤꯡꯒꯗꯒꯦ ꯍꯥꯌꯕꯗꯨ ꯍꯥꯌꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯂꯨꯏ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯇꯃꯗꯥ ꯍꯀꯁꯦꯜ ꯐꯕꯥ ꯂꯃꯆꯠ-ꯁꯥꯖꯠꯁꯤꯡ ꯉꯥꯛꯅꯥ ꯆꯠꯄꯥ ꯍꯥꯌꯕꯁꯤ ꯃꯇꯝ ꯄꯨꯝꯅꯃꯛꯇꯥ ꯃꯔꯨꯑꯣꯏ:

• ꯌꯨ ꯊꯀꯄꯥ ꯑꯃꯁꯨꯡ ꯃꯩꯈꯨ ꯊꯥꯗꯣꯀꯄꯥ ꯊꯤꯡꯕꯥ꯫
• ꯗꯥꯏꯕꯦꯇꯤꯁ ꯃꯦꯂꯤꯇꯁꯒꯨꯝꯕꯥ ꯑꯇꯣꯞꯄꯥ ꯃꯦꯗꯤꯀꯦꯜ ꯀꯟꯗꯤꯁꯅꯁꯤꯡ ꯀꯟꯠꯔꯣꯜ ꯇꯧꯕꯥ .
• ꯍꯀꯁꯦꯜ ꯐꯕꯥ ꯗꯥꯏꯠ ꯑꯃꯥ ꯆꯥꯕꯥ꯫
• ꯅꯣꯡꯃꯗꯥ ꯌꯥꯃꯗ꯭ꯔꯕꯗꯥ ꯃꯥꯏꯛꯔꯣꯒ꯭ꯔꯥꯝ 400 (400 mcg) ꯌꯥꯎꯕꯥ ꯄ꯭ꯔꯤꯅꯦꯇꯦꯜ ꯚꯤꯇꯥꯃꯤꯟ ꯑꯃꯥ ꯂꯧꯕꯥ .

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛ ꯅꯠꯠꯔꯒꯥ ꯅꯍꯥꯛꯀꯤ ꯄꯥꯔꯇꯅꯔ ꯑꯗꯨꯅꯥ HLHSꯒꯤ ꯐꯦꯃꯤꯂꯤ ꯍꯤꯁ꯭ꯇꯔꯤ ꯂꯩꯔꯕꯗꯤ, ꯃꯤꯔꯣꯜꯂꯤꯉꯩ ꯃꯃꯥꯡꯗꯥ ꯖꯦꯅꯦꯇꯤꯛ ꯀꯥꯎꯟꯁꯦꯂꯔ ꯑꯃꯒꯥ ꯋꯥꯔꯤ ꯁꯥꯅꯕꯥ ꯍꯥꯌꯕꯁꯤ ꯑꯐꯕꯥ ꯋꯥꯈꯜꯂꯣꯟ ꯑꯃꯅꯤ꯫

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯑꯩꯒꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ (HLHS) ꯂꯩꯔꯕꯗꯤ, ꯑꯩꯅꯥ ꯀꯔꯤ ꯑꯥꯁꯥ ꯇꯧꯒꯗꯒꯦ?

HLHS ꯂꯥꯏꯌꯦꯡꯕꯒꯤ ꯃꯇꯨꯡꯗꯥ, ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯃꯍꯥꯛꯀꯤ ꯄꯨꯟꯁꯤ ꯆꯨꯞꯄꯥ ꯌꯥꯃꯗ꯭ꯔꯕꯗꯥ ꯆꯍꯤ ꯑꯃꯗꯥ ꯀꯥꯔꯗꯤꯑꯣꯂꯣꯖꯤꯁ꯭ꯠ ꯑꯃꯒꯥ ꯇꯥꯟꯅꯒꯗꯕꯅꯤ꯫ ꯃꯁꯤꯅꯥ ꯃꯍꯥꯛꯀꯤ ꯊꯝꯃꯣꯌ, ꯂꯪꯁ ꯑꯃꯁꯨꯡ ꯑꯇꯩ ꯑꯣꯔꯒꯥꯅꯁꯤꯡ ꯑꯗꯨ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯊꯕꯛ ꯇꯧꯕꯥ ꯉꯃꯍꯅꯒꯅꯤ꯫ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯆꯍꯤ ꯌꯥꯃꯈꯠꯂꯀꯄꯒꯥ ꯂꯣꯌꯅꯅꯥ, ꯃꯍꯥꯛꯅꯥ ꯑꯦꯗꯜꯇ ꯀꯣꯟꯖꯤꯅꯤꯑꯦꯜ ꯍꯥꯔꯠ ꯗꯤꯖꯤꯖꯒꯤ ꯁ꯭ꯄꯦꯁꯤꯑꯦꯂꯤꯁ꯭ꯠ ꯑꯃꯒꯥ ꯇꯥꯟꯅꯒꯗꯕꯅꯤ꯫ HLHSꯅꯥ ꯅꯥꯕꯥ ꯑꯉꯥꯡ ꯀꯌꯥꯅꯥ ꯄꯨꯟꯁꯤ ꯆꯨꯞꯄꯥ ꯍꯥꯔꯇꯀꯤ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯀꯁꯤꯡ ꯂꯧꯕꯥ ꯃꯊꯧ ꯇꯥꯒꯅꯤ꯫ ꯃꯈꯣꯌꯅꯥ ꯗꯦꯟꯇꯦꯜ ꯁꯔꯖꯔꯤ ꯌꯥꯑꯣꯅꯥ ꯁꯔꯖꯔꯤ ꯑꯃꯍꯦꯛꯇꯒꯤ ꯃꯃꯥꯡꯗꯥ ꯑꯦꯟꯇꯤꯕꯥꯏꯑꯣꯇꯤꯀꯁꯤꯡꯁꯨ ꯂꯧꯕꯥ ꯃꯊꯧ ꯇꯥꯒꯅꯤ꯫ ꯃꯁꯤꯅꯥ ꯑꯦꯟꯗꯣꯀꯥꯔꯗꯤꯇꯤꯁ (ꯍꯥꯔꯇꯀꯤ ꯃꯅꯨꯡꯗꯥ ꯂꯩꯕꯥ ꯏꯅꯐꯦꯛꯁꯟ)ꯒꯤ ꯔꯤꯁ꯭ꯛ ꯍꯟꯊꯍꯅꯕꯥ ꯉꯝꯃꯤ꯫

(HLHS) ꯁ꯭ꯇꯦꯇꯁꯀꯤ ꯑꯥꯎꯇꯂꯨꯛ ꯑꯁꯤ ꯀꯔꯤꯅꯣ?

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯂꯥꯏꯌꯦꯡꯗ꯭ꯔꯕꯗꯤ, HLHS ꯍꯥꯌꯕꯁꯤ ꯄꯣꯀꯄꯥ ꯃꯇꯨꯡ ꯅꯨꯃꯤꯠ ꯅꯠꯠꯔꯒꯥ ꯅꯨꯃꯤꯠ ꯈꯔꯅꯤꯒꯤ ꯃꯅꯨꯡꯗꯥ ꯁꯤꯍꯅꯕꯥ ꯌꯥꯕꯥ ꯀꯟꯗꯤꯁꯟ ꯑꯃꯅꯤ꯫ ꯂꯥꯏꯌꯦꯡꯕꯒꯥ ꯂꯣꯌꯅꯅꯥ, ꯑꯥꯎꯠꯂꯨꯛ ꯑꯁꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯗꯥ ꯂꯩꯔꯤꯕꯥ ꯍꯥꯔꯇꯀꯤ ꯑꯁꯣꯛ-ꯑꯄꯅꯒꯤ ꯀꯝꯞꯂꯦꯛꯁ ꯑꯣꯏꯕꯥ ꯃꯑꯣꯡ ꯑꯗꯨꯗꯥ ꯌꯨꯝꯐꯝ ꯑꯣꯏ꯫ ꯁꯔꯖꯔꯤ ꯈꯨꯗꯤꯡꯃꯛꯀꯤ ꯔꯤꯁ꯭ꯀꯁꯤꯡꯒꯤ ꯃꯇꯥꯡꯗꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡꯒꯤ ꯗꯣꯛꯇꯔꯗꯥ ꯍꯪꯕꯤꯌꯨ꯫ ꯑꯉꯥꯡ ꯈꯔꯗꯤ ꯄꯨꯟꯁꯤ ꯆꯨꯞꯄꯒꯤ ꯑꯣꯏꯅꯥ ꯁꯥꯖꯦꯜ ꯇꯧꯕꯥ ꯉꯝꯕꯒꯤ ꯆꯥꯡ ꯍꯟꯊꯔꯀꯄꯥ ꯌꯥꯏ꯫ ꯃꯍꯧꯁꯥꯅꯥ ꯗꯣꯛꯇꯔꯁꯤꯡꯅꯥ ꯀꯝꯄꯤꯇꯤꯇꯤꯚ ꯁ꯭ꯄꯣꯔꯇꯁꯒꯨꯝꯕꯥ ꯑꯀꯅꯕꯥ ꯐꯤꯖꯤꯀꯦꯜ ꯑꯦꯛꯇꯤꯚꯤꯇꯤꯁꯤꯡ ꯂꯤꯃꯤꯠ ꯇꯧꯅꯕꯥ ꯄꯥꯎꯇꯥꯛ ꯄꯤꯔꯤ꯫

(HLHS) ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤ ꯍꯤꯡꯕꯒꯤ ꯆꯥꯡ ꯑꯁꯤ ꯀꯌꯥꯅꯣ?

ꯃꯁꯤ ꯈꯔꯥ ꯅꯨꯡꯉꯥꯏꯇꯕꯥ ꯋꯥꯐꯝ ꯑꯃꯅꯤ ꯑꯗꯨꯕꯨ ꯃꯁꯤ ꯈꯉꯕꯥ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫ (HLHS) ꯂꯩꯕꯥ ꯑꯉꯥꯡꯁꯤꯡꯒꯤ 20% ꯑꯃꯁꯨꯡ 60%ꯒꯤ ꯃꯔꯛꯇꯥ ꯄꯨꯟꯁꯤꯒꯤ ꯑꯍꯥꯅꯕꯥ ꯆꯍꯤꯗꯥ ꯍꯤꯡꯏ꯫ ꯃꯗꯨꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯃꯊꯪꯒꯤ ꯆꯍꯤ ꯃꯉꯥ, ꯇꯔꯥ ꯑꯃꯁꯨꯡ ꯃꯉꯥꯒꯤ ꯑꯣꯏꯅꯥ ꯍꯤꯡꯕꯒꯤ ꯆꯥꯡ ꯑꯁꯤ ꯆꯥꯎꯔꯥꯛꯅꯥ ꯴꯰%ꯅꯤ꯫ ꯅꯣꯔꯃꯦꯜ ꯑꯣꯏꯕꯥ ꯄꯣꯀꯄꯒꯤ ꯑꯔꯨꯝꯕꯥ ꯑꯃꯗꯥ ꯄꯣꯀꯄꯥ ꯑꯉꯥꯡꯁꯤꯡꯅꯥ, ꯃꯇꯝ ꯆꯥꯗꯅꯥ ꯄꯣꯀꯄꯥ ꯑꯉꯥꯡꯁꯤꯡꯅꯥ ꯄꯣꯀꯄꯒꯤ ꯑꯔꯨꯝꯕꯥ ꯅꯦꯝꯕꯥ ꯄꯣꯀꯄꯥ ꯑꯉꯥꯡꯁꯤꯡꯗꯒꯤ ꯍꯦꯟꯅꯥ ꯐꯕꯥ ꯐꯜ ꯂꯩ꯫ ꯁ꯭ꯇꯗꯤ ꯑꯃꯅꯥ ꯑꯍꯥꯅꯕꯥ ꯆꯍꯤꯗꯥ ꯍꯤꯡꯈꯤꯕꯥ ꯑꯉꯥꯡ ꯍꯦꯟꯅꯥ ꯆꯍꯤ 18 ꯁꯨꯔꯀꯄꯗꯥ ꯍꯤꯡꯂꯤ ꯍꯥꯌꯕꯥ ꯈꯪꯂꯦ꯫

ꯍꯥꯌꯔꯤꯕꯥ ꯁ꯭ꯇꯦꯇꯤꯁ꯭ꯇꯤꯀꯦꯂꯁꯤꯡ ꯑꯁꯤ ꯎꯕꯥ ꯐꯪꯕꯗꯥ ꯑꯋꯥꯕꯥ ꯑꯣꯏꯔꯤ꯫ ꯑꯗꯨꯕꯨ ꯅꯤꯡꯁꯤꯡꯕꯤꯌꯨ, ꯃꯦꯗꯤꯀꯦꯜ ꯁꯥꯏꯟꯁ ꯑꯁꯤ ꯅꯨꯃꯤꯠ ꯈꯨꯗꯤꯡꯒꯤ ꯐꯒꯠꯂꯛꯂꯤ꯫ ꯑꯅꯧꯕꯥ ꯂꯥꯌꯦꯡꯁꯤꯡ, ꯑꯅꯧꯕꯥ ꯇꯦꯛꯅꯣꯂꯣꯖꯤꯁꯤꯡ ꯂꯥꯛꯂꯤ꯫ ꯃꯔꯝ ꯑꯗꯨꯅꯥ ꯑꯥꯁꯥ ꯑꯗꯨ ꯍꯤꯡꯍꯟꯗꯨꯅꯥ ꯊꯝꯕꯥ ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫

ꯑꯩꯒꯤ ꯑꯉꯥꯡ ꯑꯗꯨ ꯀꯔꯝꯅꯥ ꯌꯦꯡꯁꯤꯅꯒꯅꯤ?

ꯀꯟꯗꯤꯁꯟ ꯑꯁꯤꯒꯥ ꯂꯣꯌꯅꯅꯥ ꯄꯣꯀꯄꯥ ꯑꯉꯥꯡꯁꯤꯡꯅꯥ ꯀꯥꯔꯗꯤꯑꯣꯂꯣꯖꯤꯁ꯭ꯠ ꯑꯃꯗꯒꯤ ꯃꯇꯝ ꯁꯥꯡꯅꯥ ꯌꯦꯡꯁꯤꯅꯕꯤꯗꯨꯅꯥ ꯍꯀꯁꯦꯜ ꯐꯕꯥ ꯄꯨꯟꯁꯤ ꯍꯤꯡꯕꯥ ꯉꯝꯃꯤ꯫ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯕꯨ ꯃꯈꯥꯗꯥ ꯄꯤꯔꯤꯕꯁꯤꯡꯁꯤꯒꯤ ꯃꯈꯥꯗꯥ ꯌꯦꯡꯁꯤꯅꯕꯥ ꯌꯥꯏ:

• ꯆꯍꯤ ꯈꯨꯗꯤꯡꯒꯤ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯗꯥ ꯏꯅꯐ꯭ꯂꯨꯑꯦꯟꯖꯥ (ꯐ꯭ꯂꯨ) ꯚꯦꯛꯁꯤꯟ ꯑꯃꯁꯨꯡ ꯀꯣꯕꯤꯗ-꯱꯹ ꯚꯦꯛꯁꯤꯟ ꯄꯤꯌꯨ꯫
• ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨ ꯊꯥ ꯶ ꯈꯨꯗꯤꯡꯒꯤ ꯅꯠꯠꯔꯒꯥ ꯆꯍꯤ ꯑꯃꯗꯥ ꯑꯃꯨꯛ ꯀꯥꯔꯗꯤꯑꯣꯂꯣꯖꯤꯁ꯭ꯠ ꯑꯃꯗꯥ ꯂꯧꯕꯤꯌꯨ .
• ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯗꯥ ꯄꯤꯔꯤꯕꯥ ꯍꯤꯗꯥꯛ ꯑꯗꯨ ꯃꯇꯝ ꯆꯥꯅꯥ ꯄꯤꯌꯨ .
• ꯅꯍꯥꯛꯀꯤ ꯗꯣꯛꯇꯔꯅꯥ ꯔꯤꯀꯃꯦꯟꯗ ꯇꯧꯔꯀꯄꯒꯤ ꯃꯇꯨꯡꯏꯟꯅꯥ, ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯒꯤ ꯑꯀꯅꯕꯥ ꯐꯤꯖꯤꯀꯦꯜ ꯑꯦꯛꯇꯤꯚꯤꯇꯤ ꯑꯗꯨ ꯂꯤꯃꯤꯠ ꯇꯧ꯫
• ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯇꯝꯕꯗꯥ ꯈꯨꯗꯣꯡꯆꯥꯗꯕꯥ ꯂꯩꯔꯕꯗꯤ , ꯃꯈꯣꯌꯕꯨ ꯃꯇꯦꯡ ꯄꯥꯡꯕꯤꯌꯨ꯫

ꯑꯩꯒꯤ ꯗꯣꯛꯇꯔꯗꯥ ꯀꯔꯤ ꯋꯥꯍꯪ ꯍꯪꯒꯗꯒꯦ?

ꯀꯔꯤꯒꯨꯝꯕꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯗꯥ HLHS ꯂꯩꯔꯕꯗꯤ, ꯅꯍꯥꯛꯅꯥ ꯗꯣꯛꯇꯔꯗꯥ ꯃꯈꯥꯗꯥ ꯄꯤꯔꯤꯕꯥ ꯋꯥꯍꯪꯁꯤꯡ ꯑꯁꯤ ꯍꯪꯕꯥ ꯌꯥꯏ:

• ꯁꯔꯖꯔꯤꯒꯤ ꯔꯤꯁ꯭ꯀꯁꯤꯡ ꯀꯔꯤꯅꯣ?
• ꯁꯔꯖꯔꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯌꯦꯡꯁꯤꯅꯒꯗꯕꯥ ꯀꯃꯞꯂꯤꯀꯦꯁꯟ ꯂꯩꯕ꯭ꯔꯥ?
• ꯑꯩꯒꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯀꯔꯤ ꯍꯤꯗꯥꯛ-ꯂꯥꯡꯊꯀꯁꯤꯡ ꯃꯊꯧ ꯇꯥꯕꯒꯦ? ꯍꯤꯗꯥꯀꯁꯤꯡ ꯑꯗꯨꯒꯤ ꯁꯥꯏꯗ ꯏꯐꯦꯛꯇ ꯑꯃꯠꯇꯥ ꯂꯩꯕ꯭ꯔꯥ?
• ꯀꯟꯗꯤꯁꯟ (HLHS) ꯑꯁꯤꯅꯥ ꯑꯩꯒꯤ ꯑꯉꯥꯡꯒꯤ ꯄꯨꯟꯁꯤꯗꯥ ꯀꯔꯝꯅꯥ ꯁꯣꯀꯍꯅꯒꯅꯤ?
• ꯁꯔꯖꯔꯤꯒꯤ ꯃꯇꯨꯡꯗꯥ ꯑꯩꯒꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯅꯥ ꯀꯔꯤ ꯐꯣꯂꯣ-ꯑꯞ ꯀꯦꯌꯔ ꯃꯊꯧ ꯇꯥꯕꯒꯦ?
• ꯀꯔꯤꯒꯨꯝꯕꯥ ꯑꯩꯅꯥ ꯑꯇꯣꯞꯄꯥ ꯑꯉꯥꯡ ꯑꯃꯥ ꯄꯣꯀꯄꯥ ꯇꯥꯔꯕꯗꯤ, ꯑꯉꯥꯡ ꯑꯗꯨꯁꯨ ꯄꯣꯀꯄꯥ ꯌꯥꯕꯒꯤ ꯔꯤꯁ꯭ꯛ ꯂꯩꯕ꯭ꯔꯥ (HLHS)?

HLHSꯅꯥ ꯅꯥꯕꯥ ꯑꯉꯥꯡ ꯑꯃꯥ ꯂꯩꯕꯥ ꯍꯥꯌꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯏꯃꯣꯁꯅꯦꯜ ꯑꯣꯏꯅꯥ ꯋꯥꯈꯜ ꯅꯨꯡꯉꯥꯏꯇꯕꯥ ꯑꯃꯁꯨꯡ ꯇꯪꯗꯨ ꯂꯩꯇꯥꯕꯥ ꯑꯦꯛꯁꯄꯔꯤꯑꯦꯟꯁ ꯑꯃꯥ ꯑꯣꯏꯕꯥ ꯌꯥꯏ . ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡꯒꯤ ꯍꯥꯔꯇꯀꯤ ꯂꯥꯌꯅꯥꯒꯤ ꯁ꯭ꯠꯔꯦꯁ ꯑꯃꯁꯨꯡ ꯁꯣꯏꯗ-ꯉꯥꯃꯗꯕꯥ ꯊꯦꯡꯅꯔꯀꯄꯥ ꯃꯇꯃꯗꯥ, ꯏꯃꯣꯁꯅꯦꯜ ꯁꯄꯣꯔꯠ ꯐꯪꯅꯕꯒꯤꯗꯃꯛ ꯁꯄꯣꯔꯠ ꯒ꯭ꯔꯨꯞ ꯑꯃꯥ ꯅꯠꯠꯔꯒꯥ ꯑꯇꯩ ꯃꯐꯝ ꯑꯃꯥ ꯊꯤꯕꯥ ꯍꯥꯌꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫ ꯃꯦꯟꯇꯦꯜ ꯁ꯭ꯠꯔꯣꯛ ꯑꯣꯏꯅꯥ ꯂꯩꯕꯅꯥ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡꯒꯤ ꯍꯀꯁꯦꯂꯒꯤ ꯑꯋꯥ-ꯑꯅꯥꯁꯤꯡ ꯊꯦꯡꯅꯕꯗꯥ ꯃꯇꯦꯡ ꯄꯥꯡꯒꯅꯤ꯫

ꯇꯦꯛ-ꯍꯣꯝ ꯃꯦꯁꯦꯖ ꯇꯧꯕꯥ꯫

(HLHS) ꯑꯁꯤ ꯌꯥꯝꯅꯥ ꯁꯥꯊꯤꯕꯥ, ꯀꯣꯟꯖꯤꯅꯤꯑꯦꯜ ꯍꯥꯔꯇꯀꯤ ꯂꯥꯌꯅꯥ ꯑꯃꯅꯤ꯫ ꯑꯗꯨꯝ ꯑꯣꯏꯅꯃꯛ, ꯀꯔꯤꯒꯨꯝꯕꯥ ꯇꯣꯏꯅꯥ ꯈꯪꯗꯣꯛꯂꯕꯥ ꯑꯃꯁꯨꯡ ꯃꯑꯣꯡ ꯆꯨꯝꯅꯥ ꯂꯥꯏꯌꯦꯡꯂꯕꯗꯤ, ꯑꯉꯥꯡꯁꯤꯡꯅꯥ ꯑꯐꯕꯥ ꯄꯨꯟꯁꯤ ꯑꯃꯥ ꯍꯤꯡꯅꯕꯒꯤ ꯈꯨꯗꯣꯡꯆꯥꯕꯥ ꯑꯃꯥ ꯐꯪꯏ꯫ ꯃꯁꯤꯗꯥ ꯀꯝꯞꯂꯦꯛꯁ ꯁꯔꯖꯔꯤ ꯀꯌꯥ ꯑꯃꯁꯨꯡ ꯃꯇꯝ ꯁꯥꯡꯅꯥ ꯃꯦꯗꯤꯀꯦꯜ ꯁꯨꯄꯔꯚꯤꯖꯟ ꯇꯧꯕꯥ ꯃꯊꯧ ꯇꯥꯏ꯫ ꯈ꯭ꯕꯥꯏꯗꯒꯤ ꯃꯔꯨ ꯑꯣꯏꯕꯥ ꯋꯥꯐꯃꯗꯤ ꯅꯍꯥꯛ ꯅꯁꯥꯃꯛ ꯅꯁꯥꯃꯀꯁꯨ ꯅꯠꯇꯦ ꯍꯥꯌꯕꯥ ꯈꯉꯕꯥ ꯑꯁꯤꯅꯤ꯫ ꯗꯣꯛꯇꯔꯁꯤꯡ, ꯅꯔꯁꯁꯤꯡ ꯑꯃꯁꯨꯡ ꯑꯇꯣꯞꯄꯥ ꯍꯦꯜꯊ ꯋꯥꯔꯀꯔꯁꯤꯡꯅꯥ ꯅꯍꯥꯛ ꯑꯃꯁꯨꯡ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡ ꯑꯗꯨꯕꯨ ꯃꯇꯦꯡ ꯄꯥꯡꯅꯕꯥ ꯂꯩꯔꯤ꯫ ꯃꯁꯤꯒꯥ ꯃꯥꯟꯅꯕꯥ ꯑꯦꯛꯁꯄꯔꯤꯌꯦꯟꯁ ꯂꯩꯔꯕꯥ ꯑꯇꯣꯞꯄꯥ ꯃꯃꯥ-ꯃꯄꯥꯁꯤꯡꯗꯒꯤꯁꯨ ꯁꯄꯣꯔꯠ ꯂꯧꯕꯥ ꯍꯥꯌꯕꯁꯤ ꯌꯥꯝꯅꯥ ꯃꯔꯨꯑꯣꯏ꯫ ꯊꯧꯅꯥ ꯃꯥꯡꯍꯅꯒꯅꯨ꯫ ꯅꯍꯥꯛꯀꯤ ꯑꯉꯥꯡꯒꯤꯗꯃꯛ ꯅꯍꯥꯛꯅꯥ ꯀꯠꯊꯣꯀꯈꯤꯕꯥ ꯑꯗꯨ ꯃꯃꯜ ꯌꯥꯝꯂꯕꯅꯤ꯫