Kodi muli ndi zizindikiro izi? Tiyeni tiphunzire za matenda a Adult-Onset Still's Disease (AOSD)!

Kodi nthawi zina mumamva kupweteka, kutentha thupi, komanso kupweteka kwa mafupa kwa masiku ambiri? Mwina ndi ziphuphu pakhungu lanu. Ngati muli ndi zizindikiro izi, mwina muli ndi zomwe tikulankhula lero: Matenda a Adult-Onset Still's Disease (AOSD). Imeneyi ndi vuto losowa, koma ndikofunikira kudziwa za vutoli.

Kodi Matenda a Adult-Onset Still (AOSD) ndi chiyani?

Mwachidule, AOSD ndi matenda a nyamakazi otupa omwe amakhudza thupi lonse, zomwe zimayambitsa kutupa ndi kupweteka m'malo olumikizirana mafupa . Angayambitse kupweteka kwa mafupa, kupweteka kwa minofu, kutentha thupi komwe kumabwera ndi kutha tsiku lonse, komanso kutupa pakhungu. Kuphatikiza apo, zizindikiro zina za thupi zimathanso kuchitika.

Matendawa, otchedwa `AOSD`, ndi mtundu wa matenda a `Still's disease` kapena `(Juvenile Idiopathic Arthritis - JIA)` omwe amapezeka mwa ana. Nthawi zambiri amakhudza achinyamata azaka zapakati pa 16 ndi 35. Monga matendawa mwa ana, nthawi zina amatha kupitirira chaka chimodzi kenako n’kutha, kapena amatha kutha pakapita nthawi. Zizindikiro za ``flares`` zimatha kubwera ndi kutha pafupipafupi, kapena zimatha kubwera ndi kutha kwa nthawi yayitali. Komanso, zizindikirozi nthawi zina zimakhala zochepa kwambiri, ndipo nthawi zina zimatha kukhala zoopsa kwambiri. Komabe, pali mankhwala abwino oletsa zizindikiro zikaonekera.

Kodi mitundu ikuluikulu ya matendawa ndi iti?

AOSD imakhudza aliyense mosiyana. N'zovuta kunena momwe idzakukhudzirani. Koma madokotala aona kuti zizindikiro nthawi zambiri zimawonekera m'njira zitatu zazikulu:

Monophasic AOSD `(Monophasic AOSD)`

"Monophasic" amatanthauza kuti zizindikiro zimawonekera kamodzi kokha . Izi zitha kukhala kwa milungu ingapo kapena miyezi ingapo, koma osakwana chaka chimodzi. Mtundu uwu ukhoza kuyamba mwadzidzidzi, komanso kutha msanga. Tangoganizirani, mnzathu Kasun anali ndi zizindikiro izi ndi malungo ndi kupweteka kwa mafupa, ndipo patatha miyezi pafupifupi itatu adachira kwathunthu ndi mankhwala, ndipo sanabwererenso. Umu ndi momwe `(Monophasic AOSD)` imatchulidwira.

Polyphasic AOSD `(Polyphasic AOSD)`

"Polyphasic" amatanthauza kuti zizindikiro zimachitika kangapo . Izi zimatha kuchitika nthawi ndi nthawi, nthawi zina milungu ingapo, miyezi, kapena zaka zingapo zilizonse. Komabe, pakapita nthawi, zizindikirozi nthawi zambiri zimakhala zazifupi komanso zochepa.

AOSD Yosatha `(AOSD Yosatha)`

"Chronic" amatanthauza kuti muli ndi zizindikiro zomwe zimapitirira, kapena kuti vutoli limakula pafupipafupi . Monga momwe zimakhalira ndi matenda monga Rheumatoid Arthritis, vutoli (Chronic AOSD) lingayambitse kuwonongeka kwa mafupa kwa nthawi yayitali.

Mitundu yonse itatu imawoneka mofanana. Komabe, sizingatheke kunena mtundu womwe uli pachiyambi. Nthawi zina, ngakhale itaganiziridwa kuti ndi "monophasic" kapena "polyphasic", pambuyo pake imatha kukhala "yosatha" `AOSD`.

Kodi zizindikiro za AOSD ndi ziti?

Kuwonjezera pa zizindikiro zazikulu zomwe zimawonedwa mu matendawa, palinso zizindikiro zina zodziwika bwino.

Zizindikiro zazikulu

• Malungo: Zizindikiro zikayamba kuonekera, anthu ambiri amatentha malungo kawiri patsiku , kamodzi m'mawa ndi kamodzi madzulo. Malungo amenewa nthawi zambiri amakhala okwera kuposa madigiri Celsius 39 (102 madigiri Fahrenheit).
• Ziphuphu pakhungu: Ziphuphu za pinki, nthawi zina zooneka ngati salimoni nthawi zambiri zimawonekera kutentha kwambiri . Zitha kutha malungo akatha. Kawirikawiri zimawonekera pachifuwa, m'manja, ndi m'miyendo poyamba, koma zimatha kufalikira m'thupi lonse.
• Kupweteka kwa mafupa: Anthu ambiri amamva kupweteka kwa mafupa , ndipo ambiri amathanso kutupa ndi kuuma. Poyamba kungakhudze mafupa ochepa chabe, koma pakapita nthawi, ululuwu ungakhudze mafupa onse m'thupi.
• Kupweteka kwa minofu: Minofu yanu ingakhalenso yopweteka , makamaka pamene kutentha thupi kuli kwakukulu.

Zizindikiro zina zodziwika bwino

• Chikhure.
• Kuwawa kwam'mimba.
• Kumva kutopa kwambiri.
• Kusasangalala ndi kumva kufooka, kumva kudwala.

Kodi mumamva bwanji kukhala ndi AOSD?

Ndipotu, poyamba, AOSD imamveka ngati matenda opatsirana kapena chimfine . Zizindikiro monga malungo, kupweteka kwa thupi, ndi kupweteka pakhosi zimafanana ndi matenda ena ambiri ofala. Inu ndi dokotala wanu mungayambe kukayika pang'ono ngati zizindikirozi sizinathe patatha milungu iwiri kapena itatu.

Chifukwa chiyani matenda a AOSD amachitika?

Kutupa m'thupi lanu ndiko kumayambitsa zizindikiro za AOSD . Kawirikawiri, chitetezo chathu chamthupi chimayambitsa kutupa kumeneku kuti chithane ndi matenda ndikuchiritsa mabala. Kuyenera kukhala kwakanthawi. Koma m'matenda ena, monga AOSD, chitetezo chanu chamthupi chimakhala ndi vuto ndi china chake , ndipo chimapitiliza kuyambitsa kutupa uku ngakhale palibe matenda oti athane nawo kapena mabala kuti achire.

Ofufuza sakudziwabe chifukwa chake izi zimachitika. Monga Juvenile Idiopathic Arthritis, Adult Still's Disease imatchedwa " idiopathic ." Izi zikutanthauza kuti chifukwa chenicheni sichikudziwika . Sizikuoneka kuti ndi majini.

Kodi AOSD imapezedwa bwanji?

Zizindikiro za AOSD zimafanana ndi matenda ena ambiri. Ndipo popeza ndi matenda osowa, madokotala sangaganize kuti ndi vuto poyamba. Choncho zingatenge nthawi kuti munthu adziwe matenda molondola .

Pambuyo pofufuza zizindikiro zanu ndi mbiri yanu yachipatala, dokotala wanu adzayitanitsa mayeso a magazi ndi zithunzi kuti adziwe zambiri za matenda anu. Mayeso monga X-ray kapena ultrasound scans angayang'ane kutupa ndi kutupa m'mafupa anu. Mayeso a magazi angathandize kuthetsa matenda ena. Ngati mayeso anu a magazi akuwonetsa kuchuluka kwa ferritin, komanso kuchuluka kwa maselo oyera m'magazi , zizindikirozi zitha kusonyeza AOSD.

Kodi mankhwala a AOSD ndi ati?

Madokotala amachiza AOSD ndi mankhwala osiyanasiyana oletsa kutupa . Mitundu ya mankhwala omwe amagwira ntchito bwino kwa munthu aliyense ndi yosiyana. Zingatenge kuyeserera pang'ono kuti mupeze yomwe imagwira ntchito bwino pa zizindikiro zanu. Mukapeza yoyenera, mungafunike kupitiriza kumwa mankhwalawo kwa nthawi yayitali, ngakhale mutakhala kuti mulibe zizindikiro. Pokhapokha ndi pomwe mungaletse kutupa kuti kusakhale koipa.

Mankhwala ena angayambitse mavuto ngati agwiritsidwa ntchito kwa nthawi yayitali. Ngati mukumwa mankhwala otere, dokotala wanu nthawi zina amasinthasintha mankhwalawo kuti apewe mavuto.

Mankhwala ena omwe amagwiritsidwa ntchito pochiza ndi awa:

• Mankhwala oletsa kutupa (NSAIDs) omwe si a steroidal.
• Corticosteroids (ma steroid opangidwa) `(Ma steroid opangidwa)`.
• Mankhwala ochepetsa matenda a nyamakazi (DMARDs).
• Mankhwala achilengedwe `(Biologics)`.

Kodi AOSD ndi yoopsa bwanji?

Nthawi zambiri, AOSD imakhudza kwambiri moyo wanu kuposa thanzi lanu la nthawi yayitali . Izi zikutanthauza kuti, ingayambitse kusasangalala komanso kusokoneza zochita za tsiku ndi tsiku, koma sizimavulaza thupi lanu kwa nthawi yayitali.

Komabe, anthu ena amatha kukhala ndi matenda a nyamakazi omwe amakula pang'onopang'ono komanso osachiritsika . Izi zimachitika kawirikawiri mu AOSD yosatha kuposa mitundu ina. Ngati kutupa m'mafupa anu kuli kokwanira ndipo kumatenga nthawi yayitali, kumatha kutha pang'onopang'ono. Pamene chitsulo chozungulira mafupa anu chikutha chifukwa cha kutupa, mafupa anu angayambe kusamuka. Kutupa ndi kuwonongeka kumeneku kungayambitse ziphuphu zopweteka m'mafupa anu.

Kawirikawiri, matenda otupa omwe amabwera chifukwa cha AOSD angakhudzenso ziwalo zanu zamkati, monga mtima ndi mapapo. Izi zingayambitse mavuto aakulu. Ngakhale kuti AOSD yokha singakhudze moyo wanu, matenda ena owonjezerawa nthawi zambiri sangaphe.

Kodi ndi mavuto aakulu ati omwe angachitike?

Mavuto osowa koma aakulu ndi awa:

• Matenda a mtima.
• Matenda a mtima.
• Kufalikira kwa magazi m'mitsempha yamagazi (DIC).
• Kuthamanga kwa magazi m'mitsempha ya m'mapapo.
• Kutuluka kwa madzi m'thupi.
• Matenda a m'mapapo a m'kati mwa mtima.
• Hemophagocytic lymphohistiocytosis (HLH).

Kodi AOSD ingachiritsidwe kwathunthu?

Mankhwala sangachiritse AOSD, koma angathandize kuletsa zizindikiro. Kwa anthu ena, zizindikiro zimatha kutha kwathunthu pakapita nthawi ndipo sizingabwererenso. Izi zimatchedwa kupita ku "kukhululuka," kapena matenda kukhala chete. Ngati mupita ku "kukhululuka," mutha kusiya kumwa mankhwala anu. Koma kwa anthu ena, AOSD siitha kwenikweni. Angafunike kumwa mankhwala kwamuyaya kuti athetse kutupa.

N'zovuta kunena mtundu wa matenda omwe mungayembekezere. Komabe, madokotala ena amakhulupirira kuti zizindikiro zanu zoyambirira zingakupatseni chidziwitso . Ngati muli ndi ululu ndi kutupa m'malo olumikizirana mafupa msanga, nthawi zambiri zimatha kwa nthawi yayitali.

Kodi tiyenera kudzisamalira bwanji pamene tikukhala ndi AOSD?

Anthu ambiri omwe ali ndi AOSD akhoza kukhala ndi moyo wabwinobwino ndi mankhwala oyenera . Kwa ena, nthawi zina amavutika ndi ululu wosatha komanso kutopa kosatha, zomwe zingakhudze moyo wawo watsiku ndi tsiku. Kaya zizindikiro za AOSD zikupitirira kukuvutitsani kapena ayi, mutha kukhala ndi zotsatirapo zoyipa kuchokera ku mankhwala omwe mumamwa, monga kunenepa kwambiri komanso kusintha kwa malingaliro.

Moyo ukakhala wovuta nthawi zonse chifukwa cha zinthu zomwe simungathe kuzilamulira, ndikofunikira kwambiri kusamalira thanzi lanu . Kugona bwino, kudya zakudya zopatsa thanzi, komanso kuchita masewera olimbitsa thupi nthawi zonse kungakuthandizeni kumva bwino.

AOSD ndi vuto losadziwika bwino lomwe limabwera mwadzidzidzi popanda chifukwa chodziwika. Likayamba kuchitika, mungamve kudwala kosazolowereka kwa nthawi yayitali. Zingatenge nthawi ndi khama kuti dokotala wanu adziwe zomwe zikuchitika. Mwamwayi, mukapezeka ndi matendawa, mutha kuyamba kulandira chithandizo ndikuyamba kuchira pang'onopang'ono.

Ngakhale kuti zingatenge nthawi kuti mupeze chithandizo chomwe chingakuthandizeni, anthu ambiri amatha kuthana ndi zizindikiro zawo ndikupewa mavuto akuluakulu pogwiritsa ntchito mankhwala . Kaya muli ndi AOSD kwa nthawi yayitali bwanji, dokotala wanu adzakhala mnzanu wabwino kwambiri pothana ndi vutoli.

Pomaliza, uthenga wopita nawo kunyumba

• AOSD ndi matenda otupa omwe amakhudza thupi lonse ndipo amapezeka mwa akuluakulu.
• Malungo obwerezabwereza, ziphuphu pakhungu, ndi kupweteka kwa mafupa ndi minofu ndi zizindikiro zazikulu.
• Chifukwa chenicheni cha izi sichikudziwika, koma makamaka chifukwa cha kutupa komwe kumachitika chifukwa cha kusintha kwa magwiridwe antchito a chitetezo chamthupi.
• Zingatenge nthawi kuti matenda adziwike, chifukwa zizindikiro zake zimafanana ndi matenda ena.
• Mankhwala angathandize kuchepetsa zizindikiro ndipo , kwa ena, amathanso kuchiritsa matendawa kwathunthu.
• Ndi chithandizo choyenera komanso chisamaliro chabwino, anthu ambiri amatha kukhala ndi moyo wabwinobwino.
• Ngati muli ndi zizindikiro izi, pitani kwa dokotala ndipo mupeze upangiri . Musadandaule, pali njira zothetsera mavuto onse.

Ndikukufunirani thanzi labwino!

Matenda a Adult Still, AOSD, nyamakazi, malungo, ziphuphu pakhungu, matenda odziteteza ku matenda enaake, chithandizo